Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Anyone Have Nerve Damage Caused
0

4 posts in this topic

by celiac?

I am seeing a neurologist for numbness and tingling in my arms and legs and found somewhere that it could be from nerve damage caused by celiac. I am also dealing with depression. I am beginning to think I just don't have a handle on the celiac disease and that is my entire problem. I have had all sorts of blood work and testing. I am having an EMG done next week to check for nerve and muscle damage.

I am just tired of all the doctors and testing. Any suggestions would be helpful.

Missy :(

0

Share this post


Link to post
Share on other sites


Ads by Google:

I had had numbness/tingling in my arms and legs for a while before i was diagnosed with celiac. Now that I am gluten free, I never get that sensation anymore. I did see a neurologist before knowing that I had Celiac and he didn't see anything wrong (although he didn't do any tests). How long have you been gluten free? The numbness should go away after a couple months of not having gluten. I go through my bouts of depression as well. Guess it all comes with the disease. I had/have a hard time dealing with it sometimes but I get through it. Just hang in there. Hopefully it will all get better and this gluten free diet will pay off in the long run (at least that is what i keep telling myself). Let us know how the test results come out. I am very curious to see what they say!

0

Share this post


Link to post
Share on other sites

Yes,I had symptoms starting as pain in the right big toe which later became numbness and progressively got worse and affected the feet and lower leg on both sides.This progressed over a number of years,and my doctor did not come up with a reason for it.I had also ameliorated my digestive symptoms with a high fibre vegetarian diet,but was eventually diagnosed when I went in for severe abdominal pain and they discovered I was anaemic.This started them off to the races with the tests but it took a while to reach a diagnosis because celiac disease was near the end of their list of possibilities.Once I went on a gluten free diet the numbness was one of the quickest symptoms to go away and was almost 90% gone in a few months,but after seven months I still have some lingering neurological symptoms including a persistant tingling around the left ear and sometimes it affects the thumb and index fingers,but overall the severity was rapidly lessened with the gluten free diet.If celiac disease is the cause the gluten-free diet may help fairly quickly.My doctors didn't have much to say about these syptoms and seem to be waiting to see if they will go away from the diet.I did find some information relating to this on the Columbia University GI website which seems very informative.

hope this is helpful,

good luck

0

Share this post


Link to post
Share on other sites

missyflanders,

After 6months being gluten free I had numb legs and tingly feeling, it eventually spread to my arms, hands and fingers (right side only). Then I began having trouble walking, to the point where I had to use a cane, and I would trip over my own feet . Then began the shaking and the stuttering. I was stubborn, tired of tests that ended with no definate answer, or an accusing stare(32 years of celiac and being told i was anorexic and/or had IBS and told to take a lot of fibercon... <_< ) and therefore waited too long before I went to the doctor.

They've done so many tests I can't count them on both hands anymore, yet nothing obvious showed up. This last test was a lumbar puncture (spinal tap).

I often wondered if all of this was related to celiac, I've seen some reports of nerves being damaged similar to the demyelation in multiple sclerosis. Right now, in my case, they have ruled out many things, but not multiple sclerosis.

It sounds like it may be normal to have the tingling and numbness for celiacs, but if it gets worse as mine did, I definately suggest to look into it.

With luck I will know something soon, and if so, I'll definately update, perhaps it will be of help. My issue may not be related to celiac or yours, but then it may be, its good to look at it from all angles.

My biggest fear is the big "I don't know" which many celiacs are all too familiar with.

Good Luck to you, and don't hesitate to go see your doctor if the symptoms get worse.

micky

*edit* I just read your other post "is this normal" and am sad to hear that they don't have any answers yet :( *

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,918
    • Total Posts
      919,627
  • Topics

  • Posts

    • Weird things people have said
      I've had people say strange things about celiac to me lately... Like someone said, "Oh I'm just a mild celiac so I don't have to worry about cross-contamination." And then someone else said that they're celiac but things have calmed down now so they can have a bit of gluten here and there. And I told my doctor that back in 2014 I thought I had been gluten free but I actually wasn't because I had been repeatedly glutening myself with an old colander. And he just looked at me like I was insane, like a colander?? Sure... I'm not crazy, right? Even if you have no symptoms you have to avoid cross-contamination because you can be doing damage internally right? You can never have 'just a bit'. And a colander is a big source of cross-contamination right?? I know all this but why do these other people not? Why does my doctor not know? So confusing and spreading misinformation... And then they look at me like *I'M* crazy.
    • fructose malabsorption and gluten intolerant
      Look up FODMAPS.   That might clarify things for you.  There really are a lot of diet recommendations so make sure you bring a list of questions regarding foods to your doctor's  and dietician's appointments.  
    • Recovery?
      Thank you for sharing those web sites. I will look at them. We have been gluten free since December so it's been a while. Once, he had a gluten free beer, the kind that they take the gluten out, and his legs felt very heavy and had a more difficult time walking. I really don't want to experiment.  Although I am very careful about what we eat, I am concerned that some of our medication could contain gluten. Is there any easier way to tell if medication has gluten. I did find a website which listed drugs and known gluten but every drug was on it or was determined to be gluten free
    • fructose malabsorption and gluten intolerant
      I don't have celiac but doctors or amazed I don't so they told me to fallow the gluten-free diet like I have it... any way I was wondering if one can have corn, corn starch if they have fructose malabsorption. I am so confused on what I can and can't have.. i have an appt next week hopefully with a dietitian... also can you have sugar free stuff since it's not sugar.. I'm reading online and I'm getting a bunch of mixed info on both. 
    • Depression / anxiety issues
      Hi all.  Still feeling the same way this past week. I'm thinking of dropping dairy starting from today, I don't know if I have a problem with it or not, but I drink 2 coffees a day with milk. I'm just constantly tired all the time, and getting trough the day is pretty hard, I noticed a couple of weeks ago that my sleep was improving but the last couple of days I have been waking up at least 3 times during the night, then when I get up in the morning it feels like I have been hit by a bus, like I haven't slept at all. I keep waking up during the night needing to drink water as I feel dehydrated, I don't know why as I drink 2-3 litres of water everyday 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Jmg  »  admin

      Hello Admin!
      I don't know whether this is of interest to post on your articles feed:
      http://pratt.duke.edu/about/news/window-guts-brain
      Kind Regards,
      Matt
      · 2 replies
    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,962
    • Most Online
      1,763

    Newest Member
    Ktowncaroline
    Joined