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Here the the ones that were specifically testing in the thoughts of maybe celiac disease.
I also got a metabolic panel and a cbc
Edit to add: I have an appointment this friday to see my doctor about the results. But i am inpatient lol
Thank you both for your responses! Yes this is a frustrating experience for sure. I thought that the panel they did seemed a little outdated. A total IGA was never even done so I went back to have this done and am waiting on the results. The biopsy definitely read celiac. The nurse read me the results over the phone word for word and it read something like "mild or beginning stages of celiac disease" but then said something about "other processes" so not sure what that means. All the other things that mimic celiac seem really scary! I had really hoped the blood work would verify the the biopsy results because I have 3 kids and one of them has GI issues and I know celiac is hereditary. I'm not sure if this blood work comes back negative whether or not the doctor will want to pursue other possible diagnoses for the reason the biopsy looked the way it did or not. The process is stressful so thank you for your feedback!
I was here a bit in October when I was confused about some symptoms I was experiencing. I thought maybe Celiac, but hoped not. My doctor ran a celiac panel, which I realize now wasn't a full panel, she ran 3 tests, which were negative. She told me that I could still have Celiac and sent me to a GI doctor for a consult. I was happy the day I got my results and started thinking that my symptoms were in my head. I thought about not going to the GI appointment and seeing how I felt, then I got this terrible rash that I get from time to time, super itchy, yet burns when you touch it, it keeps me up at night. I did a little research and realized it could be DH and decided to keep my appointment with the GI doctor.
The GI doctor was awesome, very willing to listen to my concerns. She is going to do an EGD with biopsies and a colonscopy (what triggered this was treatment resistent iron deficiency anemia). I also have autoimmune hepatitis and a hiatal hernia so she feels like even if I don't have celiac, she still wants to take a look at things. She tossed around things like FODMAP, wheat allergy, eosinophil esophagus. She suggested a genetic test for celiac, she said if it was postitive it meant that I had the genetic potential to develop celiac and if it was negative that I didn't have the genetic potential to develop it. I looked at my results and some are postitive and some are negative. I realize that only one needs to be positive, but I was unsure about the numbers, does anyone know what this means?
I thought I could paste a snip but I can't... ugh
HLA DQ2 Negative
HLA DQ8 Positive
HLA DQA1* 03
HLA DQB1* 0302
HLA DQB1* 0301
HLA Variants detected: HLA DQA1* 03
I'm glad she did this test, I can make sure she follows the proper recommmendations for the number/locations of biopsies. I'm not getting the procedures done until January 8, I don't want to meet the deductible of my high deductible insurance in December, then have to meet it again next year since we are so close to the end of the year.
Thanks a ton for taking the time cylclinglady!
...do any Canadian (or better, BC) members know about what testing is available in this province? (My GP ordered an EMA to follow up, but the lab here only performs TTG and simply replaced the EMA with another TTG... sigh.)