Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

I Need Help...

Ronnie

Recommended Posts

Ronnie Apprentice
Ronnie
Posted

I've been gluten free for about two months now, i immedietly went gluten free when i found out i had Celiac Disease. And right away started feeling better, sleeping better, and even my depression felt under control.

But now two months later i feel just as sick as i was before the past two weeks or so.

I'm right back to not sleeping and being exhausted.

I just don't understand what's happening, and i'm starting to get discouraged!

Anyone have any advice or suggestions?

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mart Contributor
mart
Posted

Ronnie, fear not, you're not alone. My son started to feel better too right after he started the diet. And now, almost 9 months into the diet, his stomach hurts often when he eats. We're totally gluten-free (we don't even eat out). I don't know what this is. It's so frustrating.

Anyway, maybe you're still healing and may have periods where you just don't feel well. Hang in there.

Link to comment
Share on other sites
DingoGirl Enthusiast
DingoGirl
Posted

The exact thing happened to me, and I can't tell you how many times I've read this same scenario on this board. I felt unbelievably fantastic for the first 3 - 4 weeks, and just plummetted (I do also have an inordinate amount of stress in my life currently, but still...). Fear not, you will feel better! I have been on the upswing the last few weeks and am doing so much better. It really does take time, hang in there, there are peaks and valleys in the initial healing phase, I think. It took our bodies a long time to get this way, it isn't an overnight cure. I must also tell you that I had to go on an antidepressant again - first Wellbutrin, a disaster for me, and then Effexor, which has helped enormously. One day, I hope to be free of all meds of that sort, but it will take time.

The other thing I didn't know at the beginning is that I was dairy-intolerant, as many Celiacs are - at least initially. The tips of the villi manufacure lactase, and if you have no villi, as I do not, there is no lactase. My stomach, after ingesting dairy, stuck out and ached as if I were six months pregnant. Celiacs may be able to eat dairy again after intestinal healing, FYI. But, removing dairy helped enormously also.

Just keep at it and make sure you've eliminated ALL gluten - from products you use to hidden gluten in foods. It will get better!!

Blessings -

Susan

Link to comment
Share on other sites
ravenwoodglass Mentor
ravenwoodglass
Posted
I've been gluten free for about two months now, i immedietly went gluten free when i found out i had Celiac Disease. And right away started feeling better, sleeping better, and even my depression felt under control.

But now two months later i feel just as sick as i was before the past two weeks or so.

I'm right back to not sleeping and being exhausted.

I just don't understand what's happening, and i'm starting to get discouraged!

Anyone have any advice or suggestions?

It can take awhile and there are some ups and downs for most of us dont lose heart. Are you taking gluten-free vitamins, you may want to if your not and a sublingual gluten-free B12 can help a great deal with energy levels and fatigue. Make sure your toiletries are gluten-free and watch out for cross contamination. I hope you feel better soon.

Link to comment
Share on other sites
schuyler Apprentice
schuyler
Posted

I'm going through the same thing right now. I felt great for about a month and now I feel horrible. I'm trying to do everything right, so I don't know what's wrong. I think that the healing process just takes time.

-Danielle

Link to comment
Share on other sites
Ronnie Apprentice
Ronnie
  • Author
Posted

I've got a quick question.

If i've been glutened can i get sick after eating something that's gluten

free? Because i've just realized some things i'm not allowed but had no

idea. I've just cut them out of my diet. But yesterday was the last day i consumed

it. But today after eating a gluten free meal i'm wicked sick. I had to make a dash to the

bathroom.

I seemed to be alright till i ate supper, but i know there was no gluten in my supper!

Link to comment
Share on other sites
jerseyangel Proficient
jerseyangel
Posted

Hi Ronnie--Yes, it usually takes a period of time for a reaction to run it's course. The time varies with the individual. For instance, recently I was glutened through CC--a product that was marked gluten-free, but was somehow contaminated. I was sick with D, nausea, cramping, etc. for about 5 days. I ate nothing with gluten (after the inital slip-up), but the reaction continued for several days.

