Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

What's This?


JenAnderson

Recommended Posts

JenAnderson Rookie

What is Enterolab and why does it seem like that is the gold standard in testing? What do they do when they test? I have taken a blood test that came back inconclusive and had a "Biopsy", but the gastro that I saw said that he didn't see any scarring. I've had an appendectomy a few months ago and the surgeon said that I needed to be retested because from the state of my appendix, I could have been having problems with that all along. Can anyone help me? I have been gluten-free since Jan 04 and I have no idea what to do with all this new info.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cornbread Explorer

Go to their web site and read read read - lots of great info there. :)

Open Original Shared Link

Link to comment
Share on other sites
tiffjake Enthusiast

I had testing done there (EnteroLab) because I didn't want to go through my doc. After doing several tests (Lame Advertisement, EnteroLab, and gluten free diet and then challenge) I went to my doc for the blood tests. I didn't want to get the discouraging comments that I have seen on here that so many people get from non-believing docs. That was my experience. Good luck! I hope you find what you are looking for!

Link to comment
Share on other sites
mmaccartney Explorer

the "gold standard" is positive serology with positive intestinal biopsy. These methods are extermely old, and as we celiacs know, they are not that accurate unless your disease is progressed!

Enterolab is appealing to many as 1) it is non invasive, 2) it does NOT require you to ingest gluten for testing purposes.

The issues are that the testing is not standardized nor has it been put through a peer review. Many doctors don't see them as legitimate.

I made the choice to use them. My serology was funny, my biopsy negative. But then my disease was only active for about 1.5 yrs. If I continued on and got tested after a year or two, the results surely would have been different. So, I ended up going with Enterolab (my ins actually paid!!) and I got the results I knew I would get.

Link to comment
Share on other sites
JenAnderson Rookie

Well I've called my insurance company and since it's not a military physician or facility, the military won't cover it (Go Figure) Ah well.

Link to comment
Share on other sites
mmaccartney Explorer

Bummer! I know nothing about military insurance. I would ask them if the military provides this type of testing, and if a military doctor ordered it, would it still be covered??? I woul expect that if a doctor in their plan ordered the test, it wouldn't matter what lab it came from!

My insurance company told me that they would *not* cover the testing. They wouldn't consider it "medically necesary" unless a doctor ordered it.

I wanted the testing, so I put up the $390 to have it done. Just for kicks I got a claim form and sent it to my insurance company. Surprise! they paid it! I am still shocked......

I am having my kids tested. Just to be safe I'm trying to ge their pediatrician to "order" the tests so that if the ins denies it I can appeal and get payment...

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      120,995
    • Most Online (within 30 mins)
      7,748

    FatimaFarhan
    Newest Member
    FatimaFarhan
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • GardeningForHealth
      As a side note, it seems that medical science has evolved in the past 5-6 years regarding Celiac Disease, and I am now catching up. It seems that anything that disrupts the microbiome sufficiently enough can--in genetically susceptible individuals--lead to Celiac Disease. I have been reading now that antibiotics, excessive simple carbohydrates such as refined sugars and starches, the manner of birth such as C-section vs vaginal delivery, the diversity of one's diet, the presence of certain bacteria or viruses, can all contribute to microbiome dysbiosis, which can lead to Celiac. This is fascinating research.
    • GardeningForHealth
      I mostly eat healthy. My diet has varied over the past 10 years but mostly consisted of meals I cooked at home made from scratch. Ingredients I used over the years include (not in order): non-wheat grains such as teff, sorghum, millet, and eggs, butter, cheese, some milk, meat (poultry, red meat, but very little processed meat), gluten-free baked bread (mostly Canyon Bakehouse brand), vegetables, fruits, nuts, legumes, peanuts, chocolate (not in the past 6 months). However, the mistakes I made in my diet are that I consumed too much sugar and carbohydrates from gluten-free baked goods that I baked myself at home such as gluten-free dessert items, and also I ate pretty much the same exact meals over and over, so a great lack of diversity in what I ate. I got lazy. I think this messed up my microbiome. The meals I ate were mostly healthy though. I always made sure to eat vegetables and fruits on a daily basis.  I have checked for nutrient deficiencies over the years and I am sometimes low in Vitamin D. I started supplementing it after that. What concerns me is the progressive nature of the food intolerances, which indicates the gut is not healing and has been leaking all along. 
    • TessaBaker
      It sounds like you're dealing with a complex situation, and I can understand how frustrating it must be not to have a clear answer. Gut health can indeed play a significant role in various aspects of our well-being, including hair health.
    • Celiac16
      I have found similar benefits from thiamine. I was diagnosed with celiac at 16 and never really recovered despite strict gluten and dairy free diet and no detectable antibodies on checkup bloodworks. I’ve tried stopping the b1 but start to feel bad again- I wanted my doctors to do more extensive testing for the different thiamine transporters and enzymes which would be a better indication if I was deficient or dependent on it but everyone dismisses it (there are know genetic mutations where you need to take it daily for life). I have looked into Thiamine Responsive Megablast Anemia and I have a lot of the more mild symptoms of the disease that manifest when thiamine isn’t given to the patient such as optic neuritis… I just find the parallels interesting. i think that celiacs could be a side issue of inflammation that resulted from vitamin deficiencies. I was eating a lot of sugar leading up to my diagnosis and since eating gluten free didn’t make me feel much better, I’m wondering if this was more the underlying issue (sugar heavily depletes b1). I usually take 1.5g thiamine a day.
    • Fluka66
      Thank you for your welcome and reply.  Yes I've been carefully reading labels looking for everything in bold and have been amazed by what I have seen. However Heinz tomato and basil soup is wheat free so I m thinking I already have ulcers?  The acid could be causing the pain . My pain always starts in one place then follows the same route through me . GP confirmed that is the route of our digestive system.  So much pain from stabbing to tearing. If I throw in milk with lactose it's horrific.  Many years of it now, won't go into details but been seeing a consultant for a supposedly different problem . Wondering what damage has been done over the years. Many thanks for your reply. Wishing you the very best.    
×
×
  • Create New...