Post From A New Member
Posted 26 May 2004 - 12:03 PM
I'm new here and don't know if this message will go to the board or to a private e-mail so help me out if I do this wrong. My name is Carol and I'll be 55 in June. I've spent a life time searching for what was wrong with me physically. My mother searched before I left home at 18. I now have a 7 page health history that begins at birth. Long story short, I have a diagnosis of chronic fatigue/fibromyalgia, allergies/sinus, low thyroid/adrenal and IBS (plus irritable bladder). I thought the thyroid med was going to be the magic pill I was looking for but it hasn't been (and I'm on a HIGH dose of Armour). Went into my main doctor whom I love (found him 5 yeas ago) and after talking for a while he brought up that I might have celiac disease. I was suprised as I thought I knew the symptoms. My father had Chron's disease. I had the blood work (no results yet) and have also ordered the stool test from entero labs thanks to a gal on one of my groups. I've already started the diet based on what I know and will be VERY suprised if I don't have it. Searching the net gave me tons of info I didn't know about. Look forward to getting all the help I can get. Will keep you posted. Thanks much, Carol B
Posted 26 May 2004 - 12:18 PM
Sounds like you have had a lot of health problems, I hope you begin to feel better soon! I am glad that you are ordering the test through Enterolab, that is how I was dx along with my daughter. I have found Dr. Fine's way of testing to be more accurate than the standard blood test that other doctors rely on. I took the conventional route and went through a number of tests such as blood work, biopsy, etc and everything came back negative. I knew something was wrong and it wasn’t IBS no matter what the docs were telling me . I was at the end of my rope when I decided on Enterolab, it was well worth it.
Here are some helpful links that may help you gain more knowledge of celiac disease and eating Gluten Free:
Safe & Forbidden Food & Ingredient Lists for Gluten-Free Diets
Mainstream Products that are gluten-free
Gluten Free Meds
gluten-free Food List
**you will need Adobe in order to view this list**
Take care and I hope you get some answers soon, please keep us updated on your results.
Posted 26 May 2004 - 03:26 PM
Posted 26 May 2004 - 03:32 PM
Enterolab testing kit will probably get to you this week. However, you can only send the test back on Monday, Tuesday or Wednesday to insure that it gets to the lab during the week. So you will have to wait until next week in order to send it back to them. Once I sent my test back to them, it took four weeks to get the results.
How old is your autistic son? You might try a Gluten Free and Casein Free diet with him, it has been proven to help some autistic children.
Enterolab Diagnosed May 2004
gluten-free/CF and have both genes
I would have despaired unless I had believed that I would see the goodness of the LORD In the land of the living. Wait for the LORD;
Be strong and let your heart take courage; Yes, wait for the LORD.
Posted 26 May 2004 - 08:07 PM
I read your story on another thread and you'll find comfort in knowing (I hope) your not alone, your story sounds almost identical to my Mom's. I have been going down the same road as well and it sure sounds like you have Celiac. It is miserable to fall apart without any answers...well, falling apart is bad either way, eh , but with answers there is hope of an action plan. And honestly, this is the best potentially fatal disease you can have!
So, hugs to you too, and let us know about your test results. Once you send off your samples for testing, maybe you can start the diet and see how you feel.
Posted 26 May 2004 - 10:28 PM
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