Another Bm One Sorry : /

[klemmen]

hey

i've been gluten free for just over a year, and for the last month i took my diet down to just rice, rice cakes and applesauce and sometimes boiled potatoes because everything i ate seem to give me loose BM or D. i thought it was dairy but when i had soya milk i was still having bad bm's. now i don't no what to do because my diet is pretty much just rice and rice crackers because everything is upsetting my stomach...even vegetables : / i've lost a lot of weight, yea probably due to what i'm eating, but i don't no what else to do. I got D today and all i ate were gluten-free rice cakes and boiled potatoes. i no i'm not getting gluten from anywhere else so now i don't no what to try : / it's really stopping me leaving the house recently grrr. has anyone else had such bad response going gluten-free? i'm beginning to think maybe it will just always stay like this

apart from my moan, i walked on a frozen river covered in snow today...i was quite proud of myself lol always thought it would be scary...i'm tip toeing on the river n this kid on one of those scooter bike things just roars past me...and i was worried i'd break the ice

[Aetheana]

I'm really sorry that you're having such a rough time with how you're feeling.

The one thing that jumps out at me is that you are eating a lot of starchy food. Rice and potatoes are pretty starchy. Have you considered eating plain meat and plain veggies for a few days to see if that might help you out? I find that I feel best when I eat chicken and broccoli for dinner, salad for lunch, and eggs for breakfast. I'm not sure if you would find the same, but it might be worth it to try. Maybe since you haven't been eating the veggies for awhile it might take your body a day or so to realize that its ok to eat them... kind of like reacquainting yourself with them.

I hope you feel better.

[Nancym]

Hey Aethenea! Fancy meeting you here!

Some people are intolerant of rice and soy. The best diet I've found for my gut is SCD. Basically I eat meat and non-starchy veggies primarily, a little fruit. I'm slowly trying to add new foods and finding lots of things not making my gut happy: chocolate, almonds. :\ Also, you could have an intestinal infection of some sort that causes diarrhea.

[jerseyangel]

I would suggest cutting out the rice for a while to see if it makes any difference to you. Rice is a grain--some people have a hard time with many or all of the grains. I am one--since I stopped eating rice and using rice milk, things have improved.

[penguin]

Vary your diet do that it's a little more balanced. Eat veggies and fruits peeled and cooked thuroughly so that they're easier to digest like the SCD folks do.

Eat the gentler ones like pears, peaches, carrots, sweet potatoes, very well cooked broccoli, etc.

Hope you feel better

[ravenwoodglass]

I have to agree with everyone here. I find I do much better with just meats, veggies and fruits. Start out kind of bland and have freqent small meals. It may help.

As a quick afterthought, have you been on antibiotics? they can mess with the system also. If you have probiotics might help.

[ravenwoodglass]

hey

i've been gluten free for just over a year, and for the last month i took my diet down to just rice, rice cakes and applesauce and sometimes boiled potatoes because everything i ate seem to give me loose BM or D. i thought it was dairy but when i had soya milk i was still having bad bm's. now i don't no what to do because my diet is pretty much just rice and rice crackers because everything is upsetting my stomach...even vegetables : / i've lost a lot of weight, yea probably due to what i'm eating, but i don't no what else to do. I got D today and all i ate were gluten-free rice cakes and boiled potatoes. i no i'm not getting gluten from anywhere else so now i don't no what to try : / it's really stopping me leaving the house recently grrr. has anyone else had such bad response going gluten-free? i'm beginning to think maybe it will just always stay like this

apart from my moan, i walked on a frozen river covered in snow today...i was quite proud of myself lol always thought it would be scary...i'm tip toeing on the river n this kid on one of those scooter bike things just roars past me...and i was worried i'd break the ice

