Anyone Have Nerve Damage Caused
Posted 28 May 2004 - 04:39 AM
I am seeing a neurologist for numbness and tingling in my arms and legs and found somewhere that it could be from nerve damage caused by celiac. I am also dealing with depression. I am beginning to think I just don't have a handle on the celiac disease and that is my entire problem. I have had all sorts of blood work and testing. I am having an EMG done next week to check for nerve and muscle damage.
I am just tired of all the doctors and testing. Any suggestions would be helpful.
Posted 28 May 2004 - 05:52 AM
Posted 31 May 2004 - 03:15 PM
hope this is helpful,
Posted 16 July 2004 - 10:21 AM
After 6months being gluten free I had numb legs and tingly feeling, it eventually spread to my arms, hands and fingers (right side only). Then I began having trouble walking, to the point where I had to use a cane, and I would trip over my own feet . Then began the shaking and the stuttering. I was stubborn, tired of tests that ended with no definate answer, or an accusing stare(32 years of celiac and being told i was anorexic and/or had IBS and told to take a lot of fibercon... ) and therefore waited too long before I went to the doctor.
They've done so many tests I can't count them on both hands anymore, yet nothing obvious showed up. This last test was a lumbar puncture (spinal tap).
I often wondered if all of this was related to celiac, I've seen some reports of nerves being damaged similar to the demyelation in multiple sclerosis. Right now, in my case, they have ruled out many things, but not multiple sclerosis.
It sounds like it may be normal to have the tingling and numbness for celiacs, but if it gets worse as mine did, I definately suggest to look into it.
With luck I will know something soon, and if so, I'll definately update, perhaps it will be of help. My issue may not be related to celiac or yours, but then it may be, its good to look at it from all angles.
My biggest fear is the big "I don't know" which many celiacs are all too familiar with.
Good Luck to you, and don't hesitate to go see your doctor if the symptoms get worse.
*edit* I just read your other post "is this normal" and am sad to hear that they don't have any answers yet *
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