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Omg...i Might Be On To Something


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#6751 Gin

 
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Posted 16 October 2006 - 08:07 PM

[size=4]

Thanks,

I dont know anything about compounding pharmacies but will call around tomorrow. If this is something I need to do long-term I'm wondering if it costs more or does insurance cover it the same?


I have other problems as well as Gluten related stuff. From another support group they recommended a compounding pharmacy with a phone # 1-800-728-0288. Pharmacist name is Pete. Sorry don't know what city they are in but maybe he can answer your questions re: thyroid meds.
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#6752 Mtndog

 
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Posted 17 October 2006 - 05:26 AM

How about eating it while you're in the tub? That way you never get THAT cold....?? B)

warm jammies huh? like what..... long johns? :P

-Dave


Oh my- My emoticons detect flirting and spatting! :P

And long Johns are AWESOME!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

SUSIEQ_ Are you out there? Are you OK?
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***************************
Beverly

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In the midst of winter, I found there was within me an invincible summer.
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#6753 TriticusToxicum

 
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Posted 17 October 2006 - 05:37 AM

Oh my- My emoticons detect flirting and spatting! :P

And long Johns are AWESOME!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

SUSIEQ_ Are you out there? Are you OK?

Nothing beats flannel jammies right from the dryer! :rolleyes:
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Richard


"Not all who wander are lost" - J.R.R. Tolkien

Diagnosed 3/8/05
Sister also Celiac


Risus remedium optimum est

#6754 dlp252

 
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Posted 17 October 2006 - 06:29 AM

Managed to get my blood work todya after THREE tries and let me tell you, that was like summitting Everest without supplemental oxygen. I cried each time upon discovering lab was closed or there were 15 people ahead of me. HOw crazy, to cry over that but I just had NO stamina and the world just looked hazy adn blury and my head felt full of cotton. So.....I looked at my lab slip. I"d asked the doctor to test ALL thyroid, T3, T4, everything, and she had not checked those boxes. :angry: So I DID. Harumph.


Of course we feel sorry for you, or along with you anyway. I personally KNOW what it's like to KNOW you shouldn't do something, but are compelled by some inner thing to do it.

About this blood work thing...that really frosts me. I've had the same thing happen to me and have THOUGHT about checking the boxes myself but have never actually had the courage to do it. Good for you! I've never been tested for the full thyroid panel even though I have a lot of symptoms that COULD fit with thyroid issues. I just don't understand it. This is another thing I'm hoping the HN doctors will do...test for the FULL panel.


Donna, they are ripping you off. Check another place.... MAX you should pay is like $60-75 an hour for labor, and your strut job for BOTH should only take like 2-3 hours MAX. Total labor should be like $200-250. PM me if you need anymore info...


Thanks! I can't remember what their hourly rate is, I'll have to look. On Saturday they probably worked on my car from 8:00 to 4:30...I had to have a door lock actuator replaced (well, didn't HAVE to, it worked manually, lol), and it was a major servicing (90,000 miles), plus the timing belt...I wish I could remember their hourly rates.

I'll call them to find out what the struts cost and then see how that works with the estimate they gave me.
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#6755 DingoGirl

 
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Posted 17 October 2006 - 06:30 AM

Good morning everybody, am reading these things in just the SLIGHTEST fog........and thank you, of course, for your sweet thoughts and wishes. BUT, GUESS WHAT HAPPENED???

NOTHING! :o

Absolutely nothing, no D, not even a poop yet, no gas, no tummy ache, NOTHING. I was asleep by 10, up at 7, and was expecting a siege around midnight (my reactions are about 12 hours later).

WHAT IS UP WITH THIS???? how could NOTHING happen??? I am so so so confused....... :huh:

still pretty tired though. might have to slip back into bed for a few.

you guys are awesome.....brain is in such a fog so I don't remember who is doing what....appts. this week, Laura started her new job and they are wonderful? BEv's seeing a.....physiatrist? psychiatrist? what wasit? and is our Rinne gone now? I am confused.....

*yawn* not sure I should be awake yet.......
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SUSIE

Diagnosed January 2006

"I like nonsense. It wakes up the brain cells." ~Dr. Seuss

#6756 dlp252

 
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Posted 17 October 2006 - 06:35 AM

[size=4]

I have other problems as well as Gluten related stuff. From another support group they recommended a compounding pharmacy with a phone # 1-800-728-0288. Pharmacist name is Pete. Sorry don't know what city they are in but maybe he can answer your questions re: thyroid meds.


