Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Writing My Paper
0

11 posts in this topic

Hello everyone,

I've been gluten-free for about 1.5 years, and now i am finaaly achieving more than sticking to my gluten-free diet daily, i'm graduating from college! I am writing my final paper on celiac disease, and i'm trying to take an educational approach.

If all goes well my story will get printed in some of the local Orange County papers, maybe i'll try and submit it to magazines too. I am looking for some interesting/ helpful tips from everyone on this board. What are the things (big or small) that has made life easier as a Celiac? What was the hardest thing to give up and did you find something to replace it with? Any tips on keeping on doctors for diagnoses, or even like the last question, what to do about communion? Both good things and bad things will be helpful to my paper. When it's done i'll post it here for everyone to read too.

I have tried to go through these boards and find some answers, but don't want to include anything I don't get permission for writing. So if people will be so kind to post them on this message board over the next couple of days, i will include them in my paper.

If you have any questions, please email me at nadia_van_rooyen@yahoo.com or jordanandnadia@yahoo.com

thank you much!

Nadia :D

by the way, i took charge with my wedding and my whole cake is going to be gluten-free!!!!

0

Share this post


Link to post
Share on other sites


Ads by Google:

The biggest realization: realizing that food is not as important as people.

The biggest frustration: restaurants not taking your requests seriously.

The biggest skill: learning to cook in a way that will keep you cooking.

The biggest happiness: not feeling sick!

0

Share this post


Link to post
Share on other sites

in the procces of writing a gluten/wheat free cookbook

inspirded to write it because i saw how depressed my friend was with the limitations on the foods available to her. i'm creating simple recipies with delicious results. i have lost 40 lbs. eating these foods and she has maintained her weight.

feel free to write @ garcia3169@bellsouth.net buen apetito!

0

Share this post


Link to post
Share on other sites

Biggest frustrations: I have been sick with stomach and weight problems since I was a small child. I am on my second surgery to look for problems and had one surgery to remove my gallbladder. And after all these years more doctors told me it was a female problem or just in my head. Now I have an actual answer to what is wrong (Celiacs) and a way to fix it (gluten-free for life).

Biggest happiness: Knowing that I will be here to watch my daughter grow up and I will not be too sick to be a part of it anymore. Second biggect hapiness, I got the all clear fromthe doctor to get prgnant again. YEAH!

Family: My husband, daughter, and friends are FANTASTIC about the gluten-free diet. My family (mom, dad, brothers, aunts, uncles, etc.) not so good. Luckily they do not live nearby. I was never tested for celaics as a child even though a doctor said my vili were flat, and a cousin had been diagnosed with Celiacs. I come from a family of stick your head in the sand and all your problems will go away.

My realization: The people who love you and respect you are your family be it through blood or friendship. Children deal with problems much better than adults. And food is not the center of every social occassion. It's a wonderful thing to be gluten-free and healthy!

0

Share this post


Link to post
Share on other sites

Biggest Frustration: Being sick and having stomach problems, gas, bloating, etc. for seven years...and not knowing what it was....and having people think that I was "getting myself sick" by stressing out....etc.

Hardest Thing to Give Up: Pizza...I thought it would be bagels, since I ate them every morning and loved them, but I found a decent replacement for the bagels early on. I was thrilled to find a replacement for the pizza: Chebe, which is phenomenal...(you can only order it online at http://www.chebe.com, but they don't charge shipping! :D Pizza is now no longer a difficulty...and the rest of my non-celiac family like it as much as regular pizza that when we have pizza for dinner, the whole family eats gluten-free.

What Made Life Easier as a Celiac: First, my family, who have been supportive, helpful, sympathizing, and understanding, especially my mother for finding so many great replacements for the foods I loved. Second, this board...so many questions have been answered; either by posting myself, or by reading posts. I've learned so much from this board, and it's nice to have somewhere to get info. and talk to people who understand.

Biggest Happiness: The feeling of freedom (which is starting to come) when you don't have to worry about getting sick, making up work, etc. and you don't have to endure the cramps, vomiting, nausea, gas, bloating, diarrhea...etc.

0

Share this post


Link to post
Share on other sites




Congratulations! Is that Orange County CA? Or NY? (I'm in Huntington Beach CA.)

