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Omg...i Might Be On To Something


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#33271 confused

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    Just cause i cant have gluten doesnt mean im dying

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Posted 28 November 2008 - 07:19 AM

April,
I am so sorry i never seen your pm til you mentioned it, I get so many pm;s being an mod, that i usually dont see the ones meant just for me. I will get back to you later today. But i am doing so much better. Andrea helped me threw some of it and helped me let go of the anger.

Everyone,
I am doing really good on the new supplements. I have only had an reaction to the one with vitamins and minerals, so im not going to do that one again for awhile. But I am feeling great now. I am sleeping at night, i have so much more energy and actually spending more time with my hubby lol. I stil have to add in like 12 more supplements but so far so good. I really think i really think my health will be good for the new year
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#33272 dlp252

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Posted 28 November 2008 - 10:12 AM

Donna, this is fantastic news! I bet you are losing weight with all of this challenge, too. Hope you can enjoy your holiday dinners a little at least.

Happy to hear you've been doing better. Hope you have enough variety on your miniscule food intake right now.


Yeah, I've lost about 13 pounds. I can FINALLY fit into most of my clothes again, lol. I expect I'll gain a little bit back once I can get my calories over 1000...I've figured out that I'm only getting between 600 and 900 calories a day...definitely not healthy, but at least I feel full, lol. Even better news is that I can work out again. The doc gave the okay and so I've started with some brisk walks...my toe is holding out and I'm able to get in some really good walks. He gave me the okay to lift weights too, so I've been doing a little weight work as well. In a week or two I should be able to do some better aerobic exercise, and that should help keep the weight off.

I've expanded my foods to chicken, ground beef, green beans, white rice, potatoes, jello, fruit juices, applesauce, asian rice noodles. I tried an egg this morning, but couldn't finish it because it was sort of making me feel ill, lol. That's different than the pancreatitis attacks though...this is just an on again off again thing I have with eggs.

ROFL about floppy intestines! What a scientific term!!! :o Now I wonder what the downside is of having a too floppy intestine???

Glad you are feeling a bit better these days. What in the world is floppy intestines?

Yes Donna.....please explain to us! :lol:

I never heard of FLOPPY intestines :huh: ....but I think you must be right.....there almost certainly is an alien baby involved! <_<

I think the floppiness must come from all of the abuse alien baby has inflicted over the years....the constant kicking and such. I would imagine after awhile we just end up kind of FLOPPY. :rolleyes: :P
Makes sense that the floppiness might need attending to....like stapling or folding....or whatever it takes to make things less floppy. :lol:

Sorry Donna......I've had lots of FOOD over the past few days :ph34r: ....and so everything just seems pretty amusing to me right now....especially FLOPPY INTESTINES. :lol:


Well, I don't know what it is or why it's important, but I do know that I looked up the medical term for the procedure he did and it said "to correct excessive movement of the intestines". Not sure why exactly it's a problem, but I can see that it might be a problem, lol.

No need to apologize about eating lots of food...I can live vicariously through other people, lol.
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#33273 mftnchn

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Posted 28 November 2008 - 03:14 PM

Well, Donna, the rest of us are now wondering, "Do I have floppy intestines???" :lol:
So glad you are better! That's good news.

Rachel, I don't handle bananas well. But I haven't noticed any problem with avocado, although I can't get it out here unless I find it imported somewhere. Interesting, another thing to research.

Also, on the B12: I thought when I tried the two that the hydroxy B12 was better for me. But ART was very clear that the methyl was better so I switched. I don't notice one way or the other when I take the shots versus the days in between. But I do notice improvement with the glutathione shots and DMPS. I also think the magnesium shots help a lot. B vitamins did at first, now it feels more like I am maintaining and I have cut the dose.

My hair has hugely improved in volume, thickness. It was very fine, limp and not much of it before, plus in '05 for months had a huge amount of hair loss and had to wear a wig for months. So I am obviously getting some nutrients in whether through ingesting or injection.

Sherry
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4/2007 Positive IGA, TTG Enterolab results, with severe malabsorption: Two DQ2 celiac genes--highest possible risk.

gluten-free since 4/22/07; SF since 7/07; 3/08 & 7/08 high sugar levels in stool (i.e. cannot break down carbs) digestive enzymes for carbs didn't help; 7/18/08 started SCD as prescribed by my physician (MD).

