Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Feeling Discouraged
0

11 posts in this topic

My 2 yr old dd has been gluten-free for 9 days now and is still having the same ole diarrhea. I am certain she hasn't gotten anything with gluten with it. It is just discouraging, with the diet being so difficult (we are doing no dairy as well) and still not seeing improvement. On top of that, she is not eating as much as she used to. She even started refusing her vitamins. Yesterday the only thing she really ate was some fruit at lunch and then some french fries at dinner and then 2 gluten free waffles with gluten free/dairy free margarine for a snack.

How long did it take your kids to get better? I have heard stories that little ones have had improvement in days.

Mel

0

Share this post


Link to post
Share on other sites


Ads by Google:

Fruit and oily french fries will only exaserbate diarrhea. The gluten-free waffles are a good start, but she really needs rice. She also needs time, since the damage to her intestines could have been severe. The BRAT diet is what I have always used for diarrhea: bananas, rice, applesauce, and gluten-free toast with no toppings. It sounds bland and boring, but it might help.

0

Share this post


Link to post
Share on other sites

Hi Mel, I know how frustrating it is to have to limit the diet so drastically and not see the improvement. I too had heard stories of improvement in days, and when I didn't see it, I was very frustrated! It took about 2 weeks to see any real improment in my 4-1/2 yr old, but then it was amazing! The diarrhea slowed down, though it continued fairly regularly until about 6 weeks gluten-free. She did start getting a bigger appetite then she had had in her life though! She also started acting healthier, she wanted to play more, and felt better. I know it is hard, but keep it up and you will see results. Also keep an eye out for anything that could be causing cross contamination just to be safe!

Michelle

0

Share this post


Link to post
Share on other sites

I just remembered, we also upped the pediasure Ashlee was drinking so that we knew she was getting what she needed until the appetite returned. I'm sure it helped her, and it was a big relief to us since she was still not eating much!

Michelle

0

Share this post


Link to post
Share on other sites

Hi. Don't be too discouraged yet. My little girl will be two in ten days and was diagnosed about two months ago. It took a good three weeks before her diarhea started to improve. Also, she gained about a pound the first month, but because she was feeling so much better and was so much more active, she lost a half pound afterwards. The point is, my VERY limited experience with celiac has taught me that this is not a straight path to recovery and it does take time. :rolleyes:

Take care and good luck,

Maya

0

Share this post


Link to post
Share on other sites




I join with the others in their encouragement.

Also, I'm sure you've double checked everything - but just in case, and since it can be so very easy to forget to check the one thing you use the most routinely - did you make sure the vitamins are gluten free? I was really shocked the first time we had a gluten accident with our son due to a regular medication we had used previously and didn't even think of checking (and, gluten wasn't even mentioned on the list of ingredients. It was only when we called the manufacturer to be sure it *couldn't* be that product that had caused such an incredibly severe reaction that we were told it did in fact contain a small amount of gluten - not enough to be required to be written on the label, I guess, but that's another topic!). As the body starts to get used to being gluten free - if this has been the problem, of course - then often smaller and smaller amounts can have an effect.

The other thing to verify would be the fries, if they're store bought ...

Best,

Kaylee

0

Share this post


Link to post
Share on other sites

Thanks for the replies.. I'm glad to hear that other kids have taken a while longer to recover. I have been very very *very* careful about cross-contamination. Her vitamins say "gluten free" on the bottle, so I'm fairly certain they are safe. I am going to work on feeding her more rice and waffles and bananas and applesauce.. I have decided to cut out most of the juice for now too. The french fries were from mcdonalds (i know i know.. this is the first time we had eaten out except for once to outback and then she refused everything we gave her.. i was so excited to actually go out to eat and get gluten-free food but of course she wouldn't even try a bite!).. i talked to the manager at mcd's she said their fries have a dedicated fryer, and I went inside and watched them make them. i don't think they fries are the problem only because that is the first time she has had them since going gluten-free. all of the things i have given her, i have either called the company or looked online to make sure they are gluten free, and we are eating for little variety right now anyway (lots of fresh meat, fruits, some veggies, eggs, rice, gluten-free organic cereal, gluten-free rice milk, and some gluten-free cookies for dessert occasionally). my pots are stainless steel and i clean them very well, and have been using only silverware for cooking instead of my wooden spoons, which i am sure are contaminated. i have been putting foil on the pans for the oven, b/c I'm not sure if they are safe. i even quit usinga shampoo that i love b/c it has wheat in it! i don't know what else I could be doing, besides cutting out the juice (she only has 1 cup of OJ in the morning and occasionally a glass of juicy juice in the afternoon), and try to feed her bulky foods. her poops are not really watery, just frequent, loose, sometimes greasy, sometimes mucusy. she has had some stomach cramps here and there. i guess i should just give it more time. we are travelling 1200 miles away in june to visit family for a month, and i was hoping her bowel movements would be improved by that time, but it is only a couple of weeks away. she seems to have plenty of energy, and seems very happy. i don't think she has gained any weight yet. we will take her for a weight check at the end of the month.

thanks! :)

Mel

0

Share this post


Link to post
Share on other sites

Mel, I noticed you are giving her Orange juice. I had to cut oranges and orange juice from Ashlee's diet, they seemed to agrevate her stomach. Until the villi were repaired, I figured the acid is probably pretty hard on her little tummy. If she really needs fruit juice, I would try white grape juice or something.

good luck on the trip!