Hi again, I just noticed your subheading. Are you working with a doctor or dietician or anyone on your elimination diet? If you are not then you may want to consult one. I went to an allergist, first he skin tested me for obvious food allergies and had me fill out a questionairre about what I usually ate and then he started me with only a few foods, I was allowed turkey, sweet potato's, peas, cranberry juice and pineapple. Everyones beggining foods would be different but they are determined to be least likely for the person to react to but will still give the needed vitamins and proteins, in my case this meant foods I rarely ate and didn't like. You then add in foods one at a time, in pure forms, for a week each to look for a reaction. In this way if you don't react you have eliminated that particular food as a possible culprit. Most people kind of do this process backwards, eliminating one item and seeing if they feel better, this doesn't work well in people who may have multiple intolerances as symptoms will continue and they think well that wasn't it so they add it back in and eliminate something else or end up not eating anything. The true elimination process works very well at pinpointing multiple intolerances but it is long and tedious.

[jerseyangel]

Hi again, I just noticed your subheading. Are you working with a doctor or dietician or anyone on your elimination diet? If you are not then you may want to consult one. I went to an allergist, first he skin tested me for obvious food allergies and had me fill out a questionairre about what I usually ate and then he started me with only a few foods, I was allowed turkey, sweet potato's, peas, cranberry juice and pineapple. Everyones beggining foods would be different but they are determined to be least likely for the person to react to but will still give the needed vitamins and proteins, in my case this meant foods I rarely ate and didn't like. You then add in foods one at a time, in pure forms, for a week each to look for a reaction. In this way if you don't react you have eliminated that particular food as a possible culprit. Most people kind of do this process backwards, eliminating one item and seeing if they feel better, this doesn't work well in people who may have multiple intolerances as symptoms will continue and they think well that wasn't it so they add it back in and eliminate something else or end up not eating anything. The true elimination process works very well at pinpointing multiple intolerances but it is long and tedious.

That is very interesting--I am currently working with an allergist. Last Friday I was tested for all of the foods and some of the other allergens. I go back in 3 weeks for the rest of the tests. The Dr. told me that the best way to determine the food intolerances is by an elimination diet. (He actually has food intolerances, too)

[jenvan]

klemmen-

sorry for all your gi trouble, esp after a year is frustrating. i will say i am just over a year gluten-free also, and in some ways, still have a while to go w/improvement. however, your bms should have improved in that time. have you done a rotation diet where you kept a food/symptom journal to make sure you know exactly what foods are the culprits? soy and dairy are problems for many of us here, as you have found...but vegetables, plain meats and some fruits don't cause as much trouble. are you vegetarian or have you experienced issues with meat? did your bms ever improve in the past year while gluten-free? are you taking any meds or supplements?

[bluejeangirl]

I just have to agree with everyone on eliminating the diet to fruit, veggies, and protien. Carbs are hard to digest. They sit in the gut attracting water to move them out and because they are not digested they cause permeated guts or leaky guts. That means foods get into your bloodstream and that causes the food allergies. A good book is Breaking the Vicious Cycle by Elaine Gottschall.

You might find out you can eat the veggies you said you have trouble with if you eat them without carbs. So its a pretty plain diet buy better then what you've been eating.

[ravenwoodglass]

That is very interesting--I am currently working with an allergist. Last Friday I was tested for all of the foods and some of the other allergens. I go back in 3 weeks for the rest of the tests. The Dr. told me that the best way to determine the food intolerances is by an elimination diet. (He actually has food intolerances, too)

I totally agree with your doctor. You were lucky to find him, it was really hard to find an allergist that would do an elimination diet but it was well worth the time and effort for me to find one. The one I finally found was ancient and sat and typed everything on an old Underwood with carbon paper. He was amazing though. I feel he saved my life all the other doctors did was label me with 5 different diseases or syndromes and hand me meds. I wish you the best of luck with the process, it can be difficult at times but hopefully you will find it worthwhile.

[gabby]

Are your rice crackers and rice cakes labelled as gluten-free? If not, maybe call up the company to make sure. Also, if they are flavored...they might have gluten in them.

