Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Idea - How About A gluten-free Convention
0

90 posts in this topic

Well I was thinking if we did it in DC (free museums you know) we could march on the mall and get some news coverage for our cause but I guess we can try and get the coverage no matter where were are. Now is it Maryland everyone is thinking about now? Sorry I'm confused after skimming the posts so fast.

0

Share this post


Link to post
Share on other sites


Ads by Google:

I just started reading this thread- But I love all this!!! I would take ChelsE on!!!! It could be a Tx, show down!!!!!! Hey we could travel together! I would definantly go where ever this wound up being.

And seriously, it would be nice to meet everybody in person!

My DH is in advertising, He might be able to help with some of this as a pro bono type situation.

Lollie

0

Share this post


Link to post
Share on other sites
I just started reading this thread- But I love all this!!! I would take ChelsE on!!!! It could be a Tx, show down!!!!!! Hey we could travel together! I would definantly go where ever this wound up being.

And seriously, it would be nice to meet everybody in person!

My DH is in advertising, He might be able to help with some of this as a pro bono type situation.

Lollie

I just started reading this also.. but all these ideas sound WONDEFUL!! I can help in any way needed!

:D

0

Share this post


Link to post
Share on other sites

iN november columbia univeristy is having a 3 day conference. for average joe or medical prof Averge joe it is about 200 not including room but it includes food that is gluten free the event should not be missed.

NY IS A LOVELY CITY TO VISIT AND GOOD DEAL OF CELIAC FRIENDLY RESTURANTS.

I WAS TOLD IT SHOULD HAVE OVER 2000 PEOPLE. THEY TOLD ME IT COSTS THEM 600 PER PERSON

0

Share this post


Link to post
Share on other sites

we have something like that in the uk, its run by allergy uk and its a 3 day evevt, tickets are £9 and you get free goodie bag, make over ( gluten free), talks, new gluten-free food taisters, compotitions the works !! i had an email sent to me last week about it and i really wanted to go but it was so short notice for me as the date was this w end, ive never been to one of these things brfore it would have been really interesting!!!

0

Share this post


Link to post
Share on other sites




:) I was just thinking of this thread today and wondering if anyone was still interested. I would love to meet everyone :)
0

Share this post


Link to post
Share on other sites

This is really great! One of the best ideas I've seen on this forum.

0

Share this post


Link to post
Share on other sites
iN november columbia univeristy is having a 3 day conference. for average joe or medical prof Averge joe it is about 200 not including room but it includes food that is gluten free the event should not be missed.

NY IS A LOVELY CITY TO VISIT AND GOOD DEAL OF CELIAC FRIENDLY RESTURANTS.

I WAS TOLD IT SHOULD HAVE OVER 2000 PEOPLE. THEY TOLD ME IT COSTS THEM 600 PER PERSON

do you know the name of this conference? (so i can google it.)

0

Share this post


Link to post
Share on other sites

I just read this thread too... I would be in also. I would do whatever I can to help. I would hope to have it something within a drive of my state, like previously mentioned Washington DC or something. Keep this idea going, I am in!!!!

0

Share this post


Link to post
Share on other sites

I have a question, is everyone trying to meet at an existing convention like the University of Baltimore or trying to create a new convention? Who would organize it?

0

Share this post


Link to post
Share on other sites

I just saw this thread...and thought it would be AWESOME!!

In my area, in August, they are having a gluten-free picnic, sponsored by the Cel Kids network, for all the little gluten-free kids in the area. I was told that last year, companies came out of the woodwork to donate stuff and that all families in attendance went home with a huge bag full of products.

It would be awesome to have that type of "convention" -- food, families, and fun. In a safe environment for those who are touched by Celiac and Gluten Intolerance. I'd SO be there if I had ample opportunity to plan for it!

0

Share this post


Link to post
Share on other sites

Count me in, wherever, I'll be there!

