Posted 27 May 2004 - 05:08 PM
Posted 28 May 2004 - 08:18 AM
Posted 29 May 2004 - 08:20 PM
Just curious what test was negative? All my bloodtests were negative, but positives on the stool and gene tests through Enterolab. Was it the TTG, EMA, the IgA Gliadin or the IgG Gliadin?
Mariann, gluten intolerant and mother of 3 gluten intolerant children
Posted 29 May 2004 - 10:18 PM
Reticulin Antibody, IgA with Reflex to Titer/Reticulin Ab, IgA Screen. This test was negative. The one they didn't run was Reticulin Ab, IgA Titer (NOT DONE) and then it says "client Comments": include anti gliadin IGG IGA IGM other info: Includes Antigliadin IGG
I've read here about the TTG test and I'm suprised my doctor didn't order it. I will have to ask him about that. Guess it doesn't matter as the stool test is more accurate. Right? Thanks so much. Hugs, Carol B
Posted 30 May 2004 - 01:39 PM
Mariann, gluten intolerant and mother of 3 gluten intolerant children
Posted 30 May 2004 - 06:38 PM
Posted 30 May 2004 - 09:05 PM
I had the Celiaplus test, sent to Prometeus labs in SF, Ca. It came back negative, and the Dr. wasn't sure what I have. But through an upper endoscopy it showed celiac type lesions, with flattened villi. He still couldn't tell what I have, and has suggested trying the gluten-free diet. I also had a neg. blood test 8 years ago. I have been suffering from IBS for over 20 years! Well, maybe! I know nothing about the stool test, and the Dr. hadn't recommended it. Shoud I have it? The recent blood test cost $730.00!!!!!! He said it was kind of expensive, and I had no idea, and to come back neg. so that the two tests were inconclusive! I hope my insurance pays!!!!
Any other ideas, or just try the gluten-free diet, as he said?
Thanks for any help!
Posted 31 May 2004 - 07:17 AM
Posted 31 May 2004 - 08:32 AM
Thank you so much for taking the time to reply! I may try the test. But, first I need to see if my insurance will pay for that expensive blood test! I'm just getting it submitted, and hope I hadn't needed to have it approved beforehand! So, not sure I want to spend more, just yet. I'm trying to get the hang of this very restrictive diet, in the meantime!
I have so much trouble understanding cross contamination, especially using the same toaster, for instance! I also feed cats, and a litter of kittens, and I'm handling their food, with wheat in it. Can that give me problems, also??? How would you ever cook for the rest of the family, without touching gluten foods?
Much appreciate the help!
Posted 31 May 2004 - 08:44 AM
Posted 31 May 2004 - 09:47 AM
As far as cooking for the rest of the family - depending on the cooking you do, and how much practice you've had at cooking, cooking gluten-free for the whole family really isn't very hard - nor does it have to be more expensive. There are a LOT of foods that are normally gluten-free; ones that people are used to and like. In all the entertaining and dinner parties I do, I keep everything gluten-free.
For instance, for breakfast:
* veggie omlette (or any other kind of omlette)
* fresh fruit and yogurt
* rice cakes w/ peanut butter
* (if you want to buy any gluten-free flours) muffins or quick breads
For lunch (I'm thinking packable in a small cooler, since I take my lunch to work):
* veggies with dip (bean dip, hummus, guacamole, salsa, etc.)
* salads (bean salad, green salad, tuna salad, chicken salad, marinated vegetable salad, tomato salad, etc.)
* chicken/beef/pork/beans/etc wrapped in corn tortillas (soft tacos)
* fresh fruit
* leftovers (my personal favorite)
For dinner (I usually do something fairly simple myself, and healthy, that my husband will also eat (he's picky)):
* chinese style stir fries (mostly vegetables, sometimes some chicken/pork/beef/fish) served over rice
* baked chicken with onions, carrots and potatoes and italian spices
* grilled meat (my husband's favorite - baby back pork ribs, chicken (breast or leg), salmon, trout, shrimp, tri tip, pork chops, pork tenderloin, etc.)