Michelle

0

Share this post


Link to post
Share on other sites

Michelle,

We ran out of OJ yesterday, so she didn't have her normal morning glass.. well this morning my husband said her poop was formed! (of course I missed it, because he was letting me sleep in).. I am going to keep the OJ outof her diet for a while and see if that helps. I'm normally not a big fan of fruit juice, and always water it down, etc. but I have just been so focused on feeding her extra calories before now, and fruit juice was an easy way to get it in her. I know that white grape juice is supposed to be the easiest on the tummy, so I might give her a little of that sometimes.

I know I shouldn't get too excited yet about the formed poop, but it is a little encouraging!

Mel

0

Share this post


Link to post
Share on other sites

Hey, be encouraged, Mel! Every little step in the right direction is progress, and she took a huge one!

0

Share this post


Link to post
Share on other sites

Hey, Ashlee calling out "Regular Poopies" is still music to my ears! She did have some formed, then more diarrhea and back and forth like that. Then I noticed she was having more and more formed stools. I thought it was strange how it changed back and forth like that. Good luck! It is so encouraging to see results!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,908
    • Total Posts
      919,593
  • Topics

  • Posts

    • Are M&Ms Gluten Free?
      Hi. Thanks for the reply. I read "wheat" on the packaging of the regular / plain M&Ms package. Not on the mini's package. I've never seen a package of mini-M&Ms. I've only seen them as ice cream toppings. I'll buy a pack and photograph what I read. Maybe this would be helpful? Thanks again, Olivia 
    • how long does it take to show signs of being glutened?
      My two year old son has been diagnosed with celiac for almost three months. So far, I think we have done well keeping him completely gluten free. Our biggest worry is cross contamination because he is so young and constantly putting his hands in his mouth. My question is, how long does it take to show signs that he was glutened? He complained of a stomachache yesterday before bed (I wasn't sure at the time if it was just a bedtime stalling technique) and also had two very messy diapers today. I've been racking my brain trying to figure out if he could have gotten glutened somehow, or maybe it's just a normal stomach issue for any kid. It would help if I knew the average time it took for symptoms to show up after someone has been glutened. Thanks!
    • Did Jennifer Esposito Leave Town Amid $43 Million Gluten-Free Bakery Lawsuit?
      Wasn't this some gossip rag nonsense from a few weeks back?  I think it's been proven false.  But, even so, why is celebrity gossip from unreliable sources here?  And I can't leave a comment on the actual article, because he approves and often edits the comment.
    • Recovery?
      Hi PLB, If he hasn't been gluten-free very long, he might still be able to get blood testing done for the gliaden (gluten) antibodies.  More than a couple weeks may be too long tho. As far as recovery, it varies from person to person.  The condition associated with celiac that you are thinking of is probably gluten ataxia.  Gluten ataxia is an antibody attack on the brain cells that can cause problems walking and controlling muscles.  Generally it seems people consider nervous system healing / recovery to be a fairly slow process.  Although it sounds like your husband is experiencing some recovery already, which is great! I've read about coconut having benefits for people with alzhiemers disease, but don't know if it would help him.  I doubt it would hurt though.  The B-vitamins including B-12 are supposed to be very important for nervous system health.  Vitamin d is also important but make sure you take a supplement that is tested and reliable.  Check out https://labdoor.com/  for their review/test results.  Dr. Hadjivassiliou has done some research on gluten ataxia and you might find reading his information helpful. Nuerological symptoms without gastro symptoms
      http://www.ncbi.nlm.nih.gov/pubmed/20170845 Dietary treatment of gluten ataxia
      http://jnnp.bmj.com/content/74/9/1221.full Ubo's, Epilepsy And Celiac Testing for celiac disease usually starts with a blood antibody test and then a endoscopy to check for gut damage.  If a person has been off gluten for a while though, the tests are not much use.  The antibodies in the bloodstream start to drop off and may not be detectable anymore.  They usually say to eat gluten for around 12 weeks in that case before trying testing again.  I can understand why he wouldn't want to do that though considering his symptoms.  I am not sure it would be a good idea. Welcome to the forum and congrats on finding  away to improve his condition! If you turn on the notify me of replies slide button near the bottom left of the reply screen you can get an email when you receive responses to your thread. There is some helpful info in this thread about celiac disease.             
    • Genetic Results
      I have been looking for an explanation to what exactly I have, as my doctor just said that I have the genes that cause Celiac. They never went any further than that.... The wikipedia link makes some sense, but at the same time it does not. It almost seems like I have 1 full DQ2, and half of a DQ2?   Test: DQ Alpha 1 - 02:01,03 Test : DQ Beta 1 - 02:02,03:02 DQ Serologic Equivalent: 2,8 Method: Molecular typing of HLA antigens performed using reverse SSOP and/or SSP methods, reported as serological equivalents and low to medium resolution molecular values
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Jmg  »  admin

      Hello Admin!
      I don't know whether this is of interest to post on your articles feed:
      http://pratt.duke.edu/about/news/window-guts-brain
      Kind Regards,
      Matt
      · 2 replies
    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,954
    • Most Online
      1,763

    Newest Member
    Olivia
    Joined