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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Hello Everyone
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3 posts in this topic

Hello Everyone,

My name is Holly. I just found out very recently that I do have Celiac Disease. If anyone has any suggestions about getting started on the new diet, I would appreciate it if you could try to get back to me. I had no symptoms, but I am kind of on the short side. My doctor thought it was strange because both of my parents are tall. Anyways, if anybody could get back to me, I'll appreciate it again.

Thanks,

Holly :)

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How old are you? I am 13, I don't really know much about starting the diet because I was diagnosed before I was 2 so I don't really remember what i went through because well I don't know what it was like. My name is Molly and if you have any questions you can e-mail me, my e-mail is flagbabyds@aol.com and i use that for IM as well ;)

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I am 13, and I started out by following my diet as best as I could and it seemed really easy at first. But for me it just got harder for the first year. And when I was diginosed my parents thought that it was best for me not to know that if I cheated too much I would get cancer. I was at really high risk then and I have changed. I was diginosed when I was 10 and I was just starting fifth grade and it was very hard to go into the school year knowing that you are different than everybody else and have people wonder what is wrong with that girl. I have a lot of topics started that gets into a lot of stuff like that. But I think that the diet is just a new life style and really easy to adapt to physcally but it was really hard for me mentally. :( So good luck and I hope I was helpful to you.

-Tiffany

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    • In Dire Need Of Help
      Alex the good news is you have found a great site with useful information and warm support! You need to work with your doctor to get a diagnosis but there are plenty here who have had similar experiences: http://www.celiac.com/gluten-free/search/?&q=panic%20attack so it sounds like your on the right lines   Take heart that you have probably found the cause now rather than later.  Follow CyclingLady's excellent advice above and go for celiac screening asap. For tests to work you need to be eating gluten for some time. That is a scary prospect when you've finally experienced some relief but it's for a limited time period, you can get support here along the way and if you choose to you can go gluten-free at the end and get relief whatever the results.  Once you're done testing and off the gluten you will be in a much better position to nail the lifestyle. That may mean some pre-planning, maybe taking a backpack with some gluten-free snacks with you, at least until you find the places you can reliably eat at. There are apps and sites that can help and probably local support groups in NYC as well: https://www.google.co.uk/?ion=1&espv=2#q=new%20york%20gluten%20free%20restaurants With research you'll also get to know what fast food options are viable, what readily available candy bars are ok etc. I can eat Mcdonalds fries for instance, which can come in handy if I'm away from my kitchen or supplies. Most starbucks or equivalents will have at least a gluten-free snack bar. So although a pain in the arse, it's doable and the health payoffs MORE than make up for the hassle.  Good luck! 
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