10/2000 dx LYME disease; 2008 clinical dx CELIAC; Other: hypothyroid, allergies, dupuytrens, high mercury levels

#33274 mftnchn

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Posted 28 November 2008 - 03:26 PM

Rachel, do you have a good source about dopamine in foods? I notice dairy seems to be an issue, but I am fine with butter, aged cheese (I don't use a lot) and goat milk yogurt.

Sherry
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4/2007 Positive IGA, TTG Enterolab results, with severe malabsorption: Two DQ2 celiac genes--highest possible risk.

gluten-free since 4/22/07; SF since 7/07; 3/08 & 7/08 high sugar levels in stool (i.e. cannot break down carbs) digestive enzymes for carbs didn't help; 7/18/08 started SCD as prescribed by my physician (MD).

10/2000 dx LYME disease; 2008 clinical dx CELIAC; Other: hypothyroid, allergies, dupuytrens, high mercury levels

#33275 mftnchn

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Posted 28 November 2008 - 04:16 PM

Rachel,

I looked over the list of foods high in sulfur, salicylate, amines, and oxylate, and no pattern stands out to me. Maybe it is just intolerances to the food proteins mostly.

Sherry
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4/2007 Positive IGA, TTG Enterolab results, with severe malabsorption: Two DQ2 celiac genes--highest possible risk.

gluten-free since 4/22/07; SF since 7/07; 3/08 & 7/08 high sugar levels in stool (i.e. cannot break down carbs) digestive enzymes for carbs didn't help; 7/18/08 started SCD as prescribed by my physician (MD).

10/2000 dx LYME disease; 2008 clinical dx CELIAC; Other: hypothyroid, allergies, dupuytrens, high mercury levels

#33276 Rachel--24

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Posted 28 November 2008 - 09:38 PM

Rachel,

I looked over the list of foods high in sulfur, salicylate, amines, and oxylate, and no pattern stands out to me. Maybe it is just intolerances to the food proteins mostly.

Sherry


Sherry,

For me food chemical issues are one of the most difficult things to pinpoint. This is because the effects are dose related and the reaction doesnt occur until you've reached your threshold. You can eat several foods which contribute to the total load.....and then you react to the one food which causes your "bucket" to overflow. Next time you eat that same food you may not have any symptoms at all.

There is not usually a pattern....unfortunately, that makes it really hard to determine what you might be having problems with.

For me, high dopamine foods have always been a problem. I know for sure that avocados and bananas cause me major issues. Sometimes I have gotten away with eating them (without reaction) but it ALWAYS catches up to me if I continue to eat them. If not the first day....then it will happen on the 2nd or 3rd day.....or whenever my system becomes overloaded.

Another thing I've noticed is that if I have high stress....I cant even have a bite of these foods without experiencing reaction. The same enzyme that breaks down certain stress hormones also breaks down the same neurotransmitters in these foods. So if I'm already overloaded (because my enzyme functions to a lesser degree) then I cant handle more of the same from the food sources.

I'm still not clear about oxalates......and I cant say that I'm 100% sure about the rest either....although it does seem like I have issues with amines and salicylates....as well as sulfur. I'm more sure about these things than I am about oxalates. I put dopamine in with all other amines.....I dont consider them to be seperate as far as total load goes....same with salicylates...everything adds up.

I think some of this will be more clear once I have the genetic results.
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#33277 Rachel--24

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Posted 28 November 2008 - 09:43 PM

Rachel, do you have a good source about dopamine in foods? I notice dairy seems to be an issue, but I am fine with butter, aged cheese (I don't use a lot) and goat milk yogurt.

Sherry


Scroll about halfway down this page for an incomplete list of high dopamine foods.

http://www.heartfixe...o... D Receptor
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#33278 Rachel--24

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Posted 28 November 2008 - 09:52 PM

Yeah, I've lost about 13 pounds. I can FINALLY fit into most of my clothes again, lol.