Biggest Frustration: Being horribly ill much of my adult life and not knowing why...but feeling like I was losing my mind. Missing out on a lot of fun with my kids.

Hardest Thing to Give Up: Hands down, Take-out Chinese!

What Made Life Easier as a Celiac: The Internet.

Biggest Happiness: Because I was dx'd, my 11-year-old daughter was dx'd, too. Who knows what could have happened to her?

0

Share this post


Link to post
Share on other sites

Good luck with your paper.

0

Share this post


Link to post
Share on other sites

I'll add my input to answer your questions:

WHAT MADE LIFE EASIER AS CELIAC: SUPPORT from others including a next-door neighbor whose husband is celiac, a local celiac support group (esp. the leader), THIS MESSAGE BOARD and my husband (after I finally told him what I needed). :rolleyes:

HARDEST THING TO GIVE UP: Freedom to walk into any restaurant and order anything on the menu without worrying how it will affect me. :(

SOMETHING TO REPLACE WHAT I GAVE UP: A local totally gluten free restaurant owned and operated by a celiac who brews her own gluten free beer, makes a Chicken Florentine that beats the Coq au Vin I had in Versailles and fantastic gluten-free peanut butter cookies (as well as gluten-free versions of other things we might miss like burger, fish & chips, sandwiches, pizzas, cookies, breads, etc.). :P

TIPS FOR KEEPING ON DOCS FOR DX: ZIP. I gave up after my own PC diagnosed me with 'IBS' 7 years ago and recommended I follow the IBS diet which told me to eat more whole grains (esp. wheat bran) which made my symptoms worse! :angry:

WHAT ABOUT COMMUNION: I take the juice (wine) and pass the 'bread' plate, but we just pass the elements in our church now. 'So glad we aren't 'served' anymore, so nobody (except my husband) notices I don't take the 'bread'. ;)

WORST THING ABOUT CELIAC: Being or learning I was? 'Sorry I forgot how you asked that question. WORST ABOUT BEING: All the excruciating pain I suffered and other confusing but less painful symptoms I experienced most of my life (I had 'symptoms' from early childhood which were misinterpretted by my parents and misdiagnosed by my doctors) BEFORE learning I had celiac. WORST ABOUT LEARNING: Fear everytime I had a gluten 'slip' (from mystery ingredients or cross-contamination) that I was further damaging my intestines which have suffered so much celiac damage for soooo many years. :o

BEST THING ABOUT CELIAC: Again I'll answer with being and learning: BEST ABOUT BEING: I'm a LOT more vigilant about choosing foods which are beneficial for my body, not just what tastes good and satisfies hunger, because longterm malabsorption has deprived me of vital nutrients and zapped my energy too long. ;) BEST ABOUT LEARNING: FINALLY an explanation for all those painful and embarassing symptoms as well as a treatment to resolve the pain and 'symptoms'. :D

I WANT TO ADD: I don't consider learning I have celiac diseasea burden, but rather a blessing. I'm SOOOOO glad to finally experience less pain (I went from excruciating to tolerable to no discomfort for short periods) so I can eat without fear that I'll hurt for the next 4-12 hours. I used to eat from pain of starvation (because I avoided eating until my blood sugar was so low I had to eat) to pain of dull bloating discomfort followed by sharp cramping pain. I LOVE knowing I can eat gluten-free foods without discomfort. Maybe people, who see their celiac diagnoses as a burden, didn't suffer enough pain to realize the benefits of going gluten free. ;)

0

Share this post


Link to post
Share on other sites

I know this is an old thread but how did you do on your paper?

0

Share this post


Link to post
Share on other sites

If you go to a member's profile by clicking on their name, you can see when they last posted. For jordanandnadia, it was November 2004.

0

Share this post


Link to post
Share on other sites

BIGGEST FRUSTRATION: being sick my whole life with seemingly unrelated symptoms, being told over and over that it was "anxiety" or "all in my head" when I knew I had no control over it. Feeling hopeless like I would be sick forever, and nobody cared.

Hardest Thing to Give Up: cheese fries at outback steakhouse, they were my comfort food.

