Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Mouth Sores
0

8 posts in this topic

Patrick was complaining about a sore throat, so I looked....He was just at the doctor's Thursday but between then and now the back of his throat is red, and has a few little tiny white spots. Yes, his tonsils are swollen. He's back to the doctor tomorrow, but are these the notorious celiac disease mouth sores? And is my understanding correct --- the sores are often a result of gluten exposure? He's also been taking allergy meds, which tend to dry up your throat anyway. He's never had sores in his mouth before dx or after. Thanks!

Joanna

0

Share this post


Link to post
Share on other sites


Ads by Google:

Has he been exposed to strep? You describe a red throat, swollen tonsils and white spots which sound exactly like what we just went through last month with a strep infection. Maybe others have different ideas but I would want to rule out strep.

0

Share this post


Link to post
Share on other sites

Yup, that's what I thought too. His older brother was at the doctor about 10 days ago, but his strep test was negative.... I guess we'll find out tomorrow. My son is immunosuppressed so strep would be a really bad thing...

0

Share this post


Link to post
Share on other sites

My husband and I had it and brought the kids to be looked at and the Dr said all looked fine so they didn't do the test but sure enough, a week later my daughter complained of a scratchy throat and again I brought the kids -- two year old was fine but my girls (6 and 4) had it. You mention your son is immunosuppressed and are these spots typical of his disease? If he is under two it is unlikely to be strep in a healthy child -- at least this is what I am told. Nicole

0

Share this post


Link to post
Share on other sites

Well, his strep test was negative (at least so far) so I guess it's somethings else!

0

Share this post


Link to post
Share on other sites




That doesn't sound like celiac disease-related mouth sores. Mine were more like cold sores or cracked areas at the corners of my lips on the outside. Totally disappeared after going gluten-free.

richard

0

Share this post


Link to post
Share on other sites

Excuise me, everyone, but the strep throat that I got as a kid (yes, a Celiac kid) is exactly as you described it, with the swollen glands and white spots. It may not have shown up as positive, yet, but that is what it is!

To the parient who said "...it is unlikely to be strep in a healthy child -- at least this is what I am told."

We (Celiac's) are not healthy children! This IS an immunosuppressed disease. Our immunity is attacking the gluten in our guts, and sees it as a poisen. It is turning in on it's self. It's like sneezing from tree pollen; if you don't take an antihistamin, you histamin's in your system would not shut off till you get far away from the trees! The antihistamin's block that reaction or else you would sneeze your noise off.

If there only were an antigluten agent, to bind with our villa in our intestants, we would be able to eat wheat, but would we still be able to absorbe our food?

Only the future will tell.....

0

Share this post


Link to post
Share on other sites

Richard is right-on in his description of celiac disease-related mouth sores. You can go to the American Family Physician website and see pictures of the sores in living color:

http://www.aafp.org/afp/980301ap/pruessn.html

Scroll down to figures 6 and 7.

The sores were the only physical symptom our daughter had. Scary.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,365
    • Total Posts
      920,552
  • Topics