YAY Donna!! :)

I'd still like to gain more weight so that I can fit into my pre-broken-body clothes. They are still a couple sizes too big. :angry:


I've expanded my foods to chicken, ground beef, green beans, white rice, potatoes, jello, fruit juices, applesauce, asian rice noodles.


Ummm....I've expanded my diet to even MORE brownies (have to scrape frosting off though :rolleyes: ), lasagne (is that how its spelled?), fried rice, chow mein and various other things. :ph34r:

None of it is processed though. Its all freshly made...no chemicals....no MSG....no sulfites or other junk. ;)

I think jello would kill me.

I LOVE it though.......especially with COOL WHIP. There are some things that are just too scary.....jello and cool whip would fall into that category for me. I'm just not that brave. :ph34r:
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#33279 mftnchn

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Posted 28 November 2008 - 11:07 PM

Sherry,

For me food chemical issues are one of the most difficult things to pinpoint. This is because the effects are dose related and the reaction doesnt occur until you've reached your threshold. You can eat several foods which contribute to the total load.....and then you react to the one food which causes your "bucket" to overflow. Next time you eat that same food you may not have any symptoms at all.

There is not usually a pattern....unfortunately, that makes it really hard to determine what you might be having problems with.

For me, high dopamine foods have always been a problem. I know for sure that avocados and bananas cause me major issues. Sometimes I have gotten away with eating them (without reaction) but it ALWAYS catches up to me if I continue to eat them. If not the first day....then it will happen on the 2nd or 3rd day.....or whenever my system becomes overloaded.

Another thing I've noticed is that if I have high stress....I cant even have a bite of these foods without experiencing reaction. The same enzyme that breaks down certain stress hormones also breaks down the same neurotransmitters in these foods. So if I'm already overloaded (because my enzyme functions to a lesser degree) then I cant handle more of the same from the food sources.

Hi Rachel,

I am thinking about this, and it is possible that I only get a reaction when I reach the threshold. My reactions have been hard to trace in the past.

However, it seems like things have stabilized since the SCD which I think is the carb digest problem. Now it seems like my reactions are becoming more clear and consistent. Like the squash has had a similar reaction several times in a row, just a couple times it hasn't been too clear. Eggplant has had a similar reaction last two times, too. I don't notice reactions to banana, but have had it in the past (high pulse), and ART said to avoid so I do.

According to the link you posted, I'm not eating that many dopamine foods, more seratonin foods: I do fine on quite a few of the seratonin foods, but not peanuts.

On my current regimen I really don't have too many reactive foods. Basically the ones I have mentioned. And I don't seem to be adding new ones, which I am grateful for.

I'm going to keep this all in mind but it might be that I just need to wait a bit longer to see what happens. If I get good gut healing, then I might not have to look further.

Sherry
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4/2007 Positive IGA, TTG Enterolab results, with severe malabsorption: Two DQ2 celiac genes--highest possible risk.

gluten-free since 4/22/07; SF since 7/07; 3/08 & 7/08 high sugar levels in stool (i.e. cannot break down carbs) digestive enzymes for carbs didn't help; 7/18/08 started SCD as prescribed by my physician (MD).

10/2000 dx LYME disease; 2008 clinical dx CELIAC; Other: hypothyroid, allergies, dupuytrens, high mercury levels

#33280 NoGluGirl

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Posted 29 November 2008 - 05:12 AM

Dear Andrea,
My Thanksgiving was great. It was much better than last year, where I became violently ill from the cinnamon in the gluten-free pumpkin pie. :( This year, I just slept. My parents were gone at my grandparents' for a couple of hours, so I got some peace for a little while. :) Mom spoke to Cousin Mary about my Celiac, and she actually has two friends who have this disease!

Mary was a registered nurse before she and her husband started a family. It is nice to know someone understands how complicated Celiac is. Mom also said Grandpa was becoming aggravated about all of the talk about Celiac. Of course, he was probably so upset about Uncle Steve, he could not think about much else. He got so upset, he put the slice of pumpkin pie on the table, and the plates were right near him. :(

Uncle Steve had his gallbladder out on Thanksgiving. He is the fourth one in the family now! First, Cousin Chris had his removed in 2002. I had mine out in 2003. Grandpa followed suit in 2007, and now Uncle Steve! I suppose you are not officially a Kelley until you have had gallbladder surgery! :lol:

Dear Rachel,
All of the information about the methylation cycle is really interesting. Mutations probably do vary quite widely. Genetics are a strange thing. My mother's beautician has a specific mutation she passed on to her children, and it is causing an extremely rare muscular disease. At least this particular condition is slightly less complicated in finding the cause, but treatment is very difficult to manage.

