Jump to content

Follow Us:  Twitter Facebook RSS Feed            




   arrowShare this page:
   

   Get email alerts  Subscribe to FREE Celiac.com email alerts

 
Ads by Google:
Celiac.com Sponsor:                                    


Photo
- - - - -

Omg...i Might Be On To Something


  • This topic is locked This topic is locked

33362 replies to this topic

#26101 confusedks

 
confusedks

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 1,743 posts
 

Posted 26 January 2008 - 04:05 PM

Julie,
I'm sorry you're having a rough day. :( I am too for some reason today. I am still severely nauseous. I can't stand being so nauseous and then I take something, but then I sleep for 4 hours! ;) :lol: Can't win.

Everyne,
Does anyone know what mycoplasma pneumoniae is? I tested positive for it. Is it really pneumonia? Is that right? :o
  • 0
Dairy/Casein Free- March 2007
Gluten Free- May 2007
Soy Free- August 2007
Sugar Free- January 2008
Starch Free- January 2008
Egg Free (again!)- February 2008
Sulfur Free- May 2008

Dx'd Lyme Disease and co-infections- December 2007

Celiac.com Sponsor:

#26102 Rachel--24

 
Rachel--24

    Advanced Community Member

  • Banned
  • PipPipPipPipPipPip
  • 9,323 posts
 

Posted 26 January 2008 - 04:45 PM

rachel, i remember seeing a few pages back you said you had a list of essential tests to have done that some doctor gave you, can you post it if you see it? i know you said you posted it somewhere in here, but i don't think going through 672 pages is possible :lol:



Oooops...I totally thought I had reposted this. :huh:

Sorry April and Rpm.

Ok...heres the whole list of goodies from my alternative LLND (Dr. Amy).



My goals for this talk:

Show you some other factors that we have discovered with ART testing that can interfere with your recovery from Lyme
To discuss some non-antibiotic treatment options that can complement your care.

What is ART?

ART is “Autonomic Response Testing” developed by Dietrich Klinghardt, MD, PhD and Louisa Williams, MS, ND
It is a combination of U.S. based applied kinesiology and German biofeedback and ANS based treatment methods (i.e. neural therapy)
It is a technique that can be used to assess the health and/or dysfunction of the autonomic nervous system
It is a technique I use with every patient to help determine what the primary stressors are and what direction we should focus our treatments
Further instruction is available through seminars and videos at www.klinghardt.org

The 7 Factors of Illness
(these often “block” or stress the nervous system)

1. Toxins (ex. Heavy metals, neurotoxins, thioethers)
2. Nutritional deficiencies
3. Structural problems (herniations, occlusal, etc)
4. Energetic disturbances (scars, ganglia, acupuncture meridians…)
5. Food intolerances
6. Geopathic/Electromagnetic stress
7. Unresolved psycho-emotional or spiritual conflicts or traumas
- Developed by Dietrich Klinghardt, MD, PhD

ART testing- what to look for

Check all organs to look for areas of stress (often on a first visit it will be the tonsils, liver and sinuses)

Look for any scars (especially traumatic scars)

Viruses (esp HHV6, HSV2, EBV, CMV)

Parasites (ascaris, tapeworm, giardia, liver flukes)

Lyme and common co-infections (often this will only show when testing against a weak arm since they “block” regulation)

Heavy metals

Molds/fungus- often a stress to the lymph system

Food testing

For all infection testing, make sure to check for resonance in different areas of the body once blocked regulation is ruled out

Check for hormone imbalance or nutritional deficiencies

Why Not Just Use Lab Testing?

As you know there are several false negative (poor sensitivity) results for Lyme, co-infections, heavy metals and also for most parasites

Labs are important, but they don’t tell the whole story

Using energetic testing in addition to lab tests helps to fill in the gaps and provide a more tailored treatment plan for that particular patient at that specific time

Other diagnostic tools to look that can be useful to guide treatments:

Applied Kinesiology
Electrodermal testing (EAV)
Asyra (the newest and most advanced computerized technology that looks at underlying causes of illness, rather than just acute stressors)
Chinese pulse diagnosis/ Iridology
Ondamed
Clinical observation
Arm length reflex
Pendulum
Leg length testing
Dr. Omura’s O-Ring testing
Many others….

