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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Weight Loss
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11 posts in this topic

Can anyone Help? Been on gluten-free diet for about 1 month and a half; maybe 2 months-why am I still losing weight? I don't understand. Should I be concerned???? HELP.

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Hi Emmeeann,

What have you been eating? What is optimum weight?

According to the charts my optimum weight is 145 lbs. (for a 5

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You always seem so helpful. On an average day, I eat an apple for breakfast, lunch-I will have some gluten free waffles or Mrs. Leepers pasta, dinner-maybe rice and some type of meat. I know that I don't eat very much. I am afraid to eat because I don't want my stomach to hurt. Do you have any suggestions? Some days I don't eat breakfast or I will have a hamburger patty for dinner. HELP.

Thanks very much. Can't wait to hear back from you.

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FYI- I am 5'8'' and around 130.

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My optimum is 140. I need a menu plan or something so that I will eat. FOOD is my enemy.

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emmeeann,

Why don't you try to set small goals for yourself. Make it a goal to add one new food a day(or every other day!) to your regular diet. Not only should this help you not get too overwhelmed, but it will also help you recognise if something bothers you. You are a bit on the light side for 5'8", but it doesn't sound like you are skin and bones, yet. You do need to eat a more well rounded diet to get proper nutrition though. Just don't be too hard on yourself and take it slow. It takes our bodies and minds time to get past all of the pain and damage that was done by all the years of gluten. Just take it one day at a time...

God bless,

Mariann

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I always recommend coconut oil for those who are healing and want to gain weight. It is an easily absorbed fat and easy to acquire a taste for.

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Hi Emmeeann,

To keep myself eating all day, I cook up a bunch of food at once. I cook up a big pot of brown rice and steamed vegetables. I refrigerate the food and eat it all through the day as I get hungry. I add a little meat to the vegetables and rice to balance out the carbohydrates. I also will eat red apples, but two hours after eating a meal. If I eat it right after a meal it will create tons of gas, because the body will digest the sugars first and the other food will just sit there and form gas. Also it is best to eat the sugary vegetables first to avoid gas.

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Never skip breakfast! It will make you weak for the rest of the day.

Instead of an apple, have and apple and a bannana. Its a little more for more energy, also, dont eat so low-calorie. Have small snack in the day if you arent exactly hungry. Drink something like juice instead of water, but keep water in your diet!

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Hi Emmeeann, I also agree about the coconut oil. I take a couple tablespoons of it throughout the day and use it for cooking. It also helps me to eat a lot of nuts. Cashews and Brazil nuts are really high in fat. if you're into the work you can grind up a bunch of nuts and seeds and make little snacks. I put sunflower seeds, pumpkin seeds, almonds, cashews, peanuts, carob/or cocoa, and dates in the food processor and then roll them into little balls. If they're too oily or too dry add more dry ingredients or add water. They're good high fat snacks to eat throughout the day and they're easy to make. Anyways, hope trhis helps.

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Thank you everyone for all your help. I am purchasing some coconut oil tonight-hope it works. I am so happy there is a place where I can go for help with people who actually experience what I do. Thanks again. Hope all are in good health.

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    • Gluten ataxia...?
      I was explaining that some people have other trouble that is immune related and caused by eating gluten, but doesn't effect the gut in a noticeable way. According to the paper that I quoted there are some people which have different types of brain problems but don't have inflammation when tested by a biopsy.  The author used the term "non-Celiac gluten sensitivity" to refer to anyone who has any brain trouble that can be traced to gluten but without obvious gut inflammation.  There are a lot of different possible ways gluten can effect the brain some may not be related to the gut.  It could still be an immune system problem.  Normally "non-Celiac gluten sensitivity" refers to just a food intolerance.  Withdrawal symptoms are not normal and could be indicative of an immune system response of some sort, but I don't know for sure.        
    • Weird Reaction
      Hi Richie I've put the above in quotes as you have described in the first and second sentence how I felt six months prior to my DX.   In my own case, in the end I concluded it was anxiety after consulting Dr Google!  It was such an alien feeling to me, I couldn't even think what it was, particularly as life was pretty good at the time.  Anxiety is a problem for a lot of celiacs prior to diagnosis, and often after glutening after going gluten-free. You mention breathlessness, this of course can be for reasons such as anaemia (again a common celiac problem, I had this prior to DX) but of course also can arise if you are anxious.   Re 'gluten free' - Flowerqueen is right, from what I have read on this forum some people really do seem to react with less than 20ppm.    But perhaps some other things to consider...  could there be something wrong with the batch you have consumed?  Might it be worth contacting the manufacturers?   That said, you could , as Flowerqueen suggests, have a problem with another ingredient, in the product or something else you consumed. In the past I have had a terrible reaction - fever, trembling, diarrhea, stomach cramps that lasted up to three hours the last three times I ate..... broccoli, of all things.    Who would have thought that possible?  I have often thought I should try it again, just to be sure it was the broccoli, as it is a 'super food' that I ought to have in my diet, that I like very much, but the thought of having such a reaction again has put me off. I do hope you will find some answers soon.  
    • Weird Reaction
      Hi Richie,  I've not heard of this drink before, as I live in the UK, but any drink made from barley is something you should avoid.  There's a brand in the UK that makes lemon and barley water and orange and barley water and Coeliac UK say it is not safe for people with Coeliac disease.  (Our labelling laws in the UK changed a couple of years ago).  You say the drink you had was under 20 ppm, which is acceptable (usually) for coeliacs, but a lot of people are super-sensitive to gluten even in very small amounts.  I recently had a similar problem with something which was supposed to be okay for coeliacs, but when I checked the website of the product, for all it said there were no gluten containing ingredients, it was produced in an area where gluten was present, which was enough to put me off and must admit, the symptoms you describe sound very much like I experienced at the time.  (Personally I'd be avoiding that particular drink like the plague from now on). One other thing though,  have you checked the ingredients to see if there could be anything else in it which you may be intolerant to? 
    • Confused
      I have not. I'll talk to my doctor about it
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