Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Somebody Please Help With Test Results!
0

5 posts in this topic

My 2 yr old was positive for IgA and IgG antigliadin antibodies..we decided to have my other two kids (ages 3 and 6) tested. My 6 yr old has some symptoms but my 3 yr old seems fine. Anyway my 6 yr old's IgG was 90 but IgA was negative, and my 3 yr old's IgG was 64 and IgA negative. My dr is out of town until the end of May, and besides that, he doesn't know enough about Celiac to give me any answers. I can't get into a GI dr until July. I wish I knew what these tests results meant for my other kids! I am so frustrated! Please help!

Mel

0

Share this post


Link to post
Share on other sites


Ads by Google:

Unfortunately it could mean a lot of things. Their IgG could be elevated for other reasons, or they could be in the pre-Celiac stage of gluten intolerance and have not yet gotten enough damage to their intestines for the IgA antibody levels to be higher, or they could have non-celiac gluten intolerance, which is less severe than Celiac, but still needs the gluten-free diet. It is just too hard to say without further testing. Do you have an appt. with the GI in July? I know it seems too long to wait, but as long as the kids aren't suffering terribly I would suggest you keep that appointment. You could ask to be on the waiting list for any cancelations, but July is not too far away and your kids should be tested more to find out if it is gluten or something else causing the elevated IgG.

The same thing happened with all three of my kids. Positive IgG, negative IgA. I wasnot able to get the testing the doctor wanted through Promethius labs, so we ended up testing them through Enterolab. http://www.enterolab.com

My boys both have non-celiac gluten intolerance and my daughter and I are both Celiac with low levels of damage. This was surprising to me, as sick as I have been all my life I thought I would test positive on the blood tests, but it just didn't work out that way. The kids had quite a few symptoms as well. We are all gluten free now and all of us are doing much better.

Hang in there, and remember that you are doing a great job trying to find out what is wrong with your children, so you can help them be healthy.

God bless,

Mariann

0

Share this post


Link to post
Share on other sites

Mariann,

Thank you SO much.

Which tests did you have done at Enterolab? I just can't afford to have all of those tests done.

How will the tests show if they have celiac, or just non-celiac gluten intolerance?

Also, I have been feeding them a gluten-free diet because it is just too risky IMO to have gluten in the house with my 2 yr old recovering. Should I keep giving my other kids gluten for the GI dr in July? Heck, for that matter, how can I be sure my 2 yr old (whose IgA WAS positive) really has Celiac-- should I put her back on gluten too for the GI dr in July?

Please help!

Mel

0

Share this post


Link to post
Share on other sites

For anyone to have an "official" diagnosis of Celiac Disease, they must have positive blood work and a biopsy. That's according to the medical world, I mean. You should phone the doctor and ask if your daughter should be gluten-free yet, because if the intention is to get an official diagnosis with biopsy, she must stay on gluten until that time.

0

Share this post


Link to post
Share on other sites

Thanks Gillian, but we have decided not to do the biopsy. When you say positive blood work, I'm not sure if my other kids' blood work would be considered positive for Celiac. That's what I'm trying to figure out!

I'm leaning more and more towards Enterolab, but I just don't know which tests to get. I would love to get all of the tests done, but $300 a child is not an option.

Mel

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,599
    • Total Posts
      918,313
  • Topics

  • Posts

    • Washing Dishes
      Gluten is a very sticky protein that cannot be removed easily. Non porous items can be washed safely and effectively, being very careful to throughly rinse, use a dedicated sponge/washcloth to wash. If washed by hand wash and rinse under hot running water not in a sink of water if you don't have a dedicated gluten free kitchen. My kitchen is totally gluten free and I still rinse under running water. I attempted to use the dishwasher for the first time yesterday and I feel like I've been glutened so I'm not sure if it's safe or not. There was no gluten containing dishes in it, but it's a rental house so God knows how the previous tenants used it and whether there may be any lingering gluten in it. I also have other issues that cause a lot of the same problems so I'm going to keep trying to use it for a few days and see if I continue to feel glutened or not. As far as counter tops, sinks etc, any non porous surfaces can be wiped clean, but it takes multiple wipe downs with multiple sponges. Thoroughly wipe down and rinse out the sink to rid it off any lose gluten particles. The same thing I did when first going gluten free. Only the kitchen I had then had laminated counter tops that were all scratched up. There is no getting gluten out of those kind of counter tops or cracks around the sink, etc. The ONLY way to possibly destroy/remove gluten from surfaces it's stuck in is to heat it above temperatures most things cannot tolerate and not all ovens can reach. You're looking at like 600°-700° F for a minimum of 30 min. So some stuff can be effectively cleaned in the self cleaning mode of an oven if it has one. Most cookware and utensils cannot tolerate those temperatures though and it's impossible to heat counters and other items to that temperature. Therefore being in a blended house is very risky if not done right. When I went gluten free everyone in my house went gluten free. Except the fish, you can't find gluten free fish food. My husband who shouldn't eat gluten anyway is gluten free and all our animals are on a grain free diet. Even my snake is gluten free since I breed my own feeder mice and feed them a gluten free organic diet. 
    • to biopsy or not?
      A small suggestion........for banana bread, try the King Arthur gluten free banana bread mix.  Yeah, I know......it's a mix but sometimes, time is short and a mix works well.  My husband and I were shocked at how good this is!  it rose up high and beautiful in the oven and has a really good banana flavor to it.  Really....give it a try.  It is so easy to make also! http://www.kingarthurflour.com/shop/items/gluten-free-banana-bread   The ATK cookbook is a keeper for every Celiac!
    • Oat Flour making me sick?
      Yup.....what she said!  In non-porous materials such as stainless steel or aluminum pans, a good washing is all you need to make the pan safe to use.
    • Hawaiian-style BBQ Shrimp (Gluten-Free)
      Mayonnaise is the key to this recipe, which delivers tasty, tangy, golden grilled shrimp. View the full article
    • Oat Flour making me sick?
      I wouldn't be afraid to use a stainless steel pot that other things had been cooked in AS LONG AS YOU WASH THEM VERY WELL before making her food.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,701
    • Most Online
      1,763

    Newest Member
    AbbieLee88
    Joined