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Pregnant?


KayJay

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KayJay Enthusiast

Have any of you been pregnant but didn't know because you thought the symptoms were from having celiac disease? It seems that feeling sick, being bloated, and so on are all symptoms of both. Also did you have any symptoms that are uncommon? I am just curious.

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kalo Rookie

Well, I just found out that I may have celiac disease. When I was pregnant I did MUCH better than at other times in my life. I LOVED being pregnant (except for the 8 weeks of morning sickness I had with my first). That is puzzling to me except it may have been an hormonal thing. Are you already on a gluten-free diet? I'm not experienced enough to give you more answers. Hope your feeling better soon. Hugs, Carol B

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KayJay Enthusiast

Sorry didn't mean to say that I was pregnant we have been thinking about it but more than that it seems that every time I go to the doctor that is the 1st thing they test me for. I guess I was more looking for a difference in symptoms with people with celiac disease and people without. For future knowledge :) Congradulations for you Kalo

Thanks

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Queen Serenity Newbie

Hi,

How long have you had you symptoms? Do they come and go? Or, are they a constant in you everyday life? I ask you these things, because, when I was diagnosed nearly ten years ago, I had symptoms of every kind, every day. Fatigue, constipation, bloating, vomitting, diarhea and swollen legs were just some of my problems. I don't know why a doctor would relate a pregnancy with your particular symptoms, but he or she should be concerned with testing you for other ailments. My Celiac's appeared after the birth of my second son. They say that a trauma to your body usually brings it out. You have the disease from birth, but you may not be aware of it until later in life. I also have been diagnosed with Hypothyroidism. It exists in some people with Celiac's disease, because it is an auto-immune disorder. Celiac's disease is also an auto-immune disorder. Have you brought all of your symtoms to the attention of your doctor? If not, push the issue. Have him or her test you for Celiac's. There is a blood test to test your ANA levels. If it is abnormal, then there is a possibility of Celiac's. I hope I have helped. Please let me know.

Vicki

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KayJay Enthusiast

Sorry again I guess I wasn't beening very clear again. I have been diagnosed with Celiac at the beginning of the year. I had several symptoms, swollen everything, weight gain, vomitting, and so on and so on. I went to the doctor last year all the time I became so sick that I had to leave my job (on my own choice) but now I am feeling a lot better. I still feel sick once in awhile. For the last two weeks I have been feeling sick but I seemed to be better the last few days.

--I just know that my doctors always thought that I was pregnant and then we started talking about having a baby in a year or so and I started thinking about being sick. I just went two years feeling sick I want a break! Then I started wondering if there are more symptoms for those with celiac disease.

--You said that the ANA levels could mean something I was tested a few years ago and my were 3 times the normal range. they thought I had lupus but further test said I didn't. How is ANA related to Celiac? I asked my Doctor if it could be and he said no. It would make sense that it would be. Tell me more about that! Thanks for replying :)

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Queen Serenity Newbie

Hi,

The ANA, which are antibodies, if found in high levels, are usually related to a person having Lupus or Rheumatoid Arthritis. These are considered Auto-immune

disorders. If you are tested, and do not have either of these diseases, then the doctors start to look for other problems. They have found over the years, that Celiac's is a disorder of the immune system, just as the others listed above. I was diagnosed the same way. I had blood work done, with my ANA levels high, the other two were ruled out, and then a biopsy was performed to confirm the doctor's suspiscions. I'm glad you are feeling better! And, if you are wondering about feeling ill during pregnancy because of Celiac's--don't worry. There was difference between any of my three pregnancies. Two were before, and the other after. They say that every pregnancy is different, and it's a true statement. But, having Celiac's dosen't affect the pregnancy in any way. In fact, it's a better deal for the baby, because we have such a healthy diet! So, if you decide to have a baby, rest assure your body willact the same as any other expectant mother. I hope that this helped, and the I didn't misunderstand you again.

Vicki

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gfmom Newbie

Regarding pregnancy symptoms, I have three kids (ages 5,3, &1), and I only had symptoms of celiac disease with the last (my symptoms started the very day I got pregnant, in fact!). The symptoms of celiac disease were MUCH worse than any of the morning sickness, fatigue, etc. that I experienced in the first two pregnancies. And once I was diagnosed (just at the end of the first trimester) and I went on a gluten-free diet, I almost instantly went back to feeling as I had in the first two pregnancies. In other words, I think that if you are on a strict gluten-free diet, you should experience symptoms of pregnancy just like any other non-celiac disease person. With the exception of my three months of celiac disease-induced misery, I loved every minute of being pregnant, nausea, exhaustion, and all. And it is SO worth it when holding little munchkins for the first time!!

