Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Do I Have Celiac?
0

4 posts in this topic

Please forgive me if I am in the wrong place, as I am a newbie, to the very helpful forum.

Short history and testing:

Date 1955-1964

Age 12-21 chronic ulcerative colitis, blood transfusions, muscelose (sp) predinosone

Date 1964

Total colectomy, ileostomy

Date 1965

Rectal excision

Date 1965 - 1991

GOOD HEALTH

Date 1991-present

Cardiac Artery Disease numerous balloon angioplasties and stents

1993

Diabets type 2 - present undercontrol with meds

1994

Gall Bladder removal

1995 to present

Atypical TriGeminal Neuralgia now under control, treated with opiod large doses

Presently

CAT scan indicated SBO due to adhesions and twisted small bowel

Emergency exploratory surgery around Feb 2 surgery removed adhesions, a hernia

CAT scan indicates some inflamation of illium

Blood work indicates gluten/celiac?

Symptoms: now include the typical gluten sympton. Even though I am on heavy doses of

oxcontin, does this have gluten in it?

Intestinal bloating, severe abdominal cramps, can't sleep lying down very often.

bad nausea, some vomiting.

Does the above indicate gluten? The PAIN is brutal and the nausea keeps me from eating.

Can gluten cause these awfull cramp and body wasting wasting away.

I am to see my diabetes MD today. He has said to see a nutritionist.

Is there an difference between a nutritionist and nutrationalist? Which is better?

What is best for cramping?

What foods should I start with?

Will be seeing an allergist on Tuesday any specific tests he should administer?

Any advice you can give, I will be forever grateful. I am barely hanging on.

John

0

Share this post


Link to post
Share on other sites


Ads by Google:

Whoa! I sure hope you have really competenct drs. The only thing I can add is have you ever done the totally gluten free diet? Some sufferers here have reported success on a carb specific diet. I don't know the details of that one, but if you were to type diet in the search, you might find it. When I would get glutened, I found the best source of comfort was a heating pad. Basic, but it helps. Chamomile tea and ginger (like in ginger ale or let the soda go flat if you don't want the bubbles) and also peppermint are good for upset stomachs. I'm so sorry to hear of your health problems; I pray your doctors can start you on the road to good health.

Annette

0

Share this post


Link to post
Share on other sites

John, I'm so sorry for all you've had to go through. You say that your blood tests indicate Celiac--are you on the gluten-free diet yet? You should be completely gluten-free, including food, personal care products, meds, etc. What are you eating now? That would be helpful to know. When I was at my sickest, I ate Cream of Rice hot cereal. Bananas are also good for a queasy stomach. It can be hard to even eat the right things when you are nauseous, but sometimes a bit of bland food actually helps. Gluten can cause the symptoms you are having--hopefully the nutritionist is well versed on Celiac and can get you on the right dietary track. I'm glad you found us --the folks here are very kind and helpful. Please keep in touch--good luck with your appts.

0

Share this post


Link to post
Share on other sites
Whoa! I sure hope you have really competenct drs. The only thing I can add is have you ever done the totally gluten free diet? Some sufferers here have reported success on a carb specific diet. I don't know the details of that one, but if you were to type diet in the search, you might find it. When I would get glutened, I found the best source of comfort was a heating pad. Basic, but it helps. Chamomile tea and ginger (like in ginger ale or let the soda go flat if you don't want the bubbles) and also peppermint are good for upset stomachs. I'm so sorry to hear of your health problems; I pray your doctors can start you on the road to good health.

Annette

How long did it take to get things under control?

Does lactose intolerance go hand in hand with celiac?

Thanks for the tips, especially the tea and ginger ale. I do have some ginger tea, which has not helped very much. I take it coffee is a no no, even instant?

John

John, I'm so sorry for all you've had to go through. You say that your blood tests indicate Celiac--are you on the gluten-free diet yet? You should be completely gluten-free, including food, personal care products, meds, etc. What are you eating now? That would be helpful to know. When I was at my sickest, I ate Cream of Rice hot cereal. Bananas are also good for a queasy stomach. It can be hard to even eat the right things when you are nauseous, but sometimes a bit of bland food actually helps. Gluten can cause the symptoms you are having--hopefully the nutritionist is well versed on Celiac and can get you on the right dietary track. I'm glad you found us --the folks here are very kind and helpful. Please keep in touch--good luck with your appts.

I am not eating very much, losing about a pound every 2 days. I am pretty underweight right now, 6 foot 3 inches, weight is 159.

I can eat biled rice, very small portions. I have tried some banana smoothies.

Not ware of personal care products being a problem. I am using Dial Soap, Head and S Shampoo, gel shaving cream or electric razor, Aqua Fresh toothpaste.

Thanks so much for sharing ith me.

John

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,363
    • Total Posts
      920,544
  • Topics

  • Posts

    • Hi. Im currently under consultants at my hospital,  and have just been for a blood test to test for celiacs. My symptoms are.... Low weight (8stone and 5ft6tall) Joint pain,particularly my hips and lower back  Severe pain in my gall bladder area which happens spontaneously... Especially after eating foods containing gluten.  When i have foods with wheat in i pain in my  right side just under my bottom rib, i become a bit spaced out and cant focus on anything. Also get diahorrea aswell. I recently contracted C-Diff and was in hospital for 4 days very poorly. Im 29years old (female) and the doctors r trying to work out what is wrong with me. I have always struggled to gain weight,  even after having 2 children i am still only 8stone. I was just wondering if u think i could have celiacs?  The pain in my side has been on and off for 7years! And the last 3years its been severe. And it definitely comes on as soon as i have gluten/wheat.   
    • Hello we got her biopsy results back and they are normal.  The doc is calling her non celiac gluten intolerant and lactose intolerant.  Now we will just wait to see if the gluten-free diet helps her.  She does have elevated IgG to casein and wheat  I know there is controversy on whether that test is helpful or not but either way we are hoping she gets well going gluten-free    
    • My family was out camping earlier this month to our favorite lake.  They have a restaurant there we have going to for years.  Since I recently went gluten free, I was very nervous about trying out their menu.  Usually, restaurants have a select few items you can choose from that are considered "gluten-free" (i.e. Olive Garden).  However, this restaurant even had French Fries that were in a separate fryer than the rest of fry population.  I considered it a huge treat when they not only went out of their way to make sure you could get sandwiches gluten-free, but also had French fries and a dessert available.  The best part of it was I didn't get sick afterwards.  Yahoo!  Thank goodness it's 3 hours away.
    • too many of us are treated this way, unfortunately   ^^^^^  and many of us have been in the same (no quality of life!  always sick! )  situation and yes, it can be life threatening if left untreated.  so glad you're feeling better   no thanks to the almighty doctor  i have a celiac diagnosis and my g.p. (who i go to - or used to go to - for my check ups, see how my blood pressure is, vitamin levels, etc.  normal maintenance, you know) tried to give me viberzi!!  for my ibs-d !!  what???  i have celiac.  i was furious!!  (i'm still pretty upset)   o, the good news was that he gave me a coupon for the first month.  after that, it's THIRTY DOLLARS A MONTH.   not to mention all the lovely side effects (one of them was diarrhea!!)   no, thanks, buddy....   anyways, rant over lolz - welcome to the forum!
    • Those numbers are all perfect meaning they show you likely don't have celiac.  Those tests are very accurate IF you are eating a normal diet of gluten.  You must be eating gluten for weeks prior to this testing.  So if you have not been then yes these results are not accurate.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,437
    • Most Online
      1,763

    Newest Member
    Laurabella
    Joined