I am not sure I have issues with dopamine. I can eat bananas. Of course, some of these foods have a variety of elements that may be issues for people. Thank you for the link to the dopamine foods list! Excitotoxins are certainly on my avoid list. My new healthy plan includes eliminating artificial sweeteners completely. Dad printed out this report from the FDA saying how safe these chemicals are, and how much is a safe amount. :rolleyes: You know as well as I do, no amount of these excitotoxins is safe!

It is exciting, because our healthfood store across town carries gluten-free xylitol and agave nectar. This will certainly save me money on shipping, too! RiceGuy told me about a new natural sweetener made from orange peel and chicory. I am going to look into that as well. My list of healthy food substitutes is growing!

Pathway issues are complex. The trouble is locating the exact area of the pathway that is blocked.
This is an exact science, and is typically extremely exhaustive. Once again, it returns us to the philosophy of peeling the onion layers away. Little by little, another piece of the puzzle is found until you reach the core of the issues.

Lasagne sounds heavenly! I have been craving four-cheese lasagne for such a long time now! I miss it so much! How wonderful you are able to have it! Like Donna, I too am able to live vicariously through others. :lol: Feel free to post juicy details about your erotic tastebud experiences. Just be sure to place a food pornography warning on it.

I completely agree that crossing a threshold is a major component for many of us. Chemically sensitive individuals tend to be this way. I recall Julie and I discussing this before. She said she always reacted to something the third or fourth time she ate it. That is exactly what occurs with me! You will eat something several days in a row, and then the third or fourth time, it makes you so sick!

Having the stress in my life is not helping. I do feel this is part of why I react to foods. You said you know exposure to stress causes your tolerance level to dramatically decrease. Perhaps adrenal gland hormones play a role in this. Since you react to your own adrenaline, there could be a connection. Stress reduces enzyme production as well as increases cortisol and adrenaline output.

The books you mentioned sound like good ones. I may have to try and find them at the library. Yasko seems to have a good idea of what to do for unblocking pathways. Knowing about the various mutations and treatments is key to healing for many people. Researching these things will be fun.

Dear Sherry,
The SCD is not the easiest diet to follow! I am amazed at how well you manage all of your restrictions as you travel. I would become too overwhelmed. Thank goodness the carbohydrate related digestive issues are improving. It takes a while before these issues are sorted out.

I am glad you do not react to many foods. Something I read about goat milk having an enzyme helpful for digestion was very interesting. This is why sometimes people who do not tolerate regular cow dairy can eat goat cheese without any trouble. Dogtor J is a Celiac vet, and it was in one of his articles. I am anxious to go back and read it in-depth.

Avocado is probably not widely available where you are. We are fortunate Mexico is so close. Most of our avocado supply is from there. I put it on my foods I rarely eat list that I could add in more often. I am going to try new foods as well, but need to limit that so in case I have a reaction, I will know what from.

Stress would completely disappear if finances were better, and I did not live here. All of this crap is going to kill me. I have an idea, but do not know if it will work. Checking into it cannot hurt anything. The worst thing that happens is no one will help me get out of here.

Dear Nancy,
The CFS group on Yahoo sounds interesting. They cover much of what we discuss here. That is good. Your information on the CFS was really helpful. Thank you for posting it!

My B-12 supplement is methyl B - 12. I do not think it is hurting anything. However, I do not have mercury as far as I know. That makes a difference. If anything is an issue, lead and possibly aluminum are the two metals I am most likely overloaded with. The supplement I take is only methylcobalamin and calcium. It is just plain bonemeal powder.

I am surprised the CFS group does not address parasites. They can hold on to metals. Mercury is one worms can really hold a lot of. I researched Ascaris the other day. A forensics show talked about a woman found in luggage at an airport having it. She had an entire bolus of them, and I could not help but research it.

