Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Newbie Cd Questions
0

4 posts in this topic

Hi all!

I've been reading the boards for a few weeks now just trying to educate myself. I have had some of the classic celiac disease symptoms for most of my life - I'm 31 now. I was diagnosed with IBS 7 years ago and the symptoms that I've been experiencing have gradually gotten worse over the years. My family dr. has put me on a dairy free diet for the past three weeks and there is a definite improvement in my bowel attacks, but not complete improvement and my other symptoms remain the same. I go back tomorrow and half expect him to put me on the gluten-free diet to see how things go. Is it a good idea to experiment with the gluten-free diet before any bloodwork or other tests are performed?

I understand that many people can have different reactions to the gluten and tolerance levels vary, but I typically do not feel ill after eating gluten and my bowel attacks occur only a few times per week, not every day. Going off the dairy has helped immensely, but I wonder what CAN I actually eat if I'm gluten-free and dairy free too?!

Thanks

Gina

0

Share this post


Link to post
Share on other sites


Ads by Google:

Hi Gina,

It can be a bit more of a challenge to be gluten-free and dairy free. I have been of dairy for 7 months and off gluten for almost 5 months. There are a lot of foods you can eat, you just have to be aware of all the things to avoid. I highly suggest that you push for the bloodwork before trying the diet and then if it is positive ask for the biopsy as soon as possible, before going gluten-free. It CAN affect the results causing a higher frequency of false negatives if you are gluten free before the blood tests or biopsy.

The things I miss the most are ice cream and cheese, but I am able to get a satisfying and well rounded diet without them. And the good news is that most people outgrow the dairy intolerance after being gluten free and dairy free for a while. The dairy problems is most often caused by the gluten damage in many gluten intolerant individuals. So you may not have to stay dairy free forever.

Also, your symptoms sound a lot like mine did. The bowel problems would come and go. I tended to have bloating and gas most days, but the constipation/diarrhea would come and go. It also was much better being dairy free, even while still on gluten, but not great. I feel much better now. Not perfect yet, but it takes time...

Talk to your doctor about testing you first.

God bless,

Mariann

0

Share this post


Link to post
Share on other sites

Hi Gina,

From what you said in your post, I would recommend starting a gluten free life. The longer you put it off the more damage you do, and a lot of the damage can never be reversed. I will live with the pain and discomfort from the damage until the day I die. It would be nice to have a pain free day, but I am beginning to realize that is not going to happen at this point.

I did freak out a bit about the gluten and dairy free life a bit at first, but after living in India, and watching people picking through chicken scraps (bones and feathers) for a meal, I don

0

Share this post


Link to post
Share on other sites

Thanks a lot for the encouragement. I did go the dr today and had the bloodwork done, so we'll see in a few weeks what the outcome is. He told me to go ahead and start the diet - I'm a little apprehensive to do so before a biopsy, but I really want to see if it helps. I'm just ready to feel better and I'm hoping this will be the answer. Thanks so much for your advice!

Gina

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,115
    • Total Posts
      919,447
  • Topics

  • Posts

    • Well, you can probably get an apple or something.  You might be able to get someone to boil you some eggs.  But be careful of things like nuts that should be naturally gluten free.  They have almost always been soaked in a flavor solution that usually containes caramel coloring, "soy" (wheat) sauce and other aditives.  If I am really hungry and must eat in a Chinese restaurant, I order plain white rice and steamed vegetables.  But even so, you must monitor it carefully.  The rice sometimes has other substances added to give it a better texture, and very often the vegetables have in fact had "just a little bit" of soy sauce added.  To be fair, celiac disease is hardly ever found in East Asians, so understandably people are not tuned it to it.  Also, culturally, with the exception of fruits, it is generally thought that the flavor of foods needs to be enhanced, so it is had to find anything natural even in the "western" gorceries. Even in the western restaurants, be careful.  Fish and meat and often vegetables are usually pre-marinated. I will not even attempt to address the issue of cross-comtamination, since that is a whole higher order of things. I do know what I am talking about; I have celiac and have worked here for nearly 7 years.  
    • I'm glad I found these forums!  I will spend some more time this evening reading through them.  But I wanted to get my question out there just to see if anyone else might have answers quicker than I can sift through the forum for them.      I've been feeling terrible for about a year, and after an elimination diet last month, figured out that if nothing else, gluten/wheat is a problem.  After lots of research, I abandoned the elimination diet and added gluten back in, so that I could get tested for Celiac.   I was off gluten for 3 weeks, from mid-June until early July.  I've had it back in my diet for almost 3 weeks now.    My question is this: Since I was off gluten for 3 weeks, and now back on for almost 3, is that enough time on to yield a positive Celiac blood test, if that indeed is what I have?  All the research I've done says 4-6 weeks for a gluten challenge, but is that really necessary if I was only not eating it for 3 weeks?  I am desperate to get this testing done and over with.  I feel terrible all the time and getting through the day is a struggle.  My doctor ran allergy panels already and everything came back clear except for a mild wheat allergy.  So if nothing else, I'll have to give up wheat for sure at the end of all this.  I get the feeling she doesn't know a ton about Celiac though, so I'm doing a lot of the research on my own. Any advice or information would be so appreciated! 
    • Hi Michael, That's quite a spike in blood pressure!  I haven't tested that myself and don't want to if it means I have to eat gluten.  Blood pressure testing to identify food reactions is something that has come up before.  It sounds like it might be possible but I don't know how much study has been done on it.  Probably not much since it is such a simple, straight forward idea. Welcome to the forum!
    • Hi Megan, Did the doctor test you for celiac disease?  You really shouldn't go gluten-free until all the testing for celiac disease is completed.  It is a little odd for a doctor to tell you to go gluten-free for no reason IMHO.  Did he/she explain the reason for it? Personally, I have learned over the years what I can eat safely and what I can't.  Occasionally I get hit but it is rare.  Simplifying your diet is a good first step.  Avoiding processed foods for a while and dairy also is good.  I suggest any change you make last for a month at least. Then try the food again. If you are eating 100 random ingredients/foods each day it is hard to figure these things out.  If you reduce it to a much smaller number of foods then things become simpler. Welcome to the forum!
    • Finally, proof that non-celiac gluten sensitivity is real. ... for the 30 percent of consumers who choose to buy gluten-free products and the 41 percent of ... View the full article
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,154
    • Most Online
      1,763

    Newest Member
    calla84
    Joined