Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Casein Sensitive And Lactose Intolerant?


CMCM

Recommended Posts

CMCM Rising Star

I always figured I was lactose intolerant because you can read about it so much, and there are lactaid pills, etc. Supposedly 75% of people actually are lactose intolerant! So in the process of my celiac testing I find out I'm also casein sensitive. Now I'm wondering if I could actually be BOTH at the same time??? And how would one figure this out?

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



aikiducky Apprentice

I'm definitively both, I react to products that don't have casein but have lactose added to them as sweetener, and I also react to products that are lactose free but happen to have casein in them. But if you're casein intolerant, you need to avoid all dairy anyway, so I don't quite see why you would need to know if lactose is also a problem or not? Is there some product you would like to continue eating that only has lactose in it?

Pauliina

Link to comment
Share on other sites
kabowman Explorer

I am both casein and lactose intolerant. I avoid all dairy. An easy way to test is to eat dairy, take the lactaid pills and if you don't react, you are probably not casein intolerant (from what I have read before on the boards). The pills never helped me and I gave all dairy up before learning that there was even a difference except I could not eat ANY dairy. Stay away from goats milk if you are casein intolerant too - learned that one the hard way.

Link to comment
Share on other sites
aikiducky Apprentice

Actually I seem to be fine with moderate amounts of hard matured goats cheese. Goats milk not, because of the lactose in it, but goats cheese doesn't, and the protein seems to be different enough for me to tolerate it.

Pauliina

Link to comment
Share on other sites
Mango04 Enthusiast

I always thought I was intolerant to both. I haven't experimented much with dairy since eliminating gluten from my diet though, so I'm not sure anymore. I can seem to tolerate raw goat cheese, but that's about it so far. I did try rice cheese with casein but that definitely gave me a reaction.

Link to comment
Share on other sites
slpinsd Contributor

I am both as well!

Link to comment
Share on other sites
BamBam Community Regular

I always thought I was just lactose intolerant, so I would take pills whenever I ate dairy, sometimes they helped and sometimes they didn't. Ice cream and milk were always killers for me regardless. I could eat the dariy queen ice milk a little better. I continued drinking lactose free milk, eating rice cheeses and other items like yogurt. The one thing that was happening to me as a reaction, was I was constipated/irregular all of the time, meaning I wouldn't go for days and days. Jenvan challenged me to give up all dairy to see if that would help. One month later and I am feeling a whole lot better about myself and my body is responding so much better. I am no longer bloated up either. I really miss my rice cheeses, it's like I have to learn how to cook all over again. Giving up gluten was hard, and now all dairy. But if I feel better, than that is all I need!

BamBam

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CMCM Rising Star

I guess it's a moot point for me...because yes, due to being casein sensitive that's the end of it, I shouldn't eat dairy. I was just wondering about it, though. And I have to say lactaid pills may have helped a bit in the past, but not entirely. I'm actually finding that the dairy restriction is perhaps harder than the gluten one. Gluten and dairy really wipe out a huge proportion of food I can eat. :angry: Sometimes I feel like I don't even care about eating anything any more, I wish I could just take some sort of pill to feed my body but dispense with the actual eating, which is getting pared down to plain meat, plain veggies, certain fruits, eggs. That's about it for me, I guess. :(:(:(

Link to comment
Share on other sites
Felidae Enthusiast
I guess it's a moot point for me...because yes, due to being casein sensitive that's the end of it, I shouldn't eat dairy. I was just wondering about it, though. And I have to say lactaid pills may have helped a bit in the past, but not entirely. I'm actually finding that the dairy restriction is perhaps harder than the gluten one. Gluten and dairy really wipe out a huge proportion of food I can eat. :angry: Sometimes I feel like I don't even care about eating anything any more, I wish I could just take some sort of pill to feed my body but dispense with the actual eating, which is getting pared down to plain meat, plain veggies, certain fruits, eggs. That's about it for me, I guess. :(:(:(

I agree that cutting out dairy is more restrictive than cutting out gluten. It is rather sad because I love cheese.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,213
    • Most Online (within 30 mins)
      7,748

    marimom
    Newest Member
    marimom
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      You have three celiac disease specific antibody tests that are positive: Endomysial  Antibody IGA (aka, EMA), tTG-IGA, and tTG_IGG. Furthermore, your Immunoglobulin A at 55 is low, meaning you are IGA deficient. This one is not an antibody test for celaic disease per se but a measure of "total IGA" levels and if low (yours is low) it can suppress the individual antibody scores and even cause false negatives. So, yes, it definitely looks like you have celiac disease.   Do not yet begin a gluten free diet as your physician may refer you to a GI doc for an endoscopy/biopsy of the small bowel lining for confirmation of the antibody testing. This may help:   
    • Bayb
      Hi, I received my labs via email yesterday and have not heard back from my doctor yet. Can anyone tell me if these results indicate I have Celiac?      Endomysial Antibody IgAPositive  Ft-Transglutaminase (tTG) IgA6  H0-3 (U/mL) - Negative 0 - 3 - Weak Positive 4 - 10 - Positive >10 - Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten-sensitive enteropathy. FImmunoglobulin A, Qn, Serum55  L87-352 (mg/dL) Ft-Transglutaminase (tTG) IgG183  H0-5 (U/mL) - Negative 0 - 5 - Weak Positive 6 - 9 - Positive >9
    • Aussienae
      Mine is definitely triggered by inflammation and stress! I do also have arthritis in my spine, but the pain is more in my pelvic area. Im sure i have other food intolerances or other autoimmune isues but the more I focus on it and see doctor after doctor, it just gets worse.  Best thing is get of Gluten! (I also avoid lactose). Try to limit stress and anything that causes inflammation in your body.
    • ButWhatCanIEat
      Good morning,   I got an email about replies to this post. Some of my doctors had blamed a slipped disc for the pain I had and that contributes, but after meeting with a gastroenterologist AGAIN and trying some lifestyle modifications, I found out I have IBS and can't tolerate corn or excessive fructose to any degree. Cutting out corn AFTER having cut out all gluten containing products was a real pain but I feel much better now!
    • trents
      So, I contacted Scott Adams, the author of that article and also the creator/admin of this website, and pointed out to him the need to clarify the information in the paragraph in question. He has now updated the paragraph and it is clear that the DGP-IGA does serve the purpose of circumventing the false negatives that IGA deficiencies can generate in the tTG-IGA antibody test.
×
×
  • Create New...