Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Mouth Sores
0

8 posts in this topic

Patrick was complaining about a sore throat, so I looked....He was just at the doctor's Thursday but between then and now the back of his throat is red, and has a few little tiny white spots. Yes, his tonsils are swollen. He's back to the doctor tomorrow, but are these the notorious celiac disease mouth sores? And is my understanding correct --- the sores are often a result of gluten exposure? He's also been taking allergy meds, which tend to dry up your throat anyway. He's never had sores in his mouth before dx or after. Thanks!

Joanna

0

Share this post


Link to post
Share on other sites


Ads by Google:

Has he been exposed to strep? You describe a red throat, swollen tonsils and white spots which sound exactly like what we just went through last month with a strep infection. Maybe others have different ideas but I would want to rule out strep.

0

Share this post


Link to post
Share on other sites

Yup, that's what I thought too. His older brother was at the doctor about 10 days ago, but his strep test was negative.... I guess we'll find out tomorrow. My son is immunosuppressed so strep would be a really bad thing...

0

Share this post


Link to post
Share on other sites

My husband and I had it and brought the kids to be looked at and the Dr said all looked fine so they didn't do the test but sure enough, a week later my daughter complained of a scratchy throat and again I brought the kids -- two year old was fine but my girls (6 and 4) had it. You mention your son is immunosuppressed and are these spots typical of his disease? If he is under two it is unlikely to be strep in a healthy child -- at least this is what I am told. Nicole

0

Share this post


Link to post
Share on other sites

Well, his strep test was negative (at least so far) so I guess it's somethings else!

0

Share this post


Link to post
Share on other sites




That doesn't sound like celiac disease-related mouth sores. Mine were more like cold sores or cracked areas at the corners of my lips on the outside. Totally disappeared after going gluten-free.

richard

0

Share this post


Link to post
Share on other sites

Excuise me, everyone, but the strep throat that I got as a kid (yes, a Celiac kid) is exactly as you described it, with the swollen glands and white spots. It may not have shown up as positive, yet, but that is what it is!

To the parient who said "...it is unlikely to be strep in a healthy child -- at least this is what I am told."

We (Celiac's) are not healthy children! This IS an immunosuppressed disease. Our immunity is attacking the gluten in our guts, and sees it as a poisen. It is turning in on it's self. It's like sneezing from tree pollen; if you don't take an antihistamin, you histamin's in your system would not shut off till you get far away from the trees! The antihistamin's block that reaction or else you would sneeze your noise off.

If there only were an antigluten agent, to bind with our villa in our intestants, we would be able to eat wheat, but would we still be able to absorbe our food?

Only the future will tell.....

0

Share this post


Link to post
Share on other sites

Richard is right-on in his description of celiac disease-related mouth sores. You can go to the American Family Physician website and see pictures of the sores in living color:

http://www.aafp.org/afp/980301ap/pruessn.html

Scroll down to figures 6 and 7.

The sores were the only physical symptom our daughter had. Scary.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,644
    • Total Posts
      921,579
  • Topics

  • Posts

    • Three years ago I lost about 40kgs (Aussie lol) by better diet & exercise. All was going great til I stopped losing. I upped my exercise but bizarrely started gaining weight. One night a week of not being able to sleep soon became two, then virtually every night with either 1-2hrs tops or none at all. These weird symptoms started about two years ago, becoming worse in say, the last 9mnths. Then I started to get diarrhea. Occasionally then weirdly 2-3 days with multiple occurences then a day or two with nothing, then back to loose & offensive. My GP ran tests, including the TTga (hope that's  right) antibody blood test. Negative so he tells me that's not it. After 9mnths of this he shrugs and says, "I don't know what it is I've run out of ideas what ideas do you have?" Finally refers me to a gastrointerogist.  Private, of course and can't really afford it but we (my fiance and I) go. Stools and blood samples are ordered, basically bye, see you in a month. I have looked my symptoms up and they seem to point to Celiac. Today we went back. I have been having bloated stomach, sore back and limbs,  lovely burps, constant urination and crushing anxiety attacks folowed by depression (which I have never had before in my life). Admitted over the last weekend I didn't sleep for two and a half days and found myself hallucinating and crying to just be able to sleep. Mr fancy pants gastrointerogist says," Hey great news, the stools samples rule out parasites and Crohns!" I tell him how excrutiating the last month has been to which he replies, "It's not Celiac disease, (points at negative blood test results). Celiac doesnt present with diarrhea, anxiety and frquent urination all together." I also had a fecal occult blood test which showed positive & notes say are maybe due to a lower gi bleed, and a ct scan that says shows some damage which, in their words, could be due to a condition such as Celiac disease. He has booked me for a double scope as the next step, has a few ideas what it could be (won't tell me because he doesn't want me to be 'anxious'). Told me to consider that all these symptoms could be me just worrying and being anxious. Told him when this started I was not worried about anything, shrugged and said, It could stil have happened, hey, sometimes we never find out what causes it and your just stuck with diarrhea forever." Then as I was leaving he slapped me on the back and said, "Don't worry so much, see you soon." I need to have the scopes done but is it me or are the things I was told today not true?  I would honestly love it not to be Celiac disease but could he be wrong?
    • Sigh. I totally do love the packs of stretch pants at Costco though...
    • hey, i'm vegetarian and gluten free as well
      have you tried making any recipes with cashew nuts like cashew cheese or pasta sauce? they're really good, easy to make and an excellent way to get more protein/iron
      i can send you some of the easy recipes if you like  
    • Right, fistulas or fissures are usually associated with Crohns, but not celiac.  It is not impossible to have both conditions though.
    • Bravo for being strong enough to bring this topic up.  Depression, anxiety, and other mental or neurological issues are common in celiacs and those with NCGI.  Science is finally catching up to what many of us have already known to be true.   http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3641836/ I have suffered from anxiety and still have some neuropathies.  At first I blamed menopause (that alone can make you crazy), but my symptoms tend kick in after a Gluten exposure and improve as I heal.   You are not crazy!  Gluten can cause so many problems.  What other disease requires that the patient be in charge of "medicating" and caring for themselves?  Most of us after a diagnosis get a "Well, just avoid gluten.  Lucky you that there are so many restaurants that offer a gluten free menu!", speech from our doctors.  We never get time off from thinking about food, our next meal and will it be safe?  Our relationship with food changes dramatically and it can be exhausting.   We do need more resources and support from medical, but for now, at least this forum is helpful!    
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,651
    • Most Online
      3,093

    Newest Member
    Kricket73
    Joined