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hey everyone. im 14 years old and have just recently been told i tested positive for having the antibodies related to celiac. im going to get the throat thingy, and lately ive just been really depressed about the whole thing, no matter what i do. 1 weird thing is, ive never had any of the physical symptoms. the only thing is that im tired more than normal, and thats why my brother suggested me gettin my blood tested, to see if im anemic. i was a tiny bit iron-defficient, and i know that thats related to celiac. 2 other people in my family have celiac, my older brother and sister, so im very familiar with the diet and everything. i never really thought of it as a big deal until i realized that i could possibly have this disease, and that it could change the rest of my life. if anyone has any words of encouragement or advice i would love to hear from you! thanks.

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Hi :) I understand what you must be feeling. My sister Becky was diagnosed before I was, although only by a couple months. When I heard that she had celiac, I felt bad for her, but as soon as you hear that you might have it, your whole outlook on it changes. My words of encouragement are a few things. First off, you are so very lucky to already understand the diet, since you have siblings that are around you that have celiac; you won't be on your own in your family. Just know that if you catch it at this time, before you start feeling a lot of the symptoms, you probably will never have to deal with them, which is a big blessing! It will be hard along the way, but feeling healthy will be well worth it. I wish you the best of luck!

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Hi...welcome to the board. I have had the symptoms of Celiac since first grade, but was only diagnosed 13 weeks ago. At first, for me, it seemed strange changing diet, and all the gluten-free foods didn't seem nearly as good as the normal stuff. You'll quickly become used to it...especially since you have others in your family with celiac disease. I guess there are only three things to mention:

- DON'T CHEAT -- As you already know, to heal your intestines you have to be 100% gluten-free. A nutritionist told me that any amount of gluten larger than your fingernail i n one day can screw up all your progress. It was difficult for me to watch others eat gluten foods that I couldn't have, but knowing how sick it would make me and how much better I felt without it made their food look less and less apetizing. It might be even harder for you than for me because you have NO symptoms. In a way, symptoms are positive cause they warn you if you eat something bad, so you know to stay away from it in the future. Plus, your desire to avoid symptoms outweighs your desire to cheat, so it helps in that respect, as well.

- WHEN IN DOUBT, DON'T -- Pretty straightforward. If you question something, don't eat it. Call the company later, but don't risk it.

- GOOD LUCK-- good luck with the endoscopy (throat thingy) and a quick healing of the intestines.

It may seem life-altering in the beginning (and it is), but it will get better over the weeks. Eventually it will seem so normal that you won't even really have to think when you reach for food to know that it's gluten-free or not. Good luck on the endoscopy.

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    • Well, you can probably get an apple or something.  You might be able to get someone to boil you some eggs.  But be careful of things like nuts that should be naturally gluten free.  They have almost always been soaked in a flavor solution that usually containes caramel coloring, "soy" (wheat) sauce and other aditives.  If I am really hungry and must eat in a Chinese restaurant, I order plain white rice and steamed vegetables.  But even so, you must monitor it carefully.  The rice sometimes has other substances added to give it a better texture, and very often the vegetables have in fact had "just a little bit" of soy sauce added.  To be fair, celiac disease is hardly ever found in East Asians, so understandably people are not tuned it to it.  Also, culturally, with the exception of fruits, it is generally thought that the flavor of foods needs to be enhanced, so it is had to find anything natural even in the "western" gorceries. Even in the western restaurants, be careful.  Fish and meat and often vegetables are usually pre-marinated. I will not even attempt to address the issue of cross-comtamination, since that is a whole higher order of things. I do know what I am talking about; I have celiac and have worked here for nearly 7 years.  
    • I'm glad I found these forums!  I will spend some more time this evening reading through them.  But I wanted to get my question out there just to see if anyone else might have answers quicker than I can sift through the forum for them.      I've been feeling terrible for about a year, and after an elimination diet last month, figured out that if nothing else, gluten/wheat is a problem.  After lots of research, I abandoned the elimination diet and added gluten back in, so that I could get tested for Celiac.   I was off gluten for 3 weeks, from mid-June until early July.  I've had it back in my diet for almost 3 weeks now.    My question is this: Since I was off gluten for 3 weeks, and now back on for almost 3, is that enough time on to yield a positive Celiac blood test, if that indeed is what I have?  All the research I've done says 4-6 weeks for a gluten challenge, but is that really necessary if I was only not eating it for 3 weeks?  I am desperate to get this testing done and over with.  I feel terrible all the time and getting through the day is a struggle.  My doctor ran allergy panels already and everything came back clear except for a mild wheat allergy.  So if nothing else, I'll have to give up wheat for sure at the end of all this.  I get the feeling she doesn't know a ton about Celiac though, so I'm doing a lot of the research on my own. Any advice or information would be so appreciated! 
    • Hi Michael, That's quite a spike in blood pressure!  I haven't tested that myself and don't want to if it means I have to eat gluten.  Blood pressure testing to identify food reactions is something that has come up before.  It sounds like it might be possible but I don't know how much study has been done on it.  Probably not much since it is such a simple, straight forward idea. Welcome to the forum!
    • Hi Megan, Did the doctor test you for celiac disease?  You really shouldn't go gluten-free until all the testing for celiac disease is completed.  It is a little odd for a doctor to tell you to go gluten-free for no reason IMHO.  Did he/she explain the reason for it? Personally, I have learned over the years what I can eat safely and what I can't.  Occasionally I get hit but it is rare.  Simplifying your diet is a good first step.  Avoiding processed foods for a while and dairy also is good.  I suggest any change you make last for a month at least. Then try the food again. If you are eating 100 random ingredients/foods each day it is hard to figure these things out.  If you reduce it to a much smaller number of foods then things become simpler. Welcome to the forum!
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