Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

To Bluebird (lynn) P.s. Thanks To All For Response
0

2 posts in this topic

I'm very new here (2nd post). I'm not too sure about everything yet. But I have noticed "reflux" coming up often enough. My son has acid reflux disease and takes pretty high doses of meds normally for adults. He's almost 13 but was diagnosed at 10. He's been through a lot of tests and is back at Children's GI clinic again to see doc and doc wants him to see the psychologist on staff (she knows he has bad reflux but says she feels it's exacerbated by stress). I could go on and on here - but I won't! I guess what I'm getting at is: if I do end up having celiac (I'm going to doc this Friday) is reflux as bad as he has a symptom of him having possible celiac? I wonder....I know you may not know, but the fact your son has reflux - well, I though you might know the connection there.

I've been frustrated all my life over this. I believe that I have lived this way for so many years (since 3) that I just don't know what it feels like to be "normal". I suppose feeling ill so often is normal for me. Then again, it could still just be IBS and I'd be back at square one again. But I know how to live that way anyhow so not so scary for me! Biggest problem for me is that I never have complained to my doctor's about the IBS because I've had it so long it's just a way of life for me. This will pretty much come out of the blue for this doctor (been seeing her for 8 yrs.). I've had the depression too - not severe, but general depression - and hated taking the drugs so now take a low dose one for severe PMS (I'll never go off that - saved my life!! and my husband's!! lol).

At least if I do have celiac in the end I'll have a place to come to for some great help!

Chantalle

0

Share this post


Link to post
Share on other sites


Ads by Google:

Your son very well could be celiac, especially if you are. Acid reflux like his could be his body trying to digest the gluten. I never complained about only doing a #2 once every 10 days because I thought it was normal for me. Every body is different, after all! I did complain about the pms and cramps, the mood swings were destroying my marriage and the cramps were debilitating! All I got for it was Midol and Pamprin, neither of which really helped. Now that I am glutenfree, I potty almost every day, My midsection does not hurt, and I do not have such severe mood swings. I never had diarrhea or wasting away, but I do still have some joint pain (doc says I have arthritis now). Talk to your sons GI doc about testing him for celiac and gluten intolerance. If you can't get testing, try the gluten-free diet. It is better than the bland diets my husband had to be on!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,351
    • Total Posts
      920,500
  • Topics

  • Posts

    • Thankyou both! I was wondering if my high levels left much doubt on the diagnosis. I don't see the GI until the 15th Sep and I don't think I can stand to eat gluten in that time. If he tells me to I will do so after then. After 25 years of symptoms I don't think there is much chance of healing my bowel In a couple of weeks. I'm actually terrified of the damage they might find. But I think I will need the endo since there may be other things going on with me. So great they didn't put your son through the biopsy! Once I have a formal diagnosis I have my kids to worry about also. I can't even stand the thought of my daughter having a blood test. I think she would need to be sedated as she is so fearful and pain sensitive. My son is not yet 2 so I don't think they will test him. I'm feeling so off at the moment. I think I have some anxiety and reflux going on complicating things quite a bit.
    • My son's antibodies were 300. Based on his extremely high levels, his pediatric GI suggested genetic testing instead of the biopsy. Genetic testing can't diagnose celiac on its own but combined with such high levels, the gi dr was confident a positive genetic test would confidently diagnose celiac. He warned that biopsies are small snapshots of the intestine and can miss damage. He said this is an approach used very often in Europe but not as much in the US. What sold me on that approach was the ability to put my son directly on a gluten free diet instead of waiting three weeks for the biopsy, during which time he would continue to eat gluten and feel terrible. I'm not sure if this is more common with younger patients though (our son is two), based on the idea that he's had less time to inflict damage that would show in a biopsy? We are very happy that we immediately started the gluten free diet and chose the genetic testing. Our son got the proper diagnosis and his recent number shows a drop to 71 after only 4.5 months gluten free! Not sure if this helps. Good luck and I hope you feel better soon!
    • We have been off gluten for a while now, and symptoms return when I've allowed gluten full meals… so something still isn't sitting right with me.  Checking with her doc about seeing a pediactric GI although I'm not sure how long that will take since we live in small town America. I know she didn't get at least one of the recommended full panel tests but maybe two, can someone help clarify, or is she missing two? DGP for sure and possibly EMA? And if I understand what I'm reading in other posts that the DGP can be more accurate? Thanks Her blood panel results: Ttg ab iga <.5u/ml ttg igg <.8u/ml aga ab iga <.2 u/ml aga an igg <.7u/ml iga 61mg/dL  
    • I was tested for the full panel, I believe. I had normal values for t-transglutaminase (ttg) igg,t-transglutaminase (ttg) iga, deamidated gliadin abs igg, deamidated gliadin abs iga, and immunoglobulin a qn serum.  
    • Would you review this on Find Me Gluten free?  You can  use the app or just go to it on line. If the restaurant isn't listed, there is a way to suggest it.  I have done that and it works.  Many of us look at that site/ app
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

    There are no registered users currently online

  • Member Statistics

    • Total Members
      61,415
    • Most Online
      1,763

    Newest Member
    Ails123
    Joined