Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Do I Have Celiac?
0

4 posts in this topic

Please forgive me if I am in the wrong place, as I am a newbie, to the very helpful forum.

Short history and testing:

Date 1955-1964

Age 12-21 chronic ulcerative colitis, blood transfusions, muscelose (sp) predinosone

Date 1964

Total colectomy, ileostomy

Date 1965

Rectal excision

Date 1965 - 1991

GOOD HEALTH

Date 1991-present

Cardiac Artery Disease numerous balloon angioplasties and stents

1993

Diabets type 2 - present undercontrol with meds

1994

Gall Bladder removal

1995 to present

Atypical TriGeminal Neuralgia now under control, treated with opiod large doses

Presently

CAT scan indicated SBO due to adhesions and twisted small bowel

Emergency exploratory surgery around Feb 2 surgery removed adhesions, a hernia

CAT scan indicates some inflamation of illium

Blood work indicates gluten/celiac?

Symptoms: now include the typical gluten sympton. Even though I am on heavy doses of

oxcontin, does this have gluten in it?

Intestinal bloating, severe abdominal cramps, can't sleep lying down very often.

bad nausea, some vomiting.

Does the above indicate gluten? The PAIN is brutal and the nausea keeps me from eating.

Can gluten cause these awfull cramp and body wasting wasting away.

I am to see my diabetes MD today. He has said to see a nutritionist.

Is there an difference between a nutritionist and nutrationalist? Which is better?

What is best for cramping?

What foods should I start with?

Will be seeing an allergist on Tuesday any specific tests he should administer?

Any advice you can give, I will be forever grateful. I am barely hanging on.

John

0

Share this post


Link to post
Share on other sites


Ads by Google:

Whoa! I sure hope you have really competenct drs. The only thing I can add is have you ever done the totally gluten free diet? Some sufferers here have reported success on a carb specific diet. I don't know the details of that one, but if you were to type diet in the search, you might find it. When I would get glutened, I found the best source of comfort was a heating pad. Basic, but it helps. Chamomile tea and ginger (like in ginger ale or let the soda go flat if you don't want the bubbles) and also peppermint are good for upset stomachs. I'm so sorry to hear of your health problems; I pray your doctors can start you on the road to good health.

Annette

0

Share this post


Link to post
Share on other sites

John, I'm so sorry for all you've had to go through. You say that your blood tests indicate Celiac--are you on the gluten-free diet yet? You should be completely gluten-free, including food, personal care products, meds, etc. What are you eating now? That would be helpful to know. When I was at my sickest, I ate Cream of Rice hot cereal. Bananas are also good for a queasy stomach. It can be hard to even eat the right things when you are nauseous, but sometimes a bit of bland food actually helps. Gluten can cause the symptoms you are having--hopefully the nutritionist is well versed on Celiac and can get you on the right dietary track. I'm glad you found us --the folks here are very kind and helpful. Please keep in touch--good luck with your appts.

0

Share this post


Link to post
Share on other sites
Whoa! I sure hope you have really competenct drs. The only thing I can add is have you ever done the totally gluten free diet? Some sufferers here have reported success on a carb specific diet. I don't know the details of that one, but if you were to type diet in the search, you might find it. When I would get glutened, I found the best source of comfort was a heating pad. Basic, but it helps. Chamomile tea and ginger (like in ginger ale or let the soda go flat if you don't want the bubbles) and also peppermint are good for upset stomachs. I'm so sorry to hear of your health problems; I pray your doctors can start you on the road to good health.

Annette

How long did it take to get things under control?

Does lactose intolerance go hand in hand with celiac?

Thanks for the tips, especially the tea and ginger ale. I do have some ginger tea, which has not helped very much. I take it coffee is a no no, even instant?

John

John, I'm so sorry for all you've had to go through. You say that your blood tests indicate Celiac--are you on the gluten-free diet yet? You should be completely gluten-free, including food, personal care products, meds, etc. What are you eating now? That would be helpful to know. When I was at my sickest, I ate Cream of Rice hot cereal. Bananas are also good for a queasy stomach. It can be hard to even eat the right things when you are nauseous, but sometimes a bit of bland food actually helps. Gluten can cause the symptoms you are having--hopefully the nutritionist is well versed on Celiac and can get you on the right dietary track. I'm glad you found us --the folks here are very kind and helpful. Please keep in touch--good luck with your appts.

I am not eating very much, losing about a pound every 2 days. I am pretty underweight right now, 6 foot 3 inches, weight is 159.

I can eat biled rice, very small portions. I have tried some banana smoothies.

Not ware of personal care products being a problem. I am using Dial Soap, Head and S Shampoo, gel shaving cream or electric razor, Aqua Fresh toothpaste.

Thanks so much for sharing ith me.

John

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,667
    • Total Posts
      921,670
  • Topics

  • Posts

    • Marip, Have you been diagnosed with celiac disease or Non-celiac Gluten Intolerance?  I notice you joined in 2014.  Did you ever go guten free?  How can we help?   Sorry, I'm not a stool expert!  You could Google it...  Malabsorption?  Standard lab tests that check for anemia and vitamin deficiencies, etc.  should help make that diagnosis.  
    • You can eat just a slice or two (or equivalent) of bread a day for accurate testing.   I understand about the high deductibles.  We're self-employed and we pay for our health insurance. 
    • Sure, if it's gluten free, then fine.  I am very allergic (like anaphylactic) to ibuprofen and aspirin.  So, in my case, I would just tough it out.  Go to bed.  Sleep it off.....eventually. My money is on the garlic and onions.  I can't consume those either (damn that zonulin/leaky gut -- google it along with Dr. Fasano).  I just season with salt, pepper.  Boring.  But no gut issues.  I'm hoping like my lactose intolerance (resolved), that I will get garlic and onions back.   Finally, sometimes just eating anything can hurt when you still have intestinal damage.  Hopefully, you'll feel better in two or three hours if it's celiac related.  Longer if it's an intolerance (leaky gut thing....) Hugs!      
    • I read on their website that all Advil is gluten free, I had such bad pinching cramping today(which I don't why since I prepared all my food at home today.) I made a pot roast, salt garlic, onions...No gluten but still pain, That's the only thing I ate today..I don't eat breakfast or anything.   Anyways.   Is it a good idea to take Advil for the cramping? That's how I would describe it like someone is reaching inside me and pinching me and twisting my insides.    This is what I took  
    • I'll give my PCP a call tomorrow and see what they can offer. My only worry is the expense as anymore tests will put me behind in being able to afford to see the GI. I have high deductible insurance but get money put into my HSA. I'm still trying to pay off the CT scan though. Which is why I'm trying to pick and choose which poses the greatest risk for me right now and what can wait. (Though I would prefer not to wait on any of it.)

      I really do hope its only IBS. Though I always worry IBS is more or less a doctors way of saying "I have no clue" at that point. :C

      Again, I'll be sure to give my PCP a call tomorrow then and see what the options are. I can feel a lot better trying the blood work first. however, once that is done, do I still need to be on a gluten diet before the endoscopy? Also, is it ok if I still mildly reduce the gluten. As in, can I avoid a whole wheat pasta dinner, but still be eating the peanut butter crackers? That sort of thing. Again I guess that is more of a doctor related question. I just wasn't sure if in order to raise your chance, you have to mass consume gluten or not. (Its already in just about everything to begin with.)   --Edit--
      I just now reread the part that you still need to be on the gluten foods even for biopsy so I'll be sure to do that too.
       
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,666
    • Most Online
      3,093

    Newest Member
    epalmer9
    Joined