Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Where Your Contribution Counts!
    eNewsletter
    Support Us!

Vaccines?


odcdinah

Recommended Posts

odcdinah Contributor

My gastroenterologist office just called and left a vague message about writing an order for me to get 2 vaccines - they didn't specify which ones.

Any idea what they would be for and why? I was just diagnosed 3 weeks ago (by biopsy and blood test).

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

My advice is, to avoid the vaccines, no matter which ones they are. Vaccines have never actually been proven to be safe and effective, long term effects have never been studied, and they don't help your immune system, but rather damage it.

So, if it was me, I'd call back and say, "Thanks, but no thanks, keep your vaccines".

But that is your choice, of course.

Link to comment
Share on other sites
Fiddle-Faddle Community Regular

I agree with Ursula. I would also try to find out if this is some kind of mix-up on the part of the office. If not, I would ask to speak to the gastroenterologist and find out WHAT vaccines he is ordering and WHY. And then I would probably start looking for a new gastroenerologist. (Sorry!)

Link to comment
Share on other sites
odcdinah Contributor

Thanks for the thoughts. I will call and check. Actually, I like him very much and he has treated me very well through the testing, follow-ups, etc, so I"m not ready to discard him quite yet.

Link to comment
Share on other sites
jerseyangel Proficient

I have kind of a stupid question--does this line of thinking apply to tetnus shots? I had one 10 years ago, and have been debating whether I should get a booster this year.

Link to comment
Share on other sites
Ursa Major Collaborator

Patti, I've read research that shows that tetanus shots make you MORE susceptible to getting tetanus, not less. And tetanus is easily avoided, anyway. The tetanus causing bacteria only thrive without oxygen. You wash and disinfect any open wound thoroughly before bandaging it, and the risk becomes so small, it is almost non-existent. And IF (a big if) you get tetanus anyway, antibiotics easily take care of it.

So, I say, forget about the booster, it isn't needed.

Link to comment
Share on other sites
jerseyangel Proficient

Ursula--Thank you! I was hoping you would check back here and see my question :D . I'm going to take your advice--the shot always makes me sick, and my Kinesiologist told me that I have a lot of residual problems from "old vaccines". I learn so much from you, and it's much appreciated! Thanks again :)

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lovegrov Collaborator

Some celiac experts recommend the pnuemonia vaccine for people with celiac.

richard

Link to comment
Share on other sites
GreySaber Apprentice

I've heard many people compain about vaccines and what not, but I tend to be in favor of them. After all, no one gets polio anymore.

As to pnuemonia, it's still dangerous as it is very like a heavy cold or the flu, so you don't seek treatment, then die. (and there are about 10 million types of it, many of which you may already be carrying.)

Link to comment
Share on other sites
Fiddle-Faddle Community Regular
I've heard many people compain about vaccines and what not, but I tend to be in favor of them. After all, no one gets polio anymore.

Try googling SV-40. Here's just one site for starters: Open Original Shared Link. Yes, we are lucky that nobody gets polio anymore, but it's very possible that polio has simply been replaced by things like MS, Lou Gherig's disease, and other immune system malfunctions (like celiac?).

Link to comment
Share on other sites
mommida Enthusiast

Before there were a few cases of wild Polio reported (an Amish community), the recent cases have been from the vaccine. It wasn't always the vaccinated person. It is one of the reasons the live oral vaccine has been replaced with the attenuated version.

L.

Link to comment
Share on other sites
tarnalberry Community Regular
Some celiac experts recommend the pnuemonia vaccine for people with celiac.

richard

Yep, I got the pneumovax after being diagnosed (I also have asthma, which puts me on the 'consider for this vaccine' list. I got a *bad* reaction to it (swelling, pain, redness, heat), though nothing bad enough to send me to the ER - just a call in to the doctor and a phone discussion with her on it, but it lasts about a decade, fortunately. The theory is that celiacs are more prone to pneumococcal infections, and these, if not discovered early, can get bad quickly.

