Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Post From A New Member
0

6 posts in this topic

Carol sent this to me via personal message, thought I should post it here so that we can all show our support.........

I'm new here and don't know if this message will go to the board or to a private e-mail so help me out if I do this wrong. My name is Carol and I'll be 55 in June. I've spent a life time searching for what was wrong with me physically. My mother searched before I left home at 18. I now have a 7 page health history that begins at birth. Long story short, I have a diagnosis of chronic fatigue/fibromyalgia, allergies/sinus, low thyroid/adrenal and IBS (plus irritable bladder). I thought the thyroid med was going to be the magic pill I was looking for but it hasn't been (and I'm on a HIGH dose of Armour). Went into my main doctor whom I love (found him 5 yeas ago) and after talking for a while he brought up that I might have celiac disease. I was suprised as I thought I knew the symptoms. My father had Chron's disease. I had the blood work (no results yet) and have also ordered the stool test from entero labs thanks to a gal on one of my groups. I've already started the diet based on what I know and will be VERY suprised if I don't have it. Searching the net gave me tons of info I didn't know about. Look forward to getting all the help I can get. Will keep you posted. Thanks much, Carol B

0

Share this post


Link to post
Share on other sites


Ads by Google:

Carol, Welcome to the boards :D

Sounds like you have had a lot of health problems, ;) I hope you begin to feel better soon! I am glad that you are ordering the test through Enterolab, that is how I was dx along with my daughter. I have found Dr. Fine's way of testing to be more accurate than the standard blood test that other doctors rely on. I took the conventional route and went through a number of tests such as blood work, biopsy, etc and everything came back negative. :huh: I knew something was wrong and it wasn

0

Share this post


Link to post
Share on other sites

Well, since I looked around the page long enough I think I finally found the reply to group button. :-). Thanks for the welcome and the links. I will definately check them out. Yes, it's been a long haul. By the time my kids were born I was dragging my self out of bed (nothing unusual) and collasping on the couch. I got to where I couldn't even stand and do my dishes. In elementary school I used to get the stomache flue comming out both ends 24/7 for 3 weeks at a time. Guess what? The flue doesn't last that long. HMM! If this turns out to be my problem I will probably break down and cry. Once that is over I will celebrate. Including sending my doctor a thankyou card with a gift certificate to take his wife out to dinner. A gal on my kombucha tea group (fermented tea I make) turned me on to entero labs. I ordered the test Sunday night but it hasn't arrived yet and it's Wednesday. Any ideas how long it takes to get here? I also think my brothers should get tested. One of them has serious acid reflux and takes aciphex. I also have an autisitc son (he was born with it) and a husband with autistic symptoms. My daughter has PDD but very mild and you can't tell it anymore. My youngest son is normal (developmentally wise). Need to go. Sorry this was so long. I will let you know what I find out. Carol B

0

Share this post


Link to post
Share on other sites

Carol,

Enterolab testing kit will probably get to you this week. However, you can only send the test back on Monday, Tuesday or Wednesday to insure that it gets to the lab during the week. So you will have to wait until next week in order to send it back to them. Once I sent my test back to them, it took four weeks to get the results.

How old is your autistic son? You might try a Gluten Free and Casein Free diet with him, it has been proven to help some autistic children.

0

Share this post


Link to post
Share on other sites

Welcome Carol!

I read your story on another thread and you'll find comfort in knowing (I hope) your not alone, your story sounds almost identical to my Mom's. I have been going down the same road as well and it sure sounds like you have Celiac. It is miserable to fall apart without any answers...well, falling apart is bad either way, eh :lol: , but with answers there is hope of an action plan. And honestly, this is the best potentially fatal disease you can have! :P

So, hugs to you too, and let us know about your test results. Once you send off your samples for testing, maybe you can start the diet and see how you feel.