Keeping the system in balance

toxins in

Body load

toxins out

Toxic Burden

People who become symptomatic with Lyme disease have a high toxic load, such as:

Lyme neurotoxins and co-infections (Borrelia, Bartonella, Babesia, Mycoplasma, Ehrlichia, Rickettsia, Chlamydia)

Heavy metals

emotional burden

Toxic scars (especially if developed just before the onset of illness, if it is a scar that goes straight across the abdomen or if it is near the area of most symptoms)

Pthalates or other environmental toxins

High microbial load (molds, parasites, viruses)

Food allergies, increased intestinal permeability and decreased nutrient absorption

This is why it often takes more than just a targeted Lyme medication to get well

Simple changes to help reduce body burden

Limit chemicals used at home- hairsprays, perfumes, candles, cleaners… (good cleaning option is vinegar and castille soap)

Diet- Stop the junk food, caffeine and alcohol

Diet- If not doing lab testing at least try to avoid major food allergens like gluten and dairy and choose foods containing fewer artificial ingredients and preservatives - Gluten and cow dairy increase the mucoid layer in the intestines and contribute to inflammation and poor nutrient absorption (A food allergy elimination diet like the LID diet Dr. Singleton suggests is best)

No fluoride in the toothpaste (this can disrupt hormones)- try using xylitol or herbs to keep plaque formation down. Also start using a water pik and Sonicare toothbrush

Stop smoking

Use more natural body care products

Don’t cook in plastic or put in the dishwasher (plastics can chelate Mg & Zn)

Reducing body burden…

Choose organic meats and dairy (i.e. chicken is full of arsenic)

Use a good quality air filter in your bedroom (IQ Air or Nikken are great)

Clean carpets and bedding regularly (If you have had mold issues, consider replacing carpets altogether)

Find a biological dentist

Check for geopathically disturbed sleeping location- cordless phones, cell phone towers, electrical smog, computers, etc

Be cautious about vaccines (thimerosol)

Drink plenty of water and consider adding electrolytes

Keep the bowels moving

Get enough sleep

Light exercise or at least some stretching to keep the lymph and circulation flowing (Emphasis on full body strengthening and flexibility vs aerobic)

Treating Scars

Neural therapy (www.klinghardt.org)- aka biopuncture
EFT/MFT
Sesame oil rubbed on them daily for 1 month
King Bio Scar Cure spray
Pulsed Laser (ideally with a homeopathic remedy)
3 day protocol:
- make a paste with a healing clay (NatuRx, Premier Research) and water, cilantro, oil, Cicatrix or whatever tests appropriately
- Apply to the scar and allow to dry
- Wash off well
- Repeat 3 times daily for 3 days
Example- Woman with multiple back scars and rapid pulse and speech that immediately went back to normal upon injection

Lab testing essentials

Thyroid panel- TSH, fT3, fT4 and antibodies

Chem panel and CBC (WBC’s less than 4.5 strongly indicate to test for Borrelia)

Genetic testing of detox pathways to identify glutathione or methylation defects, among others

Hair metal analysis (good 1st step since not requiring provocation)

Porphyrin testing

Herpes, EBV and CMV viral panels

Complete stool panel (CDSA)

Vit D levels (25 hydroxy and 1,25 hydroxy)

Coagulation studies or fibrinogen

Hormones/Adrenals

Food allergy testing (either by blood, ART or electrodermal testing)

ANA

CRP and ESR

CD57

Western Blot for Borrelia (Lyme) using Igenex or MDL…Since it is looking for an antibody response, it is ideal to first treat with herbs for at least 6 weeks before testing if the condition is chronic
Fry’s Lab and Central Florida Research Lab also offer useful Lyme labs

Checking for co-infections (Igenex or Fry’s)

Urinalysis for metals and minerals, following provocation (DMPS, DMSA or EDTA)


Physical Exam

Feel for swollen lymph nodes
Look for allergic shiners (thyroid, food allergies)
Look for discoloration around the mouth (often a sign of parasites)
Feel skin texture, especially on the back of the arms (vit A, EFA’s)
Look where the patient carries their weight
Pupil dilation or brown spots in the iris
Rashes or streaks
Sock lines
Skin color (gray, yellow)

Non-prescription Lyme treatments

To reduce the virulence of co-infections, it has been my preference to start treatments with more broad spectrum herbs, then switch to prescription antibiotics if needed