Krista

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  • 3 months later...
Killarney Apprentice

The symptom I had at the beginning of pregnancy that would have nothing to do with celiac disease is very very sore breasts. All the other early symptoms of pregnancy (nausea, fatigue) can also be celiac disease symptoms, you're right. But my breasts have never felt the way they did they that first week I found out I was pregnant. I think only pregnancy can give them that feeling.

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  • 4 years later...
bette spada Newbie
The symptom I had at the beginning of pregnancy that would have nothing to do with celiac disease is very very sore breasts. All the other early symptoms of pregnancy (nausea, fatigue) can also be celiac disease symptoms, you're right. But my breasts have never felt the way they did they that first week I found out I was pregnant. I think only pregnancy can give them that feeling.

my daughter has celiacs (2 years) just found out she is pregnant about 7 weeks and she had not had any symptoms except the very tender breasts. she had miscarried in november after trying for about a year. she found that all her vitaman levels were very very low, so they put her on shots, liquid and chewable vitamins. she has not had any morning sickness, she is a bit more tired but I knew she was pregnant when she said her breasts hurt and she was almost in tears because of it.

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      But if you have been off of wheat for a period of weeks/months leading up to the testing it will likely turn out to be negative for celiac disease, even if you actually have celiac disease. Given your symptoms when consuming gluten, we certainly understand your reluctance to undergo  the "gluten challenge" before testing but you need to understand that the testing may be a waste of time if you don't. What are you going to do if it is negative for celiac disease? Are you going to go back to merrily eating wheat/barley/rye products while living in pain and destroying your health? You will be in a conundrum. Do I or do I not? And you will likely have a difficult time being consistent with your diet. Celiac disease causes inflammation to the small bowel villous lining when gluten containing grains are consumed. This inflammation produces certain antibodies that can be detected in the blood after they reach a certain level, which takes weeks or months after the onset of the disease. If gluten is stopped or drastically reduced, the inflammation begins to decrease and so do the antibodies. Before long, their low levels are not detectable by testing and the antibody blood tests done for diagnosing celiac disease will be negative. Over time, this inflammation wears down the billions of microscopic, finger-like projections that make up the lining and form the nutrient absorbing layer of the small bowel where all the nutrition in our food is absorbed. As the villi bet worn down, vitamin and mineral deficiencies typically develop because absorption is compromised. An endoscopy with biopsy of the small bowel lining to microscopically examine this damage is usually the second stage of celiac disease diagnosis. However, when people cut out gluten or cut back on it significantly ahead of time before the biopsy is done, the villous lining has already experienced some healing and the microscopic examination may be negative or inconclusive. I'm not trying to tell you what to do I just want you to understand what the consequences of going gluten free ahead of testing are as far as test results go so that you will either not waste your time in having the tests done or will be prepared for negative test results and the impact that will have on your dietary decisions. And, who are these "consultants" you keep talking about and what are their qualifications? You are in the unenviable position that many who joint this forum have found themselves in. Namely, having begun a gluten free diet before getting a proper diagnosis but unwilling to enter into the gluten challenge for valid testing because of the severity of the symptoms it would cause them.
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    • Moodiefoodie
      Wow! Fascinating info. Thanks so much! I really appreciate the guidance. @Spacepanther Over the years I have had rheumatologists do full lab work ups on me. They told me they had screened me for arthritis, lupus, and Lyme disease (all negative). In addition to joint pain and stiffness I had swelling in both knees that later moved to my elbow as well.  I also experience stiffness and pain in my neck and shoulders when it flares. I vomited fairly often growing up, but there wasn’t a real pattern to it and I didn’t know it wasn’t normal (thought people caught stomach viruses often).  I don’t usually have stomach symptoms immediately after eating gluten that I notice.  The only other joint condition I know of is fibromyalgia. Good luck! Hope you can get it figured out. I only assumed my joint symptoms were due to the celiac’s because it is under control for the most part on a gluten-free diet.  The rheumatologist also mentioned that some inflammatory/autoimmune diseases can be slow-moving and not detectable until they progress.
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      @Spacepanther, I found these articles about the connection between Celiac and joint pain. Musculoskeletal Complications of Celiac Disease: A Case-Based Review https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10201087/ And   Intestinal microbiome composition and its relation to joint pain and inflammation https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6814863/ And The gut microbiome-joint connection: implications in osteoarthritis https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6903327/ Sounds like it's time to change the diet to change the microbiome.
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