Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Stools Changes After Not Eating Gluten


Sandyo

Recommended Posts

Sandyo Apprentice

I've just been tested for celiac disease and am waiting for my test results. Should be by mid week. I stopped eating gluten for three days and then started eating again before the blood test. I don't have any of the "allergy" symptoms just stomach issues. I've been constipated for years with very hard, dark stools. I've been taking stools softners and softner with laxative, and fiber pills for years. They help for a day or so. Three weeks ago I started getting stomach pains, nausia when eating, excesssive gas, hard extend belly, gained 5 pounds that running 25 miles a week won't get rid of. I noticed a link between feeling bad and my increase in eating whole wheat items to be healthy. So now that I've been test, I thought I be gluten free to longer and see what happens. Well, the first thing I notice is that my stools are lighter in color, softer and happen more often. But they float more. This puzzles me. When they were hard, on the little ones floated. Now that I'm not eating gluten, they all float. Is this just my body getting used to not eating the gluten? Oh, and my mother has not been tested, but has much more problems with gluten than I, including the "allergy" symptons. We're both lactose in tolerant and she is allergic to many medications, while I'm not allergic to any and have no other allergies. Does it sound like celiac disease and can anyone tell me why my stools are floating more now without eating gluten? Thanks for your help!

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CMCM Rising Star
I've just been tested for celiac disease and am waiting for my test results. Should be by mid week. I stopped eating gluten for three days and then started eating again before the blood test. I don't have any of the "allergy" symptoms just stomach issues. I've been constipated for years with very hard, dark stools. I've been taking stools softners and softner with laxative, and fiber pills for years. They help for a day or so. Three weeks ago I started getting stomach pains, nausia when eating, excesssive gas, hard extend belly, gained 5 pounds that running 25 miles a week won't get rid of. I noticed a link between feeling bad and my increase in eating whole wheat items to be healthy. So now that I've been test, I thought I be gluten free to longer and see what happens. Well, the first thing I notice is that my stools are lighter in color, softer and happen more often. But they float more. This puzzles me. When they were hard, on the little ones floated. Now that I'm not eating gluten, they all float. Is this just my body getting used to not eating the gluten? Oh, and my mother has not been tested, but has much more problems with gluten than I, including the "allergy" symptons. We're both lactose in tolerant and she is allergic to many medications, while I'm not allergic to any and have no other allergies. Does it sound like celiac disease and can anyone tell me why my stools are floating more now without eating gluten? Thanks for your help!

There truly do not seem to be any particular set of symptoms which apply to all people with celiac disease. I always thought I was lactose intolerant, and I had terrible problems with any dairy, but thru testing for celiac I discovered I am casein sensitive, which is a whole different thing, and means you must always avoid casein same as gluten. When I stopped eating all gluten/casein I found constant changes in stools were happening....perhaps your observed change is due to eliminating gluten but not eliminating dairy, which is not exerting its own effect on everything. It takes a long time sometimes for your body to get regulated, too.

Link to comment
Share on other sites
Sandyo Apprentice
There truly do not seem to be any particular set of symptoms which apply to all people with celiac disease. I always thought I was lactose intolerant, and I had terrible problems with any dairy, but thru testing for celiac I discovered I am casein sensitive, which is a whole different thing, and means you must always avoid casein same as gluten. When I stopped eating all gluten/casein I found constant changes in stools were happening....perhaps your observed change is due to eliminating gluten but not eliminating dairy, which is not exerting its own effect on everything. It takes a long time sometimes for your body to get regulated, too.

Thanks for the info. I have been lactose intolerant for 7 years now. At least I have bad reaction to ice cream and milk. I've not been tested for it. What is casein? I have a friend with a child how has Autisum and she can't have casein or gluten. But I'm not sure what casein is? I can eat cheese and yogart and the little bit of milk used during cooking. I've been wondering if I'm becoming more sensitive to lactose or maybe I should be looking in elliminating casein. Thanks for the info.

Link to comment
Share on other sites
CMCM Rising Star
Thanks for the info. I have been lactose intolerant for 7 years now. At least I have bad reaction to ice cream and milk. I've not been tested for it. What is casein? I have a friend with a child how has Autisum and she can't have casein or gluten. But I'm not sure what casein is? I can eat cheese and yogart and the little bit of milk used during cooking. I've been wondering if I'm becoming more sensitive to lactose or maybe I should be looking in elliminating casein. Thanks for the info.

