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Doctor Was Just Great!
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I was really nervous about this appt. She was surprised when I told her I'd had IBS since I was 3 yrs. old. I told her the reason she didn't know was because I hadn't had the best of experiences in the past with my doctors when I discussed IBS at all with them. I believe the protocol was to soothe the patient as it was thought to be caused by stress and possibly depression or something. I felt as though my old doc was condescending. Anyway, it scared me away from ever mentioning symptoms again.

This doctor was so different. I've been seeing her for 8 years or so. She said to me "have I ever made you feel that way before?" I told her no, and it wasn't really her that I was worried about - just the feeling I carried around all these years about previous doc visits.

Anyway, long story short I'm being tested tomorrow for celiac, glucose test and lactose intolerance. I may still end up with still having IBS only and may have to continue living like this - but that I know how to do!

Not all doctors are tough to deal with. This doctor has ALWAYS sent myself and kids off for tests rather than cause worry.

Anyway, thought I'd share a good experience with you!

Chantalle

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Hi Chantalle :

Thank you for sharing your story. I think it's wonderful you have a great doctor that listens to you! I think there are a lot of them out there we just have to search until we find them!

Take care and I hope you get answers soon! But I feel like I must tell you that even if your blood test come back negative DOES NOT mean you don't have celiac disease or gluten sensitivity, it takes time to show up in the blood and to damage your villi in the small intestines.

If your test come back negative you could always try the diet for a couple of months to see if you improve or order the stool panel test from Enterolab this way of testing is more accurate than blood.

Again, I hope you feel better soon! :D

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    • Marip, Have you been diagnosed with celiac disease or Non-celiac Gluten Intolerance?  I notice you joined in 2014.  Did you ever go guten free?  How can we help?   Sorry, I'm not a stool expert!  You could Google it...  Malabsorption?  Standard lab tests that check for anemia and vitamin deficiencies, etc.  should help make that diagnosis.  
    • You can eat just a slice or two (or equivalent) of bread a day for accurate testing.   I understand about the high deductibles.  We're self-employed and we pay for our health insurance. 
    • Sure, if it's gluten free, then fine.  I am very allergic (like anaphylactic) to ibuprofen and aspirin.  So, in my case, I would just tough it out.  Go to bed.  Sleep it off.....eventually. My money is on the garlic and onions.  I can't consume those either (damn that zonulin/leaky gut -- google it along with Dr. Fasano).  I just season with salt, pepper.  Boring.  But no gut issues.  I'm hoping like my lactose intolerance (resolved), that I will get garlic and onions back.   Finally, sometimes just eating anything can hurt when you still have intestinal damage.  Hopefully, you'll feel better in two or three hours if it's celiac related.  Longer if it's an intolerance (leaky gut thing....) Hugs!      
    • I read on their website that all Advil is gluten free, I had such bad pinching cramping today(which I don't why since I prepared all my food at home today.) I made a pot roast, salt garlic, onions...No gluten but still pain, That's the only thing I ate today..I don't eat breakfast or anything.   Anyways.   Is it a good idea to take Advil for the cramping? That's how I would describe it like someone is reaching inside me and pinching me and twisting my insides.    This is what I took  
    • I'll give my PCP a call tomorrow and see what they can offer. My only worry is the expense as anymore tests will put me behind in being able to afford to see the GI. I have high deductible insurance but get money put into my HSA. I'm still trying to pay off the CT scan though. Which is why I'm trying to pick and choose which poses the greatest risk for me right now and what can wait. (Though I would prefer not to wait on any of it.)

      I really do hope its only IBS. Though I always worry IBS is more or less a doctors way of saying "I have no clue" at that point. :C

      Again, I'll be sure to give my PCP a call tomorrow then and see what the options are. I can feel a lot better trying the blood work first. however, once that is done, do I still need to be on a gluten diet before the endoscopy? Also, is it ok if I still mildly reduce the gluten. As in, can I avoid a whole wheat pasta dinner, but still be eating the peanut butter crackers? That sort of thing. Again I guess that is more of a doctor related question. I just wasn't sure if in order to raise your chance, you have to mass consume gluten or not. (Its already in just about everything to begin with.)   --Edit--
      I just now reread the part that you still need to be on the gluten foods even for biopsy so I'll be sure to do that too.
       
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