Samento (work up to 30 drops daily or more in water or juice with electrolytes) If tinctures are not tolerated I like Raintree Nutritionals Cat’s Claw

Noni (up to 6 dropperfuls daily, more effective for Babesia)

Researched Nutritionals Transfer Factor LymPlus- 1-4 daily

Cumanda (up to 30 drops daily or more)- this has proven great for us with chronic arthritis related to Lyme

Banderol (for viruses and Lyme co-infections also)- up to 30 drops daily or more

PhytoLymex by Nutriwest- up to 3 tsp daily

Andrographis paniculata- protective against neurodegeneration and excreted rapidly via the kidneys- tinctures taste horrible, but work well. The pill versions are tolerated better and in my experience have lasting effectiveness, even against Bartonella.

Polygonum cuspidatum (aka Japanese Knotweed)- Increases brain microcirculation and decreases autoimmunity- especially useful when there are some neuropathies

Stephania Root tincture- great for associated viral issues

Artemesinin- pulsed for Babesia and parasites

Rizol oils (ozonated essential oils)- great for stubborn parasites and skin ailments and difficult to treat infections- these can be used orally, topically or in a neti pot

All tinctures seem to work better when taken in water with electrolytes and Phospholipid Exchange to enhance absorption

Colloidal Silver- dosage varies with the product

SpiroNil/Teasel Root (work up to 3 Tablespoons daily)

KMT technology programs 1 and 2 (BioTools, www.klinghardt.org)

Coriolus

Clinical signs of parasites

Rashes on the chest or neck
Discoloration around the mouth
Males often have risky behaviors
Aggravations around the full moon (bloating, irritation, etc)

Treating Parasites (the most difficult to lab test, but the first thing to treat)

BioPure organic freeze dried garlic

Artemisinin pulsed in high doses 3 days on every 2-3 weeks

Vermox/Mebendazole (100mg BID * 3days, then repeat after 3 weeks)

Biltricide (600mg TID for one day then repeat in 2-3 weeks)

Tinidazole for giardia/amoebas (500mg BID for 10 days, usually following a different parasite treatment)

Albendazole (28 day course)- rarely needed in kids and typically only for severe neurological symptoms that have not resolved with other treatments

Alinia (dose varies)- 20 day protocol is great for MS and Babesia

Herbal Cleanses (Dr. Natura Colonix, Botanifuge…)

Salt/C

It seems to be very effective to follow prescription parasite medications with homeopathic support or the parasite C.D. for at least another month

Clinical signs of yeast/fungus

Gas and bloating
Lower abdomen is resistant to weight loss
Kids- high pitched squealing, silly , flushed cheeks and stimming
White coating on the tongue
Brain fog and fatigue
Vaginal or anal irritation/itching/redness
Headaches
Weakness/ fatigue
Sugar cravings
Stabbing sensations
Light sensitivity
Rashes
Memory loss or concentration difficulties
Joint pain and morning stiffness
Shortness of breath
Sinus congestion
Numbness and tingling
Skin sensitivity
Muscle aches and pains

Treating Fungal Issues

Diflucan (Fluconazole) for 1-3 months continuous (this also helps to address the Lyme issue)- it is also inexpensive now

Nystatin for 1-3 months or longer

Amphotericin B (250mg BID oral dosing for 6 weeks)

Yeast/Fungal Defense by Transformation Enzymes

Candicid Forte

Probiotics (like Klaire Therbiotic Complete, Metagenics Ultra Flora Plus or BioImmersion Beta Glucan probiotic to stimulate gut immunity)

KMT program #6

Uva ursi or Pau D’Arco

Saccharomyces

Grapefruit Seed Extract- (hint: it hides best in grapefruit juice)

Colloidal Silver

Order mold test plates for the home https://moldlabintl.com

The Tonsils

Congestion in this area due to chronic infection is common and leads to back-up of lymph flow and detox out of the brain
brain

cribiform

Adenoids

tonsils

cervical lymph

Treating the tonsils

Pleo Not, Pleo San Strep and/or Pleo San Pseu (5 drops BID-TID for 6 weeks to treat acute infection, followed with Pleo Sancom for up to 1 year)

Look into neural therapy if visible scar tissue from childhood surgery or notable throat or sinus symptoms

