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We Got The Promethius Test Results

chrissy

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chrissy Collaborator
chrissy
Posted

ped gi called me today with my son's test results. he said that he does not have active celiac, but that he does have the gene for it. he has HDL-Q2---or is it HLA-DQ2? he said that he should be tested for celiac about once a year. i understood from what he said that we should also test if he started having symptoms, or if he was having regular blood work done for something else.

i am assuming that only having one copy of the gene means that we still don't know if kevin and i both carry the gene or if only one of us carries the gene.

i know that 30-40% of the population carries this gene and most of them don't have celiac---are there any statistics that show how many people with this gene will actually get celiac? doe the fact that he has 3 sisters with celiac raise his odds of developing it?

christine

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    • Bayb
      Trying to read my lab results

      By Bayb · Posted

      Hi Scott, yes I have had symptoms for years and this is the second GI I have seen and he could not believe I have never been tested. He called later today and I am scheduled for an endoscopy. Is there a way to tell how severe my potential celiac is from the results above? What are the chances I will have the biopsy and come back negative and we have to keep searching for a cause? 
    • Aussienae
      Constant low back, abdominal and pelvic pain!

      By Aussienae · Posted

      I agree christina, there is definitely many contributing factors! I have the pain today, my pelvis, hips and thighs ache! No idea why. But i have been sitting at work for 3 days so im thinking its my back. This disease is very mysterious (and frustrating) but not always to blame for every pain. 
    • trents
      Why?

      By trents · Posted

      "her stool study showed she had extreme reactions to everything achievement on it long course of microbials to treat that." The wording of this part of the sentence does not make any sense at all. I don't mean to insult you, but is English your first language? This part of the sentence sounds like it was generated by translation software.
    • trents
      Why?

      By trents · Posted

      What kind of stool test was done? Can you be more specific? 
    • mishyj
      Why?

      By mishyj · Posted

      Perhaps I should also have said that in addition to showing a very high response to gluten, her stool study showed that she had extreme reactions to everything achievement on it long course of microbials to treat that.
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