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How Long Can A Reaction Last?


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17 replies to this topic

#1 eleep

 
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Posted 14 April 2006 - 09:29 AM

Okay, I've been extremely careful, but I did ingest something Saturday night that I knew within an hour caused a reaction. The next few days were full of hellish anxiety and muscle tension and emotional ughs. That subsided sometime early Wednesday, but I'm still having lingering GI issues -- D., mostly, and I'm trying to figure out whether it's something further I've been ingesting, or whether this is just lingering reaction stuff.

I've been eating mostly fish, beans, vegetables and fruits since the reaction -- I've also only been using the personal care products that I've already screened for gluten.
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Erica

Inconclusive blood test results
Positive Enterolab results
Positive dietary results
gluten-free since 2/10/06

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#2 happygirl

 
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Posted 14 April 2006 - 10:13 AM

Erica-I'm sorry to hear you aren't feeling well. This can be so frustrating!

People's reactions vary in length and severity, and can even vary in the same person (depending on the amount of gluten, the time gluten free, and other unknown variables that Mother Nature likes to throw at us!). I know that my reactions now are very severe for a solid 24 hours no matter what, and can last for a few days to a week or so. My body hates me when I give it gluten! It also can depend on how long you have been gluten free. For the first few months gluten free, I still felt pretty crappy overall---I think, because my body was still healing. And then I'd be accidentally glutened and life would be bad!

If you have been eating only at home with 100% safe ingredients and no cross-contamination, I would guess that you are just having a particularly fun reaction. I use the Immodium A-D pills and they have saved my life.

Hope this helps and that your reaction subsides!!!
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#3 cornbread

 
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Posted 14 April 2006 - 11:51 AM

My gluten/casein reactions last anywhere up to 14 days. It doesn't relate to the amount I consumed either,they just seem to get steadily worse each time. They used to last a day, then 2, then 3, then 5, then a week, then 10 days, then the last time it was a solid 2 weeks. :blink: This was from one small taste of egg that had been mistakenly fried in butter (after I strictly requested olive oil). Prior to that I was out for 10 days after licking an envelope. People can never comprehend exactly how careful we all have to be or exactly how sick we can get from a tiny tiny amount.
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#4 jerseyangel

 
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Posted 14 April 2006 - 12:22 PM

I get symptoms for 2 weeks. The first week is worse--for instance, I was glutened by CC 2 days ago. From 2 hours after ingesting the food, I have had nausea, gas, low ab. cramping and I'm very depressed and apprehensive feeling. I had to go out earlier, and was afraid I was going to throw up--I really never do, but the nausea is that bad. This will probably linger on for a few more days, and the second week, it will gradually get better. I really hate this :angry:
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Patti


"Life is what happens while you're busy making other plans"

"When people show you who they are, believe them"--Maya Angelou

"Bloom where you are planted"--Bev

#5 ebrbetty

 
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Posted 14 April 2006 - 01:03 PM

I just got over getting glutened, it was 2 weeks of living hell, stomach pain everyday 24/7 :(
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~Betty

#6 jerseyangel

 
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Posted 14 April 2006 - 01:05 PM

I just got over getting glutened, it was 2 weeks of living hell, stomach pain everyday 24/7 :(

Betty--does this mean you're feeling better? Hope so! :D
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Patti


"Life is what happens while you're busy making other plans"

"When people show you who they are, believe them"--Maya Angelou

"Bloom where you are planted"--Bev

#7 ebrbetty

 
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Posted 14 April 2006 - 01:08 PM

Hi Patti, yes this last week has been much better, I must have been had gluten from somewhere...I just can't believe it lasted sooo long!