[key]

Do you drink any coffee or caffeine?? THis is bad for people that also have IBS. Just a thought. It doesn't work for me. Also I would very your diet a bit. Cooked carrots, applesauce, bananas. HOpe you get to feeling better soon.

Monica

[jaten]

I just have to echo what the plain meat, veggie, fruit, limited starch folks are saying. It's the only way I can have a meal that doesn't hurt my tummy. Yeah, I get tired of it, or decide to add variety with more processed foods, but I always go back to plain. Plain=fresh, not processed, foods.

[pturse]

I am a vegetarian (and lactose intolerant) and can't handle veggies at all. I've never had a "normal" BM in my entire life but some days the D is worse then others. I am following the gluten-free diet (after an on and off couple of years). Never felt "significantly" better at any point (hence why I got frustrated and went off the diet). I am committed to it now, I realize in order to "live" I have to follow this way of life. The only significant difference this time around is that I alternate between C and D quite often and the C is VERY uncomfortable (I am so used to going to the bathroom 5, 6 times a day!)

My biggest problem that I LOVE veggies (raw and cooked) but they are very rough on my stomach. I love beans and tofu as my source of protein but I can't do too many of those either.

I eat a lot of rice and rice based foods too.

I am lucky in that I don't lose weight like you though. I did when I wasn't gluten-free but now I just have the same "wierd" BM (IF I have them) except I am gaining nonstop on this diet and I don't like that either.

[marfa62]

I was introducted to the idea of 'cross over allergy" from a radio show. iT MADE SENSE. oNCE YOU HAVE ONE diturbance as we have with wheat, other things will be allergic, until the underlying allergy is cleared up. When i FIRST STARTED, every thing made me sick. I ended up like you living on rice, then rice pudding, then cormeal mush. my favoirte meal was rice , beans with melted cheese, and mild salsa. Soy makes me sick. I tried some of the imitation bread products and started vomiting from the soy. I also found iodine in salt was makig me flush. Now I find sulfites are haunting.

When I get the runs, I make a lot of pancakes with Pamela's mix. Sometimes I make muffins with orange juice and presevative free chopped dates. Never thought I would enjoy constipation, but it is some indication that the gut is healing and nurtients are being absorbed.

[Rachel--24]

I have to agree with what alot have already said....meat, fruits and veggies (well cooked)....its the way to go. Sounds like you're having trouble digesting starches/carbs...this will mess up your system and keep you from healing like you should. I also second the recommendation for taking priobiotics and reading "Breaking the Vicious Cycle".

[Claire]

Having dealt with food intolerances for a very long time I can tell you that doing a thorough elimination diet takes a world of patience and a lot of time.

One thing is very important. Do not eat a lot of one food the way you are doing. I did that and very soon became totally intolerant of the food that I was eating so frequently. Variety. Don't eat today what you ate yesterday. Others have given a lot of good advice here too.

If you haven't had an endoscopy - have one. Your problem may not be food at all. I had been on very low gluten diet and went totally gluten-free last August. I have been miserable ever since - all kinds of tummy problems. Endoscopy revealed that I have H. plyori bacterial infection. I was blaming it on food - which was not the case at all. Claire

[klemmen]

wow, thankyou for all the replies! i never thought eating what i was eating could be the cause of the problem...hum thankyou for making me think about it. yep i'm a vegetarian and sometimes i think meat would be a great choice, i even went and bought a can of tuna a couple of weeks ago but couldnt bring myself to eat it yep rice cakes are labelled gluten free, and i don't drink any caffiene just peppermint tea lol

yep i have had an endoscopy but only to diagnose celiacs after the blood test. I went to the dr a few weeks ago and he always just tells me to go back in 2 weeks if symptoms carry on, and he did a stool test and found no bacteria infection and just tested my liver which was fine too. when i suggested maybe another food allergy to him, he was one of those roll your eye dr's and said of course it isn't humm lol

