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Celiac Disease & Weaked Tendons?

Dlapham celiac & DH

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Dlapham celiac & DH Newbie
Dlapham celiac & DH
Posted

I Have had both shoulders repaired in the past 2 years. Right side was the superaspinatus tendon, and the left side had that plus the bicepts tendon. I had the left one done on 4/5/06 and the right one in Feburary 2004. Has anyone seen or have any information about the effect of celiac disease on tendons? As my personal information shows, I have had symptoms almost all my life and I am almost 60 years old.

Thanks for any response.

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Moongirl Community Regular
Moongirl
Posted

I have rotator cuff tendonitis.....i went to physical therapy for almost 2 months, but the pain never seemed to go away. It felt really weak and sore even if i carried my purse.

After going gluten-free believe it or not about a month later....no more pain. i had it for over 3 years, then boom, gluten-free and no pain.... :)

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Mango04 Enthusiast
Mango04
Posted

I had tendonitis constantly when I was eating gluten. I was also doing lots of ballet, so it's hard to tell what actually caused it. Hmmm...interesting...

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ravenwoodglass Mentor
ravenwoodglass
Posted
I Have had both shoulders repaired in the past 2 years. Right side was the superaspinatus tendon, and the left side had that plus the bicepts tendon. I had the left one done on 4/5/06 and the right one in Feburary 2004. Has anyone seen or have any information about the effect of celiac disease on tendons? As my personal information shows, I have had symptoms almost all my life and I am almost 60 years old.

Thanks for any response.

I haven't seen anything written on it but I do know that I get a lot less dislocations now that I am gluten free. I have hypermobile joints and dislocate easily and have had a couple ligament and tendon repairs myself. In my case I think this comes from excess fluid in the joints, this fluid also caused arthritis damage mostly to my hands but all movement caused pain pre gluten-free. A lot of us are diagnosed with fibro also so I think this stuff just wrecks havoc with all the fluids coursing through our bodies.

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Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

Wow, this is fascinating--I had a dislocated shoulder, with torn supraspinatus and infraspinatus tendons, plus torn glenoid labrum. This was in January, and it is healing so s-l-o-w-ly, it's extremely frustrating.

I'm writing a blog about the recovery process--if anybody is interested, my latest post is at Open Original Shared Link. It's not very well set-up, though--you have to kind of hunt for the previous posts instead of their automatically coming up with the latest post.

Anyway, if any of you who have experience with shoulder recovery have any suggestions or comments about what I've written, PLEASE post them!!! (There's a comment space on the blog--I'd love to have more comments!)

I've been trying to think of a way to work the celiac thing into the blog, anyway, especially if I can present it in a way that nobody thinks I'm a total hypochondriac (sound familiar?). My colleagues are already giving me grief about the dislocated shoulder; they seem to think I'm just taking a vacation!

We just can't win, can we? :(

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Nancym Enthusiast
Nancym
Posted

I have tendon, muscle and joint issues and was recently diagnosed with Ankylosing Spondylitis. My rheumatologist said a lot of his AS patients also have gluten sensitivity. I'm doing really well with the drug he put me on, sulfasalazine. It has helped my gut and my tendons.

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  • 4 weeks later...
Guinevere Newbie
Guinevere
Posted

I have terrible tendon problems. In shoulder, elbows, wrists and ankles. I believe it is due to malnutrition. I have been taking free form amino acids so that my digestive system does not have to break down protein to rebuild - it gets it in a "ready to go" form. I have also heard that it is important to take a balanced form of minerals as an adjunct to amino acids - to help in the healing process. I tend to take this stuff on and off. I believe it cannot hurt in the face of malnutrition.

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debmidge Rising Star
debmidge
Posted

My celiac hubby has bursitis in both knees (doesn't do physical labor) and anyway he needs to have the bursa sacks removed now.

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      Waiting for urgent referral.