0

Share this post


Link to post
Share on other sites




Thanks so much to both Taneil and Lisa. I started the diet last week at my doctors request. Well, as much as I know so far anways. That was before I knew you had to be on gluten for the blood test. The blood test was done prior to my starting. According to enterolabs they will still pick it up if you have been gluten free so I intend to stay this way unless I find out I don't have this (that would be a BUMMER if you know what I mean). As to Peter my Autistic son, he is high functioning and 27 years old. He just tells me I'm nuts and there is NOTHING wrong with him. Not much I can do. He goes to a day program and is still very disabled in many ways. He also has a very low temp usually around 96.6. This is a sign of thyroid but there again unless he understands for him self and is willing my hands are tied. So I just keep him in my prayers. Would love to get the other members of my family tested. DD and DH. Sterling battled depression for years. That's another story. Thanks for letting me know about the stool test. I was getting inpatient. Of course, that will do me no good either. Off to bed (it's way past my bedtime and I really haven't felt good in about a month (fibro, sinus, stomache etc.) so ZZZZZZZZZZ thanks much. Hugs, Carol B

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,902
    • Total Posts
      919,564
  • Topics

  • Posts

    • Johnny Carinos
      If you cant be sure then don't eat it!  
    • Gluten does WHAT to the brain?
      I'm ok, just a little tired right now.  Lots of stress getting elderly parents and in-laws taken care of. My thyroid took a dip low (no surprise there) so I had to increase dose by a quarter grain. Overall, I am not dragging all day but waking up and getting going in the morning is slowwwwwwwww.  I'm sure you understand that! Yeah........Barty.  I thought of her for DAYS on end and it just saddens me to no end that such good people are the ones being taken.  Sometimes life is just so unfair. We all know that but there are times when it really hits you in the gut. There are times I think they are the lucky ones with the way the world is going these days. This terrorism plague is unnerving and I am really getting mad about it. Dear God, please stop this shyte!  I also miss nvsmom and others who have not been heard from. I hope she is feeling better and is just busy with life.  I got glutened on vacation about 6 years ago on the first day in Liverpool.  Jeez, was I sick!  I know how you feel but take heart........that was the last time I was bagged on vacation.  The longer you are gluten free and heal, the faster you recover from hits. You also get very good at not being glutened. It has been almost 2 years since it happened to me last so after 11 years gluten-free, I think I am doing well with that. I still have a little work to do with the vitamin D levels but I work so seeing much sun isn't happening.  My levels have doubled but they are still under 50. This whole Celiac thing is a part time job!
    • Test Results
      Hang in there SLLRUNNER...it is hard and frustrating.  Good job getting that appointment moved up.  I've done too...I've called daily looking for cancellations.  I can also remember counting down the days until my appointment.  ((((Hugs)))) and please let us know how it goes.
    • So I've been glutened....
      Miso soup has gluten in it, doesn't it? =/ I know that I've been avoiding it, which is a big shame because I adore miso!
    • Kissing and gluten
      Hi guys. I know this is a topic that has come up before, but I'd appreciate a little bit of advice. I've been 'courting' a guy for the past few months; nothing has happened yet but we have a proper date in a few weeks which is likely to lead to kissing. He didn't even know what a ceoliac was until a few days ago; I don't think he'd caught the hints that I'd been dropping beforehand. English isn't his first language - he's east Asian. Anyway, I've heard about being potentially glutened via a kiss. How do I broach this? I don't want to scare him off or make him think that I'm a lot of hard work; I know, I know, he's going to have to accept me as I am, etc. but for someone new to the entire thing, it is likely overwhelming. It would be for me if I'd never heard of it! Do I laughingly bring it up beforehand? We aren't going for food so if he isn't eating, just having a cup of tea, will I still need to be careful? If this seems safe, do I just let him kiss me and then bring up afterwards that any future kisses after food will have different precautions?  It all feels so clinical! He's a lovely guy so I do think he'll be understanding, but if anyone has any advice of first hand experience on how to approach the topic without it being a weird moment, that would be great.  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Jmg  »  admin

      Hello Admin!
      I don't know whether this is of interest to post on your articles feed:
      http://pratt.duke.edu/about/news/window-guts-brain
      Kind Regards,
      Matt
      · 2 replies
    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,948
    • Most Online
      1,763

    Newest Member
    VER
    Joined