Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Intussuseption Of Small Bowel

Sis

By Sis
in Related Issues & Disorders

Recommended Posts

Sis Rookie
Sis
Posted

just recently diagnosed with celiac disease. Also suffering from bouts of intussueption of small bowel that my dr. says is seconday to the celiac disease. In pain all of the time seems like and with no help in sight. Does anyone else out there suffer from this who can offer some words of advice?

PS. New to this message board stuff

Sis

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


StrongerToday Enthusiast
StrongerToday
Posted

Welcome - glad you're here! You'll learn a lot from this great group, be prepared to spend lots of time at the computer reading up on posts.

Sorry to hear you're in pain, and I'm afraid I don't know anything about it... but I'm glad you joined the group.

Link to comment
Share on other sites
trents Grand Master
trents
Posted

What is "intussueption"?

Link to comment
Share on other sites
Sis Rookie
Sis
  • Author
Posted

It's when the intestine actually telescopes into itself. My Dr. says that it is pretty rare in adults but that there was so much damage to my small intestine from the Celiac Disease that it has caused the intussuception. I've done some research on it and most of what I've read say that usually the most common treatment is small bowel resectioning. I am going back to my GI Dr. Thursday.

Sis

Link to comment
Share on other sites
jerseyangel Proficient
jerseyangel
Posted

Sis--That sounds terrible. Good luck with everything :)

Link to comment
Share on other sites
trents Grand Master
trents
Posted
It's when the intestine actually telescopes into itself. My Dr. says that it is pretty rare in adults but that there was so much damage to my small intestine from the Celiac Disease that it has caused the intussuception. I've done some research on it and most of what I've read say that usually the most common treatment is small bowel resectioning. I am going back to my GI Dr. Thursday.

Sis

I think you should consider giving your body a chance to heal from a gluten-free diet before you have someone taking out sections of your bowel. Experts say it can take up to two years for the small intestine to completely heal after going gluten-free. With removal of part of your small intestine you are introducing an automatic nutrient absorption handicap. Plus with bowel surgeries adhesions often come back to bite you down the road, requiring more surgeries. Of course, this is all easy for me to say. I'm not living with your pain.

Link to comment
Share on other sites
let-the -sun-in Newbie
let-the -sun-in
Posted

hi sis

i too have the same problem and it was picked up twice on a ct scan but since i went gluten free i just had another ct scan done and it was clear so i would give the gluten free a chance before you try surgury ,

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      121,048
    • Most Online (within 30 mins)
      7,748
    mrschunt
    Newest Member
    mrschunt
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cristiana
      Finding out I’m coeliac whilst pregnant

      By cristiana · Posted

      Hi Katie I am so sorry you had two miscarriages in the past.  Try not to worry, though, because it could be that they were unrelated, perhaps? Well done for contacting your GP.  Is it possible that you can speak to your midwife in the meantime for a chat?    Cristiana  
    • Katiec123
      Finding out I’m coeliac whilst pregnant

      By Katiec123 · Posted

      @cristiana hi!  the things I’ve read online about having untreated coeliac disease whilst pregnant has really scared me and made me very hesitant to continue eating it. I feel like the best option might be to eliminate gluten from my diet now and then continue with testing after I’ve given birth. I’ve got in touch with my gp and am due to get a phone call back on Monday. Really worried now as I’ve had 2 miscarriages in the past 
    • cristiana
      Finding out I’m coeliac whilst pregnant

      By cristiana · Posted

      @Katiec123 Welcome to the forum. I started to have symptoms related to coeliac disease (mouth ulcers, aura migraines etc) but no gastric symptoms during my first pregnancy.  That went to term, in fact, I was 10 days over and had to be induced.  But my second baby, born 21 months later, arrived at 33 weeks.  He's now doing well, and taller than all of us - it was just an earlier than expected arrival! I agree, it would not be wise to eat gluten  if there is any suspicion that you have coeliac disease during a pregnancy.   It would of course be good to know for sure, one way or another, because I believe coeliacs receive extra monitoring during pregnancy in many countries.   I think it may be well worth asking your GP if you can be referred to a gastroenterologist for a formal diagnosis asap.   By the way you spell 'coeliac' I'm guessing you are posting from the UK?  If that is the case, the NHS may rush things along for you, I suspect they will.  If it appears that they cannot refer you urgently, if you have the money for a private consultation it might be well worth it, as there is a trend here in the UK (I'm British) to diagnose coeliacs without the need for an endoscopy if the blood test results are compelling. Sounds like this is the case for you.  If you can see a gastroenterologist privately s/he might be able to diagnose you there and then (make sure you take a printout of your blood tests). Generally, there is a lot of support for coeliacs through the NHS, with a nutritionist, annual reviews and blood tests to check for diet compliance and health related issues, DEXA scans to check bone density, extra vaccinations where indicated and in some areas, certain gluten free food available on prescription.  So for lots of reasons, if you can get a diagnosis it's worth it. I hope all goes well with your appointment, let us know how you get on.
    • Shireen32
      Still testing positive after being gluten free for one year ?!!

      By Shireen32 · Posted

      Hi , since being gluten free I am still having bad stomach problems . Such as constant gas in my stomach 24/7 ,burning, constant bubbling noises coming from my stomach and gurgling sounds that never stop .Pain under the left side of my rib cage when ever I eat and just always there’s pain there  .  My symptoms have not improved at all since being gluten free.  Could this be refractory coeliac disease ?? How is that even diagnosed or confirmed  ?  I had tests recently and this is what they say :Endomysial abs (IgA) -Positive  TTG abs (IgA)U/ml : My result is : 0.9 U/ml The Range:0 - 10 U/ml What does this mean pls ??? How can I still test positive for Endomysial abs when I am gluten free and am very careful about cross contamination? Do I even have coeliac disease I’m convinced some other digestive disorder is causing these symptoms .   I also have not had a endoscopy and now the gastroenterologist calls me after one year ( I’m from the uk and have free healthcare which has been such a nightmare with all this and never help me  )  so as I am gluten free the gastroenterologist advised me to start eating gluten again to be referred for a biopsy .. Is a biopsy even worth me doing ? The only proof I have is when I was eating gluten I could never get my ferretin , vitamin d and folate levels up . And since being gluten free these have gone up a little bit  . But that doesn’t always mean coeliac as I know gluten stops absorption in even normal people  . Pls can anyone shed some light it’s much needed ! And share some advice or answer my questions above . I have no idea with this whole coeliac stuff and am very much struggling .Much Appreciated .  
    • knitty kitty
      Joint swelling when ill even on gluten-free diet

      By knitty kitty · Posted

      Vitamin D deficiency.  Not enough Omega Threes. Another autoimmune disease like arthritis, maybe.    
×
×
  • Create New...