Vaccines haven't been proven to be horrible things, and they *have* been proven to be quite effective (hence the lack of small pox, polio, diptheria, measles, mumps, tetnus, etc. that caused significant problems in populations in decades past). But there are risks to everything and vaccines are no exceptions. When you consider using something like a vaccine on everyone in the world, then a one in a thousand or even one in a million chance of something bad happening is going to seem like it happens a lot, because you're using the vaccine so many times. That's statistics for you. But it's wise to go in knowing the risks. Additionally, much of the valid concern over vaccines comes not specifically from the vaccine itself, but from the method of delivery - be it a schedule of multiple vaccine doses given over a relatively short period of time in young children with still-developing immune systems or the preservatives used in mass produced, bottled vaccines.

The basic premise behind vaccine therapy is exactly what your body uses every day, however.

As to pnuemonia, it's still dangerous as it is very like a heavy cold or the flu, so you don't seek treatment, then die. (and there are about 10 million types of it, many of which you may already be carrying.)

just for clarification, the pneumovax that is given covers more than respiratory pneumonia. in fact, the primary concern is pneumococcal infections of the blood, in this case.

Link to comment
Share on other sites
Guest Viola
Some celiac experts recommend the pnuemonia vaccine for people with celiac.

richard

I've had the pnuemonia vaccine, and never go without the flu vaccine. In all the years I've been getting it, I've had one very short bout of the flu. I used to get so sick with it everytime it went through the area.

Link to comment
Share on other sites
mouse Enthusiast

I had the pneumonia vaccine in 1997 and two weeks later I was hospitalized with pneumonia. Twenty eight months later I was hospitalized with a rare pneumonia and landed in intensive care, then cardiac iintensive care, then lung surgery. Two weeks all told and I remember very little as they kept me really drugged up. I had four different teams of doctors trying to keep me alive. Then 5 years ago, when I left Illinois for here, my GP said I should probably have a pneumonia booster and I told her "over my dead body" :blink::ph34r: . I know they reccommend it, but I will pass on this one. The flu shot I never had a problem with, except now I can never find a place that has them in supply. I have not been able to have one in 2 years and that does concern me.

Link to comment
Share on other sites
Fiddle-Faddle Community Regular

When i've had the flu shot, I ended up with a huge hot red swelling at the injection site. The first time it was the size of a lime. The next time it was larger, and the last time, it was the size of a grapefruit. At that point, the doctor said I shouldn't get them anymore. I also felt mildly ill for weeks following the shots. Same thing happened to me with gamma globulin. I later found out that both the gamma globulin and the flu shot contain thimerasol, which I already knew I was allergic to from having reacted to eye drops that had them, but nobody told me they were in vaccines until it was too late.

Link to comment
Share on other sites
tarnalberry Community Regular
When i've had the flu shot, I ended up with a huge hot red swelling at the injection site. The first time it was the size of a lime. The next time it was larger, and the last time, it was the size of a grapefruit. At that point, the doctor said I shouldn't get them anymore. I also felt mildly ill for weeks following the shots. Same thing happened to me with gamma globulin. I later found out that both the gamma globulin and the flu shot contain thimerasol, which I already knew I was allergic to from having reacted to eye drops that had them, but nobody told me they were in vaccines until it was too late.

That sounds like quite a round of negligence on a number of doctor's parts - both for not stopping the vaccines earlier, after the first reaction, and not paying attention when you told them about your reaction to the preservative in the eye drops in the first place.

Link to comment
Share on other sites
loraleena Contributor

stay away from all vaccines. 'They are poison!! Read ihfo from Kevin Treadeau (the natural cures guy) on the history of vaccination and the horror they have caused. I believe that a rubella shot after the birth of my son may have been the trigger for all my health problems!!

Link to comment
Share on other sites
lovegrov Collaborator

The pnuemonia vaccine does NOT protect against all types of pnuemonia just as the flu shot doesn't necessarily protect against all forms of the flu that might come around in any given year. My wife and I both had the flu together 20 years ago and we've both gotten the vaccine since then. Neither of us has had the flu since, thank goodness.