I hope you have a wonderful holiday weekend!! (((HUGS)))
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~Betty

#8 jerseyangel

 
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Posted 14 April 2006 - 01:11 PM

Betty--Thanks lady, you, too :D
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Patti


"Life is what happens while you're busy making other plans"

"When people show you who they are, believe them"--Maya Angelou

"Bloom where you are planted"--Bev

#9 elonwy

 
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Posted 14 April 2006 - 03:14 PM

My GI reactions are immediate, then I get fog and joint pain for 3-5 days. It's funny, and kind of gross, but I can tell by my BM's now when the gluten is finally "gone". I will go to the bathroom and I know that my system is done dealing with it and I'll start feeling better the next day. I definitly have a varied reaction time based on how much I ingest too. If its just a little I'm only feel bad for 3 days, if its more then I feel bad longer. The good news is, I react instantly, so the last time I stopped eating after two bites because I knew it was going to make me sick.
Elonwy
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#10 cornbread

 
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Posted 14 April 2006 - 09:50 PM

I react instantly too Elonwy - it's really quite handy in terms of damage limitation!
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#11 ebrbetty

 
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Posted 15 April 2006 - 04:51 AM

when you say you know instantly, in what way? what are your symptoms? I'm assuming you don't mean digestive problems, because it takes time for the food to digest and cause symptoms. just curious, cause I get severe stomach pain but it takes time to hit
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~Betty

#12 elonwy

 
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Posted 15 April 2006 - 09:20 AM

It just feels wrong. I swear I start to feel bloated as the first bite slides down my throat, but its like taking a bite of something thats spoiled, I have an instantaneous, "that's not right" reaction, its not really a symptom so much as a general feeling of ick.
Does that help? Its kind of hard to explain.
Elonwy
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Positive Bloodwork 7/8/05
Inconclusive Biopsy 7/20/05
gluten-free since 7/23/05
Never felt better.


"So here's us, on the raggedy edge, come a day when there won't be room for naughty men like us to slip about at all. - Malcolm Reynolds"

#13 Felidae

 
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Posted 15 April 2006 - 10:50 AM

Man, I just got glutened Thursday night for the first time since being gluten-free and I was so sick yesterday. Now th brain fog and stomach pains are bad. The worst part is I have to study for my final exams.
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First cousin dx'd with Celiac Disease
Grandmother died of malnutrition b/c everything made her sick... sounds like celiac to me.
Gluten-free since June 2005
Dx with IBS February 2005
Blood tests both negative (or inconclusive?) for celiac (in 2002 and 2004)

#14 chick2ba

 
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Posted 16 April 2006 - 04:45 PM

Does anyone else experience a 24 hour delay before the worst symptoms appear? My reactions normally last a week, minimum, but I've noticed that the severe bloating and nausea occur about a full day later (then living hell for the next three days). The somach cramps tend to start in about 30 minutes, but those happen randomly, too. The delay makes it very very hard to figure out exactly what poisoned me.

Good luck with your finals.. I know how much that sucks.. taking a major exam with your stomach writhing.
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#15 Caitlin9267

 
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Posted 19 September 2008 - 06:12 AM

Hi- I was recently diagnosed with Celiac by both TTG IGA levels and a positive biopsy. I have been gluten-free for 2 months and have gained a much needed 15 lbs since eliminating gluten. I think that I have accidently ingested gluten a couple of times. The first incident resulted in a feeling like someone stabbed my in the upper abdomen, a sharp piercing pain. I contacted my disinterested GI and asked him if this could be a reaction to gluten. He replied "No" and ordered a HILA Scan of my Gall bladder and an ultrasound of my abdomen; both were negative. He wanted to do a CT scan but working in the field of oncology I understand the importance of minimizing these scan and since I had one recently that diagnosed an intutusception in my small bowel, I declined. I suspect that I have been exposed again and have the same sharp pains in my upper abdomen? Has anyone experienced similar pain? Thanks!
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Caitlin9267
A lifetime of CFS symptoms and borderline ANA results and superthin build
2004 diagnosed with hypothyroid disease
2007 diagnosed with osteopenia
2008 intussusecption reduced with surgery and lymphoid hyperpasia
2008 confirmed celiac both biopsy and bloodwork




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