In the show, they made it sound like Ascaris is a rare parasite. However, this is not true. Up in Frankfort, IN, 87.5 percent of sewage samples taken contained the parasite! :o Ascaris is endemic to the Unites States. An adult female worm may grow to be 40 cm in length and lay more than 200,000 eggs daily!

We often accidentally ingest them in produce, where the eggs hatch inside the intestines. The larvae then penetrate the intestinal wall into the lungs, where they may cause pneumonia. Human hosts will then cough up the worms, then swallow them again, returning them to the intestine. Ascaris then matures, and creates a large ball of worms known as a bolus. You have to admit, it is quite amazing how these creatures survive, even if they are disgusting.

Dear Paula,
It is wonderful Andrea helped you work through the anger. I seriously need anger management. Right now I am angry because Dad ate two of my brownies. He better not have glutened them! :angry: He needs to keep his gluten-laden hands to himself and out of my food! I want to chop all of his fingers off.

I wonder if DH can mimic acne and eczema? I have both, but sometimes I wonder if it is DH. Even prescription creams burn my hands. Sometimes the blemishes on my face itch and burn. Is that normal for acne to do that?

What wonderful news it is that you are doing better! You have had a rough time for long enough! I am glad only one of the supplements has caused you trouble so far. Hopefully, the trend will continue. Adding in the supplements is somewhat daunting, so do the best you can! I made a little introduction schedule on a table for me. That made it much easier!

Dear Donna,
Pancreatitis is no fun at all! Did your physician perform ERCP? That procedure has a risk for pancreatitis as a complication. It is often used to diagnose Sphincter of Oddi Dysfunction. I am glad you are improving.

Fat is definitely a foe when pancreatitis is concerned. A strict limit is often necessary. Perhaps you will get to eat some goodies at Christmas? They will likely be worth the wait. Hopefully, your on-again, off-again relationship with eggs will be figured out. My best friend had a terrible asthma attack at work the other week, and now they think it may be that she is allergic to eggs and chicken.

Walks are nice. I never get to go on them. They would be such a good way to get in shape! Congratulations on losing 13 pounds, although it was not quite how you planned. I really need to tone up more than anything. At least that toe will hold up for you now!

Is that Floppy Intestine Disease or Syndrome? Or, do they not have an official name for the condition yet? :lol: Well, whatever the heck it is, at least they fixed it. Those alien babies really do tend to warp wherever they are at. Does this remind anyone else of those Mucinex ads?

Let me put it this way, I look forward to days when Dad goes back to work. Him being home for four days is horrible! That is just more housework. Plus, you cannot cook when gluten-eating freaks are running around the kitchen. This is not a safe environment to prepare food. Mom and Dad were not home last night until after midnight, so I got a brief break.

Dear Nora,
Flour definitely causes some extreme misery when it comes into contact with skin. I am not sure if I have DH or not. I cannot afford a biopsy, but know some people had what appeared to be acne when it was not. In this house, avoiding touching gluten in any form is impossible. I do the dishes, the dog has treats made from it, and the rabbit has his food. Rabbits have to have their food, which contains alfalfa, oats, and wheat. Poor Boomer probably wonders why Mommy cannot kiss him.

Dear April,
Changing offices is really stressful! Following the SCD is impossible with that going on. You can only manage so much at once. Sometimes, you need to take a breath. Doing everything at once is just not practical or possible. Do what you are able to when you can.

Your poor son has that awful parasite! They get everyone. I am not surprised by how badly the gluten bothered your son. It has opiate properties when eaten by some individuals with Celiac, causing everything from Bipolar Disorder to Schizophrenia. ADD and ADHD are very common with food - allergic children and adults.

My stress is going to lessen soon. I am going to start looking out for myself, and take care of my own needs. No more neglecting my basic needs for other people's petty desires! I am not going to keep my mouth shut anymore. People should know why I am so angry, and who is the real irresponsible one. I am sick of trying to be the good little daughter who shuts up and takes it. It is impossible to please anyone in this family, and I am done trying.

