Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Is There Are Any Any Bath Soaks For The Raging Itch?
0

20 posts in this topic

I have a raging rash and itch. I wake up at night bleeding from the itch. I was on oral steriods, but have weaned off them. Dapsone pills do nothing. The only thing that works is a shot of steriods every 6 weeks, but this can't go on forever. I have steriod cream, but after 7 months of this, it seems to be not as affected.

Is there anything out there, something to soak in, some ointment or meds? I am out of my mind. Is there some medication that I am not taking. I have hydroxzine pills, but they just make me sleep. I have tried other various prescription creams, none of them work.

I am gluten free diet for 6 months and it is as bad as ever.

I am losing hope, please help me.

0

Share this post


Link to post
Share on other sites


Ads by Google:

This may be of no help, but if the gluten-free diet and dapsone aren't helping, it sounds like you've got something other than DH.

richard

0

Share this post


Link to post
Share on other sites

If it turns out not to be DH, it sounds a lot like my eczema. Have you ever tried the prescription creme called Elocon? It helped me greatly.

0

Share this post


Link to post
Share on other sites
I have a raging rash and itch. I wake up at night bleeding from the itch. I was on oral steriods, but have weaned off them. Dapsone pills do nothing. The only thing that works is a shot of steriods every 6 weeks, but this can't go on forever. I have steriod cream, but after 7 months of this, it seems to be not as affected.

Is there anything out there, something to soak in, some ointment or meds? I am out of my mind. Is there some medication that I am not taking. I have hydroxzine pills, but they just make me sleep. I have tried other various prescription creams, none of them work.

I am gluten free diet for 6 months and it is as bad as ever.

I am losing hope, please help me.

The best thing for Itch that I know of is Tea Tree Oil..Go to wal mart and get Herbal Harvest Tea Tree oil 100% pure. You shouldent use it on your skin but if you soak in it it should sooth the ich. Nice warm tub not to hot and you can use a bit of baking soda too.. that helps .... Burts bees has some great salves that are gluten free that have helped me.. check them out burtsbees.com. If tha dosen't work Have you tried Reiki or acupuncture? That really helped me..

Eve ;)

0

Share this post


Link to post
Share on other sites

I have been tested and have Celiac.

I have contacted the University Of Maryland which has the world's largest research center for Celiac Disease. They are running clinical trials for a drug (Dr. Alessio Fasano) that blocks the effects of gluten.

It has shown positive results.

I need relief because the itching and rash are driving me to distraction, hard to focus on work, sleep etc.

The only true fix is a shot of steriods every 6 weeks. not good.

0

Share this post


Link to post
Share on other sites




Verify that you've got all gluten out of your diet - go over everything you're eating with a fine tooth comb.

Also, make sure to drastically reduce you're iodine consumption until this DH episode goes away fully.

0

Share this post


Link to post
Share on other sites

Obviously an oatmeal bath is out - but you try soaking in a tub with some baking soda.

0

Share this post


Link to post
Share on other sites

If you have been 100% gluten free for 6 months, then I would think that the dh would have subsided by now. Maybe you are having allergic reactions to something else?

0

Share this post


Link to post
Share on other sites
I have been tested and have Celiac.

I have contacted the University Of Maryland which has the world's largest research center for Celiac Disease. They are running clinical trials for a drug (Dr. Alessio Fasano) that blocks the effects of gluten.

It has shown positive results.

I need relief because the itching and rash are driving me to distraction, hard to focus on work, sleep etc.

The only true fix is a shot of steriods every 6 weeks. not good.

I didn't mean to imply that you don't have Celiac. I have Celiac, and also have eczema. I, too used to get the steroid injections--Decadron. Felt great, until it wore off. I'll be dealing with the long-term side effects of those for the rest of my life. The cream I suggested is useful for all kinds of dermatitis. Hope you find some relief soon :)

0

Share this post


Link to post
Share on other sites

But have you been tested for DH? Most people with celiac DON'T have DH. In addition, steroids have no effect on DH.

richard

0

Share this post


Link to post
Share on other sites

:o

I had the blood test and was positive for the enezyme. Also, my sister has Celiac, but she has the gastro effects. Her intestinal tract is healed after 2 years of gluten free diet.

I am gluten free to the best of my knowledge. I have 2 drinks with Kalhua and vodka when I get home from work. I smoke New ports, but I can't beleive that cigs and a couple of drinks per night affect my DH.

I just am getting health insurance so I can go to a gastro and internist to try to help myself. I am off the presdnisone, and just started dapsone again. But the rash is the worse it has ever been.

I just moved to southern Delaware, and have a new job. I need relief from this intching, need further testing to make sure I have no other allergies and to monitor my blood levels while taking Dapsone. I got Dapsone & Prednisone from a doctor in NH (he did the blood test).