As for staying away from all vaccines, that's just irresponsible.

richard

Link to comment
Share on other sites
Fiddle-Faddle Community Regular
As for staying away from all vaccines, that's just irresponsible.

richard

And what do you suggest for people who react badly to vaccines? Which vaccines would you pick and choose here? What about people with a family history of immune disorders? And food allergies?

I'm glad you and your wife have remained flu-free for 20 years. I didn't have the flu before taking the flu vaccine, but I sure did after having it. Once I stopped getting the flu vaccine, I also stopped getting the flu.

Based on my experience, and that of you and your wife, we can't really conclude anything, can we? We have neither proved nor disproved the efficacy of the flu shot.

Link to comment
Share on other sites
natalunia Rookie

My husband and I both got the pneumonia vaccine this past fall. Last spring we both came down with a horrible case of pneumonia. The doctor was ready to put both of us in the hospital. We were miserable and decided even if the vaccine lessens the severity of pneumonia in the future, we'll take it. We both have asthma, and tend to catch every respiratory illness around. Since having the pneumonia vaccine in September, no respiratory infections for either of us except for one sinus infection. I always get the flu shot, and never get the flu. Oh, and I am a teacher, so I really need to be vaccinated because of all the germs that students bring in. I'm a fastidious hand washer, but that doesn't help when you have a student coughing their germs all around you.

Link to comment
Share on other sites
mommida Enthusiast

I think every doctor should hand over the vaccine package insert before the injection. The patient should then READ the ENTIRE vaccine insert and make an informed consent. It is irresponsible on the doctor and the patient to ignore the information that should be available.

L.

Link to comment
Share on other sites
penguin Community Regular

If you react badly to vaccines, then it's not irresponsible to not take them.

For the general population, they are by and large a good thing. They have saved far more lives than they have harmed. I agree that you should read the entire insert, and just like any other medication or treatment, and make an informed descison.

I'm not going to tell everyone that gluten is poison just because it is for me. I believe it's the same principle for vaccines. A blanket statement doesn't apply, though research goes for both sides.

Link to comment
Share on other sites
tarnalberry Community Regular
Based on my experience, and that of you and your wife, we can't really conclude anything, can we? We have neither proved nor disproved the efficacy of the flu shot.

That is why efficacy trials require large population studies.

Even doctors who whole-hog support vaccines will tell you that there are some people who shouldn't get them. And people who have badly reacted to things they are made from are top of that list.

Link to comment
Share on other sites
Fiddle-Faddle Community Regular
I'm not going to tell everyone that gluten is poison just because it is for me. I believe it's the same principle for vaccines. A blanket statement doesn't apply, though research goes for both sides.

I've been wondering if it's possible that gluten IS potentially poison for everybody--we just have a lower threshold than most!

Link to comment
Share on other sites
Guest Viola
I've been wondering if it's possible that gluten IS potentially poison for everybody--we just have a lower threshold than most!

I don't think we should go the extreme on either side of any topic, when we all know that the truth is almost always somewhere in the middle.

Let's not get hostile on this subject, please :)

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Help Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to Larzipan's topic in Related Issues & Disorders
      16

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    2. - Julie Riordan replied to Julie Riordan's topic in Traveling with Celiac Disease
      3

      Any ideas for travelling

    3. - Nedast replied to Larzipan's topic in Related Issues & Disorders
      16

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    4. - trents replied to SuzanneL's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Weak Positive Test

    5. - SuzanneL posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Weak Positive Test


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      120,496
    • Most Online (within 30 mins)
      7,748