Sincerely,
Jin
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Jin

Strawberry Allergy, mold allergy, dustmites allergy, ragweed allergy, dust allergy, food dye allergy - 1985
Asthma - 1994
Ovarian Cyst - May 1999
Anemia - 2000
4 More Ovarian Cysts - March 2000
Bloodwork for Celiac - November 2000 negative
Colonoscopy, Endoscopy, Intercolisis, Gastric Emptying Study - May and June 2001 negative biopsy
Fibromyalgia - June 2001
IBS - June 2001
Gallbladder Removal - July 28, 2003 after doctor said the tests showed nothing, so it was not gallbladder disease. It was very inflamed and irritated and nearly ruptured the surgeon told me at my 10 day post-op check-up.
Thyroid Disease - August 2004
Celiac Disease - March 2007 Current Dr. refers to me as Celiac, as she says blood tests are often inaccurate.

Official Purple Glittery Bat Keeper, District Attorney, and Chinese Restaurant Owner of The Silver Dragon of Rachelville

#33281 confused

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    Just cause i cant have gluten doesnt mean im dying

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Posted 29 November 2008 - 06:32 AM

Everyone,
I had an thought this morning. Do i react to soy because of my estrogen dominance problem? I really think that is why i get an tingling tounge when i digest soy. I have never had gut problems from soy just anxiety and the tounge. So would that mean once my estrogen levels are lowered, that i will be able to have a little soy. I find it so hard to find things without soy, so this would mean alot to me. Or am i just dreaming lol.

Donna,
congrats on the weight loss. Did you soil yourself with some new EM makeup lol.

Jin,
I have leanred stress is a major factor in my life when it comes to my health. So I am learnng to let go of hurt and pain i felt from the past. I am now just focusing on me and my kids and that is all that matters, well hubby and my parents to.

Sherry,
Do you take 10,000 of vitamin at one time? What were your numbers when u first tested ur vit. d and what are they now.

paula
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#33282 NoGluGirl

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Posted 29 November 2008 - 06:49 AM

Dear Paula,
Estrogen dominance very well could be a factor in why you do not tolerate soy. Soy contains phyto-estrogens. Anytime your hormones are out of balance, it can have a major impact on your body. I certainly have high hormone levels. Animals always want to mate with me! When I was younger, my brother's guinea pig began purring amorously, and I thought "Here we go again!" It figures! I finally find a man who wants children, and he is the wrong species!

I hope I am not reacting to soy, but it is something I have been wondering about for a while. You cannot even find gum without lecithin in it. That makes the situation so complicated! I cannot stop taking my supplements or medications, and they all have soy in some form. They also have dyes, which I have always been allergic to.

Thank goodness you are finally moving your negative feelings out. It would be easier for me to do if I did not have to deal with the crap repeatedly. They should be the only ones dealing with the fallout from laziness, bad decisions, and stubborness. Moving past it is impossible when you are still dealing with it. God knows, being able to let go of all of this anger and hurt would be a tremendous weight off of my shoulders and heart. I wonder what Kassandra did for her emotional issues?

The cause of my stress is primarily family. This is proof that I was correct when I said before I would be a much happier person if I were an orphan. My brother is also still waiting for the joyous news that we were really adopted and not related to any of these insane people. Perhaps we were aliens like Superman? Everyone has a fantasy, and that is ours.

Sincerely,
Jin
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Jin

Strawberry Allergy, mold allergy, dustmites allergy, ragweed allergy, dust allergy, food dye allergy - 1985
Asthma - 1994
Ovarian Cyst - May 1999
Anemia - 2000
4 More Ovarian Cysts - March 2000
Bloodwork for Celiac - November 2000 negative
Colonoscopy, Endoscopy, Intercolisis, Gastric Emptying Study - May and June 2001 negative biopsy
Fibromyalgia - June 2001
IBS - June 2001
Gallbladder Removal - July 28, 2003 after doctor said the tests showed nothing, so it was not gallbladder disease. It was very inflamed and irritated and nearly ruptured the surgeon told me at my 10 day post-op check-up.
Thyroid Disease - August 2004
Celiac Disease - March 2007 Current Dr. refers to me as Celiac, as she says blood tests are often inaccurate.