You're all right i do need to get some variety, i think i'll try vegetables like some of you said without so much carbohydrate : / i just hope they don't make the loose BM worse like before

have a lot of you had good results when you went to see an allergy person? no i didnt consult the dr about an elimination diet as he didnt think it was food related, and i've been keeping a food/symptom diary but nothing stands out. No i'm not taking and meds or supplements, the dr gave me Primperan (metochlorid hydrochlorid) but it didnt stop any D and just made me really tired lol. I saw a dietician six months after i was diagnosed and she just checked i was following a gluten free diet and told me to go back in six months because i was still having syptoms and it must be from either not following the diet or cc.

when i first went gluten free after a couple of months i had a slight improvement for about four months, felt really great, good bm lol and had a good gluten-free diet, then just within one week everything went bad with my stomach and its been the same since, so thats why i thought it must be food related...

thankyou for giving me some suggestions, i havent heard of this book before i think i'll check it out on amazon. i think i should go and buy some vegetables and fruit and see if it makes a difference

[Guest Robbin]

klemmen, I have many intolerances and so does my son, so I know how frustrating it can be. I spent last night searching on the net information about enzymes and how they work in our bodies. We take lactaid tabs for the lactose intolerance, so I thought I'd check out the other types of intolerances and the enzymes that are involved. ( Now, I am talking about intolerances, not severe allergies like nuts and soy that some people have like my son) I read that phenols and salicylates are a problem for a lot of people and if you are sensitive to salicylates (the list is HUGE-look up salicylates/ingredients ) you should steer clear of mints--peppermint tea, may be your problem. I have had a heck of a time with regular tea and some herbal teas and I think it may be worth checking out in your case. With the damage from all the D and C, you are bound to be enzyme deficient. I am sure that is what some of the problem that we get as we're recovering. We are deficient in the enzymes and it takes awhile to naturally get them back. I am going to the vitamin plus store tomorrow to get some of the broad spectrum enzymes and a probiotic to nurture healthy bacteria, so maybe healing will come sooner. Ask your dr or nutritionist, of course if you feel confident in them, do some research and please, GET WELL!!!

[Claire]

I am posting here a comment found on a website. It is an opinion, therefore subjective but I feel is is generally right on. I have used Immuno Labs three times and was more than pleased with them.

Immuno LabsL Open Original Shared Link

I think the 3-4 days betwween 'trials' here is way off. You need a week or more after a 'positive.

" The ironic thing is, the very "safe" foods that are used for this length of time end up becoming allergens because they are eaten every day during the elimination diet" - this is the truest statement ever made. I know by personal experience.

" most people are not left with enough foods to eat, especially in the begining stages."

- my problem exactly. Instead of reducing the number of reactive foods, I added to them because I ate too much of the same 'safe' food that then became a reactive food. The food pool was just too small for their to be diversity. Claire

The most accurate food allergy BLOOD test is the ELISA IgG IgE antibody testing from one specific lab---Immuno Labs. Their test is consistantly reliable and is more than 94% accurate. I believe this to be easier and far more accurate than the food challange. I also think it is safer. People tend to go on food elimination diets for months. Even then, people do not find ALL of their allergies. Also, in the food challange process, ones digestive system can run amuck. Eating in this strange way for months can cause digestive imbalances. The reason I say this is because nobody can effectively run an elimination diet and have it take less than one month. It takes 2 weeks just to be desensitized to your current allergies. Then, it can take up to 2 months or even longer to run the whole process. If an allergy is confirmed, one would have to go back to a safe diet for at least 3 days, possibly 4 days, before trying again. I have known people to run these types of diets for 6 months or longer. The ironic thing is, the very "safe" foods that are used for this length of time end up becoming allergens because they are eaten every day during the elimination diet. People are supposed to be adding every non-allergenic food to their diet and then eat on a rotation basis. This is great in theory but it does not work out very well practically. This is because most people are not left with enough foods to eat, especially in the begining stages. I think this type of plan does nothing but imbalance the body. I would rather get a blood test is proven in clinical studies to be over 94% accurate. I don't think people are that accurate running an elimination diet. Human error is a huge issue. People have lives, busy lives and running this thing perfectlty is a force to reckin with. This is just about the ONLY areas I disagree with Dr. Stoll on. He is in favor of the elimination diet. I suppose they both have advantages. However, I would still go with Immuno Labs ONLY because they are so accurate. If the test were 75% accurate or less, I might consider an elimination diet. But with such accurate results, why put yourself through the difficulty. Since most delayed allergies are caused by leaky gut and faulty digestion, the effort should be pointed at dealing with these issues. If you can identify some main trigger foods in your diet, great! It will help heal the LGS. If not, a good rotation diet, SR, L-glutamine, and a powerful digestive enzyme will usually resolve delayed allergy problems. If they are IgE reactions (classic), Elimination diets can be deadly. Contact Immuno Labs for more. I hope this can be of help to you.

