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Celiac Documentary

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I am an independent public radio documentary producer and I am producing a documentary portraying the human face of Celiac Disease. The program, titled "Gut Reaction," will air on the national public radio documentary series "Soundprint" later this year.

What I need from you are your personal life stories (more details shortly). Please email me directly at

The program has two purposes. First, it will explain to that vast portion of the American public that has never heard or celiac what the disease is, how widespread it is, and that many of the people who are listening have the disease and do not know it or have the disease and have been diagnosed with something else. Second (and equally important), the program will tell its story -- of pain, discomfort, confusion, frustration, embarrassment, discovery, recovery and endurance -- in the voices of actual celiac sufferers. This approach will make the massage personal and take it out of the abstract realm which can be dismissed as something that is a problem of "other people."

I want to be very specific about what I'm looking for so please read this next part carefully.

I am looking for adults who learned they had celiac as adults -- people who suffered all their lives until they found out that they had celiac. I would like to hear from people who went to various doctors over the years and were given various diagnoses other than celiac, or were told "We just don't know what's wrong with you." I will want to ask you about your symptoms and the impact they have had on the way you have lived your life. So I need you to think hard about how comfortable you will be talking about embarrassing life experiences that were caused by your celiac and expressing your embarrassment and emotional pain, as well as your physical pain. I am looking for people who are good storytellers and who have an interesting story to tell. That's what will be most important in conveying the information that I will want to get out through this program.

This is a journalistic endeavor. Therefore no one will be paid to appear in this program, but you can imagine the good you will be doing by informing other people who are currently as in-the-dark as you were before you were diagnosed.

Please write me your story in the most engaging way you can, including as much detail as you think I need to know. Again, please send it to me directly at my email address -

If I select your story, I will need to contact you (please tell me a way to do that) and get you to a radio station to record your story. Unless you live near Washington, DC in which case I will ask you to come to my studio to tell your story.

For the last thing I'm going to write here, I ask the indulgence of the list manager. I do not mean this to be promotional.

For an example of the impact this storytelling approach can have, please listen to my documentary "We Were On Duty," about the survivors of the 9/11 attack on the Pentagon. You can hear it in the "Documentaries" section of my website --

Looking forward to hearing from you,

Richard Paul

rlpaulproductions, LLC


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