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What Are Your Most Common Symptoms?


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20 replies to this topic

#16 gf4life

 
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Posted 05 June 2004 - 08:10 AM

When I posted that list of symptoms on the old board it was from my own research. It is by no means a complete list. When a major study was concluded last year, February 2003, it was said that they found over 250 symptoms and related diseases associated with Celiac Disease. They will not release a printed copy of that list. (Believe me I tried to get one!) Their reasoning is that it is already outdated. Another comprehensive list of symptoms and related diseases is in the book Dangerous Grains by James Braly and Ron Hoggan. Excellent book. I recommend it for anyone wanting to find out more information about how gluten damages the body and causes other illnesses.

Thank you Jessica for moving a copy of my post from the old board. :)

God bless,
Mariann
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~West Coast-Central California~

Mariann, gluten intolerant and mother of 3 gluten intolerant children

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#17 khyricat

 
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Posted 09 June 2004 - 05:02 PM

Thanks for the list guys, I am now more certain then ever that the blood test that I took earlier this week will come back positive.. I already started the gluten free thing today- went grocery shopping for supplies and such.. I wasn't doing much gluten prior to this point... but some. I had been told years ago that I had Crohns disease like my mom.. but celiac makes more sense as a diagnosis when you combine all my symptoms.. I am glad I took the time to do the research and my new doc insisted on the test when she said some of my current symptoms are more like IBS then crohns.. she was going to look at the test results from when they found the lesions again to see if they are consistant with celiac, and call me next week once the blood test comes back. If I start gluten free before she tells me to could that cause a problem for later test results?

I have had tummy issues for more then 10 years but I've also had issues with many other things on that list.. I am going to print it out tomorrow and count the actual number of things on it that fit me. It also sounds a lot like some of my husbands problems, so I am going to urge him to either join me gluten free or be tested.

Amie in MI. who just found this board earlier today while at work.
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#18 gf4life

 
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Posted 10 June 2004 - 02:19 PM

HI Amie, Welcome to the board!

Yes, it could mess up future test results if you start the gluten free diet now. You might want to wait until your blood test results come in and see if your doctor wants to run anymore tests.

God bless,
Mariann
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~West Coast-Central California~

Mariann, gluten intolerant and mother of 3 gluten intolerant children

#19 khyricat

 
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Posted 11 June 2004 - 01:23 AM

thanks for the information. I am going to start cutting back the gluten but not go gluten free.. just eating less of the bad things.

Amie
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#20 celiac3270

 
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Posted 15 June 2004 - 09:10 AM

That is a good list. Thank you, Jessica, for retrieving the list...thank you Mariann for researching it in the first place. It is much longer and more comprehensive than any others that I've read.

-celiac3270
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#21 celiac3270

 
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Posted 15 June 2004 - 09:15 AM

Hi, I found this list under another section, and felt that it might be helpful to those browsing this section of the forum, as well. Jessica retrieved it from the old board where Mariann (gf4life, or back then, fernandofamily) researched and posted it. Because it mentioned other problems associated with celiac disease, I thought it might be helpful here.

From Fernandofamily on the old board: 9-7-2003
here is a list of symptoms associated with celiac disease that I put together to give to my doctor. I would like to know how many of the symptoms any of you have ( or had in the past if you a gluten-free now). I have 32 symptoms off this list, many of which taken separately could have been something else, but when you look at them together you can tell there is something really wrong! If you have anything to add to this list that would be great. Most of this was compiled from the aafp.org and celiac.com websites info on celiac symptoms.

List of symptoms associated with Celiac Disease (also known as Celiac Sprue and Gluten Intolerance):