I am really depressed, and my skin rash is out of control. I have been gluten free for 7-8 months to the best of my ability.

If anyone has any suggestions for the rash, let me know.

I have tried elidel, and other creams for execma, cortisone, dapsone, anti biotics, prednisone. The only thing that kicks it is a shot every 6 weeks.

0

Share this post


Link to post
Share on other sites
I have a raging rash and itch. I wake up at night bleeding from the itch. I was on oral steriods, but have weaned off them. Dapsone pills do nothing. The only thing that works is a shot of steriods every 6 weeks, but this can't go on forever. I have steriod cream, but after 7 months of this, it seems to be not as affected.

Is there anything out there, something to soak in, some ointment or meds? I am out of my mind. Is there some medication that I am not taking. I have hydroxzine pills, but they just make me sleep. I have tried other various prescription creams, none of them work.

I am gluten free diet for 6 months and it is as bad as ever.

I am losing hope, please help me.

Hi Ellyn. Have you tried taking flax oil pills?? I have had dh since High School. I kind of accidently discovered about 10 years ago that flax pills both prevent the itch and sores aand also help to make them go away.

Good luck.

Ellie

Hi Ellyn. Have you tried taking flax oil pills?? I have had dh since High School. I kind of accidently discovered about 10 years ago that flax pills both prevent the itch and sores aand also help to make them go away.

Good luck.

Ellie

0

Share this post


Link to post
Share on other sites

Kahlua has gluten in it. Vodka, unless it's a true potato vodka (such as Glacier brand), has gluten in it.

0

Share this post


Link to post
Share on other sites
Kahlua has gluten in it. Vodka, unless it's a true potato vodka (such as Glacier brand), has gluten in it.

That is not true. Even vodka distilled from wheat does not have gluten in it because the distillation process simply doesn't allow a molecule as large as gluten through.

(Remember being a kid, and having those toys with the holes and the blocks with pegs that fit in them? There were big holes and little holes, and big blocks and little blocks? Distillation has lots and lots and lots and lots of little holes, and gluten is one really really big block. No shoving occurs in the distillation apparatus, so there's no shoving the big block through the really small holes to the end product.)

(I don't know about Kahlua...)

0

Share this post


Link to post
Share on other sites

Some things to try:

Baking soda in warm bath water. At least one half cup.

For topical application: spray Solarcane. Works quickly and lasts for quite awhile.

Also Ivy Dry - cream or lotion

Also - Band Aid Itch Relief Gel Spritz (can find this at Wal-Mart)

Hope something here helps. I know just how it is. Claire

0

Share this post


Link to post
Share on other sites

I thought Kahlua had been confirmed gluten-free by the company? I swear I saw that somewhere. :huh:

I would probably soak in a tub with some chamomile to soothe the savage beastie, it also could be systemic candida... I had a real problem with that and had to do a candida cleanse as well as going gluten-free. Systemic candida can cause rash and itching all over and seriously drive you to distraction!

0

Share this post


Link to post
Share on other sites

I get something like that, not sure what causes it. I tried everything even the anti allergy tablets didn't work. The only think that helped was using a topical anasthetic like zylocane, it didn't clear it up but it stopped the itching and burning, I found if I could just stop scratching it improved.

0

Share this post


Link to post
Share on other sites

Sounds like you've been given several suggestions that might work for you. I don't have DH, so can't be of help there. But, I do suffer from itchy skin (not as bad as yours, though). I am finding that it is not from gluten, but most likely from some other food allergy. I thought it was corn, and actually, it's less itchy now that I'm off all corn derivatives. I know you said you were going to have tests run for other allergies. If there are other food allergies indicated, then eliminating them may help reduce the itching. Just a thought.

0

Share this post


Link to post
Share on other sites

Oil of oregano helps me. Put a drop in water and drink and a drop on the itchy area. Its my new perfume! :)

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,365
    • Total Posts
      920,552
  • Topics

