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Is There Are Any Any Bath Soaks For The Raging Itch?


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19 replies to this topic

#1 Guest_ellyntoomey_*

 
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Posted 29 March 2006 - 04:33 AM

I have a raging rash and itch. I wake up at night bleeding from the itch. I was on oral steriods, but have weaned off them. Dapsone pills do nothing. The only thing that works is a shot of steriods every 6 weeks, but this can't go on forever. I have steriod cream, but after 7 months of this, it seems to be not as affected.

Is there anything out there, something to soak in, some ointment or meds? I am out of my mind. Is there some medication that I am not taking. I have hydroxzine pills, but they just make me sleep. I have tried other various prescription creams, none of them work.

I am gluten free diet for 6 months and it is as bad as ever.

I am losing hope, please help me.
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#2 lovegrov

 
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Posted 29 March 2006 - 05:30 AM

This may be of no help, but if the gluten-free diet and dapsone aren't helping, it sounds like you've got something other than DH.

richard
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#3 jerseyangel

 
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Posted 29 March 2006 - 05:36 AM

If it turns out not to be DH, it sounds a lot like my eczema. Have you ever tried the prescription creme called Elocon? It helped me greatly.
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Patti


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#4 Eve

 
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Posted 29 March 2006 - 06:07 AM

I have a raging rash and itch. I wake up at night bleeding from the itch. I was on oral steriods, but have weaned off them. Dapsone pills do nothing. The only thing that works is a shot of steriods every 6 weeks, but this can't go on forever. I have steriod cream, but after 7 months of this, it seems to be not as affected.

Is there anything out there, something to soak in, some ointment or meds? I am out of my mind. Is there some medication that I am not taking. I have hydroxzine pills, but they just make me sleep. I have tried other various prescription creams, none of them work.

I am gluten free diet for 6 months and it is as bad as ever.

I am losing hope, please help me.



The best thing for Itch that I know of is Tea Tree Oil..Go to wal mart and get Herbal Harvest Tea Tree oil 100% pure. You shouldent use it on your skin but if you soak in it it should sooth the ich. Nice warm tub not to hot and you can use a bit of baking soda too.. that helps .... Burts bees has some great salves that are gluten free that have helped me.. check them out burtsbees.com. If tha dosen't work Have you tried Reiki or acupuncture? That really helped me..
Eve ;)
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#5 Guest_ellyntoomey_*

 
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Posted 29 March 2006 - 07:07 AM

I have been tested and have Celiac.

I have contacted the University Of Maryland which has the world's largest research center for Celiac Disease. They are running clinical trials for a drug (Dr. Alessio Fasano) that blocks the effects of gluten.

It has shown positive results.

I need relief because the itching and rash are driving me to distraction, hard to focus on work, sleep etc.
The only true fix is a shot of steriods every 6 weeks. not good.
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#6 tarnalberry

 
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Posted 29 March 2006 - 07:10 AM

Verify that you've got all gluten out of your diet - go over everything you're eating with a fine tooth comb.
Also, make sure to drastically reduce you're iodine consumption until this DH episode goes away fully.
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Tiffany aka "Have I Mentioned Chocolate Lately?"
Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy
G.F. - September 2003; C.F. - July 2004
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#7 StrongerToday

 
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Posted 29 March 2006 - 07:31 AM

Obviously an oatmeal bath is out - but you try soaking in a tub with some baking soda.
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#8 Carriefaith

 
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Posted 29 March 2006 - 08:10 AM

If you have been 100% gluten free for 6 months, then I would think that the dh would have subsided by now. Maybe you are having allergic reactions to something else?
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Carrie Faith

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#9 jerseyangel

 
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Posted 29 March 2006 - 08:18 AM

I have been tested and have Celiac.

I have contacted the University Of Maryland which has the world's largest research center for Celiac Disease. They are running clinical trials for a drug (Dr. Alessio Fasano) that blocks the effects of gluten.

It has shown positive results.

I need relief because the itching and rash are driving me to distraction, hard to focus on work, sleep etc.
The only true fix is a shot of steriods every 6 weeks. not good.