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      Thank you again for your reply and comments which I have read carefully as I appreciate any input at this stage. I'm tending to listen to what my body wants me to do, having been in agony for many years any respite has been welcome and avoiding all wheat and lactose has thankfully brought this.  When in pain before I was seen by a number of gynacologists as I had 22 fibroids and had an operation 13 years ago to shrink them . However the pain remained and intensified to the point over the years where I began passing out. I was in and out of a&e during covid when waiting rooms where empty. My present diet is the only thing that's given me any hope for the future. As I say I had never heard of celiac disease before starting so I guess had this not come up in a conversation I would just have carried on. It was the swollen lymph node that sent me to a boots pharmacist who immediately sent me to a&e where a Dr asked questions prescribed antibiotics and then back to my GP. I'm now waiting for my hospital appointment . Hope this answers your question. I found out more about the disease because I googled something I wouldn't normally do, it did shed light on the disease but I also read some things that this disease can do. On good days I actually hope I haven't got this but on further investigation my mother's side of the family all Celtic have had various problems 're stomach pain my poor grandmother cried in pain as did her sister whilst two of her brother's survived WW2 but died from ulcers put down to stress of fighting.  Wishing you well with your recovery.  Many thanks  
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      Welcome to the forum, @Nacina, What supplements is your son taking?
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      By knitty kitty · Posted

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    • BluegrassCeliac
      This forum might be the last hope I have in my life. Please I beg you

      By BluegrassCeliac · Posted

      Hi,   Not saying Thiamine (B1) couldn't be an issue as well, but Mg was definitely the cause of my problems. It's the only thing that worked. I supplemented with B vitamins, but that didn't change anything, in fact they made me sick. Mg stopped all my muscle pain (HCTZ) within a few months and fixed all the intestinal problems HCTZ caused as well. Mom has an allergy to some sulfa drugs (IgG Celiac too), but I don't think I've ever taken them. Mg boosted my energy as well. It solved a lot of problems. I take 1000mg MgO a day with no problems. I boost absorption with Vitamin D. Some people can't take MgO,  like mom, she takes Mg Glycinate. It's one of those things that someone has try and find the right form for themselves. Everyone's different. Mg deficiency can cause anxiety and is a treatment for it. A pharmacist gave me a list of drugs years ago that cause Mg deficiency: PPIs, H2 bockers, HCTZ, some beta blockers (metoprolol which I've taken -- horrible side effects), some anti-anxiety meds too were on it. I posted because I saw he was an IgG celiac. He's the first one I've seen in 20 years, other than my family. We're rare. All the celiacs I've met are IgA. Finding healthcare is a nightmare. Just trying to help. B  
    • Scott Adams
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      It sounds like you've been through a lot with your son's health journey, and it's understandable that you're seeking answers and solutions. Given the complexity of his symptoms and medical history, it might be beneficial to explore a few avenues: Encourage your son to keep a detailed journal of his symptoms, including when they occur, their severity, any triggers or patterns, and how they impact his daily life. This information can be valuable during medical consultations and may help identify correlations or trends. Consider seeking opinions from specialized medical centers or academic hospitals that have multidisciplinary teams specializing in gastrointestinal disorders, especially those related to Celiac disease and Eosinophilic Esophagitis (EOE). These centers often have experts who deal with complex cases and can offer a comprehensive evaluation. Since you've already explored alternative medicine with a nutrition response doctor and a gut detox diet, you may want to consider consulting a functional medicine practitioner. They take a holistic approach to health, looking at underlying causes and imbalances that may contribute to symptoms. Given his low vitamin D levels and other nutritional markers, a thorough nutritional assessment by a registered dietitian or nutritionist specializing in gastrointestinal health could provide insights into any deficiencies or dietary adjustments that might help alleviate symptoms. In addition to routine tests, consider asking about more specialized tests that may not be part of standard screenings. These could include comprehensive stool analyses, food intolerance testing, allergy panels, or advanced imaging studies to assess gut health.
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