Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Somebody Please Help With Test Results!
0

5 posts in this topic

My 2 yr old was positive for IgA and IgG antigliadin antibodies..we decided to have my other two kids (ages 3 and 6) tested. My 6 yr old has some symptoms but my 3 yr old seems fine. Anyway my 6 yr old's IgG was 90 but IgA was negative, and my 3 yr old's IgG was 64 and IgA negative. My dr is out of town until the end of May, and besides that, he doesn't know enough about Celiac to give me any answers. I can't get into a GI dr until July. I wish I knew what these tests results meant for my other kids! I am so frustrated! Please help!

Mel

0

Share this post


Link to post
Share on other sites


Ads by Google:

Unfortunately it could mean a lot of things. Their IgG could be elevated for other reasons, or they could be in the pre-Celiac stage of gluten intolerance and have not yet gotten enough damage to their intestines for the IgA antibody levels to be higher, or they could have non-celiac gluten intolerance, which is less severe than Celiac, but still needs the gluten-free diet. It is just too hard to say without further testing. Do you have an appt. with the GI in July? I know it seems too long to wait, but as long as the kids aren't suffering terribly I would suggest you keep that appointment. You could ask to be on the waiting list for any cancelations, but July is not too far away and your kids should be tested more to find out if it is gluten or something else causing the elevated IgG.

The same thing happened with all three of my kids. Positive IgG, negative IgA. I wasnot able to get the testing the doctor wanted through Promethius labs, so we ended up testing them through Enterolab. http://www.enterolab.com

My boys both have non-celiac gluten intolerance and my daughter and I are both Celiac with low levels of damage. This was surprising to me, as sick as I have been all my life I thought I would test positive on the blood tests, but it just didn't work out that way. The kids had quite a few symptoms as well. We are all gluten free now and all of us are doing much better.

Hang in there, and remember that you are doing a great job trying to find out what is wrong with your children, so you can help them be healthy.

God bless,

Mariann

0

Share this post


Link to post
Share on other sites

Mariann,

Thank you SO much.

Which tests did you have done at Enterolab? I just can't afford to have all of those tests done.

How will the tests show if they have celiac, or just non-celiac gluten intolerance?

Also, I have been feeding them a gluten-free diet because it is just too risky IMO to have gluten in the house with my 2 yr old recovering. Should I keep giving my other kids gluten for the GI dr in July? Heck, for that matter, how can I be sure my 2 yr old (whose IgA WAS positive) really has Celiac-- should I put her back on gluten too for the GI dr in July?

Please help!

Mel

0

Share this post


Link to post
Share on other sites

For anyone to have an "official" diagnosis of Celiac Disease, they must have positive blood work and a biopsy. That's according to the medical world, I mean. You should phone the doctor and ask if your daughter should be gluten-free yet, because if the intention is to get an official diagnosis with biopsy, she must stay on gluten until that time.

0

Share this post


Link to post
Share on other sites

Thanks Gillian, but we have decided not to do the biopsy. When you say positive blood work, I'm not sure if my other kids' blood work would be considered positive for Celiac. That's what I'm trying to figure out!

I'm leaning more and more towards Enterolab, but I just don't know which tests to get. I would love to get all of the tests done, but $300 a child is not an option.

Mel

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,672
    • Total Posts
      921,690
  • Topics

  • Posts

    • I too have heart palps, flutters, skips whatever you want to call them. Ecg shows nothing. I was told by my doctor it is due to my low iron which is due to celiac. They pretty much went away after being gluten-free. But occasionally do come back. I've actually been having them for the past 3 days. But I was glutened with really severe reaction about a week ago so not sure if its due to that. Or if iron is low right now. I am on supplements but it still goes up and down. I hear you about doctors. It seems if you don't do research yourself or ask questions they don't say or do or test for anything. 
    • For a number of years pre diagnosis I had irregular heartbeats - anything from a fluttering type thing to seemingly skipping one or more beats to rapid beats to something like a short drum riff. I had multiple ECG's which didn't find anything odd. It never did it when I was at the doctors or getting the ECG's. Sometimes it seemed to pound very hard & rapid, at these times I discovered if I just laid down flat on my back, it would restore normal rhythm almost instantly. These things happened at random whether I was at rest, sitting, standing, running or working hard. It was always short lived -- lasting only 1 to several seconds, perhaps the longest was close to a minute. I too have little faith in docs as I've had my share of being blown off, to misdiagnoses. The whole heart thing quit after I had been gluten-free for a while but if I get glutened, it returns.
    • My daughter had the HPV Vaccine last year. It was administered in three doses in April 2015, May 2015, and August 2015. Immediately after the third dose, she started having weird symptoms such has headaches, irritability, and a general feeling of being unwell (which she never had before). About three months later she started having gastro symptoms, most notably constant nausea. For several months we tried to figure out what was wrong and none of the doctors knew. After seeing many doctors and having a battery of tests, she was finally diagnosed with Celiac in August 2016. Her intestinal damage was a 3b Marsh score. No one else in our immediate or extended family has Celiac (myself and my other daughter were tested and are negative). No one else has symptoms or any indication that they could have Celiac. I feel like my daughter could have gone her whole life without being triggered and I'm feeling very guilty for making her get this controversial vaccine. I have done a lot of research and there seems to be conflicting studies regarding vaccines and autoimmune diseases. Some say there is no link, while others say there is a possible link, but it cannot be proven at this time. No one seems to know for sure what triggers Celiac...could it be vaccines? I'm wondering if anyone else feels that their Celiac Disease was triggered by a vaccine?  
    • Here is an article, albeit short, about Myocarditis and Celiac disease.  I have read before about a connection between the two and A-Fib is another one that can happen with undiagnosed Celiac. From one over-thinker to another......its the inflammation thing, along with maybe some genetic components to it.  I can't remember how long you have been gluten-free but it can take awhile for things to settle down, especially if your thyroid is wonky also.  I have Celiac and Hashi's so feel your pain, even though I have not had any cardiac involvement.  Some doctors really suck. I have a lifetime of bad with them so do not go that often, only when I have to and am leery about seeing any new ones. I am so done with that attitude of theirs. I think you need to find someone who has knowledge of Celiac and it's related conditions and who actually listens to the patient. That might be harder than finding a needle in a haystack but I wish you luck! 
      https://www.ncbi.nlm.nih.gov/pubmed/12045166
    • Older people often show clinically atypical symptoms of celiac disease, which can delay diagnosis. View the full article
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,669
    • Most Online
      3,093

    Newest Member
    Cjplmon
    Joined