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Went To New Gastro
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After 1 month of being with a gastro doctor who wont help me out i decided to go to someone else, this new gastro order blood test for Celiac, but i was diagnosed 1 month ago by biopsy and am on the gluten free diet, will the blood tests show if i have been not eating any wheat products? I have bad diarrhea even after being gluetin free for 1 month and losing alot of weight, how can i keep my weight steadyor not lose anymore, im eating alot but nothing stays in my body.

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Why would your new Gastro doc run Celiac blood test if you have already been dx through a biopsy?

To answer your question, yes being gluten-free for a month will affect your blood test, they will not be accurate.

I hope you feel better soon!

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The old gastro i went to never did run blood test for celiac all they did was the biopsy of the small intestine and colon, i know that dont make sense! I dont know why this new gastro would run this test when i have been on the gluentin free diet for 1 month! makes me mad!

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If it were me I would have the doc check out the other symptoms you are having and inform him that you are on a gluten-free diet and if you are WILLING or NOT WILLING to go back on gluten to satisfy his needs to test you again.

I would also go to your old Gastro and get a copy of your biopsy results and any other tests he ran and take with you to the new Gastro doc, so that he can see what he been done.

I wish you luck and do hope you feel better soon! Take care :D

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I would consider the possibility of bacterial overgrowth, which can give you cleiac-type symptoms. Recent research showed that a large percentage of people who go gluten-free and still have symptoms also have bacterial overgrowth. You can ask your doctor about it but I would just start taking a probiotic like Culturelle. It won't hurt you and it might solve the problem.

PS -- If you try this and it does the trick it does NOT mean you don't have celiac disease. I would say that with positive biopsy you have celiac disease.

richard

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I will ask my new gastro about bacterial overgrowth when i go back there in 2 weeks, i allready gave him copies of my biopsy of my small intestine and colon. If i would have bacterial overgrowth of my intestine how would they be able to find this out does anyone know?

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Here's froma medical web site. I just did a google search for "bacterial overgrowth +diagnosing" and got lots.

"Identifying the cause of small bowel bacterial overgrowth, and even diagnosing it as the cause of the patient

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    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
    • Mnoosh, I had swollen lymph nodes prior to celiac dx and for a while after going gluten free. My neck as well as groin. The groin ones were the worst. Guess what? All gone! It's hard to recall a time line & consider that everyone is different but I think mine completely resolved within a year.  You've been given great information. Just breathe and then again, breathe. You're going to be fine. 
    • It is the only thing you have eaten, so it can't be anything else?  I eat it with no issues so I am not sure how you can be certain that is the problem.  All I am saying is that its sort of "your word against mine and the company's word".  
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