Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

How Do I Notify The School
0

4 posts in this topic

Does anybody have a sample letter or tips on how I notify the school about Nicholas' gluten-free Diet? We're finishing up the tests and he will start the diet next week. He is Special Needs with an IEP so he goes to school 11 out of 12 months of the year(No school in August for him) We have an IEP meeting next week and I need to know if his gluten-free diet should be included in his IEP somehow. He does not have the celiac disease diagnosis because his biopsy was negative, he will get it after a 1 year FG diet with improvement of his symptoms though.

I am asking the Dr for a letter stating that his gluten-free diet is medically necessary because I know otherwise I'll probably have a tough time with the school. What else do I need to do to orepare for this.

THANKS!

Maryanne

0

Share this post


Link to post
Share on other sites


Ads by Google:

In addition to the letter from the doctor stating that he needs to be on the gluten-free diet for at least one year (it can be updated next year if he needs to stay on it), you should also include a letter stating what a gluten free diet entails. Lists of foods and ingredients your son cannot have, and lists of foods he can have. Also included should be non-food items such as play-dough and licking stickers/stamps and such. You should stress how important it is to strictly adhere to the diet and that he should never be allowed to "trade" food with others. With a doctors note you should not have to have the official diagnosis. It sounds like they are using the diet as another test, so it should be enough.

You will probably still have to monitor him in school fairly closely, since substitutes will not usually be adequately informed and class parties happen with sometimes no notice.

Will you be sending lunch or will he be having the school lunch?? I have always sent a sack lunch, since my kids were always picky and never liked the school lunch even before going gluten-free. So that has been easier for us to stick with what we were already doing, rather than try to get the school to maintain a gluten-free meal for them everyday. But by law the school has to comply if you have doctors orders for a gluten-free diet.

God bless,

Mariann

0

Share this post


Link to post
Share on other sites

Mariann,

First off I need to thank you for being such a great help to everybody here. You are always quick to respond to my posts no matter which folder I have posted in and I have gotten so much information from you. Everytime I start reading something new I don't even have to scroll to the bottom to see it's from you. Thank you from the bottom of my heart for helping me as much as you have so far and taking away 90% of my concerns :)

As for your question - yes I am going to send in a sack lunch. Nicholas is a picky eater, but the school has several items to choose form daily so if he were able to eat them he would find something he liked but I thought without a celiac disease diagnosis I had no leg to stand on.

I just bought him an insulated lunchbag with a matching backpack from LL Bean and I found a 10 ounce insulated non-breakable bowl so I can send in gluten-free mac and cheese and gluten-free spaghetti so he's not reduced to PB&J on gluten-free bread every day :) That made my day. I wanted to ask them if they could accomidate him every friday though for Pizza day - with a gluten free pizza - would the school have to do that if I ask - or are they only required to provide a gluten-free meal of their choosing - weather it's something my son would like or not? I would love to ask for gluten-free lunches, but I have visions of them trying to feed my 6 yo a grilled chicken breast on lettuce or something else totally inappropriate for my child's taste.

I am just not looking forward to this with them. I think it's going to be a battle which I don't want to have to do. I had to battle them last year just to get them to provide a car seat for him during the summer session when he had to ride on the big bus (He's a 28 lbs 6 yo - the size of most 2 yo's During the school year he was riding on a small bus with all of the other Pre-School Disabled kids in car seats and they wanted to put him on the big bus without a car seat!!!) There's already a bad taste in my mouth from that battel so I just am trying to brace myself fo rthis one too.

What has everybody else done for theirt kids for lunches? What kind of lunches are the kids who get gluten-free meals served at school?

Maryanne

0

Share this post


Link to post
Share on other sites

Maryanne:

Even if the school would be required to provide your son with a gluten-free meal (which is a big if), they would not be required to provide him with the gluten-free meal of his choosing (i.e. they could choose to do a chicken breast as you had asked).

I am assuming that Nicholas attends public school, or at least a school that receives federal funding. A lot of the answers to your question will be affected by whether that assumption is true.

I would recommend that you contact either ROCK (Raising our Celiac Kids) or GIG (Gluten Intolerance Group) as I think I heard/read that they have sample letters you can use for school accommodations. You might find this helpful.

In addition, if you find that your local school authorities (principal, teacher, etc. within the school) are not taking you seriously, I think you shouldn't hesitate to (1) give them a chance to correct this; but if they don't, then (2) elevate the matter to your school district (superintendent, board, etc.).

Good luck,

Kim

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,667
    • Total Posts
      921,670
  • Topics

  • Posts

    • Marip, Have you been diagnosed with celiac disease or Non-celiac Gluten Intolerance?  I notice you joined in 2014.  Did you ever go guten free?  How can we help?   Sorry, I'm not a stool expert!  You could Google it...  Malabsorption?  Standard lab tests that check for anemia and vitamin deficiencies, etc.  should help make that diagnosis.  
    • You can eat just a slice or two (or equivalent) of bread a day for accurate testing.   I understand about the high deductibles.  We're self-employed and we pay for our health insurance. 
    • Sure, if it's gluten free, then fine.  I am very allergic (like anaphylactic) to ibuprofen and aspirin.  So, in my case, I would just tough it out.  Go to bed.  Sleep it off.....eventually. My money is on the garlic and onions.  I can't consume those either (damn that zonulin/leaky gut -- google it along with Dr. Fasano).  I just season with salt, pepper.  Boring.  But no gut issues.  I'm hoping like my lactose intolerance (resolved), that I will get garlic and onions back.   Finally, sometimes just eating anything can hurt when you still have intestinal damage.  Hopefully, you'll feel better in two or three hours if it's celiac related.  Longer if it's an intolerance (leaky gut thing....) Hugs!      
    • I read on their website that all Advil is gluten free, I had such bad pinching cramping today(which I don't why since I prepared all my food at home today.) I made a pot roast, salt garlic, onions...No gluten but still pain, That's the only thing I ate today..I don't eat breakfast or anything.   Anyways.   Is it a good idea to take Advil for the cramping? That's how I would describe it like someone is reaching inside me and pinching me and twisting my insides.    This is what I took  
    • I'll give my PCP a call tomorrow and see what they can offer. My only worry is the expense as anymore tests will put me behind in being able to afford to see the GI. I have high deductible insurance but get money put into my HSA. I'm still trying to pay off the CT scan though. Which is why I'm trying to pick and choose which poses the greatest risk for me right now and what can wait. (Though I would prefer not to wait on any of it.)

      I really do hope its only IBS. Though I always worry IBS is more or less a doctors way of saying "I have no clue" at that point. :C

      Again, I'll be sure to give my PCP a call tomorrow then and see what the options are. I can feel a lot better trying the blood work first. however, once that is done, do I still need to be on a gluten diet before the endoscopy? Also, is it ok if I still mildly reduce the gluten. As in, can I avoid a whole wheat pasta dinner, but still be eating the peanut butter crackers? That sort of thing. Again I guess that is more of a doctor related question. I just wasn't sure if in order to raise your chance, you have to mass consume gluten or not. (Its already in just about everything to begin with.)   --Edit--
      I just now reread the part that you still need to be on the gluten foods even for biopsy so I'll be sure to do that too.
       
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,664
    • Most Online
      3,093

    Newest Member
    Britliac
    Joined