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Do I Have Celiac?
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4 posts in this topic

Please forgive me if I am in the wrong place, as I am a newbie, to the very helpful forum.

Short history and testing:

Date 1955-1964

Age 12-21 chronic ulcerative colitis, blood transfusions, muscelose (sp) predinosone

Date 1964

Total colectomy, ileostomy

Date 1965

Rectal excision

Date 1965 - 1991

GOOD HEALTH

Date 1991-present

Cardiac Artery Disease numerous balloon angioplasties and stents

1993

Diabets type 2 - present undercontrol with meds

1994

Gall Bladder removal

1995 to present

Atypical TriGeminal Neuralgia now under control, treated with opiod large doses

Presently

CAT scan indicated SBO due to adhesions and twisted small bowel

Emergency exploratory surgery around Feb 2 surgery removed adhesions, a hernia

CAT scan indicates some inflamation of illium

Blood work indicates gluten/celiac?

Symptoms: now include the typical gluten sympton. Even though I am on heavy doses of

oxcontin, does this have gluten in it?

Intestinal bloating, severe abdominal cramps, can't sleep lying down very often.

bad nausea, some vomiting.

Does the above indicate gluten? The PAIN is brutal and the nausea keeps me from eating.

Can gluten cause these awfull cramp and body wasting wasting away.

I am to see my diabetes MD today. He has said to see a nutritionist.

Is there an difference between a nutritionist and nutrationalist? Which is better?

What is best for cramping?

What foods should I start with?

Will be seeing an allergist on Tuesday any specific tests he should administer?

Any advice you can give, I will be forever grateful. I am barely hanging on.

John

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Whoa! I sure hope you have really competenct drs. The only thing I can add is have you ever done the totally gluten free diet? Some sufferers here have reported success on a carb specific diet. I don't know the details of that one, but if you were to type diet in the search, you might find it. When I would get glutened, I found the best source of comfort was a heating pad. Basic, but it helps. Chamomile tea and ginger (like in ginger ale or let the soda go flat if you don't want the bubbles) and also peppermint are good for upset stomachs. I'm so sorry to hear of your health problems; I pray your doctors can start you on the road to good health.

Annette

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John, I'm so sorry for all you've had to go through. You say that your blood tests indicate Celiac--are you on the gluten-free diet yet? You should be completely gluten-free, including food, personal care products, meds, etc. What are you eating now? That would be helpful to know. When I was at my sickest, I ate Cream of Rice hot cereal. Bananas are also good for a queasy stomach. It can be hard to even eat the right things when you are nauseous, but sometimes a bit of bland food actually helps. Gluten can cause the symptoms you are having--hopefully the nutritionist is well versed on Celiac and can get you on the right dietary track. I'm glad you found us --the folks here are very kind and helpful. Please keep in touch--good luck with your appts.

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Whoa! I sure hope you have really competenct drs. The only thing I can add is have you ever done the totally gluten free diet? Some sufferers here have reported success on a carb specific diet. I don't know the details of that one, but if you were to type diet in the search, you might find it. When I would get glutened, I found the best source of comfort was a heating pad. Basic, but it helps. Chamomile tea and ginger (like in ginger ale or let the soda go flat if you don't want the bubbles) and also peppermint are good for upset stomachs. I'm so sorry to hear of your health problems; I pray your doctors can start you on the road to good health.

Annette

How long did it take to get things under control?

Does lactose intolerance go hand in hand with celiac?

Thanks for the tips, especially the tea and ginger ale. I do have some ginger tea, which has not helped very much. I take it coffee is a no no, even instant?

John

John, I'm so sorry for all you've had to go through. You say that your blood tests indicate Celiac--are you on the gluten-free diet yet? You should be completely gluten-free, including food, personal care products, meds, etc. What are you eating now? That would be helpful to know. When I was at my sickest, I ate Cream of Rice hot cereal. Bananas are also good for a queasy stomach. It can be hard to even eat the right things when you are nauseous, but sometimes a bit of bland food actually helps. Gluten can cause the symptoms you are having--hopefully the nutritionist is well versed on Celiac and can get you on the right dietary track. I'm glad you found us --the folks here are very kind and helpful. Please keep in touch--good luck with your appts.

I am not eating very much, losing about a pound every 2 days. I am pretty underweight right now, 6 foot 3 inches, weight is 159.

I can eat biled rice, very small portions. I have tried some banana smoothies.

Not ware of personal care products being a problem. I am using Dial Soap, Head and S Shampoo, gel shaving cream or electric razor, Aqua Fresh toothpaste.

Thanks so much for sharing ith me.

John

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