Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Gluten-free Newbie
0

5 posts in this topic

Hi! I just discovered this site and am hoping to learn a lot from all of you. Although I haven't been tested for gluten Intolerance I am discovering on my own that I am better off physically if I stay away from these particular foods. I am 54yrs of age and have been suffering with degenerative disc disease in my upper spine (neck/shoulder) for many years. I've been in chronic pain until last summer when I began the South Beach Diet. During the 2 weeks that I did Phase 1 of the diet I suddenly was no longer in any pain! I was amazed! Then when I started Phase 2, which obviously, was adding back some gluten contained foods, my pain began once again. Up until recently it's been difficult for me to figure out what contained gluten and what didn't. I have no plan to get tested as I have lost faith in the medical profession and figure I am better off just taking my problem into my own hands and doing what I feel works rather than taking a bunch of prescription pain meds which don't work well to begin with. I've recently been to my local library where I found some useful information along with some interesting cookbooks. If any of you have a good gluten-free cookbook that you really like I would appreciate knowing about it. Looking forward to chatting here with you all :)

Linda from NJ

0

Share this post


Link to post
Share on other sites


Ads by Google:

Welcome to the board. I'm glad you've found something that makes you feel better. You'll find a lot of useful advice - and recipes ;-) - on the board.

0

Share this post


Link to post
Share on other sites

Hi Linda

welcome to the group. You will find and learn probably more than you ever wanted to know from this group.I am ever so grateful to find this group as I have learned tons of info. Smart group --- brighter than most doctors regarding celiacs!!!

I'm from Pa and just a tad older than you!!!!!

good luck

mamaw

0

Share this post


Link to post
Share on other sites

Hi Linda,

Welcome. I just joined recently too, after finding out my brother had celiac's and discussing similarities in our symtoms, I went searching for answers my doctor wasn't able to provide, that is how I found this forum. I am in the process of being tested, and will then have my son tested as well. After that, we will all go gluten free as well, regardless. (I went gluten free for a week and started to feel a world of difference - I suffer from arthritis in my back as well, two lumbar vertibrea have already calcified - and I am only 41 :o )

You will find lots and lots of encouragement here, as well as a whole group of people who know exactly how you feel!

0

Share this post


Link to post
Share on other sites

:DThank you all for your kind words and gracious welcome. It's so great to be able to correspond with others who have similar problems and have been gluten free for a while. Hopefully through these forums I may be able to keep a positive outlook on life :unsure:

Thanks again............Linda/NJ

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,352
    • Total Posts
      920,502
  • Topics

  • Posts

    • This is EXACTLY what happens to me. It has twice now and both times was after both glutening episodes but once it was the day after and the other time it was a week and a half. So I'm still not sure if it's related or strange bug bites...

      Did they stop happening when she stopped being glutened? Did you decide they were definitely related? I'm really confused by this and would love to know whether to insecticide my house or....
    • Thankyou both! I was wondering if my high levels left much doubt on the diagnosis. I don't see the GI until the 15th Sep and I don't think I can stand to eat gluten in that time. If he tells me to I will do so after then. After 25 years of symptoms I don't think there is much chance of healing my bowel In a couple of weeks. I'm actually terrified of the damage they might find. But I think I will need the endo since there may be other things going on with me. So great they didn't put your son through the biopsy! Once I have a formal diagnosis I have my kids to worry about also. I can't even stand the thought of my daughter having a blood test. I think she would need to be sedated as she is so fearful and pain sensitive. My son is not yet 2 so I don't think they will test him. I'm feeling so off at the moment. I think I have some anxiety and reflux going on complicating things quite a bit.
    • My son's antibodies were 300. Based on his extremely high levels, his pediatric GI suggested genetic testing instead of the biopsy. Genetic testing can't diagnose celiac on its own but combined with such high levels, the gi dr was confident a positive genetic test would confidently diagnose celiac. He warned that biopsies are small snapshots of the intestine and can miss damage. He said this is an approach used very often in Europe but not as much in the US. What sold me on that approach was the ability to put my son directly on a gluten free diet instead of waiting three weeks for the biopsy, during which time he would continue to eat gluten and feel terrible. I'm not sure if this is more common with younger patients though (our son is two), based on the idea that he's had less time to inflict damage that would show in a biopsy? We are very happy that we immediately started the gluten free diet and chose the genetic testing. Our son got the proper diagnosis and his recent number shows a drop to 71 after only 4.5 months gluten free! Not sure if this helps. Good luck and I hope you feel better soon!
    • We have been off gluten for a while now, and symptoms return when I've allowed gluten full meals… so something still isn't sitting right with me.  Checking with her doc about seeing a pediactric GI although I'm not sure how long that will take since we live in small town America. I know she didn't get at least one of the recommended full panel tests but maybe two, can someone help clarify, or is she missing two? DGP for sure and possibly EMA? And if I understand what I'm reading in other posts that the DGP can be more accurate? Thanks Her blood panel results: Ttg ab iga <.5u/ml ttg igg <.8u/ml aga ab iga <.2 u/ml aga an igg <.7u/ml iga 61mg/dL  
    • I was tested for the full panel, I believe. I had normal values for t-transglutaminase (ttg) igg,t-transglutaminase (ttg) iga, deamidated gliadin abs igg, deamidated gliadin abs iga, and immunoglobulin a qn serum.  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,416
    • Most Online
      1,763

    Newest Member
    djs2117
    Joined