Reduce food allergens, especially dairy

Lymph drainage remedies like Heel’s Lymphomyosot, Lymph Stim Liquescence or Transformation Enzyme’s L-Drain are helpful

Manual Lymph drainage or a rebounder

It may also be necessary to have the bite evaluated for occlusal problems disrupting lymph flow (easy first step is a night guard)

KMT treatments to stimulate lymph drainage

Get an air filter for the bedroom

BioPure Rizol oils topically to the submandibular area

Regenerative cryotherapy (Dr. Dorochov, www.kryopraxis.de)

Heel tonsilla compositum- 1 vial orally each week for 1 year or more

Clinical signs of viruses

Bell’s palsy
Burning pains or neuropathies
MS symptoms
Tinnitus
Fatigue
Elevated WBC’s when symptoms get worse
Enlarged lymph nodes
Cold sores or canker sores

Treating Viruses

Vitamin A (some are using up to 400,000IU daily for 2 days every 6 months)- especially for kids
Selenium (liquid drops are easy to take in divided doses)

Monolaurin or Lauricidin (especially if symptoms became worse after a cold or flu or there is known EBV)

Olive leaf (I prefer a liquid cap by Gaia Herbs)

Mycophyto Complex powder (steeped in hot water for at least 10 minutes) or several other mushroom products are great

Lomatium tincture

Valtrex

Researched Nutritionals Transfer Factor Multi-Immune

Viral Detox by Transformation Enzymes

Banderol, Stephania Root, Barberry, Japanese Knotweed

Viral C.D. played no more than once daily

HSV 6 is a man-made immunosuppressive virus that is commonly found

Supporting the Kidneys

This organ is an absolute must to support if you are chelating metals!!!

Renelix by Pekana
BioPure Matrix Electrolytes added to all fluids
Burdock or Dandelion tea
Nestmann Solidago tincture
Acupuncture/ Neural therapy
K-Drain by Transformation Enzymes
Emergen C added to liquids
Tapping on K27 whenever taking supplements
Burbur detox

Function of the liver

Detoxifies chemicals, drugs, hormones, etc.
Stores vitamins (A,D,E,K,B’s), iron & copper
Manufactures clotting factors & transport proteins
Produces bile & cholesterol (for steroid hormones)
Houses many immune cells & filters blood
Metabolizes proteins & synthesizes amino acids
Converts amino acids to glucose (gluconeogenesis)
Converts glucose to glycogen & glycogen to glucose
Metabolizes fatty acids for energy
Synthesizes lipoproteins & phospholipids
Produces glutathione to bind heavy metals, etc.

Liver Support

(Suspect this is needed when the bowels are sluggish and the patient is not tolerating any antibiotics and is sensitive to most supplements and even foods)

Dandelion Root
Ultrathistle (milk thistle product that is easier to absorb)
Livit 1 and 2 (Ayush)
Castor oil packs over the liver with heat for up to 50 minutes daily
Coffee enemas, especially when Herxing (not on very young children)
Colon hydrotherapy or liver flushes (under care of a practitioner)
Ensuring regular bowel movements
Treating candida/yeast
Pleo Rec topical over the liver
Neural therapy with Heel Hepar compositum or Hepeel
Phosphatidyl Choline and Glutathione IV
Designs for Health PaleoCleanse or Amino D-tox

Heavy Metal Detox

Clear the excretory organs first, before chelating the brain
Remember: Lyme infections deplete minerals (esp. Mg) and treating infections helps to restore mineral balance

DMPS, DMSA or EDTA (it can be safest to start with EDTA)

Transdermals can bypass the gut if digestion is very sensitive

Dr. Neubranders mB12 protocol (methylcobalamin)- www.drneubrander.com

BioPure Chlorella pyrenoidosa or CGF Chlorella (the CGF chlorella is often tolerated better in women when you first start)

Modifilan- (brown algae that binds metals and helps to balance hormones)- Start with 2 daily and work up to 6

Phospholipid Exchange (small daily doses like 1 tsp daily in women, up to 1 Tablespoon daily in heart conditions)- contains alpha lipoic, magnesium, EDTA and phospholipids

BioPure CGF liquid- a good mobilizer and early intervention

BioPure Cilantro tincture (orally up to 20 drops in hot water or topically along the lymph)

NDF or NDF Plus

Multi-minerals (especially on the non-chelating days…liquid forms seem easiest to absorb and tolerate)

