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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Celiac Documentary
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1 post in this topic

I am an independent public radio documentary producer and I am producing a documentary portraying the human face of Celiac Disease. The program, titled "Gut Reaction," will air on the national public radio documentary series "Soundprint" later this year.

What I need from you are your personal life stories (more details shortly). Please email me directly at rlpaulproductions@starpower.net

The program has two purposes. First, it will explain to that vast portion of the American public that has never heard or celiac what the disease is, how widespread it is, and that many of the people who are listening have the disease and do not know it or have the disease and have been diagnosed with something else. Second (and equally important), the program will tell its story -- of pain, discomfort, confusion, frustration, embarrassment, discovery, recovery and endurance -- in the voices of actual celiac sufferers. This approach will make the massage personal and take it out of the abstract realm which can be dismissed as something that is a problem of "other people."

I want to be very specific about what I'm looking for so please read this next part carefully.

I am looking for adults who learned they had celiac as adults -- people who suffered all their lives until they found out that they had celiac. I would like to hear from people who went to various doctors over the years and were given various diagnoses other than celiac, or were told "We just don't know what's wrong with you." I will want to ask you about your symptoms and the impact they have had on the way you have lived your life. So I need you to think hard about how comfortable you will be talking about embarrassing life experiences that were caused by your celiac and expressing your embarrassment and emotional pain, as well as your physical pain. I am looking for people who are good storytellers and who have an interesting story to tell. That's what will be most important in conveying the information that I will want to get out through this program.

This is a journalistic endeavor. Therefore no one will be paid to appear in this program, but you can imagine the good you will be doing by informing other people who are currently as in-the-dark as you were before you were diagnosed.

Please write me your story in the most engaging way you can, including as much detail as you think I need to know. Again, please send it to me directly at my email address - rlpaulproductions@starpower.net

If I select your story, I will need to contact you (please tell me a way to do that) and get you to a radio station to record your story. Unless you live near Washington, DC in which case I will ask you to come to my studio to tell your story.

For the last thing I'm going to write here, I ask the indulgence of the list manager. I do not mean this to be promotional.

For an example of the impact this storytelling approach can have, please listen to my documentary "We Were On Duty," about the survivors of the 9/11 attack on the Pentagon. You can hear it in the "Documentaries" section of my website -- http://www.rlpaulproductions.com/doc.html

Looking forward to hearing from you,

Richard Paul

rlpaulproductions, LLC

http://www.rlpaulproductions.com

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    • Can treatment for Giardia reverse active Celiac
      I haven’t found any large scale studies on this, but only a handful of individual case reports suggesting that in rare cases giardia can temporarily mimic celiac (both the serology & villous atrophy) until it is treated.   I think this is a  complex matter as giardia effects patients differently (most are asymptomatic whilst others suffer from chronic symptoms including malabsorption) for reasons that may not be well understood. In my case - My GI agrees that Giardia can directly cause villous atrophy that cannot be distinguished from Celiac.  As the healing of the villi can be a slow process, I will schedule a repeat endoscopy 6-12 months after my giardia was treated.   Ttg antibodies can also take 6-12+months to completely normalise, especially if the starting levels are high. 6 months would have elapsed at the end of this month, so will schedule a repeat test, hoping for a normal Ttg result to prove the theory.   I have decided to remain on a normal gluten diet until it can be proven that I’m a celiac and not just suffering from a giardia infection.  I have reason to be optimistic as my Gliadin IgA levels are negative (not iga deficient) and also given the sharp decrease in ttg levels 4 weeks after giardia was treated.
    • celiac disease is psychosomatic
      It took all of 3 years before ALL of my symptoms resolved and it was the neuro ones that were the last to go.  If you have been careful about your diet, then you may not be getting glutened as much as you think.  It sounds like you have been careful because you are questioning things you should question to get clarification on.  I am sure if you were doubtful, you would refrain from eating something until you know for sure. Neuro symptoms can last for much longer than other symptoms.  Please be patient because my last neuro symptom was the one that took 3 years.  Have you been tested for vitamin deficiencies?  The B vitamins are important for neuro health, especially B12.
    • Week late aftershock!?
      I had a similar problem, I was glutened after a meal out at the beginning of April and am still experiencing problems, obviously not as bad now, but bad enough.  I have also become intolerant to  xanthan gum since, which cuts down the foods I can eat even more. I'm already intolerant to dairy, soya, and a whole lot of other stuff.  Cyclinglady is right about the auto-immune disorders, and I've noticed I have similar problems to her.  I too, eat easy to digest foods until the glutening symptoms pass. The sinus infection might also be a reaction to the glutening, it effects people in different ways.
    • celiac disease is psychosomatic
      Thanks, I'll check out the information in the link. Do you remember how long you were on a gluten-free diet before your vertigo disappeared? I have been on the diet for 2 years, but I might be glutened from time to time since I am not an expert food label reader. My dizziness still persists.
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    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
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    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
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