I'm new to all this, but wondered about getting Annalise Roberts involved ...good promotion for her cookbook, maybe contacting OSI Restaurant Partners, Inc. for sponsorship. Most of their restaurants have gluten free menus on their websites. Again, great exposure for them.

http://investors.outback.com/phoenix.zhtml...&highlight=

From OSI's site:

Headquartered in Tampa, Florida, it was founded in 1988 and today operates 931 Outback Steakhouses (domestic and international), 209 Carrabba's Italian Grills, 108 Bonefish Grills, 41 Fleming's Prime Steakhouse & Wine Bars, 22 Roy's, 35 Cheeseburger in Paradises and four Lee Roy Selmon's restaurants. The company has restaurants in all 50 states, and Outback Steakhouse restaurants are open in 21 countries.

(I'm so excited to know about all their chains! I knew about Outback and Bonefish, but didn't know Carrabba's and Fleming's. Yum!, Memphis has these!)

0

Share this post


Link to post
Share on other sites

I realize this is late but it gives information about a gluten free convention that happens annually. They go to different cities each year but here is the itinerary and contact info for the next year. I was invited to attend with a friend, but was unable to attend this year. I do plan on making the next year.

Gluten Intolerance Group®

31214 - 124 Ave. SE

Auburn, WA 98092

National Education Conference, Salt Lake City, Utah

June 9-11, 2006

WHAT: Gluten Intolerance Group National Education Conference

WHERE: Sheraton City Centre Hotel, 150 West 500 South Salt Lake City,

UT 84101

WHEN: June 9-11, 2006

WHO: 15 international, national, and regional experts to present

including:

* Dr. John Zone, Professor of Dermatology, University of Utah

Health

Sciences Center. Keynote topic: skin health for people with celiac

disease.

* Dr. Carol Fenster, author/consultant, The Savory Palate, Inc.

Topic:

baking cream puffs, tea sandwiches and other delights with alternative

grains.

* Dr. Alessio Fasano, Co-director, University of Maryland Center

for Celiac

Research. Topic: advances in celiac research.

* Executive Chef Aaron Flores, DoubleTree Hotel, Illinois. Topic:

cooking

naturally gluten-free.

* Registered Dietician Shelley Case, Case Consulting. Topic:

Gluten-free

diet basics and advanced.

* Dr. Janet Harnesburger, Pediatric Gastroenterologist. Topic:

Raising

children with celiac disease.

Auction:

The Saturday night banquet will include an auction to raise funds in

support

of the programs of the Gluten Intolerance Group. Donations of items to

be

auctioned are appreciated. Contact GIG.

Exhibits:

More than 40 exhibitors with products and services related to celiac

disease

and the gluten-free diet. Attendees may place orders and buy products on

site. Authors of gluten-free living books on site to autograph their

books.

Health Screenings:

* Free cholesterol, glucose, blood pressure, and body mass

analysis by

Registered Nurses.

* Bone density testing available for a reduced fee.

Cost:

* Early bird registration by May 20 is $190 for GIG members. After

May 20 is

$238 for GIG members. Non-members pay $240 prior to May 20, or $312

after

May 20.

* Kid's Day Camp (ages 5-15) ranges $85-150.

* Child Care (age up to 4 years) ranges $40-113

* Family discount rate and one day rates available.

Registration: Sign-up online at www.gluten.net or call (206) 246-6652

to

request a registration form.

News Media Contact:

Barb Shelley, Gluten Intolerance Group, (801) 673-7837,

shelleycomm@comcast.net

Event Calendar For Immediate Release

Today's Date: March 5, 2006

For more information, contact:

Gluten Intolerance Group of North America

31214-124 Ave. SE

Auburn, WA 98092

Phone: (206) 246-6652 or send email to info@gluten.net

0

Share this post


Link to post
Share on other sites

There is a conference at Stanford - in September. Danna Korn is speaking!

Saturday, September 16, 2006

GENERAL PROGRAM

8:30 a.m. to 9:00 a.m. Registration & Gluten Free Continental Breakfast

9:00 a.m. to 9:15 a.m. Welcoming and Opening of Conference - Eric Sibley, M.D., Ph.D.

