Get email alerts Get E-mail Alerts Sponsor: Sponsor:

Ads by Google:

   Get email alerts  Subscribe to FREE email alerts

  • Announcements

    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity

Newly Diagnosed And Confused

3 posts in this topic

:blink: I was diagnosed with Celiac after having a very positive biopsy result. After being gluten-free and lactose free for 2 months, I had blood work that was negative. However, my gastroenterologist continues to diagnose me as celiac. I dont have a lot of support in my area of South Carolina. I have been reading where you guys are using gluten-free makeup and can't lick stamps.... I need help! Where do I go to find out exactly what I cannot use! I am okay with the food part. Also, have any of you been diagnosed as celiac with only a positive biopsy? One other thing.. I was told I couldn't have distilled vinegar but Heinz ketsup is on one of the gluten-free lists that I have but it has distilled vinegar in it! Help, Please please please - I am so confused!! Thanks so much!!!

Shawna in SC


Share this post

Link to post
Share on other sites

There's so much for you to know. To me, a positive biopsy means you absolutely have celiac. The bloodwork is negative because you've been gluten-free for two months. Once you have celiac, you have it for life.

Distilled vinegar, according to most scientists and dieticians associations, is actually always gluten-free because of the distilling process. Some donb't believe this but the fact is that almost no vinegagr is made from wheat. In any case, Heinz distilled vinegar is made from corn and therefore definitely gluten-free.

Here are some sites where you can find info. Be prepared to do some reading and keep asking specific questions when you get confused.

At this site are two lists of safe and forbidden ingredients. Note that at the bottom of the forbidden list they discuss how some of these ingredeints are actually usually OK but you have to check. -- scroll down til you find the lists.

At this next site scroll down until you find the long list of folders with specific topics. Among the topics is a list of companies that will clearly list gluten and a long list of places you might find gluten or contamination, including stamps and cosmetics. You can also join a discussion list there if you want.

This is the site for the St. John's listserv. You can sign up and receive e-mails, or you can just click on the archives and either start reading or search for particular items.

Lots of reading but well worth it.



Share this post

Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now