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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Gluten Free On The Road?
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4 posts in this topic

Hey guys-I'm kinda new at this (gluten-free for a year now)-I am getting ready to move to Denver to race for a mountain bike team out there and I need RELIABLY gluten free meals/snacks to take with me to races. So far I've been living off turkey sandwiches, but the thought of eating those all summer makes me lose my appetite. I seem to be sensitive to most "gluten-free" cereals on the market-I'm trying to stick to stuff from dedicated facilities right now (I can't race, much less even look at my bike for at least a week after having reactions, and it makes me nervous to eat stuff I'm unsure about). I need loads of energy (who doesn't though, right?), but I'm getting frustrated trying to find stuff that I can pack on longer trips and weekend hotel stays. Any suggestions? <_<

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Hey, I'm a biker too. I pack a lot of food bars around with me. At trader joes here and some other health food stores they have bars called "vegan" that are gluten-free and I live off them. Here's the gluten-free bars they have posted here:

Dr. Atkins - Diet Bars

Essential Bars - Chocolate and the Fruit and Yogurt

Gary Null & Assoc. - Fruit and Fiber Energy Bar

Granola Bars from Trader Joe's

NuBasics - Complete Nutrition Bar and the Mocha Berry

I think there's some speciality gluten-free companies that sell bars too. That's what I'd recomend for fast food. Good luck with your race!!

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Hi Natorious,

You might consider getting a backpacking stove to have with you all the time to cook meals (I use a Nova multi-fuel stove). Also a hot plate for inside the hotel rooms. MSR makes some really good stainless pots, pans, bowls, and plates. Stainless is the best for people with celiac disease, because if you accidentally make a mistake and cook some gluten, you do not have to throw out the pan, because it is non-porous. Do NOT use non-stick Teflon.

Brown rice (do not use instant) is a great energy food. It metabolizes slowly for even energy, and sticks with you for a long time. Combine it with some sardines or canned salmon (I use no salt added), canned vegetables (I use no salt added), and some fruit for a travel meal. This is food for NON-refrigeration travel. If you can travel with refrigeration you can use fresh foods instead of canned (it

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I'm borderline hypoglycemic, and am away from home often enough, that I was running into this problem on occasion. I pack lots of homemade trail mix (fruits and nuts! good energy source), but just this past weekend got myself a dehydrator so I can make my own "bar food". I got smacked with contamination too many times, so I'm making it all at home from now on.

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    • celiac disease is psychosomatic
      If you don't get the diagnosis you are happy with go to another doc.  Try to find a Celiac Friendly doc.  OR you can do what i did and give up and just go gluten free.  I didn't need a doctor to confirm that if my gas, bloating, migraines, depression, joint pain, rash, dry skin and brittle nails went away when i went gluten free that i must have celiac.  AND 6 months after i went gluten free on my own i had some blood tests repeated that i had done when they were trying to figure out what was causing my severe rash, all the things that were "wrong" with me or abnormal in the the first blood tests, went to normal on the second test.  INCLUDING MY THYROID LEVELS! Oh, i didn't mention that during this time they diagnosed me with early hashimotos.. 6 months later i was miraculously cured from this progressive thyroid disorder according to the blood test results.  I didn't have hashimotos to put it bluntly.   I am almost 10 years gluten free with no positive Celiac diagnosis.  But let me tell you this,  My daughter's neurologist did a DNA test on her 1 year after she too went gluten free and it came back positive for Celiac.  so.  js.     That's my story..  in short.
    • celiac disease is psychosomatic
      Were you officially diagnosed with Celiac Disease at the time she wrote that?  And, if so, for how long were you diagnosed & gluten-free but still complaining of those symptoms?
    • Weird Reaction
      Hi Richie By the sounds of it you could have gluten sneaking in somewhere, or maybe blood sugar issues,  or just plain anxiety, but it would be good to know for sure so you know what to do next. I think maybe the best course of action would be to see your GP and  tell him/her all your symptoms.  Book a double appointment as we say in the UK (but that isn't always possible!)  I dread seeing my own GP because as lovely as she is she is very fond of sending me for blood tests (which always seem to include liver function, thyroid and full blood count) which for someone with health anxiety isn't the recipe for a peaceful night's sleep!  But she is right, those particular blood tests, and others, can hold important clues when one has a lot of vague symptoms.   Celiac testing is of course another set of tests, which Flowerqueen has described well above.    If you do have all these tests and anxiety continues to be a problem, whether caused by by celiac disease, another medical condition or just being a stand alone problem, one book that I would recommend that really helped me understand the condition is 'At Last a Life' by  Paul David. I found it an immensely helpful tool in my recovery.   There is also a website. http://anxietynomore.co.uk/   Keep us posted Cristiana      
    • celiac disease is psychosomatic
      Unfortunately I feel this may be common.  For 6 years I was told I was fine.  Lungs fine, chest fine, just anxiety.  It was not until I pressed the anemia issue that I got a blood test.  Now I am a bit of a squeaky wheel to my doctor.  She referred me to Mayo Clinic in Rochester MN which has a celiac center.  I will meet with Dr. Murray (who is a leader in celiac research) next Friday.  If nothing else, you could always come to Mayo Clinic.
    • celiac disease is psychosomatic
      I read a summary report a doctor wrote about me. I thought doctors were more knowledgeable about celiac disease these days, but I guess not. The doctor diagnosed me with psychosomatic disorder when I told her the symptoms (including anxiety since the intestines regulate this) I had from years of undiagnosed celiac disease that affected my ablity to function. Please let me know if you had any disabling symptoms. I have heard stories of how others felt like they were dying. I felt the same way. I didn't mention that I felt like I was dying to my doctor, though. I just can't believe she thought my symptoms from celiac disease were all in my head like celiac disease isn't a real disease.
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