Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

More Help For A Newbie


jaimi alderson

Recommended Posts

jaimi alderson Enthusiast

Hi! I have been asked by several family members what happens to me if I accidentally eat gluten. The nurse said I do not have to go for zero tolerance as far as a gluten-free diet goes. How do I know if that is true (she did not know much about treating celiac disease only diagnosing it)? Are there varying degrees of celiac disease? Do I just wait & see what happens if I do have it in a hidden source? Or does my risk of cancer skyrocket if I am not 100%gluten-free?

Also, can it be really true that Kraft Jello Pudding is gluten-free if no wheat is mentioned? It has modified food starch, caramel coloring & artificial flavor but truly they say it will be labeled with wheat if its in there?

THANK YOU!!!!!!!!!!!!

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient
Hi! I have been asked by several family members what happens to me if I accidentally eat gluten. The nurse said I do not have to go for zero tolerance as far as a gluten-free diet goes. How do I know if that is true (she did not know much about treating celiac disease only diagnosing it)? Are there varying degrees of celiac disease? Do I just wait & see what happens if I do have it in a hidden source? Or does my risk of cancer skyrocket if I am not 100%gluten-free?

Also, can it be really true that Kraft Jello Pudding is gluten-free if no wheat is mentioned? It has modified food starch, caramel coloring & artificial flavor but truly they say it will be labeled with wheat if its in there?

THANK YOU!!!!!!!!!!!!

Hi Jaimi--The nurse was mistaken--it is important to be as close to 100% gluten-free as you can. There are not varying degrees of Celiac, although there are varying degrees of symptoms. Some people are sick for years with debilitating illnesses, and there are Celiacs who have no or very mild symptoms. But the treatment for all Celiacs is the same. The reason that you want to be careful is because even very small amounts of gluten can add up to damage over time. Kraft is a company that you can trust to clearly label any gluten ingredients. With Kraft, all you need to do is read the label--

Link to comment
Share on other sites
penguin Community Regular

About the Jello, BELIEVE IT!!!! If it doesn't say wheat, barley, rye, or oats, it's gluten-free! I've never had a problem. You'll come to nealy worship Kraft for allowing an iota of normalcy into your life!

I'm in the zero-tolerance camp, mostly because I get sick as a dog from a molecule of gluten since being gluten-free. I also feel lots better, generally.

I think it's hard for a doctor to "sentence" someone to a zero tolerance of anything diet, however, it's really easy for someone without Celiac to say "cheating is ok sometimes." I hate being sick, ergo, I hate gluten.

Also, any amount of gluten, especially over time, is going to do damage, the problem is that you can't go by symptoms. You may get away with a little gluten here and there, but eventually, it'll make you sick. Damage can be done and your risks can be higher, so why risk it? Does that make sense?

Welcome aboard the board! :)

Link to comment
Share on other sites
jkmunchkin Rising Star

Unfortunately like the others have said, the nurse was mistaken. There are no degrees of celiac. While yes some of us may get more or less sick (or not sick at all) when accidentally ingesting gluten; regardless of your reaction you need to be 100% gluten free all the time.

It may seem very overwhelming right now but you will quickly learn which brands (such as Kraft) are more "friendly" to our needs and which brands to just stay away from.

We're all here to help and answer any and all questions.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - plumbago replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

    2. - trents replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

    3. - Suzi374 replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

    4. - Suzi374 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

    5. - Peace lily posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Would like to gain weight


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,224
    • Most Online (within 30 mins)
      7,748