Toxaway foot bath- turns on the kidney detox

Glutathione nebulized or nasally

Metal Free or PCA-Rx

Algas Metal Detox (Nutramedix)

Greens and vit C help to flush the body and protect you during metal detox

The importance of trace minerals

Chromium-regulates blood sugar/metabolism
Vanadium-helps control blood sugar
Iodine-affects metabolism via thyroid hormone
Selenium-anti-oxidant(in glutathione peroxidase)
Rubidium-for normal stomach function
Iron-binds oxygen in red cells & muscle
Molybdenum-aids liver detoxification.
Lithium-helps form neurotransmitters
Copper-forms hemoglobin & collagen; in SOD
Zinc-in metabolism, detox, immunity, reproduction

Importance of basic minerals

Calcium-contracts muscles; strong bones/teeth
Magnesium-relaxes muscles; helps metabolism
Phosphorous-builds bones; makes ATP energy
Manganese-aids metabolism; anti-oxidant(SOD)
Sulfur-crosslinks proteins in skin,hair,joints,etc.
Silicon-builds bones and connective tissue
Boron-aids steroids to stimulate healthy bone
Potassium-aids nerve function/electric potential

The role of basic vitamins

Vit.A- helps vision, immunity & mucosae
Vit.D- regulates calcium; reduces cancer risk
Vit.E- anti-oxidant; protects cell membranes
Vit.C- anti-oxidant; forms collagen/hyaluronate
Vit.B1- metabolism cofactor(energy production)
Vit.B2- makes FAD/FADH (energy intermediate)
Vit.B3- makes NAD/NADH(energy intermediate)
Vit.B5- makes coenzymeA(energy intermediate)
Vit.B6- metabolism cofactor(energy production)
Vit.B12- helps nerves & bone marrow (blood)

General Detox Support

Dr. Neubrander’s methylcobalamin s.c. injection protocol or nasal spray

Designs for Health Amino D-tox and PaleoCleanse (great overall detox support)

Epsom salt and baking soda baths

Coffee enemas or colon hydrotherapy

Castor oil packs

Avoiding food allergens

Getting plenty of liquids

Magnesium, B6, zinc

Heel coenzyme compositum s.c. 1x/week to turn on ATP production

Fibercleanse for toxin binding, especially when on antibiotics or Lyme treatments (www.newsunhealth.com) - be cautious of psyllium

Cod Liver Oil by Carlsons or Nordic Naturals

Probiotics (Pharmax HLC, BioImmersion Beta Glucan Probiotic or many others)

Pause during a crisis and provide support (especially for gut and kidneys)

Kenriko detox foot pads

Dr. Cowden’s Laser Detox

FIR Sauna

Keep bowels moving (OxyPowder and other magnesium products often work well)

BioBuilde amino acids that act as collagen and protein building blocks

BioImmersion Blueberry (neuroregenerative)

Support the adrenals

Hypercoagulation (aka “sticky” blood)

May see elevated platelets, abnormal PT, increased fibrinogen
Best test is from Hemex Labs (ISAC panel)
Key is to take the following treatments AWAY from food

Non-heparin treatments that work well:

Boluoke- up to 3 daily
Nattokinase- up to 3 daily
Lumbrokinase- up to 3 daily
Rechts Regulat- 1 Tablespoon twice daily
Wobenzym N- starting at 4 twice daily and increasing
Vitalzym X- starting at 4 twice daily and increasing

Toxin Binders to help when Herxing:

Cholestyramine
Fiber (non-psyllium)
Chlorella
Modifilan
Apple pectin
Butyrate
Bentonite
Activated Charcoal
  • 0
Rachel

#26103 Rachel--24

 
Rachel--24

    Advanced Community Member

  • Banned
  • PipPipPipPipPipPip
  • 9,323 posts
 

Posted 26 January 2008 - 05:03 PM

What kinds of things did you experience when you were reacting to the charcoal?


Julie,

My typical reactions of head swelling, pressure, burning eyes, etc.

Once my system gets overwhelmed I'll react to pretty much anything. Its not like the charcoal is a problem for me...but I'll still react to it at times when my system is in overdrive.

I think its similar to what you go through with your angio attacks....but different. Ok...so that made no sense...but you know what I mean. :P

Anyway, going back to a topic I was researching back toward the beginning pages of the thread...it still seems to be a histamine problem for me.