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ronnie Apprentice
Ronnie
  • Author
Posted
Hi Ronnie--Yes, it usually takes a period of time for a reaction to run it's course. The time varies with the individual. For instance, recently I was glutened through CC--a product that was marked gluten-free, but was somehow contaminated. I was sick with D, nausea, cramping, etc. for about 5 days. I ate nothing with gluten (after the inital slip-up), but the reaction continued for several days.

Thanks so much! At least now i know where i stand...

It's so confusing sometimes. :P

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      121,093
    • Most Online (within 30 mins)
      7,748
    Eva Ann
    Newest Member
    Eva Ann
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Waiting for urgent referral.

      By trents · Posted

      Oh, okay. The lower case "b" in boots in your first post didn't lead me in the direction of a proper name. I thought maybe it was a specialty apothecary for people with pedal diseases or something.
    • Scott Adams
      50 YO Male Recently Diagnosed with Celiac Disease

      By Scott Adams · Posted

      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! There are other things that may cause elevated tTg-IgA levels, but in general a reaction to gluten is the culprit:    
    • cristiana
      Waiting for urgent referral.

      By cristiana · Posted

      Hi @trents Just seen this - Boot's is a chain of pharmacies in the UK, originally founded in the 19th Century by a chap with the surname, Boot.  It's a household name here in the UK and if you say you are going to Boot's everyone knows you are off to the pharmacist! Cristiana
    • Denise I
      Celiac Dietician

      By Denise I · Posted

      I am looking to find a Celiac Dietician who is affiliated with the Celiac Disease Foundation who I can set up an appointment with.  Can you possibly give some guidance on this?  Thank you!
    • Posterboy
      14 year old with Celiac & EOE still suffering...

      By Posterboy · Posted

      Nacina, Knitty Kitty has given you good advice. But I would say/add find a Fat Soluble B-1 like Benfotiamine for best results.  The kind found in most Multivitamins have a very low absorption rate. This article shows how taking a Fat Soluble B-1 can effectively help absorption by 6x to7x times. https://www.naturalmedicinejournal.com/journal/thiamine-deficiency-and-diabetic-polyneuropathy quoting from the article.... "The group ingesting benfotiamine had maximum plasma thiamine levels that were 6.7 times higher than the group ingesting thiamine mononitrate.32" Also, frequency is much more important than amount when it comes to B-Vitamin. These are best taken with meals because they provide the fat for better absorption. You will know your B-Vitamin is working properly when your urine becomes bright yellow all the time. This may take two or three months to achieve this.......maybe even longer depending on how low he/you are. The Yellow color is from excess Riboflavin bypassing the Kidneys....... Don't stop them until when 2x a day with meals they start producing a bright yellow urine with in 2 or 3 hours after the ingesting the B-Complex...... You will be able to see the color of your urine change as the hours go by and bounce back up after you take them in the evening. When this happens quickly......you are now bypassing all the Riboflavin that is in the supplement. The body won't absorb more than it needs! This can be taken as a "proxy" for your other B-Vitamin levels (if taken a B-Complex) ...... at least at a quick and dirty level......this will only be so for the B-1 Thiamine levels if you are taking the Fat Soluble forms with the Magnesium as Knitty Kitty mentioned. Magnesium is a Co-Factor is a Co-factor for both Thiamine and Vitamin D and your sons levels won't improve unless he also takes Magnesium with his Thiamine and B-Complex. You will notice his energy levels really pick up.  His sleeping will improve and his muscle cramps will get better from the Magnesium! Here is nice blog post that can help you Thiamine and it's many benefits. I hope this is helpful but it is not medical advice God speed on your son's continued journey I used to be him. There is hope! 2 Tim 2:7 “Consider what I say; and the Lord give thee understanding in all things” this included. Posterboy by the grace of God,  
×
×
  • Create New...