    Suzi374
    Newest Member
    Suzi374
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • plumbago
      I'm also a nurse, but one who has worked in chronic care, and to some extent, it is more satisfying to see patients through to a diagnosis (as opposed to working in the ED), but an accurate diagnosis does not occur not as often as it should! Your posting presents a lot of information. But a couple of things I can respond to. One, celiac disease is diagnosed by endoscopy and biopsy of the duodenum. So, pathology will need to weigh in. It's not diagnosed on gastroscopy. (At least, not as far as I know). Two, did you get blood tests for celiac disease? You will need to be eating gluten in order for those to be accurate. Three, where was the CT angiogram (of what)? I could go on and on, but thought I'd start there.
    • trents
      Was a biopsy done when you had your gastroscopy? Concerning your anemia, are you B12 deficient? It's nearly impossible to get sufficient B12 if you are a vegetarian unless you take supplements.
    • Suzi374
      And I’m anaemic, however I’m also female and vegetarian. I had an iron trans a couple of years ago however it’s starting to dwindle and taking supplements doesn’t seem to work. I can’t seem to absorb it. 
    • Suzi374
      Hi, I attended a neurologist appt last Tuesday, which I nearly cancelled, due to ongoing numbness and tingling in toes to mid foot. One of the first things he asked was ‘are you celiac’. I’m not. He thought all reflexes were ok but at the last minute decided on nerve conduction tests which were low normal. He was a little confused as he felt they should be better and tried a new set of probs, all the time, giving me multiple shocks which were not enjoyable lol. Anyway, he’s now ordered tests for myeloma, and all the vitaminy things that so many of you mention on here, also tests looking for autoimmune responses. I already have Hashimotos. Interestingly, to me, but maybe someone out there can relate or knows more than i do, although I was a nurse, but ED not ‘weird symptoms’  nurse. Anyway back to the interesting thing, I took duramine in 2013 to lose weight which caused a massive panic attack when I stopped taking it and half my hair fell out. I only took it for a week but it was horrible and I regret it. It triggered ongoing panic attacks which are horrendous. So I feel like I’m a bit crazy. Then in 2020 I had this sudden onset of horrible pain when trying to eat a cinnamon roll. It continued and I lost around 20 kgs. I had two gastroscopes and a colonoscopy and they were all normal. I scored a barium swallow and CT angiogram. All normal. The pain subsided a little but I was left with reflux and an awful feeling that I couldn’t get air when I ate some foods. This was not anxiety.  The anxiety was separate and I still maintain this. This was something to do with eating. It was like the air was thick but I wasn’t short of breath. I just had the sensation I was, then it triggered anxiety. Anyway, I had other weird things- couldn’t bend knees to shave legs in shower lol. Knees felt stiff and swollen but they weren’t. Knee WOUld swell up randomly but mri showed minimal issues. A bit of a meniscus degeneration but insignificant. Then the buzzing sensations in my head, the feeling like someone was stabbing me with something sharp. So now, I pre empted his tests, although I don’t think I’m celiac because it should have come up on gastroscopy, I’ve gone off gluten. Since Tuesday last week so 9 days. Since then I don’t appear to be as constipated, I realised I got through today without a nap and I’m not tired, maybe it’s just today and not related but I get very tired normally and sleep straight after work often, I can bend my knees and shave my legs lol, the buzzing vibrating has gone from my head, I had to call and ambulance as my heart decided we were off on a run, but we weren’t running and I’ve been a bit twitchy at bed time when trying to sleep, reflux is improving, I did get the weird suffocating feeling a bit when eating today but not as bad normall. Tingling and numbness still present and I felt like it moved up my legs a bit today but I’m a bit jittery. So I don’t know if it’s celiac disease or a gluten intolerance but I think, and it may be wishful thinking because my symptoms do make life a bit challenging, but maybe I’m feeling better. I don’t feel as cloudy. My thinking feels crisper. Like there’s no buzzing and I’m not fighting to break through the cloudiness now. I hope so much that this may help me feel a bit better moving forward. It would be a miracle as I really have struggled to work and parent and keep the house clean and I’m always anxious and exhausted.  If you get this far, please tell me if you you can relate to any of the above. Oh and tonsils out 5 years ago but before that antibiotics multiple times a year, sometimes intramuscular because they were so bad.  Op was meant to take 30 mins, it took 1.5 hours due to size of them. 
    • Peace lily
      Im still not gaining weight I’m on a gluten free diet . And still having issues with constapation started priobiocs figured it would help been over two weeks . I guess it’s going to be a long road for me .
×
×
  • Create New...