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Gluten Stomach Pain Only After Going gluten-free?


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19 replies to this topic

#1 acousticmom

 
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Posted 25 February 2006 - 07:04 AM

My 9-year old daughter had a negative blood test for celiac, but a few other health concerns that make me want to try her on a gluten-free diet to see if it helps.

I've given her a week of transition before going gluten-free, so she can get used to reading labels, spotting gluten-containing foods, etc. Even though I haven't made her be 100% yet, I think she has been for the week after Valentine's day. Then she went to the kids' program at church and ate a Twix bar (the prize when her team won a race), and later that night she had a really painful stomach ache and some D. It looked suspiciously like her celiac brother's horrible stomach aches (pre-gluten-free), but she's never had stomach trouble before, and her blood tests were negative for celiac. And this didn't really look like flu, either. I know after you learn a bunch about gluten intolerance you begin to suspect everything is gluten-related, but this has me scratching my head.

Has anyone developed the gluten stomach aches only AFTER going gluten-free?

Carol
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Gluten-free Casein-free and brainfog-free since 1/06. Yeeeeeha!
Allergic to casein, intolerant to eggs.
Eliminating sugars and most starches (even the gluten-free ones) has made me feel like myself again after many years.
14-year old son diagnosed with biopsy 12/05, gluten-free since 1/06.

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#2 Carriefaith

 
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Posted 25 February 2006 - 07:09 AM

I now get severe stomach pain after going gluten-free. The pain gets so bad that I cannot move and breathing hurts. I don't get the pain all the time after an accient but I will get the pain once in a while after an accident. I never used to get pain like that before the gluten-free diet. Which blood test did she have done?
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Carrie Faith

Diagnosed with Celiac Disease in March 2004
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#3 Guest_nini_*

 
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Posted 25 February 2006 - 07:31 AM

I have heard of quite a few people that didn't really have any "noticeable" symptoms prior to their dx, and were dx'ed because of a family member that had it and they were being screened... and then after going gluten-free, even after only a week, getting severe bloating, gas, stomach pain and even diarrhea. Then, after being completely gluten free for a while they start to notice that all the other little odd things that they just chalked up to minor inconveniences, were actually symptoms, and the longer they are gluten free, the more symptoms dissappear.

With first degree relatives, the odds of having celiac increase over the rest of the population. I forget what the actual percentage is, but with the increased risk, I think all first degree relatives of dx'ed celiacs need to be gluten free. If they go gluten free BEFORE developing full blown celiac, it could help prevent serious health complications that so many of us have to live with because we went undiagnosed for so long... the body has an incredible ability to heal, but not if we've damaged it beyond the point of no return.

I am still angry at the health problems that I continue to deal with because I went undiagnosed (WITH OBVIOUS SYMPTOMS) for 33 years. I was a CLASSIC celiac as a child, very skinny with bloated belly, projectile vomiting and chronic diarrhea and an obviously compromised immune system.

IF I had been correctly dx'ed when I was little, and my sister had been screened, would my sister NOW be dealing with digestive issues, severe excema and depression, and would her kids be dealing with asthma and hives and being sickly all the time? Don't know, never will know now. Now that my sister is older and set in her ways, she refuses to be tested, or even consider testing her kids... I'm willing to bet that they all are at the very least gluten intolerant and that their health issues will go away if they went gluten-free.
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#4 Rusla

 
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Posted 25 February 2006 - 10:07 AM

My burning stomach and other pains before going gluten-free were there just I had gotten used to them. Now if I get glutened by accident they feel worse than they were before.
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Rusla

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#5 jerseyangel

 
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Posted 25 February 2006 - 10:18 AM

Yes--I get stomach pain now when I have a gluten reaction. It's an actual pain right across the stomach area. Now, I can tell if it's gluten if I get the pain. Before being gluten-free, I had cramping and nausea, but not the pain. Now, I get all 3 :angry:
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#6 elfkin

 
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Posted 25 February 2006 - 10:48 AM

Ditto here for my six year old who is now gluten-free. She got a BAD stomach ache after eating out with her Grandma the other day. (She thought she ordered gluten-free, but I don't even let her brother eat out anymore because of how sick he gets all the time!) We assumed that she had gluten contamination. It was classic gluten symptoms like her brother gets when he gets glutened. She has only been gluten-free since Jan.
I heard somewhere that once you are gluten-free that your tolerance for it changes and you feel it more when you are glutened. I don't know why or how or where I read that?
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#7 jenvan

 
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Posted 26 February 2006 - 05:57 AM

Yes! I developed a new kind of abdominal pain post gluten-free. It lasted for the first 5 mos or so. I was investigate for gall bladder, pancreas issues etc. My doctor thought I might have spincter of oddi dysfunction, but I said I would hold out on the procedure to investigate it and see if the pain diminished. It did eventually, and we never figured out the cause. I even kept a food/pain journal and found no real correlation to a food. Pain from inflammation, adjusting to diet, my system-pancreas kicking back into gear, new food allergies revealing themselves? Maybe I'll know one day....
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#8 acousticmom

 
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Posted 26 February 2006 - 07:42 PM

Which blood test did she have done?