    JamesDavid
    Newest Member
    JamesDavid
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      Thank you for your post, @Nedast, and welcome to the forum. It is interesting to read of your experiences. Although I've not had TMJ, from time to time I have had a bit of mild pain in my jaw, sharp stabbing pains and tingling in my face which appears to have been caused by issues with my trigeminal nerve.  I read that sometimes a damaged trigeminal nerve in coeliacs can heal after adopting a gluten free diet.  I try to keep out of cold winds or wear a scarf over my face when it is cold and windy, those conditions tend to be my 'trigger' but I do think that staying clear of gluten has helped.  Also, sleeping with a rolled up towel under my neck is a tip I picked up online, again, that seems to bring benefits. Thank you again for your input - living with this sort of pain can be very hard, so it is good to be able to share advice.
    • Julie Riordan
      I am going to France in two weeks and then to Portugal in May   Thanks for your reply 
    • Nedast
      I made an account just to reply to this topic. My story resembles yours in so many ways that it is truly amazing. I also suddenly became lactose intolerant, went a little under 10 years attributing all my symtoms to different body parts, never thinking it was something systemic until much later. I had the same mental problems - anxiety, depression, fatigue, etc. In fact, the only real difference in our story is that I was never formally diagnosed. When I discovered that my myriad symtoms, that had been continuous and worsening for years, all rapidly subsided upon cessation of consuming gluten, I immediately took it upon myself to cut gluten out of my diet completely. I live in America, and had lost my health insurance within the year prior to my discovery, so I could not get tested, and I will never willingly or knowingly consume gluten again, which I would have to do in order to get tested now that I have insurance again. But that is not the point of this reply. I also had extreme TMJ pain that began within months of getting my wisdom teeth out at - you guessed it - 17 years old. I was in and out of doctors for my various symptoms for about 5 years before I gave up, but during that time I had also kept getting reffered to different kinds of doctors that had their own, different solutions to my TMJ issue, an issue which I only recently discovered was related to my other symptoms. I began with physical therapy, and the physical therapist eventually broke down at me after many months, raising her voice at me and saying that there was nothing she could do for me. After that saga, I saw a plastic surgeon at the request of my GP, who he knew personally. This palstic surgeon began using botox injections to stop my spasming jaw muscles, and he managed to get it covered by my insurace in 2011, which was harder to do back then. This helped the pain tremendously, but did not solve the underlying problem, and I had to get repeat injections every three months. After a couple of years, this began to lose effectiveness, and I needed treatments more often than my insurance would cover. The surgeon did a scan on the joint and saw slight damage to the tissues. He then got approved by insurance to do a small surgery on the massseter (jaw) muscle - making an incision, and then splicing tissue into the muscle to stop the spasming. It worked amazingly, but about three months later it had stopped working. I was on the verge of seeing the top oral surgeon in our city, but instead of operating on me, he referred me to a unique group of dentists who focus on the TMJ and its biomechanical relationship to teeth occlusion (i.e. how the teeth fit together). This is what your dentist did, and what he did to you was boderline if not outright malpractice. There is a dental field that specializes in doing this kind of dental work, and it takes many years of extra schooling (and a lot of money invested into education) to be able to modify teeth occusion in this manner. Just based on the way you describe your dentist doing this, I can tell he was not qualified to do this to you. Dentists who are qualified and engage in this practice take many measurments of your head, mouth, teeth, etc., they take laboratory molds of your teeth, and they then make a complete, life-size model of your skull and teeth to help them guide their work on you. They then have a lab construct, and give you what is called a "bite splint." It looks and feels like a retainer, but its function is entirely different. This is essentially a literal splint for the TMJ that situates on the teeth. The splint is progressively modified once or twice per week, over several months, in order to slowly move the joint to its correct position. The muscles spasm less, stress is taken off the joint, as the joint slowly moves back into its proper position. The pain reduces each month, each week, sometimes even each day you go in for a visit. The joint has to be moved in this manner with the splint BEFORE the modification to the teeth begins. They then add to your tooth structure with small bits of composite, to keep the joint in its proper place after it has been sucessfully repositioned. Subtracting from your teeth, by grinding down bits of your natural tooth structure, is done very