I know this is also related to angio....but the question is why so much histamine??

Some foods can bring on immediate "attacks"....which for me would be swelling of my blood vessels that is actually visible. I can feel the pressure and the pulsing in the veins...and they are usually bulging. Other symptoms are swelling, burning, pain, headache, inflammation, etc. The worst symptoms are in my head but theres stuff going on throughout my body...including my gut....which can lead to weightloss.

Its pretty consistent as far as which foods can cause full blown reactions....while others may contribute a little at a time...until I've reached my tolerance. Its histamine content in the food. Fermented stuff is totally out of the question for me...I came to the conclusion that this is why I cant tolerate any yogurt or kefir.

Then there is also the perfumes and environmental sensitivities which also cause a release of histamine.

I'm not sure if this is all occurring because of liver toxicity...and when my liver gets particularly overwhelmed everything just boils over and the reactions are constant until things settle down.

OR...if I'm unable to eliminate histamine effectively...so that if I'm not careful it builds up and then I'm reacting to everything.

I guess these 2 possibilities could be occuring simultaniously....with one causing the other.

The other thing is that my immune system could be reacting to some of the things in my body...the metals, yeast, parasites, etc. This could probably cause a constant excess of histamine....which would get worse with any flare-ups....with foods and other things contributing to the total load.

I did have the tests for high histamine which didnt tell me anything...but this is definately histamine that I'm dealing with. I just dont know which treatment is gonna be the one to resolve it. I'm gonna talk to Amy about this at my next appt....see if theres any way to determine what will help it the most. This is probably the only symptom that I'm really stuck with...but it causes swelling, pain, brainfog, blurred vision, edema, etc..

This week I've had an increase in the inflammation...and I'm wondering if its a result of increased toxicity from my parasite treatment last weekend. <_<

Even though I didnt feel anything at the time...I'm sure it had to have had some effect. Either that or it could be that I've experimented with a few "bad" foods this week...ignoring the high histamine content. It could be a combination of both.
  • 0
Rachel

#26104 Rachel--24

 
Rachel--24

    Advanced Community Member

  • Banned
  • PipPipPipPipPipPip
  • 9,323 posts
 

Posted 26 January 2008 - 05:23 PM

Hi Claire!!

Thanks for the update. I was wondering how you've been.

I'm sorry that things didnt work out with your ART practitioner. I've been very happy with Dr. Amy. All of my LLMD's bring something to the table...but she brings it all together for me...with ART.

I'm pretty sure that at some point in my recovery I'll do something with everything I've learned on my "journey"....I have no idea what though. Lots of possibilities have been mentioned in the past...I would like to find a way to take the most valuable info. and put it all together. It would be alot of work but one of these days I'll be up for it. :)
  • 0
Rachel

#26105 CarlaB

 
CarlaB

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 10,049 posts
 

Posted 26 January 2008 - 05:26 PM

Carla, (and I think Mia?) on the Levaquin did either of you have nausea? I have been really struggling today and wonder if it is that.

Sherry

Yes. I had to take Prilosec ..... in fact, Prilosec is supposed to make the Levaquin work better according to Dr. B. I took it every day I was on the Levaquin .... well, after I figured out I felt so much better taking it.


Julie,
I'm sorry you're having a rough day.


Me, too.

Everyne,
Does anyone know what mycoplasma pneumoniae is? I tested positive for it. Is it really pneumonia? Is that right? :o

I think it's just the name of the bacteria. If you had pneumonia, your lungs would be filled with fluid .... this is an educated guess.
  • 0
gluten-free 12/05

diagnosed with Lyme Disease 12/06

#26106 Rachel--24

 
Rachel--24

    Advanced Community Member

  • Banned
  • PipPipPipPipPipPip
  • 9,323 posts
 

Posted 26 January 2008 - 05:28 PM

Julie,

I have a shower filter. OMG...I totally love it. I think I got it early last year...it probably needs to be changed by now. I used to smell sulfur or chlorine but now the water feels clean and unsmelly. :)

I run the shower to fill up my bath.

