Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Gluten-free Newbie
0

5 posts in this topic

Hi! I just discovered this site and am hoping to learn a lot from all of you. Although I haven't been tested for gluten Intolerance I am discovering on my own that I am better off physically if I stay away from these particular foods. I am 54yrs of age and have been suffering with degenerative disc disease in my upper spine (neck/shoulder) for many years. I've been in chronic pain until last summer when I began the South Beach Diet. During the 2 weeks that I did Phase 1 of the diet I suddenly was no longer in any pain! I was amazed! Then when I started Phase 2, which obviously, was adding back some gluten contained foods, my pain began once again. Up until recently it's been difficult for me to figure out what contained gluten and what didn't. I have no plan to get tested as I have lost faith in the medical profession and figure I am better off just taking my problem into my own hands and doing what I feel works rather than taking a bunch of prescription pain meds which don't work well to begin with. I've recently been to my local library where I found some useful information along with some interesting cookbooks. If any of you have a good gluten-free cookbook that you really like I would appreciate knowing about it. Looking forward to chatting here with you all :)

Linda from NJ

0

Share this post


Link to post
Share on other sites


Ads by Google:

Welcome to the board. I'm glad you've found something that makes you feel better. You'll find a lot of useful advice - and recipes ;-) - on the board.

0

Share this post


Link to post
Share on other sites

Hi Linda

welcome to the group. You will find and learn probably more than you ever wanted to know from this group.I am ever so grateful to find this group as I have learned tons of info. Smart group --- brighter than most doctors regarding celiacs!!!

I'm from Pa and just a tad older than you!!!!!

good luck

mamaw

0

Share this post


Link to post
Share on other sites

Hi Linda,

Welcome. I just joined recently too, after finding out my brother had celiac's and discussing similarities in our symtoms, I went searching for answers my doctor wasn't able to provide, that is how I found this forum. I am in the process of being tested, and will then have my son tested as well. After that, we will all go gluten free as well, regardless. (I went gluten free for a week and started to feel a world of difference - I suffer from arthritis in my back as well, two lumbar vertibrea have already calcified - and I am only 41 :o )

You will find lots and lots of encouragement here, as well as a whole group of people who know exactly how you feel!

0

Share this post


Link to post
Share on other sites

:DThank you all for your kind words and gracious welcome. It's so great to be able to correspond with others who have similar problems and have been gluten free for a while. Hopefully through these forums I may be able to keep a positive outlook on life :unsure:

Thanks again............Linda/NJ

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,125
    • Total Posts
      919,501
  • Topics

  • Posts

    • First, do you have celiac disease?  Have you recently had a celiac antibodies follow-up blood test panel to see if gluten has been actually getting into your diet by accident or through cross contamination?  If you haven't had the test, you should ask your doctor for one.  You could also also ask for a follow-up endoscopy to see if you intestines have truly healed.  This will rule out if gluten is really the problem.    If you don't have celiac, I assume you have Non-celiac gluten Intolerance because no one would stick to the gluten-free diet for six years unless you have had reductions in symptoms.  There is no test for NCGI unfortunately.  So, it is hard to say if gluten has been sneaking into your diet.  You really are going to have to try to figure out if you are getting gluten into your diet.  If gluten is not the problem, then your doctor needs to check you for other issues, like SIBO. There is a test to check for SIBO.  Has this been done?   Once a celiac, always a celiac.  There is no cure for celiac disease except to remain on a gluten free diet for life.  I am not sure about NCGI.  Not much research has been done.  Maybe others can chime in?    
    • I am so confused right now.... 6 years ago I went on gluten free diet... after being on it for the first yr I was 100%better up until 5 months ago in got the "flu" the doctors told me to cut out dairy sonic did and my diarrhea  became better but not completely gone would not have it every day tho. I went to the gi doctor and they said to cut out fructose and dairy and keep gluten out... yesterday I went to the dietitian to see what I can eat and she gave me the list for fructose... she said it should have been on a antibiotic for sibo.... eventually I will be able to add dairy back and maybe gluten.... I said how can I add gluten back when this was my first problem... she goes well through fructose goes hand in hand with it... I said with gluten I vomit and am sick for weeks.... fructose isn't that bad I vomit sometimes but I'm not sick for weeks.... I'm just confused on really what is going on and was wondering if you or someone you know had sibo from gluten and or fructose and how Is this all related?
    • I see no one has responded to your query.  Unfortunately I have yet to try making a pie crust.  It was something I never mastered before going gluten free.  Have you looked on Pinterest?  You might find something there.
    • I honestly feel like both doctors think it's all in my head even though there is proof.  Yeah there was a point when I felt crazy.  That was when I was being shuffled from dr to dr being given individual diagnoses of my problems.  None of those diagnoses ever made me get better.  Seriously I was diagnosed with heart palpitations, neurocardiogenic syncope, I was given a butt load of steroids because a dr felt like I was producing too much adrenaline, freaking had a few tell me I was depressed, and the good ol IBS.  It seemed most wanted to push pills.  It's all just ridiculous!
    • I can't believe your doctors!!! You have a daughter who is dx'd already! Yet the ped doesn't want to test your other kids unless you have a dx????!!! Are you kidding me???!!! That's absurd!!! They have a first degree relative who has been dx'd with celiac already. There is no need to wait to see what you turn out to be!! And then, and then, and then....don't even get me started on your doctor!!! Does he have brain damage? Oh this is insane & ridiculous!  I have never heard of a disease that doctors are so unwilling to consider or test for OR to diagnose as this one! Usually they are hot to trot to make a dx but say the word celiac & they shake in their boots. Grrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrr!!!!!!!!!!!!!!!!!!
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,161
    • Most Online
      1,763

    Newest Member
    Jashan8534
    Joined