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How Did You Find The Right Doctor?


barbara3675

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barbara3675 Rookie

The doctor that I have now is not particularly knowlegable about gluten issues and their relationship to other autoimmunie diseases. This is not new news to any of you, but I was just wondering that if any of you had conducted a search in your town for a new internist that was sensitive to these issues, just how you went about it. As I have a $2500 deductible insurance, I will be paying for the office visits and don't want to make mistakes that will be costly. The doctor I have now is nice enough, but he did the usual blood test, told me I was negative and I had to engage Enterolab to find out what I already suspected....that I am gluten intolerant (and that I carry a geneome that predisposes me to other autoimmune diseases also). When I have a check-up for other things, he asks me how things are going in relationship to my "stomach problems", but that is it. I think he thinks it is all in my head and if that is what I want to think, then so be it. It seems like the proverbial pat on the head from a young doctor to an older woman. I went to a very large clinic in my area and talked to a nurse and she said all of their interna medicine doctors are up on these issues and she gave me some sheets about all of them. Now I do not know which of them to pick. It would be nice if I could interview them before I actually paid them, wouldn't it? They would be working for me!!!!!! Barbara

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jinches Rookie
The doctor that I have now is not particularly knowlegable about gluten issues and their relationship to other autoimmunie diseases. This is not new news to any of you, but I was just wondering that if any of you had conducted a search in your town for a new internist that was sensitive to these issues, just how you went about it. As I have a $2500 deductible insurance, I will be paying for the office visits and don't want to make mistakes that will be costly. The doctor I have now is nice enough, but he did the usual blood test, told me I was negative and I had to engage Enterolab to find out what I already suspected....that I am gluten intolerant (and that I carry a geneome that predisposes me to other autoimmune diseases also). When I have a check-up for other things, he asks me how things are going in relationship to my "stomach problems", but that is it. I think he thinks it is all in my head and if that is what I want to think, then so be it. It seems like the proverbial pat on the head from a young doctor to an older woman. I went to a very large clinic in my area and talked to a nurse and she said all of their interna medicine doctors are up on these issues and she gave me some sheets about all of them. Now I do not know which of them to pick. It would be nice if I could interview them before I actually paid them, wouldn't it? They would be working for me!!!!!! Barbara
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    • trents
      And the fact is, no two celiacs will necessarily respond the same to gluten exposure. Some are "silent" celiacs and don't experience obvious symptoms. But that doesn't mean no harm is being done to their gut. It just means it is subclinical. 
    • AlyO
      Thank you, Trents.  I appreciate your helpful and friendly reply. It seems more likely to be a bug.  It has been a pretty severe bought. I feel that I don’t have enough experience to know what signs my little one shows after exposure to gluten. 
    • trents
      Hannah24, be aware that if you are on a gluten free diet, you will invalidate any further testing for celiac disease (except genetics) and would need to go back to eating significant amounts of gluten for weeks or months to qualify for valid testing.
    • knitty kitty
      Hello, @Hannah24 Have you had a DNA test done?  Celiac Disease is genetic.  You must have at least one gene to develop celiac disease.  You don't have to be consuming gluten for a genetic test.   Anemia, diabetes and thiamine deficiency can cause false negatives.  Some lucky people are seronegative, but still have celiac disease.  Peripheral neuropathy, tingling in hands and feet are symptoms of vitamin deficiencies.  Vitamin C, Thiamine B1, Niacin B3, Pyridoxine B6, and Cobalamine B12 can each cause peripheral neuropathy.  These same vitamins are needed to produce blood cells.  Most undiagnosed Celiacs suffer from nutritional deficiencies. The DNA test would be helpful.
    • trents
      We do hear of cases of remission but they generally eventually revert back. I wouldn't push your luck.
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