Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

New Doctor What To Test For ?


DonnaD

Recommended Posts

DonnaD Apprentice

Hello everyone.

I have decided to pay to see yet another doctor.

edited

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tiredofdoctors Enthusiast

I am NOT a doctor, but these are the minimum tests I would request:

SMA 18

TSH

T3

T4

Thyroid antibodies

(I think Sedimentation rate is in the SMA 18)

Rheumatoid Factor

IGg

IGa

Anti-Transglutaminase antibodies (don't know the abbreviation)

Anti-Emdomysial Antibodies

Antigliadin antibodies

Anticholinesterase Antibodies

Brain MRI

Don't know if this is all-inclusive, but I hope it helps . . . it may be a start, and someone else on the forum can add . . . . Good luck to you, Lynne

Link to comment
Share on other sites
DonnaD Apprentice

Thanks Lynne

.

Link to comment
Share on other sites
tiredofdoctors Enthusiast

I'm glad you got some positive results! Good luck to you . . . Keep us posted as to what the findings are!

Link to comment
Share on other sites
heli Newbie

Donna - I also was misdiagnosed for 50 years. I diagnosed myself and was confirmed by a lab. I suspect all of your symptoms are food reactions triggering an autoimmune response. The suggested blood panel would cover a lot of issues but why? You already know that you have celiac disease - of course you have a leaky gut! You also may know that gluten intolerance is associated with thyroid disease so maybe you need to confirm that. New research in arthritis links it to a nutritional deficiency of a vital plant sugar (search: sugar printing in the UK).

I would recommend IgG delayed food allergy testing and know for sure what other foods are causing reactions in your body. I had this testing done and I was stunned to realize that grapes of all things were triggering my migraines!

Link to comment
Share on other sites
DonnaD Apprentice
Donna - I also was misdiagnosed for 50 years. I diagnosed myself and was confirmed by a lab. I suspect all of your symptoms are food reactions triggering an autoimmune response. The suggested blood panel would cover a lot of issues but why? You already know that you have celiac disease - of course you have a leaky gut! You also may know that gluten intolerance is associated with thyroid disease so maybe you need to confirm that. New research in arthritis links it to a nutritional deficiency of a vital plant sugar (search: sugar printing in the UK).

I would recommend IgG delayed food allergy testing and know for sure what other foods are causing reactions in your body. I had this testing done and I was stunned to realize that grapes of all things were triggering my migraines!

Hi Heli

You are right, I have pretty much diagnosed myself. I did have Igc testing in 2003 and it came up wheat, milk, & cashew nuts (which i don't eat anyway). I need a correct medical diagnosis if I have a thyroid problem that needs treatment also I am moving to another country soon and don't want a new Doctor thinking I'm a self diagnosed food allergy freak! My GP is determined that the cause of all my problems is depression/low seratonin so more prozac. The NHS would rather stuff people full of drugs than spend money actually finding out the causes of illness. I am so glad I have private health insurance now. It will also help my family who don't have insurance to get the correct treatment as their doctors will have to finally listen.

I will look into the sugar link,

Donna

Link to comment
Share on other sites
thomas3000 Rookie

Donna,

Go to biohealthinfo.com. They are number 1 for celiac patients and check out the thread for the Radio program on gluten intolerance. A regular MD is not educated in these matters. You need a biohealth doc to check for infections and other things...Hope you call them!!!

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



DonnaD Apprentice

Hi thomas, interesting site but I needed a UK based doctor who my regular GP and my new one when I move would respect the opinion/test results of without question. I checked out a lot before choosing him!

Avon Complementary Medicine is the central office for the practices of Dr David Dowson, a specialist in Complementary Medicine.

Dr Dowson was a general practitioner near Bournemouth for over twelve years, during which time he incorporated complementary methods within his practice, mainly acupuncture. His increasing interest in complementary methods of treatment led to him founding the British Medical Acupuncture Society in 1980, which now has over 1000 members.

From 1984 to 1993 he was a partner at the Centre for the Study of Complementary Medicine, Southampton. He has written extensively on complementary medicine, including being the co-author of two books and contributor to others, including the Readers Digest Family Guide to Alternative Medicine.' In addition he has done research, subsequently published, mainly in environmental medicine. He has a particular interest in the treatment of M.E., and conducted research which demonstrated the most effective treatment for this condition so far discovered.

As well as his clinical commitment, Dr Dowson teaches acupuncture, homoeopathy, and allergy to fellow doctors, physiotherapists and to veterinary practitioners. He lectures extensively, particularly on M.E., and has advised the House of Commons, M.P., and the Select Committee of the House of Lords on Complementary Medicine.

Dr Dowson considers that his treatment is primary through "Biological Therapy". This is treatment designed to encourage the body's natural healing and defensive mechanisms."

Open Original Shared Link (this one is on ME )

Donna

Link to comment
Share on other sites
  • 3 weeks later...
DonnaD Apprentice

The leaky gut test showed Decreased permeability and malabsorbsion not a leaky gut after all! I'm havn't managed to find much information on this on the net, it does seem a bit odd considering that I don't actually look mal nourished, sadly I could could do with losing weight.......

I'm not seeing the Doctor until the end of the month when all the rest of the results will be back too.

The tyroid results were: Free T4 11.5 pmol/l ref (*--) (9.14 - 23.4)

Free T3 3.5 pmol/L (-*-) (2.23 - 5.34)

TSH 1.42 uIU/ml (*--)(.49 - 4.67)

Thyroid antibody profile - negative

Zinc 66 ug/dl 75-130

10.1 11.5 -20.0

All the other minerals were within limits, I don't know why there are 2 results for Zinc. My B12 was a bit low at 400. I'm still awaiting the adrenal saliva 4 tests results.

Perhaps I have celular resistance??? any ideas experts????

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Bayb replied to Bayb's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Trying to read my lab results

    2. - Aussienae replied to Aussienae's topic in Coping with Celiac Disease
      65

      Constant low back, abdominal and pelvic pain!

    3. - trents replied to mishyj's topic in Coping with Celiac Disease
      3

      Why?

    4. - trents replied to mishyj's topic in Coping with Celiac Disease
      3

      Why?

    5. - mishyj replied to mishyj's topic in Coping with Celiac Disease
      3

      Why?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,219
    • Most Online (within 30 mins)
      7,748

    SoCalSuzy
    Newest Member
    SoCalSuzy
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Bayb
      Hi Scott, yes I have had symptoms for years and this is the second GI I have seen and he could not believe I have never been tested. He called later today and I am scheduled for an endoscopy. Is there a way to tell how severe my potential celiac is from the results above? What are the chances I will have the biopsy and come back negative and we have to keep searching for a cause? 
    • Aussienae
      I agree christina, there is definitely many contributing factors! I have the pain today, my pelvis, hips and thighs ache! No idea why. But i have been sitting at work for 3 days so im thinking its my back. This disease is very mysterious (and frustrating) but not always to blame for every pain. 
    • trents
      "her stool study showed she had extreme reactions to everything achievement on it long course of microbials to treat that." The wording of this part of the sentence does not make any sense at all. I don't mean to insult you, but is English your first language? This part of the sentence sounds like it was generated by translation software.
    • trents
      What kind of stool test was done? Can you be more specific? 
    • mishyj
      Perhaps I should also have said that in addition to showing a very high response to gluten, her stool study showed that she had extreme reactions to everything achievement on it long course of microbials to treat that.
×
×
  • Create New...