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Went To New Gastro
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After 1 month of being with a gastro doctor who wont help me out i decided to go to someone else, this new gastro order blood test for Celiac, but i was diagnosed 1 month ago by biopsy and am on the gluten free diet, will the blood tests show if i have been not eating any wheat products? I have bad diarrhea even after being gluetin free for 1 month and losing alot of weight, how can i keep my weight steadyor not lose anymore, im eating alot but nothing stays in my body.

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Why would your new Gastro doc run Celiac blood test if you have already been dx through a biopsy?

To answer your question, yes being gluten-free for a month will affect your blood test, they will not be accurate.

I hope you feel better soon!

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The old gastro i went to never did run blood test for celiac all they did was the biopsy of the small intestine and colon, i know that dont make sense! I dont know why this new gastro would run this test when i have been on the gluentin free diet for 1 month! makes me mad!

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If it were me I would have the doc check out the other symptoms you are having and inform him that you are on a gluten-free diet and if you are WILLING or NOT WILLING to go back on gluten to satisfy his needs to test you again.

I would also go to your old Gastro and get a copy of your biopsy results and any other tests he ran and take with you to the new Gastro doc, so that he can see what he been done.

I wish you luck and do hope you feel better soon! Take care :D

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I would consider the possibility of bacterial overgrowth, which can give you cleiac-type symptoms. Recent research showed that a large percentage of people who go gluten-free and still have symptoms also have bacterial overgrowth. You can ask your doctor about it but I would just start taking a probiotic like Culturelle. It won't hurt you and it might solve the problem.

PS -- If you try this and it does the trick it does NOT mean you don't have celiac disease. I would say that with positive biopsy you have celiac disease.

richard

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I will ask my new gastro about bacterial overgrowth when i go back there in 2 weeks, i allready gave him copies of my biopsy of my small intestine and colon. If i would have bacterial overgrowth of my intestine how would they be able to find this out does anyone know?

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Here's froma medical web site. I just did a google search for "bacterial overgrowth +diagnosing" and got lots.

"Identifying the cause of small bowel bacterial overgrowth, and even diagnosing it as the cause of the patient

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    • Oh i hope so!! I'm really anxious about the procedure as I've never done it before. I've been through operations but never an endoscopy and the thought of it is really scaring me! Thank you for giving me some courage! 
    • You are right, the tests could be invalid.   All the celiac tests require you to be on a gluten-containing diet.  It is up to you to decide if you want to go gluten free.  You can do it.  Believe me, I know.  Hubby is not officially diagnosed.  He went gluten-free 15 years ago, based on the rather poor advice from my allergist and his GP.  It worked though.  But he would be the first to tell you that I have had way more support in terms of family and medical.    We think he has it.  Both of our families are riddled with autoimmine disorders.  I am the first to be diagnosed.   My Aunt went gluten free per the advice of her Chiropractor.  Her other doctors never suspected celiac disease.  The diet obviously worked for her.  Her daughter (my cousin) is a nurse.  She had an endoscopy but they did not check for celiac disease.  She chose to go gluten-free too since it worked for her mom.  Both will not do a gluten challenge.  However, my diagnosis has helped them get proper medical treatment.  My Aunt is very active in a celiac support group.    Now everyone in my family knows about celiac disease.  My own niece was just diagnosed with Crohn's, but her GI did test and will continue to test her for celiac disease.  You can develop additional autoimmune disorders at any time.   So far, a few other members have been tested.  No one else had had a celiac disease diagnosis yet.  Time will tell.  If I can save someone from the misery of struggling to get a diagnosis, then I can feel good.   Now, an official diagnosis will help you adhere to the diet .  You can get follow-up care.  Get checked for other things like SIBO, H. Pylori and cancer.  But ultimately, it is up to you.   Whatever you decided to do, please consider a family health history chart.  You might someday help a grandchild.   The stool tests?  In all my research, leading celiac experts do not recommend them.  http://www.cureceliacdisease.org/faq/why-dont-you-recognize-tests-stool-tests-or-otherwise-for-gluten-sensitivity-that-are-currently-available-through-companies-like-enterolab-or-cyrex/ gene testing?  Some 30% of the poulation carries the celiac genes.  It just tells you that you have the chance to develop celiac disease.  It can not diagnose you.    
    • The procedure is a breeze. You will go in, be sedated and go to sleep for a short nap and then it's over. Some people will have a bit of a sore throat but not everyone does. For me the hardest part of the endo was not being able to drink coffee when I got up. You seem to have been back on gluten for long enough to have the test but as CLady said there is a good chance your blood work may be negative. In your case you may want to continue eating gluten after the biopsy at least until you get your blood results. If they are negative consider going a bit longer and getting them redone.
    • I think the gene tests are accurate.  Not sure if thier interpretation of them is.   If you actually think have Celiac, you need to know that.  You  need to know how careful you must be.  You need a diagnosis to get gluten-free food in hospitals or nursing homes (if you can find one that does gluten-free food).  Because thsese "stool tests" are not medically accepted, it is unlikely that a real medical facility will consider you to have Celiac.   http://www.cureceliacdisease.org/faq/why-dont-you-recognize-tests-stool-tests-or-otherwise-for-gluten-sensitivity-that-are-currently-available-through-companies-like-enterolab-or-cyrex/
    • Why would your doctor order an endoscopy and check for celiac disease, but not order a celiac panel?  Had you been gluten free already?  
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