Just wanted to say hi! You were really brave to go back to April, lol! Welcome to our little thread!

Rachel, looking forward to hearing about your appointment today!

Laura, great first day on the job!!! Hopefully it won't be so exhausting from now on...I think first days tend to be like that even in the best of health, lol. :P

Julie, I agree, accupuncture counts, lol. I was tested through Enterolabs too...definitely worth it in my case.

Susie, morning! Don't get too excited about the lack of reaction. Trying to remember back to my Krispie Creme fiasco a few months ago...I think it hit me almost two days later...course I only had half a donut. :P
For you the brain fog is probably a LOT worse because of it though.

Bev, yay on the testing.
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#6757 TriticusToxicum

 
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Posted 17 October 2006 - 07:04 AM

[quote name='DingoGirl' post='220523' date='Oct 17 2006, 10:30 AM']
Good morning everybody, am reading these things in just the SLIGHTEST fog........and thank you, of course, for your sweet thoughts and wishes. BUT, GUESS WHAT HAPPENED???

NOTHING! :o

Absolutely nothing, no D, not even a poop yet, no gas, no tummy ache, NOTHING. I was asleep by 10, up at 7, and was expecting a siege around midnight (my reactions are about 12 hours later).

WHAT IS UP WITH THIS???? how could NOTHING happen??? I am so so so confused....... :huh: [quote]


...um, you've been in such a fog lately, maybe you ate one of the dingos toys and thought it was a donut? :o

Maybe donuts are good for us? :huh:

More likely than not you'll be paying the piper later than sooner. :(
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Richard


"Not all who wander are lost" - J.R.R. Tolkien

Diagnosed 3/8/05
Sister also Celiac


Risus remedium optimum est

#6758 Rachel--24

 
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Posted 17 October 2006 - 09:15 AM

Just a drive-by....wanted to say hi to all!

OMG...work is killing me!! I'll be glad when the stupid Show & Tell is over. :angry:
The store is "suppossed" to look like a picture in a magazine....throughout. Right now its looking like a tornado went through. :blink:
I'm embarrassed for my store. :ph34r: My dept. and the produce dept look good but I hope the rest of the store catches up. Only one day left. :unsure:

Julie...it is Bioset that I'm doing today. I went to the website to printout my new patient forms and saw the info. about the test. I guess its exactly what you had done. My appt. will last for 1 1/2 hours....I may have to go to bed right after cuz of having to get up really early but will let everyone know ASAP.

Doesnt Donna have an appt. today? Who else?
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Rachel

#6759 DingoGirl

 
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Posted 17 October 2006 - 09:16 AM

Um, did I even bother to mention in my post what I did? that I ate three donuts? yeah. that's right.

still nothing. go figure. Yes Richard, DONUTS ARE GOOD FOR US!!!!! :)
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SUSIE

Diagnosed January 2006

"I like nonsense. It wakes up the brain cells." ~Dr. Seuss

#6760 AndreaB

 
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Posted 17 October 2006 - 09:17 AM

Susan,

Hope you don't get too sick from this.....of course if you need to be sick to avoid gluten, well then, I would hope you'd get sick enough to realize you can't go back to gluten. :o :ph34r:

You aren't going to think gluten won't hurt you are you? :unsure:
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Andrea

Enterolab positive results only June 06:
Me HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0301; Serologic equivalent: HLA-DQ 2,3 (subtype 2, 7)
Husband HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0302; Serologic equivalent: HLA-DQ 2,3 (subtype 2,8)



The whole family has been soy free since February, gluten free since June 2006.

The whole family went back to a gluten diet October 2011.  We never had official testing done and I decided to give gluten a go again.  At this point I've decided to work on making some gluten free things again, though healthwise everyone seems to be fine.  The decision to add gluten back in was also made based on other things I'd read about the 2nd sequence of genes.  It is my belief that we had a gluten intolerance, but thanks to things I've learned here, I know more what to keep an eye on.  If you have a confirmed case of celiac, please don't go back to gluten, it's a lifelong lifestyle change.


#6761 Green12

 
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Posted 17 October 2006 - 09:20 AM

Thanks everybody for all the input about Enterolab testing. I didn't realize they did it all through poop, er, stool sample :lol: I was thinking it was blood draws for some reason.