Unfortunately, I never put one here at my moms house...which is where I'm at all week. :rolleyes:

I got a bath ball for my moms house....but its kind of a PITA...so I dont ever use it. I guess I'm lazy when it comes to stuff like that....I dont wanna spend 2 minutes swishing some ball through my bathwater :rolleyes: ...I usually get in well before the bath is even full.
  • 0
Rachel

#26107 AndreaB

 
AndreaB

    November 2008

  • Advanced Members
  • PipPipPipPipPipPip
  • 6,978 posts
 

Posted 26 January 2008 - 05:34 PM

One of those days where mole hills seem like mountains......

I'm sorry Julie. :(


Kassandra,

Yay on the trampoline. :D


Rachel,

Thanks for posting that talk of Dr. Amy's.....I copied it over.
  • 0

Andrea

Enterolab positive results only June 06:
Me HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0301; Serologic equivalent: HLA-DQ 2,3 (subtype 2, 7)
Husband HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0302; Serologic equivalent: HLA-DQ 2,3 (subtype 2,8)



The whole family has been soy free since February, gluten free since June 2006.

The whole family went back to a gluten diet October 2011.  We never had official testing done and I decided to give gluten a go again.  At this point I've decided to work on making some gluten free things again, though healthwise everyone seems to be fine.  The decision to add gluten back in was also made based on other things I'd read about the 2nd sequence of genes.  It is my belief that we had a gluten intolerance, but thanks to things I've learned here, I know more what to keep an eye on.  If you have a confirmed case of celiac, please don't go back to gluten, it's a lifelong lifestyle change.


#26108 Rachel--24

 
Rachel--24

    Advanced Community Member

  • Banned
  • PipPipPipPipPipPip
  • 9,323 posts
 

Posted 26 January 2008 - 05:41 PM

I'm really sad because the autistic boy at my work got terminated. :(

My boss had to let him go...too many complaints and he said the "F" word to a customer. :(

He could have stayed but only if a job coach could stay with him for his entire shift...everyday....which just wasnt possible. :(

He did have someone with him for the last 3 weeks until they could figure out if there was any way they could arrange this permanantly...but there wasnt any way. :(

So yeah...it sucks! :angry:

He was doing really well for like a month after I told him to avoid cheese. Then he was eating cheese again and all heck broke loose. Lately I havent noticed any dairy but I have no idea what he eats at home...plus he still eats gluten anyway.

When things arent going well you can see it...the bad excema, the runny nose...plus all the complaining about aches and pains...other times his skin is clear and hes mostly happy.

His job coach said that he noticed in the past 3 weeks that he's fine in the morning but after lunch he kind of falls apart. Yeah...thats what I've been saying for all these months!

When I mentioned autism to him he totally disminnsed it...just like he's dismissed my thoughts about food intolerances. He said he's not autistic...he's mentally retarded. :huh:

Yeah...that really irritated me!! :angry:

So his last day was sad...and it also happened to be his birthday. We had cake for him, balloons and me and my boss got him a DVD...cuz he LOVES movies. He gave me lots of hugs and kisses...said he was sad, sad, sad...and that he'll miss me and everyone else alot. :(

I dont think he totally understood but he did know that he "quit" his job and he was sad that he wasnt coming back. He loved the little party we had for him though. :)

So...I'm gonna miss that little guy. :(
  • 0
Rachel

#26109 aprilh

 
aprilh

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 806 posts
 

Posted 26 January 2008 - 08:36 PM

Some foods can bring on immediate "attacks"....which for me would be swelling of my blood vessels that is actually visible. I can feel the pressure and the pulsing in the veins...and they are usually bulging.


Yes - that explains it perfectly!! That's what I was getting from the Humaworm! And I get that if I am just in a toxic state.
  • 0

#26110 Rachel--24

 
Rachel--24

    Advanced Community Member

  • Banned
  • PipPipPipPipPipPip
  • 9,323 posts
 

Posted 26 January 2008 - 09:16 PM

Yes - that explains it perfectly!! That's what I was getting from the Humaworm! And I get that if I am just in a toxic state.


April...its the "big head syndrome"...thats why I knew exactly what you were talking about when you described your reaction.