  • Posts

    • Well, I am stressed to the max. I just spent 3 days in the hospital with D and stomach pain, dizziness, chest pain, generally unwell. Then another trip to the ER on top of that. My protein was low and my RBC and hemoglobin dropped below normal in 3 days. Not terribly low, but below normal. I also had metabolic acidosis which still confuses me. I usually eat every 2-3 hours despite it causing pain to keep my energy up and was unable to eat that frequently in the hospital. I usually carry protein with me and had been taking liquid iron which I stopped a few weeks ago because my new endo is not a fan of iron supplements. As soon as I got home from the hospital I started with my protein drinks and blackstrap molasses for iron.  I now have bilateral mild pleural effusions and a nodule on my left lung, which hopefully is nothing, but was not there on a CT back in March. In addition, my left adrenal gland, which also appeared normal in March, is calcified and the report indicates this is most likely due to a previous bleed or infection. My colon appears tortuous (whatever that means) and we are waiting on colon/endo biopsies. I have been gluten-free since March except for cc so expect the biopsies to again be negative.  My primary care is useless. I am in the process of getting a new one I will see on the 7th but need the current one to fill out FMLA paperwork because I both physically and mentally need time to recover. I will have to go off of payroll for 2 weeks but I think I need to. I called the primary's office today to discuss the hospital tests which she does NOT have yet and to ask if we should/could start a low dose of prednisone because my body is attacking itself. My thyroid on ultrasound is also abnormal though my bloodwork thus far is normal. But it hurts on that side. The only reason the ultrasound was ordered is because I asked for it in the first place. The only reason I have started seeing an endocrinologist is because I found one myself. Anyway...I broke down in tears on the phone eith her today and she told me I was having a "manic episode". I have no history of mania. I only recently started taking xanax to help me cope with the stress of being sick. I was not sick until I did this stupid gluten challenge over the winter. My mother was in town and spoke with the doctor on the phone as well who was trying to get my mom to take me to a psych hospital. She also threatened to send the police to check on me. My mother assured her I was in no danger and we hung up the phone in complete shock. Admittedly, I was in tears when I called her and probably sounded like a fucking mess. But I believe I referenced the dropping iron, protein, fluid near lungs, enlarged thyroid and attacked adrenal gland then literally said "my body is attacking itself and I need help" to which she said, "I think you are manic". Lovely. If I was a mess before that phone call it was 10x worse when we hung up.  Anyway, this is the first night it has been extremely difficult to sleep. I admit my thoughts about my odd symptoms keep me up often recently. I mean, who the hell bleeds from or gets an infected adrenal gland?! I am sure it was another time I begged my primary for help. On a side not, the NP at the ER told me the primary should be putting these pieces together and communicating with my other doctors better. He then stated that he used to go to the same practice but left because the practice got too big and like a business. So I got some validation from that chat.  A melatonin or a .25 xanax usually does the trick for me to sleep but I am so disturbed about my interaction today, stressed at my health, stressed that my ex has our son so much because I am always sick (bless him for coming through), stressed that I have to go back to this awful doctor because I will need the FMLA paperwork before I see the new doc on the 7th.  8 months ago, I took a multivitamin when I remembered it and that was it.  End rant. Maybe now that it is off my chest I can finally sleep. 
    • Hi DKH0614, I use aspirin, Pepto Bismol, and peppermint tea or Altoids peppermints.  Pepto Bismol has a soothing effect on the gut.  Pepto Bismol also has aspirin in it.  Peppermint is helpful for relaxing smooth muscle tissue and getting gas out of the stomach. As per KarenG, you may be reacting to dairy.  Dairy has a sugar called lactose in it that some people with celiac have a hard time digesting.  You could try avoiding dairy for a few weeks to see if that helps.  Or try taking lactaid type pills when you eat dairy. It doesn't take very much gluten to cause an immune system reaction.  So it is important to avoid even traces of gluten if possible.  The stuff is hard to avoid sometimes if people around you don't understand how much a small amount of it can affect your body. Let us know if we can help with any  more questions, or if you have concerns we haven't addressed. And welcome to the forum! Also, if you subscribe to the thread (notify me of replies) you'll get an email when people respond to your thread.    
    • After a year and half, if you are eating gluten-free, you shouldn't be having pain from Celiac.  Perhaps you need to find out what is really causing your issues?  Dairy/ lactose is an obvious first place to look.
    • Hi! I am 15 and have been diagnosed with celiac disease for about a year and a half now and I am woundering what do some of y'all use to relive some of the abdominal pains that come along with celiac/gluten allergies?  ( Ibuprofen,  Tylenol, etc.) 
    • Hi Laurabella, Yes, you could have celiac disease!  It is important to keep eating gluten until all testing is completed, including an endoscopy with biopsy samples if the doctor recommends it.  The doctors usually do want the endoscopy.  The biopsy samples of the small intestine lining (4 to 6 samples) are checked for microscopic damage that indicates celiac disease.  Gall bladder problems can happen with celiac disease.  Your pain could also be from intestinal damage in any part of the small intestine. Some things you could try while you are waiting for your tests to be completed are stopping all dairy, and taking peppermint tea for gas in the stomach.  Celiac disease damage makes it hard to digest dairy sugar (lactose) and that can cause bloating and pain.  Constipation and diahrea are also possible fun symptoms. Welcome to the forum!
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,439
    • Most Online
      1,763

    Newest Member
    DKH0614
    Joined