conservatively, if they have to do it at all. This process worked for me - after six months, my face, jaw, neck all felt normal, and I had no more pain - a feeling I had not had in a long time. It also made my face look better. I had not realized the true extent that the spasming muscles and the joint derangement had effected the shape of my face. The pain began to return after a few months, but nowhere near where it had been before. This immense reduction in pain lasted for a little over two years. The treatment still ultimately failed, but it is not their fault, and it is still the treatment that has given me the most relief to this day. Later on, I even went about three years with very, very good pain reduction, before the joint severely destabilized again. This field of dentistry is the last line treatment for TMJ issues before oral surgery on the TMJ. There aren't as many denists around who practice this anymore, and the practice is currently shrinking due to dentists opting for less espensive, additional educations in things like professional whitening, which have a broader marketability. Getting this treatment is also very expensive if not covered by insurance (in America at least). My first time was covered by insurance, second time was not, though the dentist took pity on me due to the nature of my case and charged like a quarter of usual pricing. Most cases seen by these dentists are complete successes, and the patient never has to come back again. But occasionally they get a case that is not a success, and I was one of those cases. A little over a year ago, I began seeing the second dentist who keeps my TMJ stable in this manner. The first dentist retired, and then died sadly. A shame too, because he was a truly amazing, knowledgable guy who really wanted to help people. The new dentist began to get suspicious when my joint failed to stay stable after I was finished with the bite splint and his modifications, so he did another scan on me. This is ten years after the first scan (remember, I said the surgeon saw "slight" damage to the tissue on the first scan). This new scan revealed that I now no longer have cartilage in the joint, on both sides - complete degeneration of the soft tissues and some damage to the bone. The dentist sat me down and had a talk with me after these results came in, and said that when he sees damage like this in cases like mine, that the damage to the joint is most likely autoimmune, and that, in his experinece, it is usually autoimmune. He has sent patients with cases like mine to Mayo Clinic. He said he will continue to see me as long as the treatment continues to offer me relief, but also said that I will probably have to see a dentist for this type of treatment for the rest of my life. He is not currently recommending surgery due to my young age and the fact that the treatment he provides manages my symptoms pretty well. I still see this dentist today, and probably will see this kind of dental specialist for the rest of my life, since they have helped with this issue the most. I did not inform him that I am 100% sure that I have celiac disease (due to my complete symptom remission upon gluten cessation). I didn't inform him because I thought it would be inappropriate due to not having a formal diagnosis. I was disappointed, because I had believed I had caught it BEFORE it had done permanent damage to my body. I had never suspected that my TMJ issues may be related to my other symptoms, and that the damage would end up complete and permanent. Luckily, I caught it about 6 months after my other joints started hurting, and they stopped hurting right after I went gluten free, and haven't hurt since. I of course did the necessary research after the results of the second scan, and found out that the TMJ is the most commonly involved joint in autoimmune disease of the intestines, and if mutliple joints are effected, it is usually the first one effected. This makes complete sense, since the TMJ is the most closely related joint to the intestines, and literally controls the opening that allows food passage into your intestines. I am here to tell you, that if anyone says there is no potential relationship between TMJ issues and celiac disease, they are absolutely wrong. Just google TMJ and Celiac disease, and read the scientific articles you find. Research on issues regarding the TMJ is relatively sparse, but you will find the association you're looking for validated.
    • trents
      Welcome to the forum, @SuzanneL! Which tTG was that? tTG-IGA? tTG-IGG? Were there other celiac antibody tests run from that blood draw? Was total IGA measured? By some chance were you already cutting back on gluten by the time the blood draw was taken or just not eating much? For the celiac antibody tests to be accurate a person needs to be eating about 10g of gluten daily which is about 4-6 pieces of bread.
    • SuzanneL
      I've recently received a weak positive tTG, 6. For about six years, I've been sick almost everyday. I was told it was just my IBS. I have constant nausea. Sometimes after I eat, I have sharp, upper pain in my abdomen. I sometimes feel or vomit (bile) after eating. The doctor wanted me to try a stronger anti acid before doing an endoscopy. I'm just curious if these symptoms are pointing towards Celiac Disease? 
×
×
  • Create New...