She had ttG (<3), IgA (<3), and immunoglobulin A (low-normal). I wish the tests were more specific. If "<3" means 2, for example, wouldn't that still be a problem? Oh well. I have the distinct impression that whenever I ask the doctors for more specifics, they think I'm overreacting and being paranoid. So we'll see what happens with the diet and go from there.

Carol
  • 0
Gluten-free Casein-free and brainfog-free since 1/06. Yeeeeeha!
Allergic to casein, intolerant to eggs.
Eliminating sugars and most starches (even the gluten-free ones) has made me feel like myself again after many years.
14-year old son diagnosed with biopsy 12/05, gluten-free since 1/06.

#9 DingoGirl

 
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Posted 26 February 2006 - 08:55 PM

It is odd.....I never had stomach pain at all, just intestinal issues I attributed to nerves and medication. Now, five weeks gluten-free and 3 times, after accidentally ingesting, I am in SEVERE distress for a couple of days, with major D and really pronounced abdominal pain. It's no fun at all! :blink:
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#10 skinnyasparagus

 
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Posted 06 February 2008 - 02:36 PM

Oh! This actually correlates to my sort of pain. I suffered from discomfort before going gluten free but then when I encountered cross contaimination, the pain literally floored me and I was in tears. After an hour or so it subsided..

I think it makes sense: once your my body becomes accustomed to a gluten free diet that once reintroduced, like elfkin said, it triggers a major reaction.

It's kind of similar to being vegetarian and then trying to start eating meat again; your body becomes used to only digesting vegetables and the more gentle food items that if you attempt to digest harsher proteins, like chicken or fish, your body will reject it.

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#11 Becci

 
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Posted 17 July 2009 - 09:52 AM

I just got glutenized for the first time really bad. I have had a few accidental crumbs and such, but I got my first real bought of it.

It was three days ago.
Today is the worst day yet.

And I am getting a horrible pain across my stomach all of a sudden. I can barely walk (from weakness, and dizziness) and now I am getting this pain...
I never had it before going gluten-free, and I had symptoms for two years.
I guess it is from not eating it, and once you do, the symptoms take a multiple effect.

I am glad to know its normal, terrible to know it might happen again though.

This forum has helped me so much!

((Has anyone ever had symptoms get worse on the third day? Is this normal??? Usually the first and second days are the worst for me. But, like I said... this is the first bad bought of it I have had. So, is it getting worse for a few days normal?)) Please send me a message and let me know.

THANKS!
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[becci]

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#12 AshleyL

 
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Posted 14 September 2009 - 11:54 AM

I have only been gluten free for a week now and this morning I ate some licorice without thinking (contains wheat flour apparently) Well, within a half hour I was in terrible pain and in the washroom sweating. Definitely a quick response to gluten!
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#13 whataride

 
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Posted 12 October 2010 - 03:33 PM

Yes! I developed a new kind of abdominal pain post gluten-free. It lasted for the first 5 mos or so. I was investigate for gall bladder, pancreas issues etc. My doctor thought I might have spincter of oddi dysfunction, but I said I would hold out on the procedure to investigate it and see if the pain diminished. It did eventually, and we never figured out the cause. I even kept a food/pain journal and found no real correlation to a food. Pain from inflammation, adjusting to diet, my system-pancreas kicking back into gear, new food allergies revealing themselves? Maybe I'll know one day....


Did you ever figure out what caused the abdominal pain post gluten-free? After only two weeks of being gluten free and feeling great, my wife started to get really bad pain in her abdomen, sides and back. She's had the pain now for two months and she's been tested for gallstones, kidney stones and more.
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#14 Dixiebell

 
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Posted 13 October 2010 - 08:40 AM

Someone with more experience can probably give you more information on why this happens.
It is possible your wife is getting cross contaimination either from processed foods, plastic or wood cutting boards and utensils, toaster, old nonstick cookware and if you are not gluten free also, she could get it from kissing you if you haven't brushed and rinsed well. Does she have her own peanut butter, mayo, jams or are they shared with gluten eaters?
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Started on this journey w/ my 9 yr old son after a bout w/ the flu in the fall of 2009.
2 neg celiac blood tests, mine was also neg. No endo done. Son had x-ray, showing severe constipation. Son has latex allergy. KP for both of us.
Long family history of bowel problems, auto-immune and all sorts of cancers. My G-mother informed me that she was put on a gluten free diet after she had my mom (1950's), of course she stopped when she felt better. She has had problems ever since I can remember.
So here we are! I do have my son's Dr to thank for even bringing up celiac! Thank You Dr.B!
My adult daughter also has been helped by eating gluten-free.

#15 glutenfreemamax2

 
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Posted 17 October 2010 - 03:27 PM

Someone with more experience can probably give you more information on why this happens.
It is possible your wife is getting cross contaimination either from processed foods, plastic or wood cutting boards and utensils, toaster, old nonstick cookware and if you are not gluten free also, she could get it from kissing you if you haven't brushed and rinsed well. Does she have her own peanut butter, mayo, jams or are they shared with gluten eaters?


I had this exact same thing. Turns out it was dairy. I was eating gluten-free cheese and stuff. I stay away from cheese and dairy, and i'm fine. Today I had ice cream. I was doubled over. Maybe it's dairy? I read a couple places that a lot of people who have a problem with gluten have a problem with dairy.
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10 pounds and 15 inches off so far!




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