I am thinking about doing the whole shebang option, but I am confused as to if it also includes soy and egg in it...


Susie, everyone said it all so well last night, lots of love and support to you through this difficult time. Hang in there, hope today is a better day :)
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#6762 AndreaB

 
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Posted 17 October 2006 - 09:21 AM

Doesnt Donna have an appt. today? Who else?


Yep, Donna does and I get T, M and M's allergy/intolerance test results back today.

Who knows when, I'm waiting for a call from a delivery I'm expecting, some frozen food that will be mush if I have to catch him on his way back down this way this weekend. The driver is not usually up here too early. At least the doctor is totally flexible.
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Andrea

Enterolab positive results only June 06:
Me HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0301; Serologic equivalent: HLA-DQ 2,3 (subtype 2, 7)
Husband HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0302; Serologic equivalent: HLA-DQ 2,3 (subtype 2,8)



The whole family has been soy free since February, gluten free since June 2006.

The whole family went back to a gluten diet October 2011.  We never had official testing done and I decided to give gluten a go again.  At this point I've decided to work on making some gluten free things again, though healthwise everyone seems to be fine.  The decision to add gluten back in was also made based on other things I'd read about the 2nd sequence of genes.  It is my belief that we had a gluten intolerance, but thanks to things I've learned here, I know more what to keep an eye on.  If you have a confirmed case of celiac, please don't go back to gluten, it's a lifelong lifestyle change.


#6763 Green12

 
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Posted 17 October 2006 - 09:25 AM

Just a drive-by....wanted to say hi to all!

OMG...work is killing me!! I'll be glad when the stupid Show & Tell is over. :angry:
The store is "suppossed" to look like a picture in a magazine....throughout. Right now its looking like a tornado went through. :blink:
I'm embarrassed for my store. :ph34r: My dept. and the produce dept look good but I hope the rest of the store catches up. Only one day left. :unsure:

Julie...it is Bioset that I'm doing today. I went to the website to printout my new patient forms and saw the info. about the test. I guess its exactly what you had done. My appt. will last for 1 1/2 hours....I may have to go to bed right after cuz of having to get up really early but will let everyone know ASAP.

Doesnt Donna have an appt. today? Who else?



I forget who's appt is when :lol: Andrea was keeping better track. Oh you, it's you that has the appt Rachel!!!!!

Sorry work is so stressful, hopefully it will all be over soon.

Bioset- I was suppose to start it, but didn't. I just had the NAET. Bioset is based on the same principles but better, so I hear. I'm excited for you :D . It might really help with the over all load of intolerances. Keep us posted.
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#6764 AndreaB

 
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Posted 17 October 2006 - 09:25 AM

I am thinking about doing the whole shebang option, but I am confused as to if it also includes soy and egg in it...


Julie, The whole shebang gluten full for $369 includes malabsorption, IgA antibodies, ttg, genes and inlcuded Dairy when I got it (might still). The soy, egg, yeast are an additional $199.

Well worth it if you can swing it. If you don't want to do the gluten option you can search around and put together what tests will suit you. They have different packages.
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Andrea

Enterolab positive results only June 06:
Me HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0301; Serologic equivalent: HLA-DQ 2,3 (subtype 2, 7)
Husband HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0302; Serologic equivalent: HLA-DQ 2,3 (subtype 2,8)



The whole family has been soy free since February, gluten free since June 2006.

The whole family went back to a gluten diet October 2011.  We never had official testing done and I decided to give gluten a go again.  At this point I've decided to work on making some gluten free things again, though healthwise everyone seems to be fine.  The decision to add gluten back in was also made based on other things I'd read about the 2nd sequence of genes.  It is my belief that we had a gluten intolerance, but thanks to things I've learned here, I know more what to keep an eye on.  If you have a confirmed case of celiac, please don't go back to gluten, it's a lifelong lifestyle change.


#6765 Green12

 
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Posted 17 October 2006 - 09:29 AM

Julie, The whole shebang gluten full for $369 includes malabsorption, IgA antibodies, ttg, genes and inlcuded Dairy when I got it (might still). The soy, egg, yeast are an additional $199.

Well worth it if you can swing it. If you don't want to do the gluten option you can search around and put together what tests will suit you. They have different packages.



So then it really isn't the whole shebang :lol:

I was hoping it included all the individual tests listed under it <_<

Another question, does it still pick up on the gluten issues after someone has been gluten-free for a long period of time?
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