Casein is the milk protein, whereas lactose is the milk sugar. Two completely different things. I supposed you could actually be both at the same time. I also had my worst reactions from milk and ice cream. In fact, the thing that made me the sickest was milk and cereal (I loved Wheat Chex!). Sometimes I did ok with low fat yogurts, and some cheese seemed OK. In any case, if you are casein sensitive, eating dairy can also damage your intestines same as gluten does. I'm finding that eliminating casein is almost harder than eliminating gluten....casein is in sooooo many things. :(

Link to comment
Share on other sites
Sandyo Apprentice
Casein is the milk protein, whereas lactose is the milk sugar. Two completely different things. I supposed you could actually be both at the same time. I also had my worst reactions from milk and ice cream. In fact, the thing that made me the sickest was milk and cereal (I loved Wheat Chex!). Sometimes I did ok with low fat yogurts, and some cheese seemed OK. In any case, if you are casein sensitive, eating dairy can also damage your intestines same as gluten does. I'm finding that eliminating casein is almost harder than eliminating gluten....casein is in sooooo many things. :(

that's also how I found out I'm lactose intolerant by suddently eating cereal in the mornings. How do I know if I can't handle the lactose or the casein? It seems like I can eat Lactaid Milk and reading the ingredients I'd say it doesn't have any lactose but probably still has casein. Am I correct?

Sandy

Link to comment
Share on other sites
aikiducky Apprentice

Yup, Lactaid milk has casein. Pretty much anything that originally was cow's milk has casein. If Lactaid milk doesn't give you problems you're probably just lactose intolerant.

You can expect your symptoms to change, and to go from better to worse and to better again, after going gluten free. It takes a long time before everything stabilizes so to say.

Pauliina

Link to comment
Share on other sites
prinsessa Contributor

This is strange. I have been trying to not eat any foods with gluten for the past week (I say try because it is hard figuring out what has gluten in it). I have the same symtoms as you...my stools are much lighter and float more. :unsure:

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Sandyo Apprentice
This is strange. I have been trying to not eat any foods with gluten for the past week (I say try because it is hard figuring out what has gluten in it). I have the same symtoms as you...my stools are much lighter and float more. :unsure:

I do find that strange...but people have told me that it will take a while our bodies to get acustom to the change. My doc said it mean excess air or fat in the stool and it wasn't a big deal. It doesn't mean malabsorption. I don't know what to think. The whole reason I started to look into this was because after being contipated for sooooo long, I figured I was doing damage and I should do something. So I guess as long as I'm going more and they are bigger and softer, then I'm accomplishing what I set out to do. I know as soon as I do accidently eat gluten because they will turn harder, darker and sometimes float and sometimes not (even at the same time). Hell, sometimes they are vertical!! Now how crazy is that!!!

If you learn more about this, please let me know because like you I thought the whole idea was to have them not float...but maybe it means we're just getting all the gluten out of our system.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,069
    • Most Online (within 30 mins)
      7,748