Source: Open Original Shared Link

[klemmen]

i stopped eating rice and rice cakes and ate a more varied diet and things improved. I stopped drinking peppermint tea because i thought maybe it could have barley malt in and it not be listed, and today i went into the shop to buy some rice cakes to see how things would go and they have gluten listed!!!!!! They never did before..how can they just decided to list it!!! I stood in the shop looking stupid, half laughing...this whole time since september i have gradually been eating gluten...unless they just started putting guten in it?? ??

so now i'm half relieved and half really really annoyed at myself. They previoulsy had gluten free written on them..i dont no why they decided to change it, maybe they got more honest or do u think they changed the ingrediants???

i cant believe ive been eating gluten this whole time!!!!!!!!!

[Claire]

or do u think they changed the ingrediants???

i cant believe ive been eating gluten this whole time!!!!!!!!!

I would bet on - they changed the ingredients. One other thing, sometimes the people who determine the contents to be listed simply aren't sharp enough. Take the recent McDonnell's issue - did they really lie or did they believe they were telling the truth. After all the gluten was not obvious being that it was in a flavoring that was grain based alcohol. That could be easily missed until someone smarter came along to point out the mistake. Certainly we will never know.

Changing ingredients is very common. Many companies will tell you to keep checking. Sometimes a supplier of one ingredient will 'go gluten' and the end product customer has to make a change to reflect that.

Claiire

[CMCM]

I have had periods of time in my life where I began to believe there wasn't a single food that agreed with me, and that included vegetables and fruits. Now I'm thinking that I had periods where I must have been doing ok, and others where something became so bad that everything was affected. I don't know what that should be, but it was. I don't know what caused the bad periods or later made things improve. I did recently read something about your body continually trying to "adjust" and tolerate gluten, which I suppose might explain the "good" times.

After one really difficult period of time, I decided to do the Atkins Induction diet, which meant that I was eating a tiny universe of foods: eggs, Canadian bacon, chicken, turkey, tuna and other fish, occasional beef, an oz or two of cheese a day, one limited salad per day, and that's pretty much it. No dairy other than that bit of cheese (which oddly, didn't bother me), no fruit, no grain, no rice, no sugar. Lots of water. I felt FABULOUS, and at the time I was really shocked at that....because I'm not normally a big meat eater, and to eat that much meat was really hard for me. Looking back I think I did well because the absence of gluten and dairy must have allowed some healing. And as it healed, I wasn't eating any starch or any grain either. So in a lot of ways, this was similar to the SCD diet. After I stopped Atkins I think I felt pretty good for awhile before symptoms took over again.

I forgot about this....my son has a lot of allergies....molds, grasses, and lots of foods including peanuts. He did two types of allergy testing...one which measured immediate response and the second which looked at delayed responses. The delayed list (I think 2 or 3 days later) was quite different from the immediate response list. His allergist recommended putting most foods on a 4-day rotation. He felt that helped prevent sensitization to a particlar food.