[PreOptMegs]

When I found out I was gluten intolerant (blood test very positive and positive response to dietary changes) I also found out I was hypothyroid. All I have to say is being hypothyroid sucks badly. I play basketball for the University of Missouri-St. Louis, and our coach weighs us. I can't tell you how embarrassed and frustrated I am when I weigh more than I know I should even though I eat carrots and lean meats all day (I am on the Specific Carbohydrate Diet), and trying to explain any biology or biochemistry to him would be like trying to teach your dog how to fly an air plane.

I am just wondering who else has thyroid problems as well!

[Rusla]

Probably you could teach your dog to fly eaier. Anyway the doctors no more believed me about my thyroid because of the tsh test than they did about Celiac. I however proved them wrong with my anibodies which were 3.5 times higher for Hashimotos Hypothyroidism and the ultrasound which showed nodules on my thyroid. It is very commong how thyroid and Celiac are best friends. However, they are not our friends.

[PreOptMegs]

Yeah, the damn TSH. Doctors think this is just the best thing in the world.... I hate it. "Normal" range is rediciulous --- from 0.3-5 or something. If my TSH is even around 2, I don't lose weight. It is so hard trying to get the right synthroid dose so I can actually lose weight.

[Rusla]

That is for sure. I am up and down with the Synthroid however, being gluten free has been a benefit in losing weight.

[Fiddle-Faddle]

Count me in--I've had Hashimoto's for about 20 years, and since going gluten-free in January, I now feel hyperthyroid, but can't get my endocrinologist to call back with my bloodtest results--apparently, her nurse-practitioner-assistant just had a baby, and thewhole office is in turmoil with one less person.

[Sawyer]

I'm on synthroid, have been for years. I feel a lot better than before. Getting diagnosed with hypothyroid helped not only with weight but with emotions, sleep, appetite, just about everything.

[lonewolf]

PreOptMegs, on Apr 10 2006, 05:59 PM, said:

When I found out I was gluten intolerant (blood test very positive and positive response to dietary changes) I also found out I was hypothyroid. All I have to say is being hypothyroid sucks badly. I play basketball for the University of Missouri-St. Louis, and our coach weighs us. I can't tell you how embarrassed and frustrated I am when I weigh more than I know I should even though I eat carrots and lean meats all day (I am on the Specific Carbohydrate Diet), and trying to explain any biology or biochemistry to him would be like trying to teach your dog how to fly an air plane.

I am just wondering who else has thyroid problems as well!

Wow - you sound like me about 20 years ago. But I never found out why I couldn't lose weight or why I got serious "brain fog", sometimes even during games, until years later. My coach would send a "spy" to watch what I ate in the cafeteria. My friends on the team finally started telling me that the coach thought I was lying about how much I ate. They kept reporting back to her that I ate salad, carrots, cottage cheese and drank skim milk. Then she thought I was sneaking out at night going to Burger King - once again my friends set her straight by reporting back that when I went out at night I rarely bought anything more fattening than yogurt and occasionally trail mix and diet Doctor Pepper. It was humiliating to try to explain why I couldn't lose weight -I didn't even know! When I finally discovered I had food allergies and thyroid issues the first thing I thought was, "I told my coach I wasn't eating too much!" I still have trouble keeping the weight off - even though I teach PE and run triathlons and take Armour Thyroid. It helped at first, but now the weight goes on easier again. At least I can beat all my skinny friends when we do triathlons together! Thyroid problems are definitely tough. I feel for you.

[Against The Grain]

Yup, I was diagnosed with hypothyroidism when I was 19. It was really depressing for me to think I would have to take a pill every day for the rest of my life. But once I was on the synthroid I started feeling a lot better and didn't mind it so much. I was a rail up until I was diagnosed with celiac disease at age 30. Then the poundage went on and didn't come off. Part of that might have been my age too... I finally got a gym membership, worked out six days a week following the Apex* training program. Dropped all my weight in a super healthy and gluten-free way in three months! So it can be done... just stay disciplined and keep working at it.