9:15 a.m. to 10:00 a.m. Peter Green, M.D. – Celiac Disease– The Basics

10:00 a.m. to 10:45 p.m. Gary M. Gray, M.D. – World-wide Research and Overview of CSRF Progress 2006

10:45 a.m. to 11:15 a.m. Break with the Vendors

11:15 a.m. to 11:45 a.m Gail G. Pyle, M.D. – Management of Celiac Sprue

11:45 a.m. to 12:15 p.m. Melinda Dennis, RD - Gluten free diet

12:15 p.m. to 2:00 p.m. Gluten Free Lunch & Beer Tasting

1:00 p.m. to 2:00 p.m. Office Hours – Meet with speakers; ask those questions

2:00 p.m. to 2:30 p.m. Jenny Stadler, Ph.D. – Resources for Gluten Free Products

2:30 p.m. to 3:00 p.m. Ann Whelan – New food labeling laws

3:00 p.m. to 3:30 p.m. Raffle drawing, Break with the Vendors

3:30 p.m. to 4:30 p.m. Danna Korn - Live -and LOVE -- the gluten-free lifestyle

http://www.celiacsprue.org/conference.htm

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,337
    • Total Posts
      920,456
  • Topics

  • Posts

    • I had quite a few of the medical problems that you have before I figured out that gluten was the problem. I can’t do basic math or writing when I eat gluten also I get depressed, irritable, low energy, etc. The best route to go is to do an elimination diet and monitor how certain foods affect you. I eliminated MSG (Monosodium Glutamate), Nitrite, and oat based on the reactions that I get once I consume them. You must be disciplined on a gluten free diet, there is not such a thing as –It is just one cookie! If you can manage to go 100% gluten-free for three weeks and you see those problems going away, you will have a good idea if that is the cause of your problems. The blood test I did after being gluten-free for two years came back negative so the doctor just make me feel that I was crazy and making things up. I have a stool test done which came back with elevated igA also a gene test indicating I have two genes that code for gluten sensitivity. My lactose intolerance went away too, eating a lot of cheese now. Rash in arms? gone, Brown spots in teeth? Gone, Intestinal noises? Gone, Lack of bladder control? Gone, Constipation? Gone, and a lot others.   
    • Oh you're most welcome!  Another thing --- no steroids, oral or injected for 2 months prior to a dh biopsy. Lay off any topical steroid creams for 2 weeks prior. Really, stand your ground with them. It would also be great if you can get a friend or family member to go with you in case they take the biopsy from somewhere that you can't see such as the back of your neck. Your friend/family member can watch to make sure they don't take it directly ON a lesion. Do you have a primary care doc? You can also go to that doc & ask for a full celiac panel PLUS an eTG or TG3. 60% of people with dh test negative on the celiac blood panel but maybe you're one of the 40% who will test positive. It's worth a shot.
    • Thank you so much for responding, it's so hard to go on this journey of questions and Drs. I really appreciate the time you took to respond. God bless you 💖
    • Do you have copies of your blood test results? Can you post them? Don't forget to list the reference ranges. Is the TTG the only celiac test they did?  Do you have a copy of your pathology report? Get it if you don't. How many biopsies did they take & from what areas? Were you eating gluten right up until the biopsy?
    • I got them on the back side of my knees too. All the literature points out knees & elbows but doesn't mention the "behind the knee" portion of your leg. I eventually got them ON the knees itself but that was one of the last places to present. I also got them on the inside bend of my arm instead of the elbow and just like the knees, it eventually presented on my elbows. Not to be forgotten; the literature also states it can present anywhere on the body. If you found those links I've posted about how a dh biopsy is done correctly then print them out & take them with you to SHOW them. Any derm should be able to follow the directions or they should turn in their license.  As to them saying herpes, well duhhhhhhhhhhhhhhhhhhhh, dh does have a herpes like presentation. That's why they call it dermatitis herpetiformis! Remember, they work for YOU, not the other way around. Insist. Make sure you're still eating gluten. Let us know how it goes. The best of luck to you!
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,398
    • Most Online
      1,763

    Newest Member
    Erinmace
    Joined