Lassitude (a term describing a feeling of tiredness, weakness or exhaustion)
Inanition (exhaustion, as from lack of nourishment)
Depression
Fatigue (often chronic)
Irritability
Fuzzy-mindedness after gluten ingestion
Dental enamel defects (lots of dental cavities due to weak enamel)
General malnutrition with or without weightloss
Any problem associated with vitamin deficiencies
Diarrhea
Constipation
Lactose intolerance
Flatulence
Anorexia
Nausea
Vomiting
Burning sensation in the throat
Abdominal pain and bloating
Borborygmi (audible bowel sounds)
Abdominal distention
Steatorrhea (fatty stools that float rather than sink)
Foul smelling stools
Bulky, greasy stools
Anemia (iron deficiency)
Hemorrhagic diathesis (bleeding disorder)
Osteoporosis/osteopenia (bone loss or thinning)
Bone pain (especially nocturnal)
White flecks on fingernails
Short stature (due to slow growth)
Arthritis
Rheumatoid arthritis
Arthralgia (pain in the joints)
Tetany (spasms and twitching of the muscles)
Parasthesia (abnormal or impaired skin sensation including burning, prickling, itching, or tingling)
Amenorrhea (absence of menstrual bleeding)
Delayed puberty
Infertility
Impotence
Cheilosis (inflammation, cracking and dryness of the lips)
*Angular cheilosis (specifically cracking in the corners of the lips)
Glossitis (swollen tongue)
Stomatitis (any form of inflammation or ulceration of the mouth, such as mouth ulcers, cold sores, thrush, etc.)
Purpura (purple or red spots on your skin caused by bleeding under the skin, more common in elderly)
Follicular hyperkeratosis (corns, calluses, plantar warts, psoriasis, nail fungus)
Atopic dermatitis (a tendency towards allergies and a predisposition to various allergic reactions)
*Scaly dermatitis (inflammation of the skin, includes dandruff and topical allergic reactions)
Hyperpigmented dermatitis (can't find the definition, must have something to do with the color of the rash?)
Alopecia areata (loss or absence of hair, leaving the skin looking and feeling normal)
Edema (accumulation of serum-like fluid in the body tissues)
Ascites (accumulation of fluid in the peritoneal cavity-the space between the abdominal wall and the organs)
Selective IgA deficiency
Seizures, with or without occipital calcification
Hepatitis (inflammation of the liver, may be acute or chronic)
Dermatitis herpetiformis (skin rash characterized as intensely itchy skin eruptions like red bumps and blisters. Burning, stinging and itching is very bad. It appears in groups around the body, most often on the head, elbows, knees, and buttocks, much like the lesions of Herpes which is why the name is herpetiformis-meaning "like herpes". Must be diagnosed by a doctor. Only occurs in celiac patients.)
Liver disease
Xerophthalmia (an eye disorder which causes the conjunctiva and cornea to become abnormally dry)
Night blindness (inability to see well in dim light)
Thyroid disease
Unexplained neuropathic illnesses, including ataxia and peripheral neuropathy
*Peripheral neuropathy (disease, inflammation and damage to the peripheral nerves, which connect the central nervous system to the sense organs, muscles, glands, and internal organs. Damage to sensory nerves may cause numbness, tingling, sensations of cold, or pain, often starting at the hands or feet and moving toward the body center. Damage to the nerves of the autonomic nervous system may lead to blurred vision, impaired or absent sweating, headaches, episodes of faintness associated with falls in blood pressure, disturbance of gastric, intestinal, bladder or sexual functioning, including incontinence and impotence. In some cases there is no obvious or detectable cause)
*Ataxia (incoordination and clumsiness, affecting balance and gait, limb or eye movements and/or speech, making one appear as if they were drunk)
Dementia
Diabetes mellitus type 1
Sjogren's syndrome (eyes, mouth, and vagina become extremely dry)
Collagen disorders
Down syndrome
IgA neuropathy
Fibrosing alveolitis of the lung (body produces antibodies against its own lung tissue, creates a dry cough and breathing difficulty upon exertion)
Hyposplenism, with atrophy of the spleen (underactive spleen)
Pancreatitis (inflammation of the pancreas)
Lymphoma (any group of cancers in which the cells of the lymphoid tissue multiply unchecked)
Leukopenia (abnormal decrease in white blood cells, often reducing immune system function)
Coagulopathy (blood clotting disorder)
Thrombocytosis (low blood platelets/damaged platelets, causing large amounts of bruises due to uncontrolled bleeding under the skin)
Melanosis (black or brown discoloration of the colon, usually due to chronic constipation)
Erythema nodosum (red-purple swellings on the legs and sometimes arms, with fever and joint pain)

In children:
Failure to thrive
Irritability
Paleness
Fretfulness
Inability to concentrate
Emotional withdrawal or excessive dependence
Nausea
Pale, malodorous, bulky stools
Frequent, foamy diarrhea
Wasted buttocks
Anorexia
Malnutrition:
*With protuberant abdomen (with or without painful bloating)
*Muscle wasting of buttocks, thighs, and proximal arms
*With or without diarrhea
(as well as any number of the above diseases and disorders)

Additional information:

Reactions to ingestion of gluten can be immediate, or delayed for days, weeks or even months.

The amazing thing about celiac disease is that no two individuals who have it seem to have the same set of symptoms or reactions. A person might have several of the symptoms listed above, a few of them, one, or none. There are even cases in which obesity turned out to be a symptom of celiac disease.


Thank you, again, to both...this is a more complete list then I've found anywhere else. :D
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