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Having Some Stomach Problems Of My Own...
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I usually post here because my little girl is gluten intolerant and we have gotten much needed advice and support from such wonderful people on here.

My question today is about myself. I have been suffering for the last week from terrible stomach pains that are basically like severe menstrual cramps at times that go from my back around to my stomach. They are usually low, but sometimes higher. They seem to come and go and are worse after eating. I had a urine test done as well as a blood test and everything was ok. I had to go to the ER last night because the pain was so intense and I couln't take it anymore. I was given morphine and that made the pain go away. I was also given a prescription for another narcotic pain medication.

When this pain comes, it is so intense that I am doubled over in pain. They don't think it is my appendix and they ruled out a tubal pregnancy. I also had a pelvic ultrasound done and everything looked ok although they said I had a large amount of bowl gas. I know that gas pains can hurt, but not like this.

So, does this sound like a stomach or intestional problem? I may have to go see a GI about it if it doesn't get better. This doesn't seem gluten related to me, but I know that so many of you have had other GI things going on in addition to celiac and I was just hoping someone would see this and shed some light on it for me because it's so frustrating to have neg. test results and be in such pain.

Thank you for any advice!

Shannon

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I have the same kind of really intense pains, though mine are normally higher up, actually in my stomach. My dr called it pyloric spasm, and generally I've had to go to the er for it. I get these pains periodically and have for the last 3 years. They test for h. pylori and poke my stomach and I say ouch and then they throw narcotics at me and tell me to go home. :huh:

None of my doctors have been able to figure out what causes it. :rolleyes:

I have the lower cramping that is hugely painful too, though I take anti-spasmodics also so it doesn't bother me as much. I actually woke up in the middle of the night last night with the pains in the lower part of the bowel, hurt like a sonofabeast! It was pretty much just gas. Your bowels just might be cramping up on their own. Since nobody has been able to help me, I'm not much help to you, sorry... :(

All I can tell you is to lay flat on your back and use a heating pad, kind of like you have bad menstrual cramps, it helps.

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thank you for your response. I am still having quite a bit of pain and had a really bad night last night, so I called my dr. this morning and they got me in with a GI today! I love my family dr. They are so quick about getting appointments set.

The GI said that he thinks I have IBS or a spastic colon. He gave me some medication (anti-spasmodics) and is going to do a colonoscopy next week. Hopefully I can tolerate the pain of this for the next week. If I have IBS, what in the heck can I do for that anyway? He suggested drinking more water and eating lots of fruits and vegetables.

Anyway, just wanted to say thanks for your insight and hopefully I'll get this figured out because it is hard for me to tolerate this pain.

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Had those pains once. It hurt so much I couldn't even lay on my back. They took Xrays and found bruises on the outside of my stomach. He gave me a diet to follow...just like you would if you had ulcers. He also gave me acid reflux medicine. Felt alot better in a matter of hours.

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Keep in mind that you have a daughter who was diagnosed positive; she got her gene from one of her parents, and it could have been from YOU! So you are right to be suspicious about your own symptoms. It might be useful to test yourself to see if anything is going on.

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      G'day Chris and welcome to the forum. You have found what I think is the single best resource on the web for advice, support and understanding for this condition. There is so much info here it's difficult to know where to start, but that's what this thread is for, please check it out. I think I got the recommendation for 'Real life with Celiac Disease' by Dennis and Leffler there, I'll second that, there's a lot of very useful info in there which helps to answer a lot of your questions. May be useful for your partner also. Chapters are short and informative so you can dip in and out.  There will doubtless be more advice to come from others with more experience but there's a few things which occur. Firstly, 10 weeks is very early days. Your body has been under an assault for many, many years. Your immune system has been working overtime and like so many others you've only reached diagnosis after reaching a crisis point. You are now healing but it won't be instant and it won't be without ups and downs, speedier and slower phases.  Second, being strict on gluten is essential, but it's only one part of the puzzle. You also need to eat really healthily and try to heal your gut. As you remove gluten you may find that your body starts telling you that other foods are also an issue. Don't panic, it doesn't mean that will always be the case. But you need to approach the next 6 months as a period where you're giving your body the easiest ride possible. That may mean taking probiotics, bone broths or it could also mean avoiding dairy or other foods, at least until your body has had a chance to heal. If you think you may still be getting gluteny effects keeping a food diary, noting what you eat, when and how you feel would help to track down any further issues.  I too battled through the anxiety, had an all too brief moment of bliss as the diet kicked in, then faced a bumpier recovery period in the weeks that followed. It gets easier but it's still difficult for me from time to time. I tried to articulate some of this recently here, it's a long read but maybe some of it will strike a chord. It will get better and you will become better equipped to deal with it. If you're like me you'll find other things getting better over time that you would never have thought to connect to gluten. Now, I've been exceedlingly nice here and not mentioned the England Rugby drubbing but I can feel my self control beginning to slip. So I'll leave it there   Matt
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      Do you take digestive enzymes and probiotics? That may help. Have you met with a dietician for help figuring out how you're getting glutened?
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      Hi Everyone I am new here and wanted to see if anyone else is experiencing the same thing I am.  I was diagnosed positive for celiac in 2/2016 via biopsy from an endoscopy.  I was negative for blood work because I self-eliminated gluten 9 months prior; so I guess I had not antibodies register in my lab work.  Prior to 2/2016 I was having symptoms for almost an entire year.  Despite cutting out grains in general for 9 months, I would have a gluten attack at least once a month.  I have had a history of sinus, bronchial infection.  I remember as young as 17 getting sick but I always bounced back and was active in sports and working out.  But in the past year I developed the following symptoms - Sudden desire to pass out, nausea, headaches, heart palpitation, crashing exhaustion as if I was recuperating from the flu, wheezing in my chest. I was bounced around to an allergist at this and was told I was asthmatic and I had food sensitivities to dairy, nuts, corn or corn derivatives (including corn syrup) and grains.  so I cut everything out!  Despite cutting everything out I was still have episodes at least monthly, possibly cross contamination.  In April 2015 I traveled to the Carribean for 2 weeks,  I became very ill with a urinary tract infection, stomach bug and severe back pain with constant fever.  I was treated with antibiotics (Bactrim) for 10 days which did clear up the situation. I came home and dismissed everything to a coincidence.  Six weeks later the GI distress woke me up in the middle of night.  The pain was so excruciating that when I sat on the toilet thinking I had to go, I almost past out from the pain.  I lay myself down on the floor until it subsided.  The next day I contacted my primary and was immediately seen.  She referred me to a GI specialist but the appointment was not until August.  Then 2 weeks before my GI appointment they called and rescheduled for late September.  I saw him and by then I was feeling better; no epsides for almost 2 months.  So we did nothing.... boy did I talk to soon.  Immediately after the appointment I had an attack.  These were the symptoms: Nausea, crashing fatigue (as if I was hit with the flu), diarrhea, dizziness,, loss of appetite,  lower back pain, specifically in the middle; intestinal discomfort and body aches which lasted 10 days!! and abruptly disappeared, thank God.
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