* sauteed vegetables (usually three or four vegetables sauteed together)
* roasted rosemary potatoes
* mashed potatoes
* sweet potato fries (baked)
* green salad
* vegetable appetizers (usually bell pepper, carrots, and zucchini)
* salad nicoise (takes more time, but yummy)
* barbecued corn
* bean soup
* spinach salad
* fuit salad
All of those things are pretty much automatically gluten-free (assuming you've got gluten-free soy sauce - and I plan to use that gluten-free teriyaki recipe I posted more on those meats). I've served that, and other things (like millet - which isn't too pricey and is gluten-free - and gluten-free pasta and gluten-free cookies) at dinner parties as well. But sticking to dishes that are naturally gluten-free, it's not that hard for you to not have to cook a dish with gluten.
Another thing to consider is that, if it's that much trouble cooking something with gluten in it, perhaps the people eating the gluten should be cooking the gluten. If my husband wants wheat pancakes, he has to make them himself. (I know, this won't work if you're a single mom with kids too young to cook.) And our kitchen isn't completely gluten-free - my husband has a spot for his cereal and crackers, and one cutting board for bread (and one section of the counter for bread), but none of the actual cooking gets any gluten.
I'm not trying to push anyone to convert their families; I'm sorry if I sound pushy in my post (I tend to do that too often :-( ). I'm just often surprised by how many people here seem to not want to serve their family gluten-free foods or think other people won't like any of it, particularly when I find it fairly easy to accomodate in most of my cooking.
Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy
G.F. - September 2003; C.F. - July 2004
Hiker, Yoga Teacher, Engineer, Painter, Be-er of Me
Posted 31 May 2004 - 10:18 AM
Posted 31 May 2004 - 10:54 AM
You here, are wonderful! It's so hard to try something new, and as restrictive as this! Also, family can't believe how restrictive it is, due to cross contaminants! I'm having a hard time with it, so can understand their reticence!
Tiffany, I appreciate the ideas for meals. It's just hubby and I. He will either eat what I fix, or have a tv dinner!!!!! One problem I thought I may encounter, is cooking once a week for two granddaughters. They love my spaghetti. I can try the gluten-free corn spaghetti, and hope it tastes okay to all. I also can make other things they like, for the most part, naturally gluten-free, as you say. And no, not too pushy! I do so need the help!
Sara, thanks for thinking the biopsy was enough for me to go on, for results. The Dr. has a hard time believing what it is, due to the current blood test coming back negative, from Prometheus. It is SUPPOSED to be accurate! So, now we have a positive looking biopsy, and a neg. blood test, with a reliable lab! Hmmmmm! I'm still trying the gluten-free diet, feel better part of the time, and don't want to spend more money, until I see if the blood test is covered by insurance. Maybe I'll have my answer, with the gluten-free diet before then!
Thanks to you all! I'd welcome any other tips!
Posted 31 May 2004 - 11:02 AM
Posted 31 May 2004 - 02:31 PM
She tested me for lactose intolerance and I'm positive for that. I'm struggling with that. If I even have a cookie with whey powder in it I suffer. I took 2 Lactaid pills to see if that would be enough and it wasn't maybe. I don't know - I'm suffering right now as a matter of fact. Thing is, I took 2 Lactaid pills and only had one small cookie and still feel awful. Thought it would take more than that to make me sick.
Anyway, she referred me to a gastroenterologist and the wait is 14 months! That's because they have ruled it as "routine" based on the fact my bloodwork for celiac came back negative (she really didn't believe I have it and said so - told me I don't have the classic symptoms! My feeling on that is that she would obviously need to suffer all this since 3 yrs. old, as I have, to really know how I feel! She signed it off, meaning she agrees there is no hurry to get me in to see the gastro.
I felt really dejected...
I will have to think about getting this test done at Enterolabs, however I'm in Canada and don't know if my doctor would believe the results if they were positive anyway. Doesn't really matter I guess, if she does or not, as I could still go gluten-free. The advantage to having a firm diagnosis of celiac is that in Canada we can get a tax right-off for all gluten-free food bought under the disability act. It would certainly make things easier economically if that were so!
Well - guess I really wanted to comment on the posts here that show similar results as mine. Maybe once I get the dairy thing under control, I'll feel better and it won't be gluten afterall!
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