Ulcers In Ileum - Anyone Have This With celiac disease?
Posted 31 March 2006 - 05:35 PM
In reading about Crohn's it seems to say a common symptom is pain, sometimes severe. I don't get pain, I get bloating and all that nastiness but not what you would call pain. I don't get an episodic type of thing either, I've been getting steadily worse over several years. First it was very low ferritin and zinc levels. The iron only came up to the bottom of normal with iron supplementation. After 3 years of supplementation the zinc came to a normal level. But in the meantime the gastro symptoms associated with celiac began and have gotten steadily worse. I understand that Crohn's is of a more 'comes and goes' sort of nature and doesn't get steadily and consistently worse, but I may be wrong on that.
I did read a research study that says people with Crohn's have a high incidence of celiac as well.
Major question if anyone can help me: are there ulcers of the ileum with celiac? Are there benign ulcers of the ileum with celiac disease? I know there are nasty ulcerations that mean the thing as already progessed so far that it is refractory celiac and it is a deadly cancer. Err I don't want that!
I have gone gluten free starting today. I haven't in the past. No matter what they tell me I am going gluten free because it makes perfect sense to me to do that. My blood work was positive for the less good marker (IgG I think, can't rememer) but not for the good marker, but I know and the doctor agreed that those tests aren't very reliable. He's a celiac specialist.
Does anyone know any other causes of ulcers in the ileum?
Any help or information would be most appreciated. I've got to get myself through 2 weeks, the only thing that feels really positive is going gluten free now. The doctor told me to have 4 servings of wheat products a day for 2 weeks prior to the tests and I definitely got worse.
Posted 02 April 2006 - 04:28 PM
Any knowledge on this at all? Thank you.
Posted 03 April 2006 - 08:51 AM
Posted 03 April 2006 - 09:56 AM
Inconclusive Biopsy 7/20/05
gluten-free since 7/23/05
Never felt better.
"So here's us, on the raggedy edge, come a day when there won't be room for naughty men like us to slip about at all. - Malcolm Reynolds"
Posted 04 April 2006 - 03:49 PM
Posted 04 April 2006 - 07:56 PM
Pixiegirl - does eosinophilic gastroenteritis cause ulcers in the ileum?
Posted 05 April 2006 - 02:32 AM
A lot of people get the eosinophil cells in their esosophigus (wow did i fracture that spelling), so they can turn up almost anywhere. I hope they test for them, again its not always done because its fairly a rare condition but sadly becoming more and more common, they are finding out that often people that were originally diagnosed with other stuff like ulcers or IBS have guts rich with eosinophillic cells. (thats how my entire gut was described - rich in the cells). Its probably not what you have going on but since they have the tissue to test be sure that they do test for them.
Let us know how it turns out.
Posted 09 April 2006 - 09:32 PM
So I have been so excited this wasn't Crohn's disease I haven't even thought about what to make of all my celiac symptoms now except that I'm strictly gluten free. I see my doctor on the 27th to find out "where we go from here" as he said.
I think I'll start a new thread to ask for advice as I'm afraid this topic might not be relevant enough. Thanks for being there with me!
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