Official Purple Glittery Bat Keeper, District Attorney, and Chinese Restaurant Owner of The Silver Dragon of Rachelville

#33283 CarlaB

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Posted 29 November 2008 - 07:42 AM

I hope you all had a nice Thanksgiving!

By the way, how is Carla doing?

I would love to go to Germany, and would like to go sooner than later, but I need to get a bit stronger. Maybe in the spring.

I'm doing great! It's unbelievable the difference the photon treatment has made.

If you want to go in the spring, you might make your appt. soon. I know there are several who want to go over there.
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gluten-free 12/05

diagnosed with Lyme Disease 12/06

#33284 dlp252

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Posted 29 November 2008 - 03:18 PM

I think jello would kill me.

I LOVE it though.......especially with COOL WHIP. There are some things that are just too scary.....jello and cool whip would fall into that category for me. I'm just not that brave. :ph34r:


Yeah, I'm making my own jello with the recipe that Sherry posted. Although I HAVE eaten some of the store bought kind without problems, I don't want to eat too much of it...it's that bucket thing you were just talking about. I know it will eventually give me problems.

Pancreatitis is no fun at all! Did your physician perform ERCP? That procedure has a risk for pancreatitis as a complication. It is often used to diagnose Sphincter of Oddi Dysfunction. I am glad you are improving.


I don't think he did that. It's not listed on the list of stuff he did. Isn't ERCP some sort of endoscopy, or do I have that confused with something else, lol.

Is that Floppy Intestine Disease or Syndrome? Or, do they not have an official name for the condition yet? :lol: Well, whatever the heck it is, at least they fixed it. Those alien babies really do tend to warp wherever they are at. Does this remind anyone else of those Mucinex ads?


Ug, those Mucinex ads, lol. I don't think it has a name, lol. He just called it "floppy" when I talked to him. I wasn't written on the sheet they gave me of what they did.

Let me put it this way, I look forward to days when Dad goes back to work. Him being home for four days is horrible! That is just more housework. Plus, you cannot cook when gluten-eating freaks are running around the kitchen. This is not a safe environment to prepare food. Mom and Dad were not home last night until after midnight, so I got a brief break.


Yeah, it's no wonder you can't get much progress!

I had an thought this morning. Do i react to soy because of my estrogen dominance problem? I really think that is why i get an tingling tounge when i digest soy. I have never had gut problems from soy just anxiety and the tounge. So would that mean once my estrogen levels are lowered, that i will be able to have a little soy. I find it so hard to find things without soy, so this would mean alot to me. Or am i just dreaming lol.


Gosh, the tingling tounge worries me. That sounds like an allergy to me.

congrats on the weight loss. Did you soil yourself with some new EM makeup lol.


Ha, no, no new EM makeup, but I did actually put some on, lol.
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#33285 mftnchn

mftnchn

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Posted 29 November 2008 - 07:00 PM

Sherry,
Do you take 10,000 of vitamin at one time? What were your numbers when u first tested ur vit. d and what are they now.

I don't have time to look up the exact figures just now, getting ready for a 2 week trip. But the first one was a 1, 25 and it was low. Started supplementing and rechecked 25 hydroxy in a couple of months and it was 50. Still below the bottom of normal range. My doc wants it at 80. Took 2,000 a day for 2-3 months, then upped to 6000 for a 3 weeks or so due to symptoms of die off in May. Tested end of June and it was at 54. So he upped it to 10,000. By the end of the summer I was at 84. He then backed it off from Sept to November to 8000, and now back up to 10,000. Can't get the levels tested here so I don't know where I am at.

My bets are on soy being a long term issue, since it seems common for celiacs.

Sherry
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4/2007 Positive IGA, TTG Enterolab results, with severe malabsorption: Two DQ2 celiac genes--highest possible risk.

gluten-free since 4/22/07; SF since 7/07; 3/08 & 7/08 high sugar levels in stool (i.e. cannot break down carbs) digestive enzymes for carbs didn't help; 7/18/08 started SCD as prescribed by my physician (MD).

10/2000 dx LYME disease; 2008 clinical dx CELIAC; Other: hypothyroid, allergies, dupuytrens, high mercury levels


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