I didn't mean to imply that you don't have Celiac. I have Celiac, and also have eczema. I, too used to get the steroid injections--Decadron. Felt great, until it wore off. I'll be dealing with the long-term side effects of those for the rest of my life. The cream I suggested is useful for all kinds of dermatitis. Hope you find some relief soon :)
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Patti


"Life is what happens while you're busy making other plans"

"When people show you who they are, believe them"--Maya Angelou

"Bloom where you are planted"--Bev

#10 lovegrov

 
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Posted 29 March 2006 - 10:08 AM

But have you been tested for DH? Most people with celiac DON'T have DH. In addition, steroids have no effect on DH.

richard
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#11 Guest_ellyntoomey_*

 
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Posted 01 May 2006 - 08:19 AM

:o

I had the blood test and was positive for the enezyme. Also, my sister has Celiac, but she has the gastro effects. Her intestinal tract is healed after 2 years of gluten free diet.

I am gluten free to the best of my knowledge. I have 2 drinks with Kalhua and vodka when I get home from work. I smoke New ports, but I can't beleive that cigs and a couple of drinks per night affect my DH.

I just am getting health insurance so I can go to a gastro and internist to try to help myself. I am off the presdnisone, and just started dapsone again. But the rash is the worse it has ever been.

I just moved to southern Delaware, and have a new job. I need relief from this intching, need further testing to make sure I have no other allergies and to monitor my blood levels while taking Dapsone. I got Dapsone & Prednisone from a doctor in NH (he did the blood test).

I am really depressed, and my skin rash is out of control. I have been gluten free for 7-8 months to the best of my ability.

If anyone has any suggestions for the rash, let me know.

I have tried elidel, and other creams for execma, cortisone, dapsone, anti biotics, prednisone. The only thing that kicks it is a shot every 6 weeks.
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#12 elkris

 
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Posted 11 May 2006 - 02:54 PM

I have a raging rash and itch. I wake up at night bleeding from the itch. I was on oral steriods, but have weaned off them. Dapsone pills do nothing. The only thing that works is a shot of steriods every 6 weeks, but this can't go on forever. I have steriod cream, but after 7 months of this, it seems to be not as affected.

Is there anything out there, something to soak in, some ointment or meds? I am out of my mind. Is there some medication that I am not taking. I have hydroxzine pills, but they just make me sleep. I have tried other various prescription creams, none of them work.

I am gluten free diet for 6 months and it is as bad as ever.

I am losing hope, please help me.

Hi Ellyn. Have you tried taking flax oil pills?? I have had dh since High School. I kind of accidently discovered about 10 years ago that flax pills both prevent the itch and sores aand also help to make them go away.
Good luck.
Ellie

Hi Ellyn. Have you tried taking flax oil pills?? I have had dh since High School. I kind of accidently discovered about 10 years ago that flax pills both prevent the itch and sores aand also help to make them go away.
Good luck.
Ellie


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#13 rumbles

 
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Posted 12 May 2006 - 06:20 PM

Kahlua has gluten in it. Vodka, unless it's a true potato vodka (such as Glacier brand), has gluten in it.
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#14 tarnalberry

 
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Posted 12 May 2006 - 06:31 PM

Kahlua has gluten in it. Vodka, unless it's a true potato vodka (such as Glacier brand), has gluten in it.


That is not true. Even vodka distilled from wheat does not have gluten in it because the distillation process simply doesn't allow a molecule as large as gluten through.

(Remember being a kid, and having those toys with the holes and the blocks with pegs that fit in them? There were big holes and little holes, and big blocks and little blocks? Distillation has lots and lots and lots and lots of little holes, and gluten is one really really big block. No shoving occurs in the distillation apparatus, so there's no shoving the big block through the really small holes to the end product.)

(I don't know about Kahlua...)
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Tiffany aka "Have I Mentioned Chocolate Lately?"
Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy
G.F. - September 2003; C.F. - July 2004
Hiker, Yoga Teacher, Engineer, Painter, Be-er of Me
Bellevue, WA

#15 Claire

 
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Posted 12 May 2006 - 09:21 PM

Some things to try:

Baking soda in warm bath water. At least one half cup.

For topical application: spray Solarcane. Works quickly and lasts for quite awhile.

Also Ivy Dry - cream or lotion

Also - Band Aid Itch Relief Gel Spritz (can find this at Wal-Mart)

Hope something here helps. I know just how it is. Claire
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