    angie78
    Newest Member
    angie78
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Fluka66
      Thank you again for your reply and comments which I have read carefully as I appreciate any input at this stage. I'm tending to listen to what my body wants me to do, having been in agony for many years any respite has been welcome and avoiding all wheat and lactose has thankfully brought this.  When in pain before I was seen by a number of gynacologists as I had 22 fibroids and had an operation 13 years ago to shrink them . However the pain remained and intensified to the point over the years where I began passing out. I was in and out of a&e during covid when waiting rooms where empty. My present diet is the only thing that's given me any hope for the future. As I say I had never heard of celiac disease before starting so I guess had this not come up in a conversation I would just have carried on. It was the swollen lymph node that sent me to a boots pharmacist who immediately sent me to a&e where a Dr asked questions prescribed antibiotics and then back to my GP. I'm now waiting for my hospital appointment . Hope this answers your question. I found out more about the disease because I googled something I wouldn't normally do, it did shed light on the disease but I also read some things that this disease can do. On good days I actually hope I haven't got this but on further investigation my mother's side of the family all Celtic have had various problems 're stomach pain my poor grandmother cried in pain as did her sister whilst two of her brother's survived WW2 but died from ulcers put down to stress of fighting.  Wishing you well with your recovery.  Many thanks  
    • knitty kitty
      Welcome to the forum, @Nacina, What supplements is your son taking?
    • knitty kitty
      @BluegrassCeliac, I'm agreeing.  It's a good thing taking magnesium. And B vitamins. Magnesium and Thiamine work together.  If you supplement the B vitamins which include Thiamine, but don't have sufficient magnesium, Thiamine won't work well.  If you take Magnesium, but not Thiamine, magnesium won't work as well by itself. Hydrochlorothiazide HCTZ is a sulfonamide drug, a sulfa drug.  So are proton pump inhibitors PPIs, and SSRIs. High dose Thiamine is used to resolve cytokine storms.  High dose Thiamine was used in patients having cytokine storms in Covid infections.  Magnesium supplementation also improves cytokine storms, and was also used during Covid. How's your Vitamin D? References: Thiamine and magnesium deficiencies: keys to disease https://pubmed.ncbi.nlm.nih.gov/25542071/ Hiding in Plain Sight: Modern Thiamine Deficiency https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8533683/ The Effect of a High-Dose Vitamin B Multivitamin Supplement on the Relationship between Brain Metabolism and Blood Biomarkers of Oxidative Stress: A Randomized Control Trial https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6316433/ High‐dose Vitamin B6 supplementation reduces anxiety and strengthens visual surround suppression https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9787829/ Repurposing Treatment of Wernicke-Korsakoff Syndrome for Th-17 Cell Immune Storm Syndrome and Neurological Symptoms in COVID-19: Thiamine Efficacy and Safety, In-Vitro Evidence and Pharmacokinetic Profile https://pubmed.ncbi.nlm.nih.gov/33737877/ Higher Intake of Dietary Magnesium Is Inversely Associated With COVID-19 Severity and Symptoms in Hospitalized Patients: A Cross-Sectional Study https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9132593/ Magnesium and Vitamin D Deficiency as a Potential Cause of Immune Dysfunction, Cytokine Storm and Disseminated Intravascular Coagulation in covid-19 patients https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7861592/ Sulfonamide Hypersensitivity https://pubmed.ncbi.nlm.nih.gov/31495421/
    • BluegrassCeliac
      Hi,   Not saying Thiamine (B1) couldn't be an issue as well, but Mg was definitely the cause of my problems. It's the only thing that worked. I supplemented with B vitamins, but that didn't change anything, in fact they made me sick. Mg stopped all my muscle pain (HCTZ) within a few months and fixed all the intestinal problems HCTZ caused as well. Mom has an allergy to some sulfa drugs (IgG Celiac too), but I don't think I've ever taken them. Mg boosted my energy as well. It solved a lot of problems. I take 1000mg MgO a day with no problems. I boost absorption with Vitamin D. Some people can't take MgO,  like mom, she takes Mg Glycinate. It's one of those things that someone has try and find the right form for themselves. Everyone's different. Mg deficiency can cause anxiety and is a treatment for it. A pharmacist gave me a list of drugs years ago that cause Mg deficiency: PPIs, H2 bockers, HCTZ, some beta blockers (metoprolol which I've taken -- horrible side effects), some anti-anxiety meds too were on it. I posted because I saw he was an IgG celiac. He's the first one I've seen in 20 years, other than my family. We're rare. All the celiacs I've met are IgA. Finding healthcare is a nightmare. Just trying to help. B  
    • Scott Adams
      It sounds like you've been through a lot with your son's health journey, and it's understandable that you're seeking answers and solutions. Given the complexity of his symptoms and medical history, it might be beneficial to explore a few avenues: Encourage your son to keep a detailed journal of his symptoms, including when they occur, their severity, any triggers or patterns, and how they impact his daily life. This information can be valuable during medical consultations and may help identify correlations or trends. Consider seeking opinions from specialized medical centers or academic hospitals that have multidisciplinary teams specializing in gastrointestinal disorders, especially those related to Celiac disease and Eosinophilic Esophagitis (EOE). These centers often have experts who deal with complex cases and can offer a comprehensive evaluation. Since you've already explored alternative medicine with a nutrition response doctor and a gut detox diet, you may want to consider consulting a functional medicine practitioner. They take a holistic approach to health, looking at underlying causes and imbalances that may contribute to symptoms. Given his low vitamin D levels and other nutritional markers, a thorough nutritional assessment by a registered dietitian or nutritionist specializing in gastrointestinal health could provide insights into any deficiencies or dietary adjustments that might help alleviate symptoms. In addition to routine tests, consider asking about more specialized tests that may not be part of standard screenings. These could include comprehensive stool analyses, food intolerance testing, allergy panels, or advanced imaging studies to assess gut health.
×
×
  • Create New...