(*I didn't take any of their recommended supplements, but I did start taking a gluten-free vitamin daily)

[liljules5]

I've just recently been put on Cytomel for hypothyroid. I was in the "normal" tsh range but i convinced my doctor that it wasnt "normal" for me. The small dosage of Cytomel has made the difference. I have lost about 10 lbs in the last month or so. I started on the meds around Feb 20. It has made an amazing difference in my energy, depression, fatigue, and overall health. I feel like "me" again.

[dtravis]

Wow I dont feel so alone now! I too have struggles with weight. I am 39 years old and at 30 had a total hysterectomy, they gave me hormore replacement which a short time later they diagnoses hypothyroidism. They put me on synthroid - which seemed to help at the time. 3 years ago i was diagnosed with Celiac, following the diagnosis i lost 14 pounds which i thought was great. Then it started creaping back on pound by pound. I quit taking the hormone replacement thinking that was the problem, I have every symptom of hypothyroidism - while I am taking synthroid. My Dr. said their is nothing else he can do - i too am very frustrated. I recently went back and said I want to see a endocrinologist - he graciously made the appointment for next week - even though he said they wont do anything that i havent already done. I just think the combination of celiac, thyroid and lack or hormone there is still an issue. Maybe it is dosage??? wht dosage of synthroid do you take? I also wonder if my body is immune to the synthroid? Has anyone else went to a endocrinologist?

Your reply would be very helpful and encouraging!

[PreOptMegs]

My TSH was just drawn about 3 weeks ago. It was 4.44, so I was upped from 0.075 to 0.1. It makes a HUGE difference. Although, I was also put on birth control (ovcon 35) because I hadn't had a period in 2 years... yes 2 years.. OVCON 35 was awful for me. I was gaining about 2 lbs per day eating carrots, strawberries and chicken breast. Lovely. I have been off of Ovcon for about a week. I am still struggling to drop the weight, but I hope it is just because there is some still in my system. Usually when I get synthroid upped, I lose weight quickly.

[Rachel--24]

I had hyperthyroid (Graves) and had radioactive iodine treatment to basically destroy my thyroid. I officially went Hypo 2 months after the procedure when my TSH was 25.5. I went on Levothroid and my numbers have been normal for 3 years now. I take Armour instead of synthetics now. After I went Hypo I lost 25 lbs. which had me really confused but apparantly it was because of gluten and nothing to do with thyroid. I'm still too skinny and wanting my weight back.

[lonewolf]

Rachel--24, on Apr 11 2006, 10:22 AM, said:

I'm still too skinny and wanting my weight back.

LIfe just isn't fair. I'd love to be in some kind of weight co-op where I could donate my easily gained pounds to you. The only time in my life I was even close to "skinny" was right after I discovered all my food allergies, was afraid to eat anything, and dropped to 135 pounds on my 5'7" frame. Doesn't sound too skinny, but for someone who's always been a size 12-14 a size 8 slim was really small. And people started asking me if I had cancer or something because I looked so different.

[ehrin]

I got the phone call last week that I'm developing and under active thyroid. Apprently I'm on the border of the abnormal range (not sure what the physical # was). So my endo and I decided to start therapy immediately because "it is bound to happen." So now I'm taking 100 mcg of levoxyl. I'm definitely not as sluggish as I have been this past month. I have blood work scheduled in 6 weeks to see if all systems are a go. At this point it's just one more autoimmune disorder to add to the extensive list. I am now considered to be polyglandular autoimmune. Oh well - as long as I can keep on keeping on!
Peace
Ehrin

[PreOptMegs]

ehrin, on Apr 11 2006, 10:22 AM, said:

ISo now I'm taking 100 mcg of levoxyl. Peace
Ehrin

Wow, that seems like a big jump for someone who is just starting the regimen. Perhaps it is just my doctor, but she is extremely "stingy" when it comes to bumping me up.