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Hashimoto's
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I have Hashimoto's hypothyroidism, it is an autoimmune thyroid problem, I believe that Gluten Intolerance trigger the Hashimoto's. I have actually read some information about how going gluten-free may allow the thyroid to re-regulate itself. This is what I am praying. I have been gluten-free for 1 month and am going to get some more blood work done to check my thyroid again. I don't know if gluten-free alone will be enough for things to get corrected but so far I am getting less of the Hypothyroid symptoms. My doctor is a little worried about my decision to try gluten-free diet before hormone replacement stuff, but she said I could try.

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:D Hi,

I too am Hypothroid with Hashimoto's. My thyroid is regulated with two thyroid medications, at this time. I also have adrenal insufficiency. I am gluten-free since December of 2002. The endocrinologist did reduce one of my thyroid medications from 15 mcg to 7.5 mcg. within the last year. I was happy.

What has your experience been with the effects of an autoimmune disease?

Take Care of yourself.

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Update on my Hypothyroid. I have been gluten-free for six months now and am feeling pretty good. I recently had blood work done again for celiac disease and my thyroid. My TSH level dropped from 98 to 6 and my IgG level dropped from 40 to 9. My doctor was very impressed that my TSH had dropped so much just by going gluten-free. I am also taking a supplament to support my Thyroid, but no hormones.

Anyway, I am excited that the gluten-free diet has helped so much with my Thyroid. Technically my Thyroid is still high but I also haven't stayed away from Caesin. So know I am going to avoid Caesin and see if that will help my TSH to drop to a normal level.

I just wanted to let everyone know that diet does have a lot to do with our health. And if something is wrong it doesn't mean we need a drug to fix the problem. We need to be proactive to find the root cause and fix the problem not just put a band-aid on it.

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congrats on the great results! :-)

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My son and husband are celiac disease; my other son and I tested completely negative and are asymptomatic -- but I was dx w/ Hashimoto's about 3 months ago. (they discovered that while working on gyn problems....) Does anybody know if I should think about having my celiac disease screens run again?

joanna

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    • I figured I would update those who were wondering.  I have gotten the appt. so far moved up to August 30. I am waiting to have gene testing done via swab for all 3 of my kiddos tomorrow. My daughters celiac antibodies came up negative but her IgA is low which the ped said could cause false negative antibodies for celiac so she will need to see a GI dr. also. The pediatrician is going to call the GI to try to get them in sooner. I am keeping them all on a gluten diet until the GI dr. decides what to do. I am on the cancellation list already for my son, however I am not going to be persistent with my phone calls to them until I have the results of the gene test. I really want that result in my hand before going to the GI dr if I can. Maybe if he is positive, along with his bloodwork and my history they can forgo the endoscopy. But he will eat gluten till then.  My husband and I have been very honest and upfront with him as to what is going on and the possibility of the endoscopy and what that entails and although scared in general he seems ok after assuring him that since I have it he has me to help him every step of the way.  Going through his current diet with him I realized that he is truly on such a low gluten diet that I am actually surprised his bloodwork shows antibodies at all!  So I told him to make a list of allllll the gluten he could possibly think of eating and he needs to pound it until the GI visit or endoscopy. Funny thing is everything he keeps thinking of to want to eat...is already gluten free!  The other night we were at a friends and he asked if he could be done with his hotdog. I made him finish just the bread 😂 Thanks for your help and advise and I will keep y'all posted on both kids!  My oldest is a ok as far as all his antibodies. Just actually had a follow up for other immune issues and all his levels are now normal!
    • I like your plan Cara, I may have to include it in my sons.    Poor little guy is still very very sick. I think he is resisting and cheating, despite having the support of two other siblings and a 100% gluten-free home. 
    • Despite it being a nightmare, I did wait for my kids to get biopsies. At one point I had one severely ill child gluten-free and two more waiting having to eat it. It was worth the wait though and I think long term a biopsy may be worthwhile, especially for school. I have already had issues with schools and camps so having a firm diagnosis has been helpful. 
    • Knowing that the reaction to gluten in celiacs is an uncalled for immune system reaction, I was thinking of how a cure would be possible. Maybe a medicine that somehow turns off the immune system. The only thing that i've heard do that... HIV.  obviously that's way worse than celiac. Just some food for thought.
    • Well, you can probably get an apple or something.  You might be able to get someone to boil you some eggs.  But be careful of things like nuts that should be naturally gluten free.  They have almost always been soaked in a flavor solution that usually containes caramel coloring, "soy" (wheat) sauce and other aditives.  If I am really hungry and must eat in a Chinese restaurant, I order plain white rice and steamed vegetables.  But even so, you must monitor it carefully.  The rice sometimes has other substances added to give it a better texture, and very often the vegetables have in fact had "just a little bit" of soy sauce added.  To be fair, celiac disease is hardly ever found in East Asians, so understandably people are not tuned it to it.  Also, culturally, with the exception of fruits, it is generally thought that the flavor of foods needs to be enhanced, so it is had to find anything natural even in the "western" gorceries. Even in the western restaurants, be careful.  Fish and meat and often vegetables are usually pre-marinated. I will not even attempt to address the issue of cross-comtamination, since that is a whole higher order of things. I do know what I am talking about; I have celiac and have worked here for nearly 7 years.  
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