Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Where Your Contribution Counts!
    eNewsletter
    Support Us!

Is Anyone Concerned About Colon Cancer?


sillyyak

Recommended Posts

sillyyak Enthusiast

Is anyone concerned about their risk for getting colon cancer having celiac sprue? And also is anyone concerned about getting a diagnosis of refractory sprue?

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rusla Enthusiast

I worry about it but I will not obsess about them. If you obsess you can defeat yourself and end up with what you don't want.

Link to comment
Share on other sites
nikki-uk Enthusiast

Well my husband has got a dx of refractory coeliac.

A biopsy after 6 months showed no progress-so the gastro put him on steroids.

A biopsy after the steroids showed a miniscule improvement of his villi-*sigh*

Having said that,-he's now putting on weight and feels alot better than he did at time of dx(Sept 04)

Due to see doc again in July-I expect he'll schedule another biopsy.

So,up to now-no cancer found :)

Just gotta get on with life,god knows worrying about it ain't gonna help!

Link to comment
Share on other sites
jerseyangel Proficient

I am a bit concerned about colon cancer, but it's because my dad had it. Luckily, it was caught very early (my dad is good about checkups and screenings) and he's still doing well after 25 years. My colonoscopy was normal last year, so that was a big relief!

Link to comment
Share on other sites
Canadian Karen Community Regular

Refractory - already got that diagnosis, but don't really believe it....

Cancer? Yep, you bet your bippies I worry about it, especially with four young children to worry about....

Went to see the GI on Wednesday, he is scheduling another upper GI series - says he wants to look for

Ulcerative jejunoileitis

Karen

Link to comment
Share on other sites
nikki-uk Enthusiast

Hey Karen,let's hope it's not another condition you can add to your signiture!

Keep us updated.

BTW has your gastro ever discussed Azathioprine treatment?

Keep well-Nikki

Link to comment
Share on other sites
brenp Newbie
Refractory - already got that diagnosis, but don't really believe it....

Cancer? Yep, you bet your bippies I worry about it, especially with four young children to worry about....

Went to see the GI on Wednesday, he is scheduling another upper GI series - says he wants to look for

Ulcerative jejunoileitis

Karen

Hey everyone (from above messages). I too was worried about the higher risks of colon cancer for those of us that have celiac disease, as I too was diagnosed 23 years ago and I have three kids to care for. I haven't dwelled on the fact our risk was higher than the "non celiac" population, but it did bother me. Then about a year ago I heard that the colon cancer risk wasn't any different for those on a high fiber diet to those not on a high fiber diet as originally thought all those years ago. Remember for years all the ads in magazines, on tv etc and from your doctor - eat a high fiber diet and it will significantly reduce your chances of colon cancer? Wrong! There is no difference what-so-ever between the two diets! Those who got colon cancer were exactly the same on both diets. Interesting! As far as I'm concerned, we are better off then the general public as we are forced to watch our diet, can't eat from fast food places like the rest of them, watch the fat intake etc. As long as we stick to our diets, don't cheat, make sure we arent' constipated, don't strain and exercise, we are ahead of the game!

All the best to you all.

BrenP

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



radman Newbie

There is no significant increased risk of colon cancer with celiac.

The risk is for small intestinal cancers, primarily lymphoma and to a lesser extent adenocarcinomas.

Both of these are extremely rare.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Help Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to SuzanneL's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Weak Positive Test

    2. - SuzanneL posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Weak Positive Test

    3. - Scott Adams replied to Braver101's topic in Coping with Celiac Disease
      2

      Constant sweating with celiac disease

    4. - Scott Adams replied to Julie Riordan's topic in Traveling with Celiac Disease
      2

      Any ideas for travelling

    5. - trents replied to Julie Riordan's topic in Traveling with Celiac Disease
      2

      Any ideas for travelling


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      120,493
    • Most Online (within 30 mins)
      7,748

    Greensandtea
    Newest Member
    Greensandtea
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @SuzanneL! Which tTG was that? tTG-IGA? tTG-IGG? Were there other celiac antibody tests run from that blood draw? Was total IGA measured? By some chance were you already cutting back on gluten by the time the blood draw was taken or just not eating much? For the celiac antibody tests to be accurate a person needs to be eating about 10g of gluten daily which is about 4-6 pieces of bread.
    • SuzanneL
      I've recently received a weak positive tTG, 6. For about six years, I've been sick almost everyday. I was told it was just my IBS. I have constant nausea. Sometimes after I eat, I have sharp, upper pain in my abdomen. I sometimes feel or vomit (bile) after eating. The doctor wanted me to try a stronger anti acid before doing an endoscopy. I'm just curious if these symptoms are pointing towards Celiac Disease? 
    • Scott Adams
      I'm sorry to hear about what you're going through. It must be really frustrating and uncomfortable. Have you talked to your healthcare provider about these sudden sweating episodes? It might be helpful to discuss this with them to rule out any other underlying issues or to see if there are specific strategies or treatments that can help manage this symptom. Additionally, staying hydrated and wearing breathable clothing may provide some relief. 
    • Scott Adams
      I am not sure where you are going, but we have articles in this section which may be helpful: https://www.celiac.com/celiac-disease/gluten-free-travel/ 
    • trents
      There are supplements available that can help breakdown minor amounts of gluten such as you might experience with cross contamination when dining out and you order gluten free items from a menu. But they will not help when larger amounts of gluten are consumed. One such product that many on this forum attest to as having helped them in this regard is GliadinX. The inventor of GlidinX is one our forum sponsors so you should know that.
×
×
  • Create New...