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Difference Between Wheat Allergy And Cd?
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Hi! I'm new here and just had a few questions. My two and a half year old daughter has had loose stools with lots of mucous for the past year. I've also seen a tiny amount of blood mixed with mucous on an INFREQUENT basis. Anyway, she was diagnosed with ulcerative colitis in January after undergoing a colonoscopy. She had mild inflammation throughout the colon. I understand that celiac disease does not affect the colon, but I'm wondering if she might have celiac disease. I'm still not confident of the ulcerative colitis diagnosis - it's extremely rare in two year olds and we have NO family history. Plus, she does not fit the "classic case." She's on azulfidine for the ulcerative colitis, but it hasn't done a thing and it's already been two months.

She had the celiac panel done...the antigliadin IgA and IgG were both positive, but the reticulin and endomysial tests (which are more sensitive) were negative. The ped GI said we'll recheck those later. The fecal fat test was negative. She had some blood allergy tests done as well - the wheat RASP test was negative.

First of all, what's the difference between a wheat allergy and celiac disease? Secondly, what kind of symptoms would you see in a two year old? Any information would be greatly appreciated! It's been a stressful year with all her testing and no results!

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Hi there,

I am sort of in the same boat as you! My 2 yr old dd has had loose frequent stools since January. I have seen lots of mucus in her stools too, but no blood (and from what I have read, it is not uncommon to have a little blood in stools here and there). My regular pediatrician ran some basic tests, and finally I asked him to check the anti-gliadin antibodies, and like your dd, they were both positive. She is also on the small side, at 21.5 lbs at 2 yrs (but normal for height). These are really the only symptoms she has. I'm not able to get her into a GI dr until July. I quit giving her gluten and dairy about 2 1/2 weeks ago and just a few days ago, she started having normal looking poops again! It was amazing! Have you tried going no diary? I have heard from so many people that dairy intolerance (NOT just lactose intolerance) is so common, and it wouldn't hurt to try cutting it out. But it can take a few weeks to show improvement. You also have to check labels VERY carefully, because dairy is in a lot of surprising places, like lunch meat(sodium caseinate I think.) Also, I quit giving my dd citrus juices (only white grape juice occasionally) a few days ago, because that can aggravate diarrhea as well.

I can imagine your stress! Atleast you have been able to see the right drs. I had to practically beg my dr to practically any tests. I asked for him to run the anti-gliadin antibodies months ago, but he wanted me to wait until JULY to see the GI dr. I just can't imagine waiting that long to deal with something like diarrhea. Anyway, how is her growth and development? PM me privately if you want to chat some more.

From what I have read at enterolab.com, Dr. Fine says basically that where there's smoke, there's fire and anti-gliadin antibodies are enough for you to remove gluten from her diet. My other kids were tested as well, both coming up with positive IgG antibodies, and I emailed Dr. Fine, and he says that just the one antibody against gluten being positive is enough to remove gluten from their diet. I'm not educated enough to know who to believe!

Mel

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If someone has one type of antibody against gluten, then gluten should not be consumed at all. Even though it is "just one", it is still your signal that the body is fighting the gluten. The human body is notoriously adaptable: if one antibody can't win the "war", then more will be produced to help. I would listen to Dr Fine.

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A wheat allergy is an IgE (one of the immunoglobins) mediated response to the protein in wheat, but not necessarily rye, barley, or oats that causes, among other things, histamine release. Gluten intolerance and celiac disease are an IgA and IgG (two other immunoglobins) mediated response to the protein chain that is common between wheat, barley, rye, and (maybe, but not all that likely) oats that causes, among other things the immune system to damage to the intestines.

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    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
    • Mnoosh, I had swollen lymph nodes prior to celiac dx and for a while after going gluten free. My neck as well as groin. The groin ones were the worst. Guess what? All gone! It's hard to recall a time line & consider that everyone is different but I think mine completely resolved within a year.  You've been given great information. Just breathe and then again, breathe. You're going to be fine. 
    • It is the only thing you have eaten, so it can't be anything else?  I eat it with no issues so I am not sure how you can be certain that is the problem.  All I am saying is that its sort of "your word against mine and the company's word".  
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