  • Posts

    • Well, I am stressed to the max. I just spent 3 days in the hospital with D and stomach pain, dizziness, chest pain, generally unwell. Then another trip to the ER on top of that. My protein was low and my RBC and hemoglobin dropped below normal in 3 days. Not terribly low, but below normal. I also had metabolic acidosis which still confuses me. I usually eat every 2-3 hours despite it causing pain to keep my energy up and was unable to eat that frequently in the hospital. I usually carry protein with me and had been taking liquid iron which I stopped a few weeks ago because my new endo is not a fan of iron supplements. As soon as I got home from the hospital I started with my protein drinks and blackstrap molasses for iron.  I now have bilateral mild pleural effusions and a nodule on my left lung, which hopefully is nothing, but was not there on a CT back in March. In addition, my left adrenal gland, which also appeared normal in March, is calcified and the report indicates this is most likely due to a previous bleed or infection. My colon appears tortuous (whatever that means) and we are waiting on colon/endo biopsies. I have been gluten-free since March except for cc so expect the biopsies to again be negative.  My primary care is useless. I am in the process of getting a new one I will see on the 7th but need the current one to fill out FMLA paperwork because I both physically and mentally need time to recover. I will have to go off of payroll for 2 weeks but I think I need to. I called the primary's office today to discuss the hospital tests which she does NOT have yet and to ask if we should/could start a low dose of prednisone because my body is attacking itself. My thyroid on ultrasound is also abnormal though my bloodwork thus far is normal. But it hurts on that side. The only reason the ultrasound was ordered is because I asked for it in the first place. The only reason I have started seeing an endocrinologist is because I found one myself. Anyway...I broke down in tears on the phone eith her today and she told me I was having a "manic episode". I have no history of mania. I only recently started taking xanax to help me cope with the stress of being sick. I was not sick until I did this stupid gluten challenge over the winter. My mother was in town and spoke with the doctor on the phone as well who was trying to get my mom to take me to a psych hospital. She also threatened to send the police to check on me. My mother assured her I was in no danger and we hung up the phone in complete shock. Admittedly, I was in tears when I called her and probably sounded like a fucking mess. But I believe I referenced the dropping iron, protein, fluid near lungs, enlarged thyroid and attacked adrenal gland then literally said "my body is attacking itself and I need help" to which she said, "I think you are manic". Lovely. If I was a mess before that phone call it was 10x worse when we hung up.  Anyway, this is the first night it has been extremely difficult to sleep. I admit my thoughts about my odd symptoms keep me up often recently. I mean, who the hell bleeds from or gets an infected adrenal gland?! I am sure it was another time I begged my primary for help. On a side not, the NP at the ER told me the primary should be putting these pieces together and communicating with my other doctors better. He then stated that he used to go to the same practice but left because the practice got too big and like a business. So I got some validation from that chat.  A melatonin or a .25 xanax usually does the trick for me to sleep but I am so disturbed about my interaction today, stressed at my health, stressed that my ex has our son so much because I am always sick (bless him for coming through), stressed that I have to go back to this awful doctor because I will need the FMLA paperwork before I see the new doc on the 7th.  8 months ago, I took a multivitamin when I remembered it and that was it.  End rant. Maybe now that it is off my chest I can finally sleep. 
    • Hi DKH0614, I use aspirin, Pepto Bismol, and peppermint tea or Altoids peppermints.  Pepto Bismol has a soothing effect on the gut.  Pepto Bismol also has aspirin in it.  Peppermint is helpful for relaxing smooth muscle tissue and getting gas out of the stomach. As per KarenG, you may be reacting to dairy.  Dairy has a sugar called lactose in it that some people with celiac have a hard time digesting.  You could try avoiding dairy for a few weeks to see if that helps.  Or try taking lactaid type pills when you eat dairy. It doesn't take very much gluten to cause an immune system reaction.  So it is important to avoid even traces of gluten if possible.  The stuff is hard to avoid sometimes if people around you don't understand how much a small amount of it can affect your body. Let us know if we can help with any  more questions, or if you have concerns we haven't addressed. And welcome to the forum! Also, if you subscribe to the thread (notify me of replies) you'll get an email when people respond to your thread.    
    • After a year and half, if you are eating gluten-free, you shouldn't be having pain from Celiac.  Perhaps you need to find out what is really causing your issues?  Dairy/ lactose is an obvious first place to look.
    • Hi! I am 15 and have been diagnosed with celiac disease for about a year and a half now and I am woundering what do some of y'all use to relive some of the abdominal pains that come along with celiac/gluten allergies?  ( Ibuprofen,  Tylenol, etc.) 
    • Hi Laurabella, Yes, you could have celiac disease!  It is important to keep eating gluten until all testing is completed, including an endoscopy with biopsy samples if the doctor recommends it.  The doctors usually do want the endoscopy.  The biopsy samples of the small intestine lining (4 to 6 samples) are checked for microscopic damage that indicates celiac disease.  Gall bladder problems can happen with celiac disease.  Your pain could also be from intestinal damage in any part of the small intestine. Some things you could try while you are waiting for your tests to be completed are stopping all dairy, and taking peppermint tea for gas in the stomach.  Celiac disease damage makes it hard to digest dairy sugar (lactose) and that can cause bloating and pain.  Constipation and diahrea are also possible fun symptoms. Welcome to the forum!
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,439
    • Most Online
      1,763

    Newest Member
    DKH0614
    Joined