I hate big head syndrome!! :angry:

Well for me...I'm pretty much always in a toxic state...but there's a definate correlation between an even higher state of toxicity and an even bigger head!! :lol:

Too bad there is no big head emoticon...he would be used frequently by me. He would be about twice the size of this guy. :) Most likely big head emoticon guy wouldnt be smiling though. :P

Donna may not recognize me once big head syndrome improves. :lol:

Sometimes I am not feeling extremely toxic yet certain high histamine foods...like saurkraut, vinegar, yogurt, etc...will totally trigger the big head syndrome. When I'm feeling really toxic usually my skin is more pale and just doesnt feel or look right.
  • 0
Rachel

#26111 mftnchn

 
mftnchn

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 2,569 posts
 

Posted 26 January 2008 - 11:02 PM

Micoplasmal pneumonia is what is known as "walking pneumonia." I've had it once, it was not fun. It is not as severe--like with your lungs filling with fluid, but I was plenty sick with it.

Carla, I am extremely sensitive to Prilosec, and several other acid blockers. Prilosec gave me severe muscle pain. So I guess I am stuck with this.
  • 0
4/2007 Positive IGA, TTG Enterolab results, with severe malabsorption: Two DQ2 celiac genes--highest possible risk.

gluten-free since 4/22/07; SF since 7/07; 3/08 & 7/08 high sugar levels in stool (i.e. cannot break down carbs) digestive enzymes for carbs didn't help; 7/18/08 started SCD as prescribed by my physician (MD).

10/2000 dx LYME disease; 2008 clinical dx CELIAC; Other: hypothyroid, allergies, dupuytrens, high mercury levels

#26112 confusedks

 
confusedks

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 1,743 posts
 

Posted 26 January 2008 - 11:20 PM

Aww Rachel, that's so sad about your autistic "friend." :( At least you tried to do what you could do. :)

Sherry,
It's interesting, because I keep saying to my mom how extremely congested I have been, but I'm not eating dairy--which is what usually congests people. I wonder if this is the problem. It's already on my list to ask Dr. H about when I see him. :)

Everyone,
When anyone gets glutened, how long do your symptoms last? I am really starting to realize that when I get glutened (which I did on Tuesday AND Wednesday) that my symptoms last for at least a few days. Here we are on Satruday/Sunday and I'm still feeling really sick. I have only felt this way since I went out to eat on Wednesday night. It must have been the food. *sigh*

The nausea is so bad that I couldn't even take any supplements this evening because I can't even swallow water. I couldn't even take my anti-nausea med! :lol: ;) That's when you know it's a problem. I told my mom I wish I had my PICC line in so we could just do IV Zofran....that stuff works like a charm! Oh well.
  • 0
Dairy/Casein Free- March 2007
Gluten Free- May 2007
Soy Free- August 2007
Sugar Free- January 2008
Starch Free- January 2008
Egg Free (again!)- February 2008
Sulfur Free- May 2008

Dx'd Lyme Disease and co-infections- December 2007

#26113 mftnchn

 
mftnchn

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 2,569 posts
 

Posted 27 January 2008 - 12:27 AM

Julie sorry you're down too, and you, Kassandra. Hope we are all better soon.
  • 0
4/2007 Positive IGA, TTG Enterolab results, with severe malabsorption: Two DQ2 celiac genes--highest possible risk.

gluten-free since 4/22/07; SF since 7/07; 3/08 & 7/08 high sugar levels in stool (i.e. cannot break down carbs) digestive enzymes for carbs didn't help; 7/18/08 started SCD as prescribed by my physician (MD).

10/2000 dx LYME disease; 2008 clinical dx CELIAC; Other: hypothyroid, allergies, dupuytrens, high mercury levels

#26114 miamia

 
miamia

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 825 posts
 

Posted 27 January 2008 - 04:30 AM

Micoplasmal pneumonia is what is known as "walking pneumonia." I've had it once, it was not fun. It is not as severe--like with your lungs filling with fluid, but I was plenty sick with it.

Carla, I am extremely sensitive to Prilosec, and several other acid blockers. Prilosec gave me severe muscle pain. So I guess I am stuck with this.

I did and do get nauseu from it. I refuse to take any acid blocker ever again so don't worry we can tough it out together!!!!
Miamia
  • 0

#26115 miamia

 
miamia

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 825 posts
 

Posted 27 January 2008 - 04:33 AM

Is everyone else having this new board format? It is really confusing and annoying!!!!!!!!it makes reading the posts so much harder in less there is something i am not getting
  • 0




2 user(s) are reading this topic

0 members, 2 guests, 0 anonymous users

Celiac.com Sponsors: