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Hashimoto's
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I have Hashimoto's hypothyroidism, it is an autoimmune thyroid problem, I believe that Gluten Intolerance trigger the Hashimoto's. I have actually read some information about how going gluten-free may allow the thyroid to re-regulate itself. This is what I am praying. I have been gluten-free for 1 month and am going to get some more blood work done to check my thyroid again. I don't know if gluten-free alone will be enough for things to get corrected but so far I am getting less of the Hypothyroid symptoms. My doctor is a little worried about my decision to try gluten-free diet before hormone replacement stuff, but she said I could try.

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:D Hi,

I too am Hypothroid with Hashimoto's. My thyroid is regulated with two thyroid medications, at this time. I also have adrenal insufficiency. I am gluten-free since December of 2002. The endocrinologist did reduce one of my thyroid medications from 15 mcg to 7.5 mcg. within the last year. I was happy.

What has your experience been with the effects of an autoimmune disease?

Take Care of yourself.

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Update on my Hypothyroid. I have been gluten-free for six months now and am feeling pretty good. I recently had blood work done again for celiac disease and my thyroid. My TSH level dropped from 98 to 6 and my IgG level dropped from 40 to 9. My doctor was very impressed that my TSH had dropped so much just by going gluten-free. I am also taking a supplament to support my Thyroid, but no hormones.

Anyway, I am excited that the gluten-free diet has helped so much with my Thyroid. Technically my Thyroid is still high but I also haven't stayed away from Caesin. So know I am going to avoid Caesin and see if that will help my TSH to drop to a normal level.

I just wanted to let everyone know that diet does have a lot to do with our health. And if something is wrong it doesn't mean we need a drug to fix the problem. We need to be proactive to find the root cause and fix the problem not just put a band-aid on it.

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congrats on the great results! :-)

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My son and husband are celiac disease; my other son and I tested completely negative and are asymptomatic -- but I was dx w/ Hashimoto's about 3 months ago. (they discovered that while working on gyn problems....) Does anybody know if I should think about having my celiac disease screens run again?

joanna

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    • Hi everyone, I've been reading this forum sporadically and have some questions of my own. I'm in my 40s and was diagnosed with celiac last December by biopsy and blood work after months of tests by my primary and then a gastro. My husband, around the same age as me, was dx'd with stage 4 cancer a month later, so admittedly it's took me longer than I'd have liked to learn about celiac. Now I feel pretty on top of my diet. I mostly make my own food - proteins and veggies, with some certified gluten-free snacks in the mix - and am pretty strict about what I will/won't eat at friend's houses or in restaurants (I prefer to go to dedicated gluten-free kitchens whenever possible). I'm doing okay on the diet, but still getting glutened every so often, usually when I let me guard down outside the home. I also periodically see my primary and a naturopath (who happens to have celiac!), but still, I have many questions if anyone would care to answer:

      -FATIGUE. I'm still so tired, fatigued so much of the time. My doctors blame this on the stress of my husband's diagnosis and my periodic trouble sleeping. But even during weeks where I'm sleeping enough (8-10 hrs a day), eating right, exercising as I can, trying to keep stress at bay, I'm still so bleeping tired. Maybe not when I wake up, but by late afternoon. Often my legs even feel weak/wooden. Has anyone else experienced greater fatigue early on after being diagnosed? This will pass, yes? I know I could cut out the sweets and that could help, but also, being a caregiver is hard and sometimes it's nice to eat your feelings between therapy sessions.  

      -SYMPTOMS CAUSED BY FATIGUE? Sometimes I'll have other "feels like I've been glutened" symptoms if I haven't gotten enough sleep, though I'm trying so hard to sleep at least 8 hours a night these days. Hasn't happened in a while thankfully, but there was a point this summer where my insomnia was bad and my arms were achy and I had some crazy flank/back pain I'd never experienced before. For weeks. Doctor ordered me to sleep sleep sleep, taking Benedryl if needed. I did, and the symptoms went away, but weird, yes? Has this happened to you? I ask because I want to make sure I'm getting all strange pains tested to the full extent if there's a chance it's something other than celiac. I do sometimes still feel that strange side stitch after a CC incident.

      -SKIN PROBLEMS. I have had a smidge of eczema since I was a teen and it - and the dermatitis herpetiformis I've acquired with my dx - are out of control right now. I recognize the connection with stress, but also, has anyone found any great natural remedies for DH to stop the itching? I've tried so many useless ointments and medicated creams, a number of them given to my by a dermo months ago. I see my naturopath this week, but thought I'd ask here too.

      -MOSTLY gluten-free KITCHEN GOOD ENOUGH? My husband is supportive of my diet and mostly eats gluten free meals with me, but we still keep a gluten-y toaster for him and the gluten-y dog food in a corner of the kitchen and he still makes the occasional meal with gluten for himself on his own cookware (ravioli, pizza, mac n cheese, etc). Or sometimes I make eggs/toast and the like for him when he's too sick to move. Otherwise, we're militant about how we cook, which cookware we use, etc. He even has a kitchen nook off our den where he makes sandwiches. But sometimes I wonder if having two separate sponges in our shared-ish main kitchen is enough and I should just banish all gluten whatsoever from the kitchen. I can't be the only one with a mixed kitchen, right? How do you do it if you have a mixed-eating family?

      Thank you so much!  
    • Celiac disease--the inability to tolerate food containing gluten--has long ... Lactobacillus were able to detoxify the gluten and remain symptom-free. View the full article
    • Hang in there!  Count your blessings.  Do something you like to do and relax. I know that is hard to do as a young mother (as I sit here in the kitchen sipping coffee quietly as my teenager is sleeping in after a late football game last night where she marched in 90 degree plus weather in full uniform).   But seriously, take a few minutes to relax!  
    • Meredith, this is very true. A colonoscopy is for diagnosis of the lower intestine, endoscopy for the upper intestine.  How did your doctor interpret the tests? I suggest you read the link Cycling Lady gave you because it contains a lot of good information. 
    • Sorry, but this product (supplement) is not even certified gluten free.   Seems odd that a product geared to Non-Celiac Gluten Intolerance would not take the extra step of getting certified.   I guess I am a Nervous Nellie, especially after the reports that several probiotics were contaminated with gluten.   https://celiac.org/blog/2015/06/probiotics-your-friend-or-foe/
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