What Made Life Easier as a Celiac: Gluten free animal crackers, that look like everyone elses. (well, it made things easier for my girls, haven't figured out my "super great thingy" yet)

Biggest Happiness: knowing that I wasn't losing my mind, knowing now that ALL of my sypmtoms were caused by celiac, and that soon when I am healed up, I won't be sick anymore.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,891
    • Total Posts
      919,518
  • Topics

  • Posts

    • I'm actually scared to go to the doctor and could use some advice
      I finally found out my gluten issues right after I left a very stressful job and could no longer function I was so ill. Symptoms had gone on for decades before, but it took a moment of stress to bring it to a head. I had anxiety gerd and the irregular heartbeat and I had a nasty bout of shingles when I was 20 which I've subsequently realised was due to my compromised immune system.  Shingles follows a particular nerve  around the body which is probably why Cristiana's dr suspected it. I had it from the front right of torso moving around to my back. The pain you describe is similar to how shingles felt before the blisters arrived, it starts with the skin feeling very tender as if it's been burnt. Maybe you're getting the forerunner to it and your body is successfully stopping it progressing? Ah, enough amateur doctoring from me! I hope you get the answers you need and are soon on the way to recovery. Sending you best wishes.
    • Amaranth and Quinoa: Pseudo-cereal Super Foods
      My latest obsession is creating new quinoa recipes, since my eight year old daughter absolutely loves it! Her favorite is warm quinoa with crumbled turkey sausage, broccoli, and lots of cumin. She also loves it with oil and balsamic vinegar. I like it cold with chopped veggies, garlic, and fresh squeezed lemon juice. View the full article
    • Easy Soy-Mirin Glazed Salmon (Gluten-Free)
      If you're looking for and easy yet exotic way to serve fish, look no further than this soy and mirin glazed salmon. It's easy to make and offers a delicious departure from standard fare. View the full article
    • Mexican?
      Chipotle is one of my favorite places to eat, but it is a 50/50 chance of having a reaction due to cross-contamination.  Yes, they graciously make an effort to be gluten-free and will change gloves.  BUT, before that they used gloves and handled flour tortillas and then used same gloves to reach into the lettuce and cheese--voila--cross-contaminated food.  Changing gloves for you does not avoid this cross-contamination problem.  I started having reactions and my daughter advised me to avoid all the corn products there because of what she read on their website about allergens--so no more chips, or crispy taco shells, or corn.  I also avoid the green salsa and the pico de gallo--not that I am aware of cross contamination but she never eats that there and she has been successful at not having reactions, so that is what I do now and have had much success. Here is what I get:   burrito bowl with either white or brown cilantro lime rice, grilled veggies, black beans, barbacoa, red salsa, cheese, sour cream, guacamole, and lettuce on top.  So GOOD! and so far, safe for me.
    • I'm actually scared to go to the doctor and could use some advice
      Hi Elle.   To be honest, to this day I am not sure if I actually had zoster sine herpete.  It was one of several suggestions by bewildered doctors.  What I can tell you is that I had to have MRIs  because one doctor thought I might have trapped nerve in my spine and I thought it would reveal something dreadful being the sort of person who gets weird nerve sensations - and it didn't reveal a thing.   It was unsettling to have symptoms like that for so long but what made me think my brother in law might have been right was because the worst of the symptoms lasted a year which I gather is pretty typical (but don't panic, because they can go a lot faster!)   My nutritionalist told me that if we get run down we are more prone to shingles so that is something to watch. Easy to say (and I'm speaking to myself here!) try not to spend too much time by yourself worrying about these things because anxiety never helps with nerve pain. I found that rest was very beneficial so I would recommend you try to get as much of that as you can.  Also, someone suggested a warm bath for 20 minutes with some Epsom salts.  That helped too. As I say, just one reason you might be getting this pain but I would continue with the investigations and perhaps mention the pain to your doctor and ask if it could be shingles.      
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Jmg  »  admin

      Hello Admin!
      I don't know whether this is of interest to post on your articles feed:
      http://pratt.duke.edu/about/news/window-guts-brain
      Kind Regards,
      Matt
      · 2 replies
    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,937
    • Most Online
      1,763

    Newest Member
    ckrlink1
    Joined